scholarly journals Inspiring ‘Gifts of Health’ Exploring the use of patient stories in transmedia fundraising campaigns

2021 ◽  
Author(s):  
Katherine Yamamoto
Keyword(s):  
Health Communication ◽  
Online Communication ◽  
Non Profit ◽  
Medical Expenses ◽  
Transmedia Storytelling ◽  
Patient Narratives ◽  
Communications Theory ◽  
Versatile Tool ◽  
Health Institutions ◽  
Patient Stories

Patient stories speak to the often-daunting journey that patients embark on throughout their experience of their illness or injury. The emotions these narratives convey make it easy for audiences to connect with them, thus making them an important, versatile tool for fundraising for medical causes. Today, patient stories are commonly used by hospital foundations to fundraise, but are also used frequently for crowdfunding personal medical expenses, a trend that is surging in popularity with the rise of treatment costs. This project first examines patient stories using the theoretical lenses of motivations for health communication, personal and institutional fundraising, and narratology and transmedia storytelling in health communication. Using a sample of 10 patient stories collected from Canadian GoFundMe campaigns and hospital foundation websites, this MRP specifically seeks to identify key similarities and differences in the ways that private individuals and non-profit health institutions use patient stories for fundraising efforts. It then aims to identify tactics used to produce the most successful patient stories and fundraising campaigns. The three theoretical lenses will be used to create a specific coding framework through which the motivations of different authors will be determined. Each campaign’s images, text and interactive elements will be assessed to identify trends and tactics, which will then be compared with the campaigns’ overall financial and social successes. This project will extend fundraising and health communications theory by adding depth to the existing literature on crowdfunding for personal medical expenses. It will also help to integrate transmedia storytelling theory into the larger field of health communication by identifying the different ways that online communication platforms may be used to target and connect donors while increasing funds for medical campaigns. In addition, by providing a holistic analysis of each campaign’s content, paired with a preliminary effects analysis, this project contributes a range of practical implications for hospital foundations and individuals to use when crafting patient narratives for future campaigns.

scholarly journals Inspiring ‘Gifts of Health’ Exploring the use of patient stories in transmedia fundraising campaigns

2021 ◽  
Author(s):  
Katherine Yamamoto
Keyword(s):  
Health Communication ◽  
Online Communication ◽  
Non Profit ◽  
Medical Expenses ◽  
Transmedia Storytelling ◽  
Patient Narratives ◽  
Communications Theory ◽  
Versatile Tool ◽  
Health Institutions ◽  
Patient Stories

Patient stories speak to the often-daunting journey that patients embark on throughout their experience of their illness or injury. The emotions these narratives convey make it easy for audiences to connect with them, thus making them an important, versatile tool for fundraising for medical causes. Today, patient stories are commonly used by hospital foundations to fundraise, but are also used frequently for crowdfunding personal medical expenses, a trend that is surging in popularity with the rise of treatment costs. This project first examines patient stories using the theoretical lenses of motivations for health communication, personal and institutional fundraising, and narratology and transmedia storytelling in health communication. Using a sample of 10 patient stories collected from Canadian GoFundMe campaigns and hospital foundation websites, this MRP specifically seeks to identify key similarities and differences in the ways that private individuals and non-profit health institutions use patient stories for fundraising efforts. It then aims to identify tactics used to produce the most successful patient stories and fundraising campaigns. The three theoretical lenses will be used to create a specific coding framework through which the motivations of different authors will be determined. Each campaign’s images, text and interactive elements will be assessed to identify trends and tactics, which will then be compared with the campaigns’ overall financial and social successes. This project will extend fundraising and health communications theory by adding depth to the existing literature on crowdfunding for personal medical expenses. It will also help to integrate transmedia storytelling theory into the larger field of health communication by identifying the different ways that online communication platforms may be used to target and connect donors while increasing funds for medical campaigns. In addition, by providing a holistic analysis of each campaign’s content, paired with a preliminary effects analysis, this project contributes a range of practical implications for hospital foundations and individuals to use when crafting patient narratives for future campaigns.

