Cushing's disease and its impact on quality of life as seen through patients' eyes: a narrative qualitative study

2020 ◽  
pp. 141-157
Author(s):  
Guendalina Graffigna ◽  
Caterina Bosio ◽  
Isabella Cecchini
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Negative Impact ◽  
Clinical Success ◽  
Cushing Disease ◽  
Daily Lives ◽  
Face To Face ◽  
Met Needs ◽  
And Coping

Cushing disease (CD) is a rare and highly debilitating pathology. Its impact on quality of life is significant and the disease puts serious limitations on patients' daily lives. While clinical success in the treatment of CD is measured in terms of hypercortisolism remission, it is important to remember that this should coincide with an improvement in patients' psy-chological resilience and quality of life. The present qualitative study aims to reconstruct the psychological journey the patients embark on in living with the disease and its treatment. This study was designed according to the qualitative method of Narrative Inquiry. The pa-tients enrolled were required to keep a one-week diary on living and coping with the dis-ease. The diaries were designed to elicit the free expression of patients. After filling in their diaries for a week, patients were then interviewed face-to-face in order to deeply investigate insights emerged from the diaries' stories. The study involved 12 CD patients. This study gives emotional images of how patients react and try to give meaning to their CD diagnosis and their disease. Particularly, according to patients' narratives, the several physical symp-toms of CD have a tremendously negative impact on patients' self-image and contribute to psychologically deteriorate their self-esteem and confidence. This study not only confirm previous research regarding the deep impact of CD symptoms on everyday life of patients, but they also open interesting perspectives on the psychological representations of patients regarding their symptoms and on their un met needs.

scholarly journals Effects of “the Selected Smartphone Social-Messaging Applications” Training on Iranian Elderly’s Quality of Life: Results of a Qualitative Study

2021 ◽  
Vol 15 (07) ◽  
pp. 154
Author(s):  
Seyed Ebrahim Hosseini ◽  
Stuart Charters ◽  
Patricia Anthony ◽  
Abdulsalam Alhazmi
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Health Centers ◽  
Educational Training ◽  
Local Public Health ◽  
Face To Face ◽  
Open Coding ◽  
And Control ◽  
Social Messaging

This qualitative study aimed to investigate the effects of using smartphone’s communication apps on Quality of Life (QoL) of elderly people living in Shiraz-Iran. The population of the study was all the senior residents registered with local public health centers located in Shiraz, Fars, Iran in 2018-2019. Overall, 20 participants volunteered to join the study, from the intervention and control groups (10 in each). Data were collected via semi-structured face to face interviews and analyzed using open-coding. The findings of this study and the educational training are intended to help families, practitioners in the aging field to pay more attention to teaching modern communication technology in order to promote healthier elderly and community.

scholarly journals Health-related impact on quality of life and coping strategies for chikungunya: A qualitative study in Curaçao

2017 ◽  
Vol 11 (10) ◽  
pp. e0005987 ◽  
Author(s):  
Jelte Elsinga ◽  
Martin P. Grobusch ◽  
Adriana Tami ◽  
Izzy Gerstenbluth ◽  
Ajay Bailey
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Health Related ◽  
And Coping

scholarly journals A Qualitative Study Exploring Perceptions of Patients With Gout

2018 ◽  
Vol 29 (1) ◽  
pp. 56-65 ◽  
Author(s):  
Li Ling Seow ◽  
Nana Jiao ◽  
Wenru Wang ◽  
Eleanor Holroyd ◽  
Gim Gee Teng ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Support Groups ◽  
Thematic Analysis ◽  
Public Awareness ◽  
Well Being ◽  
Emotional Experiences ◽  
Daily Lives ◽  
External Resources ◽  
Face To Face ◽  
And Coping

Gout is a chronic disease that is on a rising trend and greatly affects one’s physical and psychosocial well-being. The aim of this study was to explore patients’ perceptions of living with gout. A descriptive qualitative study was conducted and 15 adults with gout were interviewed face-to-face between December 2014 and January 2015. Thematic analysis was used to analyze the transcribed data. The experiences of patients with gout were found to revolve around four themes: emotional experiences with gout, disruptions in daily lives, interactions with doctor, and coping with gout using internal and external resources. The in-depth understanding of the patients’ experiences indicates a need to provide holistic patient education and to involve family members to create nurse-led support groups and to raise public awareness regarding gout.

