scholarly journals Quality Of Life And Coping In Parents Raising Children With Duchenne Muscular Dystrophy (DMD) In Nepal

2020 ◽  
Vol 9 (2) ◽  
pp. 30-41
Author(s):  
M Rana ◽  
R Prajapati ◽  
J Chaudhari ◽  
B Gautam ◽  
B Gurung
Keyword(s):  
Quality Of Life ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Coping Strategies ◽  
Psychological Health ◽  
World Health ◽  
Life Questionnaire ◽  
Raising Children ◽  
And Coping

Introduction: Quality of Life (QoL) and Coping are important components of mental health, especially important to parents raising children with Duchenne Muscular Dystrophy (DMD). Children with DMD face difficulties due to their disability and create special challenges for parents. Material And Method: The study aimed to assess QoL, demographic variables and coping strategies of parents raising children with DMD in Nepal. A descriptive cross-sectional design was adopted to collect data from 32 parents (mothers = 15, 47%; fathers =17, 53%) through purposive sampling. Socio-demographic pro-forma, World Health Organization's Quality of Life Questionnaire-BREF (WHOQOL-BREF) and Brief COPE Inventory were assessed. Results: The results revealed parents scores were below cutoff <60, indicating probable poor quality of life. QOL was moderately positively correlated with coping strategies and highly positively correlated with emotion-focused coping. There were significant differences in psychological health of parents in reference to their occupation, and in reference to their hospital born children. Parents in government job had better psychological health and parents into private business significantly used emotion-focused coping. Mutual caregivers had significantly better psychological health. Parents without health related problems significantly adopted problem focused coping and emotion focused coping. Conclusion: These findings will help stakeholders to understand DMD children and their impact on QOL and coping of parents and will facilitate to develop appropriate psychosocial intervention programs for the parents for the effective management of their children and their psycho-social wellbeing.

scholarly journals Evaluation tools for quality life improvements for patients with Duchenne Muscular Dystrophy: a systematic review

2020 ◽  
Vol 9 (9) ◽  
pp. e491997397
Author(s):  
Andréa Victória Oliveira Santos ◽  
Lorenna Emília Sena Lopes ◽  
Iani Miranda Pinto ◽  
Stefane dos Santos ◽  
Luiz Eduardo Oliveira de Almeida ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Assessment Tools ◽  
World Health ◽  
Life Questionnaire ◽  
World Health Organization Quality ◽  
Quality Life

Introduction: Duchenne Muscular Dystrophy (DMD) is characterized by membrane dissociation, resulting in the breakdown of the musculoskeletal fiber. Objective:  to identify the assessment tools used to measure the quality of life in patients with DMD. Methodology: A systematic review of articles published from 2007 to 2017 on QOL assessment tools in patients with DMD was conducted in the SciELO, PubMED and LILACS databases. Results: 6 articles met the inclusion criteria, using the QOL assessment tools; Life Satisfaction Index for Adolescents; Quality of Life Evaluation Scale; Medical Outcomes Study 36; World Health Organization Quality of Life Instrument; Health Related Quality of Life Questionnaire for Children and Young People and their Parents e Pediatric Quality of Life Inventory. Conclusions: the tools for the evaluation of quality of life in patients with Duchenne Muscular Dystrophy (DMD) are essentials to determinate and to present an effective treatment focused on patient’s priorities and their main difficulties. However the lack of a validated scale specifically focused on this diagnostic interferes in the real score of those patients quality of life.

scholarly journals Relationship Between Quality of Life and Fear of COVID-19 in Patients With Myocardial Infarction (Case Study: Shahid Madani Cardiac Hospital, Tabriz, Iran)

2021 ◽  
Author(s):  
Fatemeh Golabi ◽  
Mohammad Bagher Alizadeh Aghdam ◽  
Mir Mojtaba Hosseini Mazraehshadi ◽  
Hamed Akbarian
Keyword(s):  
Quality Of Life ◽  
Myocardial Infarction ◽  
Psychological Health ◽  
World Health ◽  
Life Questionnaire ◽  
Related Factors ◽  
World Health Organization Quality ◽  
Effective Role ◽  
Health Organization