scholarly journals Sex Work and Social Media: Online Advocacy Strategies

2018 ◽  
Vol 10 (1) ◽  
Author(s):  
Emma E. Duke ◽  
Kathleen C. Sitter ◽  
Nicole Boggan
Keyword(s):  
Social Media ◽  
Sex Work ◽  
Sex Workers ◽  
Online Communication ◽  
Service Organizations ◽  
Non Profit ◽  
Safe Spaces ◽  
Social Media Platforms ◽  
Use Of Social Media ◽  
Media Channels

Online communication continues to provide opportunities to connect, mobilize and disseminate information amongst direct service organizations. While the use of social media among non-profits continues to expand, there is a paucity of research that documents the extent to which online channels – particularly social media – are adopted and used amongst organizations that support sex workers. Online advocacy efforts have grown over the last decade, with sex workers and non-profit organizations at the forefront. This article evaluates the presence and social media strategies amongst organizations providing direct services for sex workers in Canada. Eighty-seven organizations operating in Canada were examined to assess both the types of social media channels used, and the online strategies employed. Results indicate there is a propensity for agencies to engage in multiple social media platforms with spaces for service users to post information in lieu of static sites that predominantly support one-way communication. Recommendations and best practices include integrating postings across platforms for efficiency, developing and maintaining safe spaces online, and focusing on channels that support multilogue communication.             Keywords:  Sex work, social media, knowledge

scholarly journals Privacy, Data Mining, and Digital Profiling in Online Patient Narratives

2018 ◽  
Vol 4 (1) ◽  
pp. 1-24 ◽  
Author(s):  
Kirsten Ostherr
Keyword(s):  
Health Care ◽  
Illness Narratives ◽  
Health Care Information ◽  
Impermeable Barrier ◽  
Patient Narratives ◽  
The Us ◽  
Clinical Action ◽  
Care Information ◽  
Ibm Watson ◽  
Patient Stories

Practices of health datafication and inadequate privacy policies are redefining the meaning of online patient narratives. This article compares patient-driven illness narratives and clinic-driven illness narratives to uncover a set of unrecognized assumptions about trust and privacy in health discourses. Specifically, I show how the open sharing of patient stories in social media, blogs, and other public domains collides with privacy regulations and normative assumptions in the US health care system that prevent integration of those stories into electronic health record (EHR) systems. I argue that publicly told stories based on personal experiences of illness are valuable sources of health care information in part because they are subjective, richly detailed, and open ended. Yet, precisely because of their public nature, these patient stories are unprotected sources of data that are barred from integration into health care data ecologies where clinical action takes place. Consequently, an impermeable barrier exists between the officially sanctioned accounts in the clinical record and the contextual richness of patient stories on the social web. The tensions between these two approaches to narrative and data create an opening for exploitative digital profiling practices that can ─ and already do ─ harm patients. Examples are drawn from Hugo Campos and Medtronic, PatientsLikeMe, Apple Health Records, Google Health, Microsoft Health Vault, IBM Watson Health, and OpenNotes.

scholarly journals La participación de los stakeholders de las asociaciones contra el cáncer en Facebook

Obra digital ◽  
2017 ◽  
pp. 133-149
Author(s):  
Erika Fernández-Gómez ◽  
Jesús Díaz-Del Campo
Keyword(s):  
Health Communication ◽  
Non Profit

Esta investigación analiza la estrategia en Facebook de cuatro asociaciones iberoamericanas de lucha contra el cáncer de países donde esta enfermedad representa la segunda causa de mortalidad. El estudio aborda las características que presentan los mensajes que consiguen mayor interacción con el público a través de la opción “comentar”. Las publicaciones más comentadas son aquellas que abordan el cáncer de forma genérica o bien no lo mencionan; además de informar y concienciar persiguen otros objetivos diferentes a los de las asociaciones y emplean la imagen como recurso principal acompañada de un hashtag o enlace a la web de la entidad.The participation on Facebook of stakeholders in non-profit organisations against cancer.AbstractIn this paper, we analyse the Facebook strategy of four associations against cancer in Ibero-America where cancer is the second highest cause of mortality. We focus on messages with public interaction through the Comment button. The posts that receive most comments are those that refer to cancer in a general way and those that do not mention cancer at all. They inform and raise awareness, pursuing goals that are different to those of the associations, using images, hashtags and website links as their main tools.KeywordsNon-profit organisations, Facebook, cancer, interaction, health communication.

