scholarly journals Challenging child development theory on the understanding of death : learning through the experiences of child life specialists

2021 ◽  
Author(s):  
Jessica Erin Miller
Keyword(s):  
Terminal Illness ◽  
Terminally Ill ◽  
Developmental Theory ◽  
Child Life ◽  
Pediatric Palliative Care ◽  
Development Theory ◽  
Child Life Specialists ◽  
Greater Toronto Area ◽  
Advanced Knowledge ◽  
Professional Child

The purpose of this research was to review the experiences of Child Life Specialists, to determine whether or not children with a terminal illness have a more advanced knowledge of death than traditional child developmental theory suggests. This research was a qualitative design in the form of a questionnaire and examined the experiences of five professional Child Life Specialists in the Greater Toronto Area. The findings revealed that Child Life Specialists have found that there is a difference of understanding of death between a healthy and terminally ill child. This information could lead to better practices for pediatric palliative care by providing those who work with palliative children, a better understanding of their perceptions and understanding of death.

scholarly journals Challenging child development theory on the understanding of death : learning through the experiences of child life specialists

2021 ◽  
Author(s):  
Jessica Erin Miller
Keyword(s):  
Terminal Illness ◽  
Terminally Ill ◽  
Developmental Theory ◽  
Child Life ◽  
Pediatric Palliative Care ◽  
Development Theory ◽  
Child Life Specialists ◽  
Greater Toronto Area ◽  
Advanced Knowledge ◽  
Professional Child

The purpose of this research was to review the experiences of Child Life Specialists, to determine whether or not children with a terminal illness have a more advanced knowledge of death than traditional child developmental theory suggests. This research was a qualitative design in the form of a questionnaire and examined the experiences of five professional Child Life Specialists in the Greater Toronto Area. The findings revealed that Child Life Specialists have found that there is a difference of understanding of death between a healthy and terminally ill child. This information could lead to better practices for pediatric palliative care by providing those who work with palliative children, a better understanding of their perceptions and understanding of death.

scholarly journals Child Life Specialists in Pediatric Hospital Care

2020 ◽  
Vol 05 (03) ◽  
pp. 1-1
Author(s):  
Kokila Jeyamurugan ◽  
◽  
Ratna B Basak ◽  
Keyword(s):  
Palliative Care ◽  
Music Therapy ◽  
Hospital Care ◽  
Palliative Care Team ◽  
Child Life ◽  
Pediatric Palliative Care ◽  
Pet Therapy ◽  
Pediatric Hospital ◽  
Child Life Specialists ◽  
Form Part

Child life specialists (CLS) are trained providers who form part of a pediatric multidisciplinary and pediatric palliative care team. Their role is invaluable to mitigate the stress and anxiety of children during hospitalization. They may use various strategies in children like play, art and music therapy and pet therapy, to help self-express and cope with painful procedures.We present a brief narrative on CLS with a case of a 10- year- old Hispanic boy who had metastatic osteosarcoma.The case illustration is from a prior institute that one of the coauthors was associated with.

Role of Child Life Specialists in Pediatric Palliative Care

2019 ◽  
Vol 58 (4) ◽  
pp. 735-737 ◽  
Author(s):  
Ratna B. Basak ◽  
Rashmi Momaya ◽  
Junjing Guo ◽  
Pooja Rathi
Keyword(s):  
Palliative Care ◽  
Child Life ◽  
Pediatric Palliative Care ◽  
Child Life Specialists

Happiness at the end of life: A qualitative study

2021 ◽  
pp. 1-7
Author(s):  
Tan Seng Beng ◽  
Wong Ka Ghee ◽  
Ng Yun Hui ◽  
Ooi Chieh Yin ◽  
Khoo Wei Shen Kelvin ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
End Of Life ◽  
Terminal Illness ◽  
Terminally Ill ◽  
Social Connections ◽  
Targeted Interventions ◽  
Pain And Suffering ◽  
The University ◽  
Eudaimonic Happiness