Abstract Background: Quality of life is one of the most important concepts in the fields of health and development, and the study of its related factors can play an effective role in strengthening the quality of life. COVID-19 is one of the emerging crises in the world, and fear of it can affect the quality of life of people.Purpose: The purpose of this study was to investigate the relationship between quality of life and fear of COVID-19 in patients with myocardial infarction.Methods: In this study, we administered WHOQOL-BREF (World Health Organization quality of life questionnaire) and the Fear of COVID-19 Scale (FCV-19S) to 200 patients with myocardial infarction admitted to the hospital from February to April 2021. Then, we calculated the correlation between the quality of life and fear of COVID-19.Results: The results of this study showed a moderate to high score in all domains of QoL and overall QoL among patients. The mean score of fear of COVID-19 was lower than average level. The research revealed that there was a negative correlation between fear of COVID-19 and physical health, environmental health, and overall quality of life (p < 0.05), but there was not a significant relationship between fear of coronavirus and psychological health and social relationships (p > 0.05). Furthermore, there were significant correlations between quality of life and sociodemographic variables including gender, age, marital status, and level of education. So that, female, widow(er), uneducated, and older patients had a lower quality of life.Conclusions: Since the quality of life is one of the main indicators of health, managers must take strategies to improve the quality of life of people, especially patients. One of the measures that they can take is to reduce the fear of COVID-19 among patients by taking wise strategies.

Associations of self-neglect with quality of life in older people in rural China: a cross-sectional study

2017 ◽  
Vol 29 (6) ◽  
pp. 1015-1026 ◽  
Author(s):  
YuanYuan Zhao ◽  
CaiYun Hu ◽  
Fang Feng ◽  
Fengfeng Gong ◽  
ShanShan Lu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Psychological Health ◽  
Rural China ◽  
Cross Sectional Study ◽  
World Health ◽  
Life Questionnaire ◽  
Sectional Study ◽  
Cross Sectional

ABSTRACTBackground:Elder self-neglect (ESN) has become a public health issue globally. Limited studies have focused on ESN, as well as the relationship between ESN and quality of life (QoL) in developing countries. The study's objective is to explore the association between ESN and QoL among rural elderly in China.Methods:A cross-sectional study was conducted among 3,182 elder adults aged 60 years or older, using a cluster-sampling technique in one township in Dangtu, a county in Anhui province. All participants completed face-to-face interview in their household. QoL was assessed using a brief form of the World Health Organization's quality of life questionnaire (WHOQOL-BREF), and ESN was assessed using the Scale of the Elderly Self-neglect (SESN). Hierarchical linear regression models were used to analyze the associations between the ESN scores and QoL scores after adjusting for sociodemographic, social support, and physical and psychological variables.Results:The scores of overall ESN and five domains were significantly correlated with the scores of four QoL domains (p < 0.001). After adjusting for sociodemographic characteristics, social support, and physical and psychological health characteristics, elders who reported higher overall self-neglect scores had significantly lower scores in the four QoL domains (p < 0.001). Education, economic level, physical health, ADL, depression, and cognitive function are consistent predictors across all QoL domains.Conclusions:ESN is an independent risk factor for poor QoL in elderly people in rural China. Understanding the role of ESN and its influence on QoL is important for the management of and intervention in ESN.

scholarly journals Is functional dependence of Duchenne muscular dystrophy patients determinant of the quality of life and burden of their caregivers?

2015 ◽  
Vol 73 (1) ◽  
pp. 52-57 ◽  
Author(s):  
Maria Clara Drummond Soares de Moura ◽  
Hanna Camila Wutzki ◽  
Mariana Callil Voos ◽  
Maria Bernadete Dutra Resende ◽  
Umbertina Conti Reed ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Functional Dependence ◽  
World Health ◽  
World Health Organization Quality ◽  
Patients Âgés ◽  
Organization Quality ◽  
Health Organization

ObjectiveThe relationship between functional dependence and quality of life (QOL) in Duchenne muscular dystrophy (DMD) patients and burden and QOL in caregivers is not clear. This study investigated possible relationships between functional dependence/QOL of DMD patients and QOL/burden of caregivers.MethodThis study included 35 boys (6-17 years) and respective caregivers (above 21 years). Caregivers answered to World Health Organization Quality of Life and Zarit Burden Interview questionnaires. Patients were assessed with the Motor Function Measure and the Autoquestionnaire Qualité de vie Enfant Imagé. Spearman correlations and linear regressions were run to investigate relationships between the variables.ResultsThe occurrence of lower QOL and higher burden among the caregivers of patients with Duchenne muscular dystrophy was evidenced. The functional dependence of patients was not considered a determinant factor. Higher caregivers’ burden was related to lower caregivers’ QOL and to higher patients’ ages.