A Research on Perceptions of Health News of Individuals Who Lived in Istanbul in the COVID-19 Process

2022 ◽  
pp. 339-361
Author(s):  
Sevgi Kavut
Keyword(s):  
Public Health ◽  
Health Communication ◽  
Personal Information ◽  
Business Sector ◽  
Health News ◽  
Non Profit ◽  
Individual Health ◽  
New Type ◽  
Non Profit Organizations

Health communication is a field that is increasing in importance and developing in public health and non-profit organizations and the business sector. COVID-19 is a new type of virus that affects the whole world and is diagnosed with fever, dry cough, malaise, and symptoms of dyspnea. This research was formed to masculate their perceptions related to individual health news in Istanbul. The study sample was formed by adults, individuals aged over 18 years, who lived in Istanbul. The research has been applied by personal information forms and perceptions of health news scale.

scholarly journals Linhas Orientadoras para Pensar, Desenvolver e Implementar a Comunicação em Saúde em Portugal

2021 ◽  
Vol 34 (10) ◽  
pp. 698
Author(s):  
Débora Miranda ◽  
Isa Galhordas Alves ◽  
Marta Salavisa
Keyword(s):  
Health Communication ◽  
Scientific Evidence ◽  
Critical Mass ◽  
Management Support ◽  
Health Crisis ◽  
The Public ◽  
Material Resources ◽  
Decision Making Processes ◽  
Health Institutions ◽  
Socioeconomic Consequences

The SARS-CoV-2 pandemic has laid out and deepened several weaknesses of health systems, some of which have already been identified by international organizations, such as the lack of human and material resources or civil society’s insufficient involvement in decision-making processes. As the pandemic’s socioeconomic consequences worsen and pandemic fatigue settles in, another frailty is unveiled to the public and media space: the lack of a critical mass of health communicators, which has direct consequences on how the pandemic is managed. Communicating in such a context of crisis and uncertainty requires identifying what are the important facts to communicate to different population segments, clarifying myths and fake information, responding to ongoing uncertainties, listening to and involving stakeholders, developing and testing messages, and monitoring and evaluating implemented strategies. The use of communication as a management support strategy allows organizations to build confidence and reputation, manage relationships with internal and external stakeholders, and prepare for future uncertainties, which are crucial competencies in managing a health crisis. Given the lack of scientific evidence about health communication practiced in Portugal, a significant part of the analysis and diagnosis is based on the authors’ empirical knowledge, obtained through professional experience in communications at several health institutions. At the end of the article, the authors propose guiding principles to think through, develop and implement health communication in Portugal, particularly during a health crisis, supported by a culture of leadership, collaboration, and confidence.

scholarly journals Privacy, Data Mining, and Digital Profiling in Online Patient Narratives

2018 ◽  
Vol 4 (1) ◽  
pp. 1-24
Author(s):  
Kirsten Ostherr
Keyword(s):  
Health Care ◽  
Illness Narratives ◽  
Health Care Information ◽  
Impermeable Barrier ◽  
Patient Narratives ◽  
The Us ◽  
Clinical Action ◽  
Care Information ◽  
Ibm Watson ◽  
Patient Stories

Practices of health datafication and inadequate privacy policies are redefining the meaning of online patient narratives. This article compares patient-driven illness narratives and clinic-driven illness narratives to uncover a set of unrecognized assumptions about trust and privacy in health discourses. Specifically, I show how the open sharing of patient stories in social media, blogs, and other public domains collides with privacy regulations and normative assumptions in the US health care system that prevent integration of those stories into electronic health record (EHR) systems. I argue that publicly told stories based on personal experiences of illness are valuable sources of health care information in part because they are subjective, richly detailed, and open ended. Yet, precisely because of their public nature, these patient stories are unprotected sources of data that are barred from integration into health care data ecologies where clinical action takes place. Consequently, an impermeable barrier exists between the officially sanctioned accounts in the clinical record and the contextual richness of patient stories on the social web. The tensions between these two approaches to narrative and data create an opening for exploitative digital profiling practices that can ─ and already do ─ harm patients. Examples are drawn from Hugo Campos and Medtronic, PatientsLikeMe, Apple Health Records, Google Health, Microsoft Health Vault, IBM Watson Health, and OpenNotes.