Abstract Objective Dying is mostly seen as a dreadful event, never a happy experience. Yet, as palliative care physicians, we have seen so many patients who remained happy despite facing death. Hence, we conducted this qualitative study to explore happiness in palliative care patients at the University of Malaya Medical Centre. Method Twenty terminally ill patients were interviewed with semi-structured questions. The results were thematically analyzed. Results Eight themes were generated: the meaning of happiness, connections, mindset, pleasure, health, faith, wealth, and work. Our results showed that happiness is possible at the end of life. Happiness can coexist with pain and suffering. Social connections were the most important element of happiness at the end of life. Wealth and work were given the least emphasis. From the descriptions of our patients, we recognized a tendency for the degree of importance to shift from the hedonic happiness to eudaimonic happiness as patients experienced a terminal illness. Significance of results To increase the happiness of palliative care patients, it is crucial to assess the meaning of happiness for each patient and the degree of importance for each happiness domain to allow targeted interventions.

Life Themes: A Method to Understand Terminal Illness

1995 ◽  
Vol 31 (3) ◽  
pp. 189-206 ◽  
Author(s):  
Debbie Messer Zlatin
Keyword(s):  
Health Care ◽  
Health Care Costs ◽  
Health Care Providers ◽  
Terminal Illness ◽  
Terminally Ill ◽  
Care Providers ◽  
Incurable Cancer ◽  
Doctor Patient Communication ◽  
The Patient’S View ◽  
Care Costs

As health care costs in general soar, the high cost of terminal care is questioned. Yet little is known about what kinds of medical care terminally ill persons, themselves, want. To explore the patient's view, I conducted a qualitative study of eight patients with incurable cancer to answer the question, “How do terminally ill persons understand their illnesses and treatments?” Analysis of interview transcripts indicated that study participants created illness-understandings within the context of their daily life experiences via life themes. Since life themes integrate and give meaning to illness events in both emic and etic ways and help to explain patients' coping strategies, it is recommended that health care providers elicit patients' life themes and use them in their approaches to diagnosis and treatment. The possible benefits of the life theme method are more balanced doctor/patient communication, improved patient satisfaction and quality of life, and the containment of health care costs.

scholarly journals DEVELOPMENT AS FREEDOM DAN PENCAPAIAN PERUBAHAN SOSIAL

2018 ◽  
Vol 12 (2) ◽  
pp. 367
Author(s):  
Amril Maryolo
Keyword(s):  
Sustainable Development ◽  
Social Change ◽  
Social Studies ◽  
Developmental Theory ◽  
Development Theory ◽  
Single Object ◽  
Community Based ◽  
Community Construction

Social studies have many variations because society is not a single object. Social change is a phenomenon of community construction that has a variety of variations. Development is a word used to describe processes and efforts to enhance economic, political, cultural, social, and so on. With such an understanding "development" is aligned with the word "social change." Along with development theory there are other social change theories such as socialism, dependensia, or other theories. Therefore, many people call developmental theory as developmentism. Thus such theories reject theories, such as the theory of community-based development, or even sustainable development and are alternatives to developmentism, but other variations of the ideology of developmentism.Kajian sosial memiliki macam variasi karena masyarakat bukanlah objek yang tunggal. Perubahan sosial merupakan fenomena konstruksi masyarakat yang memiliki ragam yang bervariasi. Pembangunan merupakan suatu kata yang digunakan untuk menjelaskan proses dan usaha untuk menimgkatkan kehidupan ekonomi, politik, budaya, sosial, dan sebagainya. Dengan pemahaman seperti itu “pembangunan” disejajarkan dengan kata “perubahan sosial”. Bersamaan dengan teori pembangunan terdapat teori-teori perubahan sosial lainnya seperti sosialisme, dependensia, ataupun teori lain. Oleh karena itu banyak orang menamakan teori pembangunan sebagai pembangunanisme (developmentalism). Dengan demikian teori-teori seperti ini menolak teori-teori, seperti teori pembangunan berbasis masyarakat, atau bahkan pembangunan berkelanjutan (sustainable development) dan merupakan alternatif dari pembangunanisme, melainkan variasi-variasi lain dari ideologi pembangunanisme. 

scholarly journals Can there be a Disability Studies Theory of "End-of-Life Autonomy?"