scholarly journals Quality of life and coping strategies among immigrant women living with pain in Denmark: a qualitative study

BMJ Open ◽  
2015 ◽  
Vol 5 (7) ◽  
pp. e008075 ◽  
Author(s):  
Camilla Michaëlis ◽  
Maria Kristiansen ◽  
Marie Norredam
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Immigrant Women ◽  
And Coping

scholarly journals Questionnaire-based evaluation of satisfaction levels in patients receiving chemotherapy through implanted venous access ports

2020 ◽  
Vol 7 (6) ◽  
pp. 509-514
Author(s):  
Nilgün Yıldırım ◽  
Mahir Cengiz ◽  
Erhan Önalan ◽  
Sibel Özcan ◽  
Azmi Lale
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Venous Access ◽  
Port Catheter ◽  
Face To Face ◽  
Significant Difference ◽  
A Minor ◽  
Implantation Procedure

Objective: This study aimed to evaluate the effect of totally implanted venous access ports on the quality of life and patient satisfaction of cancer patients. Materials and Methods: The study was comprised of patients who underwent implantation of a central venous port catheter (CVPC) for chemotherapy treatment at our hospital’s oncology department and continued with follow-up and treatment. The researchers conducted face-to-face interviews with the participants in which the latter responded to 15 questions concerning the effects of the port catheter on daily quality of life and satisfaction with the implantation procedure. Results: A total of 260 patients participated in the study. Port-related complications were observed in 54 patients (20.7%), the most common being catheter occlusion. Participants expressed high levels of satisfaction and stated that the CVPC had a positive effect on their quality of life. Overall satisfaction and quality of life were significantly different for patients who experienced complications compared to those without, however, with the former reporting decreased satisfaction and increased stress and anxiety levels. Nevertheless, there was no significant difference between the patients who developed complications and those who did not concern their response to the statement: “Faced with a similar situation requiring a port catheter, I would make the same decision" (54.5% versus 52%, p = .188). Conclusion: Most patients reported overall satisfaction with the CVPC system while noting a minor negative impact on daily life. Complications related to the implantation procedure have statistically been shown to be a predictor of satisfaction and quality of life.

Delayed Nausea and Vomiting Continue to Reduce Patients' Quality of Life After Highly and Moderately Emetogenic Chemotherapy Despite Antiemetic Treatment

2006 ◽  
Vol 24 (27) ◽  
pp. 4472-4478 ◽  
Author(s):  
Brigitte Bloechl-Daum ◽  
Robert R. Deuson ◽  
Panagiotis Mavros ◽  
Mogens Hansen ◽  
Jørn Herrstedt
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Emetogenic Chemotherapy ◽  
Nausea And Vomiting ◽  
Moderately Emetogenic Chemotherapy ◽  
Daily Lives ◽  
Delayed Nausea ◽  
Delayed Cinv ◽  
The Impact

PurposeChemotherapy-induced nausea and vomiting (CINV) are major adverse effects of cancer chemotherapy. We compared the impact of acute (during the first 24 hours postchemotherapy) and delayed (days 2 through 5 postchemotherapy) CINV on patients' quality of life (QoL) after highly or moderately emetogenic chemotherapy (HEC and MEC, respectively).Patients and MethodsThis prospective, multicenter, multinational study was conducted in 14 medical practices on cancer patients undergoing either HEC or MEC treatment. Patients recorded episodes of nausea and vomiting in a diary. Patients completed the Functional Living Index-Emesis (FLIE) questionnaire at baseline and on day 6.ResultsA total of 298 patients were assessable (67 HEC patients, 231 MEC patients). Emesis was reported by 36.4% of patients (13.2% acute, 32.5% delayed) and nausea by 59.7% (36.2% acute, 54.3% delayed). HEC patients reported significantly lower mean FLIE total score than MEC patients (95.5 v 107.8 respectively; P = .0049). Among all patients, the nausea score was significantly lower than the vomiting score (50.0 and 55.3, respectively; P = .0097). Of the 173 patients who experienced neither vomiting nor nausea during the first 24 hours postchemotherapy, 22.9% reported an impact of CINV on daily life caused by delayed CINV.ConclusionCINV continues to adversely affect patients' QoL despite antiemetic therapy even after treatment with only moderately emetogenic chemotherapy regimens, and even in the subgroup of patients who do not experience nausea and vomiting during the first 24 hours. On the basis of the FLIE results in this study, nausea had a stronger negative impact on patients' daily lives than vomiting.