scholarly journals Constructing Patient Stories: ‘Dynamic’ Case Notes and Clinical Encounters at Glasgow’s Gartnavel Mental Hospital, 1921–32

2015 ◽  
Vol 60 (1) ◽  
pp. 67-86 ◽  
Author(s):  
Hazel Morrison
Keyword(s):  
Mental Health ◽  
Mental Hospital ◽  
Hospital Staff ◽  
Patient Records ◽  
Dynamic Approach ◽  
Clinical Encounters ◽  
Patient Narratives ◽  
Dynamic Case ◽  
Meeting Transcripts ◽  
Patient Stories

This article contextualises the production of patient records at Glasgow’s Gartnavel Mental Hospital between 1921 and 1932. Following his appointment as asylum superintendent in 1921, psychiatrist David Kennedy Henderson sought to introduce a so-called dynamic approach to mental health care. He did so, primarily, by encouraging patients to reveal their inner lives through their own language and own understanding of their illness. To this effect, Henderson implemented several techniques devised to gather as much information as possible about patients. He notably established routine ‘staff meetings’ in which a psychiatrist directed questions towards a patient while a stenographer recorded word-for-word the conversation that passed between the two parties. As a result, the records compiled at Gartnavel under Henderson’s guidance offer a unique window into the various strategies deployed by patients, but also allow physicians and hospital staff to negotiate their place amidst these clinical encounters. In this paper, I analyse the production of patient narratives in these materials. The article begins with Henderson’s articulation of his ‘dynamic’ psychotherapeutic method, before proceeding to an in-depth hermeneutic investigation into samples of Gartnavel’s case notes and staff meeting transcripts. In the process, patient–psychiatrist relationships are revealed to be mutually dependent and interrelated subjects of historical enquiry rather than as distinct entities. This study highlights the multi-vocal nature of the construction of stories ‘from below’ and interrogates their subsequent appropriation by historians.

Ethos in E-Health

2017 ◽  
pp. 85-103 ◽  
Author(s):  
Abigail Bakke
Keyword(s):  
Health Communication ◽  
Web 2.0 ◽  
Social Networking ◽  
Medical Information ◽  
Social Networking Site ◽  
First Impression ◽  
Peer Reviewers ◽  
A Site ◽  
Patient Stories

The proliferation of medical information online, without physicians or peer reviewers as gatekeepers, has made e-health an important focus for credibility research. Web 2.0, enabling lay users to contribute content, has complicated patients' challenge of deciding who to trust. To help inspire trust, an e-health website must convey a credible ethos in its homepage and other pages that constitute a user's first impression of a site. This chapter compares the visual and textual ethos strategies of three major e-health sites that represent a continuum from informational to interactive: a government site, a commercial site, and a patient social networking site. The findings reveal a variety of features, such as scientific imagery, privacy seals, and video of patient stories, that can ultimately contribute to an ethos based in expertise and/or in community. This study has implications for the design and evaluation of trustworthy e-health communication.

To Be, or Not to Be Healthy

2022 ◽  
pp. 1-26
Author(s):  
Célia Belim
Keyword(s):  
Literature Review ◽  
Health Communication ◽  
Therapeutic Relationship ◽  
Treatment Effectiveness ◽  
Well Being ◽  
Health Issues ◽  
Persuasive Messages ◽  
The Public ◽  
Versatile Tool ◽  
The Media

This chapter, as the starting point of the book, (re)constructs the substantive setting and puzzle of health communication, being a reflection and discussion based on the literature review on fundamentals and practices of health communication and the contributions and implications of informative and persuasive messages and communication practices to health. The literature review results show the essential role that communication has assumed in the context of health, having several positive effects, such as the treatment effectiveness, the improvement of the therapeutic relationship and health literacy, the penetration of certain health issues in the public agenda. It has also highlighted the need to strengthen and rethink, in the name of individual and social well-being, the relationship between health and communication. Particularly, in the therapeutic relationship, the need for the health professional to have adequate communication competences to interact with patients is emphasized. Additionally, the media prove to be a versatile tool in the achievement of health promotion aims.

Sign in / Sign up

Export Citation Format

Share Document