2011 ◽  
Vol 31 (4) ◽  
Author(s):  
Harold Braswell
Keyword(s):  
End Of Life ◽  
Disability Studies ◽  
Terminal Illness ◽  
Medical Condition ◽  
Terminally Ill ◽  
Persons With Disabilities ◽  
Self Development ◽  
Relational Process

<p>Keywords</p><p>ADA, autonomy, bioethics, end-of-life, euthanasia, terminal illness</p><p>Abstract</p><p>In this article, I examine the possibility of a disability studies theory of "end-of-life autonomy." I define "end-of-life autonomy" as an individual's legally protected and medically enacted decision to die in response to a serious incurable medical condition. Disability studies scholars criticize such autonomy when it is exercised by persons with disabilities, but are divided on its application to the terminally ill. But the problem with end-of-life autonomy is not determining the correct population to which it applies; it is the ableism underlying the concept of "autonomy" itself. I redefine "autonomy" as a relational process of self-development that is oriented toward a greater recognition of dependence. This rethinking can make the ADA more responsive to terminally ill individuals, and helps lay the foundation for a disability studies theory of end-of-life autonomy.</p>

scholarly journals Connecting home and hospital life : cultural influence in child life practice

2021 ◽  
Author(s):  
Jennifer E Butterly
Keyword(s):  
Large City ◽  
Psychosocial Care ◽  
Cultural Influence ◽  
Child Life ◽  
Structured Interviews ◽  
Child Life Specialists ◽  
Culturally Responsive Practices ◽  
Resource Needs ◽  
Barriers And Challenges ◽  
The Individual

The changing demographics of illness necessitate the provision of complex care practices designed to meet the individual needs of families from diverse backgrounds. Providing psychosocial care to paediatric patients, child life specialists integrate processes designed to better understand their patients, thus informing their plans of care. Through the use of Grounded Theory, this study involves 7 child life specialists from a large city in Ontario and explores the processes implemented by child life specialists in getting to know their patients and families. Data obtained from semi-structured interviews and a reflective journaling exercise was examined for evidence of cultural influence and a greater understanding of child life specialists' perceived comfort and ability was explored. The results of this study suggest child life specialists engage in culturally responsive practices, however several barriers and challenges exist. Resource needs are identified and implications for practice are examined.

scholarly journals Implementation of a Humanoid Robot as an Innovative Approach to Child Life Interventions in a Children’s Hospital: Lofty Goal or Tangible Reality?

2021 ◽  
Vol 12 ◽  
Author(s):  
Tanya N. Beran ◽  
Jacqueline Reynolds Pearson ◽  
Bonnie Lashewicz
Keyword(s):  
Humanoid Robot ◽  
Child Life ◽  
Hospital Environment ◽  
Innovative Approach ◽  
Emotional Impact ◽  
Adoption Process ◽  
Structured Interviews ◽  
Child Life Specialists ◽  
Roles And Responsibilities ◽  
Lofty Goal

IntroductionThis study reports the findings on how Child life specialists (CLSs) implemented an innovative approach to providing therapeutic support to pediatric patients.MethodsPart of a larger study that uncovered themes about CLSs’ experiences while working with MEDi®, this study reports the reflections that CLSs have about the process of implementation. Seven CLSs participated in semi-structured interviews. Content analysis was conducted on interview data and three themes were generated.ResultsThe first was in regards to the adoption process whereby CLS challenges, successes, and surprises were revealed. Second, CLSs explained how using MEDi® aligned with the roles and responsibilities of their profession. The third area of understanding was in CLS explanation of the friendly emotional impact MEDi® seems to have on the hospital environment.ConclusionChild life specialists are encouraged to use the MEDi® robot to support children at the bedside.

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