scholarly journals HEALTH-RELATED QUALITY OF LIFE (HR-QOL) IN DIABETIC PATIENTS OF TYPE 2 IN GAZA, PALESTINE

2019 ◽  
Vol 1 (2) ◽  
pp. 63-69
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
World Health ◽  
Diabetic Patients ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
World Health Organization Quality ◽  
Related Quality ◽  
Health Related

Introduction: Diabetes mellitus is a multifactorial disease caused by deficiency in insulin secretion, insulin action, or both. Poor quality of life contributes to decreased personal care, which in turn contributes to worsening glycemia control, enhanced risk of diabetic complications. This study aimed to determine the health-related quality of life (HRQOL) for diabetics as compared to gender-age matched control living in southern Gaza, Palestine. Methods: This study was a case-control. About 100 DM patients and age-sex matched 100 controls were randomly selected from the department of internal medicine at the Nasser Medical Complex in Khanyunis Governorate and the community. The World Health Organization Quality of Life Questionnaire – short version (WHOQOL-BREF) was used to evaluate the quality of life among the study population. Results: Those with diabetics, the HRQOL was significantly lesser than for controls in all domains with the largest differences in the environmental domains (difference of 5 points) and tinier differences in physical health, psychological health & social relationships (2, 3 and 3 points difference) (<0.001 for all). Low ratings in the field of social relations in both groups with tiny differences between them have been registered (3 points). Furthermore, there were no differences in mean of scores for all domains according to gender. Conclusion: The study population's total HRQOL (diabetics and controls) was poor. Health program must be developed to encourage improve dietary habits, healthier lifestyle, promote exercise, discourage smoking, avoid complications of diabetes and appropriately handle chronic diseases.

scholarly journals IMPACT OF ILLNESS PERCEPTION AND COPING STRATEGIES ON QUALITY OF LIFE AMONG MIGRAINEURS

2021 ◽  
Vol 71 (4) ◽  
pp. 1227-30
Author(s):  
Humaira Bibi ◽  
Summaira Naz ◽  
Mussarat Jabeen Khan
Keyword(s):  
Quality Of Life ◽  
Coping Strategies ◽  
Active Avoidance ◽  
Illness Perception ◽  
World Health ◽  
Avoidance Coping ◽  
Positive Coping ◽  
And Coping ◽  
The Impact

Objectives: To find out the impact of illness perception and coping strategies on quality of life among migraineurs. Study Design: Correlational study. Place and Duration of Study: The sample was selected from different hospitals of Hazara Division, from Mar to Jul 2018. Methodology: The sample of 300 migraineurs with age range 18-55 years was selected from hospitals of Hazara Division through purposive sampling technique. Brief illness perception questionnaire, The World Health Organization Quality of Life Scale (WHOQOL-BREF) and brief cope scale were used for data collection. Results: Illness perception significantly predicted (p=0.002) quality of life in positive direction. The results also explored that positive coping (p≤0.001) and problem focused coping strategies (p=0.002) predict quality of life significantly positively; whereas active avoidance coping strategies (p≤0.001) significantly negative predict quality of life; while religious denial coping was non-significant predictor of quality of life. Conclusion: Illness perception has significant negative relationship with quality of life, problem-focus coping (PFC), and positive coping (PC). Illness perception has significant positive relationship with religious denial coping (RDC) and active avoidance coping (AAC).

Satisfaction With Economic and Social Rights and Quality of Life in a Post-Disaster Zone in China: Evidence From Earthquake-Prone Sichuan

2015 ◽  
Vol 9 (2) ◽  
pp. 111-118 ◽  
Author(s):  
Ying Liang
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
World Health ◽  
Social Rights ◽  
Life Questionnaire ◽  
World Health Organization Quality ◽  
Right To Food ◽  
The Right ◽  
Post Disaster

ABSTRACTObjectiveThis study explored the influence of satisfaction with economic and social rights (ESR) on the quality of life (QOL) of people in post-disaster zones in Sichuan, China.MethodsData from a survey conducted in 2013 in the 5 hardest hit counties in the earthquake-prone area of Sichuan were used. QOL was measured by use of the brief version of the World Health Organization Quality of Life questionnaire (WHOQOL-BREF). Structural equation models were developed to determine the specific features of the influence of satisfaction with ESR on QOL.ResultsThe mean values of both the WHOQOL-BREF scale and the ESR satisfaction scale were lower than the midpoint of the scales. Satisfaction with ESR had a significant effect on psychological health, social relationships, and environment, apart from physical health. Satisfaction with the right to food had the greatest effect on QOL, followed by the rights to education, work, health, social security, and housing.ConclusionsSatisfaction with ESR had a significant positive influence on the QOL of people in a post-disaster zone, particularly satisfaction with the right to food. Policies on food and education guarantees and mental health intervention are highlighted. (Disaster Med Public Health Preparedness. 2015;9:111-118)

