scholarly journals CALIDAD DE VIDA DE LOS CUIDADORES DE PERSONAS CON ENFERMEDAD DE ALZHEIMER: REVISIÓN INTEGRATIVA.

2021 ◽  
Vol 6 (5) ◽  
pp. 37
Author(s):  
Rosa Herminia Pastuña Doicela
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Alzheimer Disease ◽  
Research Question ◽  
Exclusion Criteria ◽  
Calidad De Vida ◽  
Palabras Clave ◽  
Wear And Tear

Introducción: En la actualidad un gran número de adultos mayores es vulnerable a enfermedades crónicas y otras afecciones como la enfermedad de Alzheimer, por lo que el cuidado de estas personas representa un desafío. Objetivo: Analizar la calidad de vida de los cuidadores de personas con la enfermedad de Alzheimer. Métodos: Se realizó una revisión integrativa de la literatura científica, con una pregunta de investigación con el PICO: ¿Cuál es la Calidad de Vida de los cuidadores de personas con enfermedad de Alzheimer?, posteriormente se inició la búsqueda de artículos científicos en las siguientes bases de datos: Pub Med; Wef of Science (WOS); Bvs; SciELO y Scopus. Utilizando los siguientes DeCS: “Quality of life”, “Caregivers” y “Alzheimer Disease”, identificados inicialmente 343 artículos, de los cuales 15 fueron elegibles y 7 fueron seleccionados porque cumplieron con los criterios de inclusión y exclusión. Resultados: El cuidado de la persona con enfermedad de Alzheimer recae mayormente en las familias. La mayor parte de cuidadoras/es son mujeres, el cuidado es integral, continuo, con desgaste físico y psicológico, estos factores afectan negativamente en su calidad de vida y compromete su salud. Conclusiones: La calidad de vida del cuidador de personas con enfermedad de Alzheimer se ve comprometida, debido al aparecimiento de afecciones físicas, psicológicas, sociales y económicas, derivadas por el desgaste y la sobrecarga. Palabras clave: calidad de vida; cuidadores; enfermedad de Alzheimer; Atención de Enfermería   ABSTRACT Introduction: The new demographic transition because of the phenomenon of globalization has generated improvements in health care. Despite this, today a large number of older adults are vulnerable to chronic diseases and other conditions such as Alzheimer's disease, so caring for these people represents a challenge for their caregivers. Objective: Analyze the quality of life of caregivers of people with Alzheimer's disease. Methods: An integrative review of the scientific literature was carried out, for the formulation of the research question, the PICO format was used: What is the Quality of Life of caregivers of people with Alzheimer's disease? Subsequently, the search for scientific articles was started in the following databases: Pub Med; Wef of Science (WOS); Bvs; SciELO and Scopus. Using the following DeCS: "Quality of life", "Caregivers" and "Alzheimer Disease", associated with the Boolean operator "AND". 343 articles were initially identified, of which 15 were eligible and 7 were selected because they met the inclusion and exclusion criteria. Results: The care of the person with Alzheimer's disease falls mostly in families. The majority of caregivers are women, the care is integral, continuous, with physical and psychological wear, and these factors negatively affect their quality of life and compromise their health. Conclusions: The quality of life of the caregiver of people with Alzheimer's disease is compromised, due to the appearance of physical, psychological, social and economic conditions, derived from wear and tear and overload. Therefore, making the needs and problems derived from their visible role can contribute significantly to the development of comprehensive care interventions in this vulnerable population   Keywords: quality of life; caregivers; Alzheimer disease; Nursing care

scholarly journals Women with high level of education, victims of the care of people with Alzheimer's

2020 ◽  
Vol 19 (2) ◽  
pp. 390-420
Author(s):  
Patricia Luque-Carrillo ◽  
Ignacio Morales-Cané ◽  
Juan Manuel Carmona-Torres ◽  
Roberto Manfredini ◽  
Mª Aurora Rodríguez Borrego ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Calidad De Vida ◽  
Academic Level ◽  
Las Mujeres ◽  
High Level ◽  
Social Loneliness

Objetivo: Conocer la relación existente entre la tarea de cuidar a pacientes con Enfermedad de Alzheimer, el Género de los cuidadores y su nivel de formación académica. Método: Estudio descriptivo, como sujetos de estudio 69 personas diagnosticadas de Enfermedad de Alzheimer y sus respectivos cuidadores familiares. En los cuidadores se analizó: la edad, el género, el nivel de estudios, carga, depresión, nivel de ansiedad, calidad de vida y soledad social. En los pacientes se valoró la edad, género, nivel de dependencia y estado neuropsicológico. La recogida de datos se realizó en 2016. Entre otros análisis se realizó análisis de regresión logística.Resultados: Se obtuvo que los cuidadores con estudios superiores sufrían mayor carga, siendo mujeres en su mayoría. Mujeres con más probabilidad de presentar soledad social, altos niveles de ansiedad y peor calidad de vida que los hombres. La carga puede ser debida al gran número de responsabilidades y a la imposibilidad de combinarlas con el papel de cuidador. Se puede concluir que las mujeres llegan a ser víctimas del cuidado de personas con Enfermedad de Alzheimer. The aim of this job is to know the existing relationship between the task of caring patients with Alzheimer's disease, caregivers' gender and their level of academic studies. Descriptive study, 69 persons diagnosed with Alzheimer’s disease and their respective familiar caregivers as subjects of the study. Age, gender, academic level, burden, depression, anxiety level, quality of life and social loneliness have been measured in caregivers. Age, gender, dependency level and neuropsychological state have been measured in patients. Data collection was done in 2016. Logistic regression analysis was performed. Caregivers with high levels of academic studies suffer more burden, being women in their majority. They are more likely to present social loneliness and higher levels of anxiety and a worse quality of life than men. The burden may be due to a greater number of responsibilities to respond to, and to the inability to combine it with the role of caregiver. We can conclude that women become victims of caring Alzheimer' patients.