Breathlessness in everyday life from a patient perspective: A qualitative study using diaries

2013 ◽  
Vol 12 (3) ◽  
pp. 189-194 ◽  
Author(s):  
Nasser S. Ahmadi ◽  
Jörgen Månsson ◽  
Ulf Lindblad ◽  
Cathrine Hildingh
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Everyday Life ◽  
Social Life ◽  
Biopsychosocial Model ◽  
Leisure Activities ◽  
Subjective Symptom ◽  
And Coping ◽  
Impaired Quality

AbstractObjective:Breathlessness is a subjective symptom, which makes it difficult to define and understand. The aim of the present study was to illuminate how patients suffering from breathlessness experience their everyday life.Method:The study was a qualitative study, and the focus of the analysis was the patients' descriptions of their experiences of breathlessness using a diary with two unstructured questions for a period of 7 consecutive days. Sixteen participants: 7 men, mean age 65 ± 7 (range 55–73 years old), and 9 women, mean age 65 ± 9 (range 50–72 years old) participated in the study.Results:Two themes emerged from the analysis: 1) Impaired quality of life and 2) symptom tolerance and adaptation. The theme “impaired quality of life” included the categories limited physical ability, psychological burdens, and social life barriers. The theme “symptom tolerance and adaptation” included importance of health care, social support, hobbies and leisure activities, and coping strategies.Significance of results:The findings in our study showed that patients, in spite of considerable difficulties with shortness of breath, found relief in several types of activities, in addition to drug therapy. The result indicates that the “biopsychosocial model” is an appealing approach that should be discussed further to gain a better understanding of breathlessness.

scholarly journals Client’s experiences of their shoulder pain and disability

2000 ◽  
Vol 56 (4) ◽  
pp. 36
Author(s):  
A. Coole ◽  
R. De Jager ◽  
J. Hofmeyr ◽  
S. McKenzie ◽  
N. Von Broembsen
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Shoulder Pain ◽  
Emotional Responses ◽  
Coping Mechanisms ◽  
And Coping ◽  
Chronic Shoulder Pain

The purpose of this qualitative study was to enhance understanding of what it is like to suffer from chronic shoulder pain from the perspectives of those living with the experience.Unstructured interviews, using the open-ended question “tell us about your shoulder", were used to allow the twelve clients to elaborate freely on their feelings and experiences. Interviews were recorded and transcribed verbatim. These transcriptions were coded and categorized. Five themes emerged from the categories: Pain, Activities, Emotional Responses, Relationships and Coping Mechanisms. These findings expand understanding about quality of life for clients living with chronic shoulder pain and disability.

A standardised patient education programme for peptic ulcer patients: impact on quality of life and medication adherence

2021 ◽  
Vol 19 (Sup2) ◽  
pp. S24-S31
Author(s):  
Sara Fahimi ◽  
Maryam Allahbakhshian ◽  
Amir Sadeghi ◽  
Atefeh Allahbakhshian ◽  
Malihe Nasiri
Keyword(s):  
Quality Of Life ◽  
Peptic Ulcer ◽  
Medication Adherence ◽  
Negative Impact ◽  
Control Group ◽  
Face To Face ◽  
Significant Difference ◽  
The Mean ◽  
The Impact

Background: Peptic ulcers can have a major negative impact on patients' quality of life (QoL), especially if patients do not adhere to prescribed medication. Aim: This study was carried out to investigate the impact on QoL and adherence of an educational programme for peptic ulcer patients, delivered by a variety of methods. Methods: The population in this single-blind randomised control experimental study included 120 peptic ulcer patients randomly assigned to four groups. Data were collected using the Gastrointestinal Patients' Quality of Life Index and the Morisky Medication Adherence Scale. Findings: A significant increase was observed in the mean scores related to QoL (p=0.001) and medication adherence (p=0.003) compared with the control group after the educational intervention in the intervention groups. One-way ANOVA test for four independent groups indicated a significant difference between the mean scores related to QoL and medication adherence in the four groups after the intervention (p<0.05). In addition, a significant difference was reported in the mean score changes before and after the intervention in QoL and medication adherence between messenger group and face-to-face, web and control groups. Conclusions: Although all three methods of face-to-face, web-based and messenger-based education improved the QoL and medication adherence in peptic ulcer patients, the last method enhanced these patient-related outcomes more effectively than the other two.

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