Alexithyme Patientenmerkmale und Lebensqualität – Eine Querschnittsstudie an 79 ambulanten Patienten mit Angststörungen

2013 ◽  
Vol 61 (1) ◽  
pp. 17-26 ◽  
Author(s):  
Katrin Leenen ◽  
Michael Rufer ◽  
Hanspeter Moergeli ◽  
Hans-Jörgen Grabe ◽  
Josef Jenewein ◽  
...  
Keyword(s):  
Quality Of Life ◽  
World Health ◽  
Life Questionnaire ◽  
World Health Organization Quality ◽  
Fand Sich ◽  
Quality Of Life Questionnaire ◽  
Organization Quality ◽  
Health Organization ◽  
Tas 20

Aus Untersuchungen in der Normalbevölkerung ist bekannt, dass Menschen mit erhöhten Alexithymiewerten eine verminderte Lebensqualität (LQ) aufweisen. Für Patienten mit psychischen Störungen wurde dieser Zusammenhang jedoch kaum untersucht. Ziel dieser Studie war es, den möglichen Zusammenhang zwischen alexithymen Patientenmerkmalen und der LQ bei Patienten mit Angststörungen zu überprüfen. Bei 79 ambulanten Patienten mit Angststörungen wurden alexithyme Charakteristika mit der Toronto Alexithymia Scale (TAS-20), die LQ mit der Kurzversion des World Health Organization Quality of Life Questionnaire 100 (WHOQOL-BREF) erfasst. Darüber hinaus fand eine Erhebung der psychischen Symptombelastung (SCL-90-R) und depressiven Symptomatik (MADRS) statt. Mittels hierarchischer Regressionsanalysen wurde der Zusammenhang zwischen der alexithymen Charakteristika und den unterschiedlichen LQ-Domänen berechnet. Die Patienten zeigten eine im Vergleich zur Normalbevölkerung deutlich verminderte LQ. Als Hauptergebnis fand sich, auch nach Kontrolle von Depression, Ängstlichkeit und Geschlecht, ein signifikanter Zusammenhang zwischen den beiden TAS-20 Subskalen Schwierigkeiten, Gefühle zu identifizieren und zu beschreiben und vor allem der psychischen LQ. Unsere Ergebnisse sprechen dafür, bei der Diagnostik und Therapieplanung von Patienten mit Angststörungen alexithyme Merkmale einzubeziehen. Im Falle von ausgeprägten alexithymen Merkmalen sollten psychotherapeutische Interventionen zur Verbesserung der Schwierigkeiten Gefühle wahrzunehmen und zu kommunizieren in Betracht gezogen werden.

Cathartic Effect of Suicide Attempts Not Limited to Depression

Crisis ◽  
2003 ◽  
Vol 24 (2) ◽  
pp. 73-78 ◽  
Author(s):  
Yves Sarfati ◽  
Blandine Bouchaud ◽  
Marie-Christine Hardy-Baylé
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Personality Traits ◽  
Rating Scales ◽  
Suicide Attempts ◽  
World Health ◽  
Life Questionnaire ◽  
Short Term

Summary: The cathartic effect of suicide is traditionally defined as the existence of a rapid, significant, and spontaneous decrease in the depressive symptoms of suicide attempters after the act. This study was designed to investigate short-term variations, following a suicide attempt by self-poisoning, of a number of other variables identified as suicidal risk factors: hopelessness, impulsivity, personality traits, and quality of life. Patients hospitalized less than 24 hours after a deliberate (moderate) overdose were presented with the Montgomery-Asberg Depression and Impulsivity Rating Scales, Hopelessness scale, MMPI and World Health Organization's Quality of Life questionnaire (abbreviated versions). They were also asked to complete the same scales and questionnaires 8 days after discharge. The study involved 39 patients, the average interval between initial and follow-up assessment being 13.5 days. All the scores improved significantly, with the exception of quality of life and three out of the eight personality traits. This finding emphasizes the fact that improvement is not limited to depressive symptoms and enables us to identify the relative importance of each studied variable as a risk factor for attempted suicide. The limitations of the study are discussed as well as in particular the nongeneralizability of the sample and setting.

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