scholarly journals Investigation of the Factors Affecting Quality of Life in Patients with Mild to Moderate Alzheimer's Disease: A Cross-Sectional Study from Turkey

2021 ◽  
Author(s):  
Elvan Felekoğlu ◽  
Sevgi ÖZALEVLİ ◽  
Hazal YAKUT ◽  
Rıdvan AKTAN ◽  
Görsev YENER
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Alzheimer Disease ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Cross Sectional ◽  
Self Rating ◽  
Proxy Rating

Abstract Background Like other chronic diseases with limited medical treatment, the most important goal of Alzheimer’s disease rehabilitation is to provide a better quality of life. The purpose of this study was to investigate the factors affecting the quality of life of the patients with Alzheimer's Disease (according to parts of the Quality of Life in Alzheimer’ Disease Questionnaire: patient, proxy and total score). Methods In this cross-sectional study, 73 home-dwelling patients with Alzheimer's Disease and their caregivers were recruited. Cognition, depression and Quality of Life in Alzheimer’ Disease -self rating were asked to the patient. The caregiver was asked about patient’s sociodemographic information, sleepiness, activities of daily living and Quality of Life in Alzheimer’ Disease -proxy rating. Results The Quality of Life in Alzheimer’ Disease -self rating were higher than the Quality of Life in Alzheimer’ Disease -proxy rating. Cognition (p = 0.02), sleepiness (p < 0.01) and depression (p = 0.03) were correlated with the Quality of Life in Alzheimer’ Disease -self rating, while the independence level of the patient in activities of daily living was correlated to the Quality of Life in Alzheimer’ Disease -proxy rating (p < 0.05). Predicting quality of life according to linear regression analysis those were statistically significant in respectively; depression is for Quality of Life in Alzheimer’ Disease, depression and cognition were for Quality of Life in Alzheimer’ Disease -self rating and instrumental activities of daily living was for QoL-AD-PR (p < 0.01). Conclusion While subjective situations such as psychology is important for the patients with Alzheimer's Disease, objective conditions such as the independence of the patient’s in daily life activities are important for the caregiver. While evaluating the quality of life, both the evaluations of the patients with Alzheimer's Disease and the caregiver should be applied, because different things are prioritized by them and priorities of both should be taken into account when planning the treatment program.

Validación de la escala Quality of Life in Alzheimer’s Disease (QOL-AD) en pacientes mexicanos con demencia tipo Alzheimer, vascular y mixta

2010 ◽  
Vol 51 (02) ◽  
pp. 72 ◽  
Author(s):  
Oscar Rosas Carrasco ◽  
Laura del Pilar Torres Arreola ◽  
María de Guadalupe Guerra Silla ◽  
Sara Torres Castro ◽  
Luis Miguel Gutiérrez Robledo
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease

Assessing Alzheimer's disease patients' quality of life: Discrepancies between patient and caregiver perspectives

2015 ◽  
Vol 12 (4) ◽  
pp. 427-437 ◽  
Author(s):  
Sandrine Andrieu ◽  
Nicola Coley ◽  
Yves Rolland ◽  
Christelle Cantet ◽  
Catherine Arnaud ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease

CLINICAL AND COST-EFFECTIVENESS OF DONEPEZIL, RIVASTIGMINE, AND GALANTAMINE FOR ALZHEIMER'S DISEASE

2002 ◽  
Vol 18 (3) ◽  
pp. 497-507 ◽  
Author(s):  
Andrew Clegg ◽  
Jackie Bryant ◽  
Tricia Nicholson ◽  
Linda McIntyre ◽  
Sofie De Broe ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Cost Effectiveness ◽  
Global Health ◽  
Cochrane Library ◽  
The Impact ◽  
Health Cognition ◽  
Economic Studies

Objectives: Systematic review of the clinical and cost-effectiveness of donepezil, rivastigmine, and galantamine for people suffering from Alzheimer's disease.Methods: Sixteen electronic databases (including MEDLINE, the Cochrane Library, and Embase) and bibliographies of related papers were searched for published/unpublished English language studies, and experts and pharmaceutical companies were consulted for additional information. Randomized controlled trials (RCTs) and economic studies were selected. Clinical effectiveness was assessed on measurement scales assessing progression of Alzheimer's disease on the person's global health, cognition, functional ability, behavior and mood, and quality of life. Cost-effectiveness was presented as incremental cost per year spent in a nonsevere state (by Mini Mental Health State Examination) or quality-adjusted life-year.Results: Twelve of 15 RCTs included were judged to be of good quality. Although donepezil had beneficial effects in Alzheimer's patients on global health and cognition, rivastigmine on global health, and galantamine on global health, cognition, and functional scales, these improvements were small and may not be clinically significant. Measures of quality of life and behavior and mood were rarely assessed. Adverse effects were usually mild and transient. Cost-effectiveness base case estimates ranged from £2,415 savings to £49,476 additional cost (1997 prices) per unit of effect for donepezil and a small savings for rivastigmine. Estimates were not considered robust or generalizable.Conclusions: Donepezil, rivastigmine, and galantamine appear to have some clinical effect for people with Alzheimer's disease, although the extent to which these translate into real differences in everyday life remains unclear. Due to the nature of current economic studies, cost-effectiveness remains uncertain and the impact on different care sectors has been inadequately investigated. Further research is needed to establish the actual benefits of acetylcholinesterase inhibitors (AChEls) for people with Alzheimer's disease and their caregivers, the relationship of these changes to clinical management, and careful prospective evaluation of resource and budgetary consequences.

Sign in / Sign up

Export Citation Format

Share Document