scholarly journals Exploring the lived experience of the Social ABCs parent-mediated intervention study

2021 ◽  
Author(s):  
Melanie Elizabeth Fenwick
Keyword(s):  
Early Intervention ◽  
Young Children ◽  
Lived Experience ◽  
Family System ◽  
Autism Spectrum ◽  
Structured Interviews ◽  
The Social ◽  
The Family ◽  
Intervention Impact ◽  
The Impact

In light of the paucity of research investigating the impact on the family of parent-inclusive models of intervention for young children with Autism Spectrum Disorder (ASD), this study explored the lived experience of families involved in the Social ABCs parent-mediated intervention for toddlers with ASD. Influenced by phenomenological inquiry, semi-structured interviews were conducted with seven parents from six families. Parents were asked a range of broad open-ended questions, some of which were guided by the literature on family outcomes of early intervention for children with disabilities. Using thematic analysis, the findings revealed several themes that highlighted the impact of the Social ABCs intervention on the child, the parent, and the family as a system. Five themes are discussed as they provide insight into the lived experience of families involved in the intervention: impact on child, impact on parents, impact on the family system, feasibility of implementation, and reflections on the Social ABCs experience. These findings may be useful for informing practice, policy and program development related to early intervention for young children with ASD and their families.

scholarly journals Exploring the lived experience of the Social ABCs parent-mediated intervention study

2021 ◽  
Author(s):  
Melanie Elizabeth Fenwick
Keyword(s):  
Early Intervention ◽  
Young Children ◽  
Lived Experience ◽  
Family System ◽  
Autism Spectrum ◽  
Structured Interviews ◽  
The Social ◽  
The Family ◽  
Intervention Impact ◽  
The Impact

In light of the paucity of research investigating the impact on the family of parent-inclusive models of intervention for young children with Autism Spectrum Disorder (ASD), this study explored the lived experience of families involved in the Social ABCs parent-mediated intervention for toddlers with ASD. Influenced by phenomenological inquiry, semi-structured interviews were conducted with seven parents from six families. Parents were asked a range of broad open-ended questions, some of which were guided by the literature on family outcomes of early intervention for children with disabilities. Using thematic analysis, the findings revealed several themes that highlighted the impact of the Social ABCs intervention on the child, the parent, and the family as a system. Five themes are discussed as they provide insight into the lived experience of families involved in the intervention: impact on child, impact on parents, impact on the family system, feasibility of implementation, and reflections on the Social ABCs experience. These findings may be useful for informing practice, policy and program development related to early intervention for young children with ASD and their families.

scholarly journals The Effect of Early Intervention for Individuals with Autism to Increase Communication skills: أثر التدخل المبكر على الأفراد المصابين بالتوحد في زيادة مهارات الاتصال

2019 ◽  
Vol 3 (26) ◽  
Author(s):  
Ahmed Alohali
Keyword(s):  
Early Intervention ◽  
Social Interaction ◽  
Communication Skills ◽  
Descriptive Analysis ◽  
Children With Autism ◽  
Autism Spectrum ◽  
The Family ◽  
Spectrum Disorders ◽  
And Behavior ◽  
The Impact

The research was motivated because of every year the population of children with Autism Spectrum Disorders (ASD) continues to increase. An autism spectrum disorder characterized by three impairments (triad of impairments) are impairment of social communication, impairment of social interaction and behavior. The impact of stress on the family as for their children with GSA disorder can occur either internally or externally. Goal of research is a model of early intervention to enhance social interaction and communication skills of children with GSA. The method used is the Research and Development, with a primary emphasis on the qualitative approach, descriptive analysis, by interview and observation. The results showed that there are parents who initially could not accept, and even today is still not able to accept the children unconditionally and their stress because of confusion how to communicate with their children, but if there is a problem that must be faced by families support each other, think together solution. Early intervention is not well developed in the family, parents prefer intervention by the therapist rather than doing it yourself.    

578 Childhood Burn Injuries: The Parent Perspective

2020 ◽  
Vol 41 (Supplement_1) ◽  
pp. S131-S131
Author(s):  
Dana R Dillard ◽  
Stacey R Kolomer
Keyword(s):  
Family System ◽  
Burn Injury ◽  
Emotional Health ◽  
Research Question ◽  
Program Planning ◽  
Family Members ◽  
Emotional Impact ◽  
Structured Interviews ◽  
The Family ◽  
The Impact

Abstract Introduction Interventions for burn-injured children (BIC) largely focus on the child with the physical injury while consideration for family systems appears incidental. This study aimed to gain insight into the perspectives and needs of parents/caregivers of pediatric burn patients (PPBP). When considering BIC within the context of a family system, it is reasonable to expect the injury to engulf everyone. The literature emphasizes the acute and lasting physical and emotional impact of burns. Moreover, research suggests PPBP experience an emotional response to the incident that is often complicated by physical absence from their other uninjured children. Thus, this exploratory study fills a gap by engaging the unique perspective of the PPBP and posits direct implications for essential program enhancement/development. Methods PPBP attending a family program participated in semi-structured interviews (N=11) guided by the research question: What are the experiences of PPBP? Participants’ self-identified as African American (n=4), Caucasian (n=5), and Latino (n=2). Age ranged from 29 to 48 (M=38.36, SD=6.14). Interviews involved queries regarding the burn incident, from injury to present (M=7.12 years, SD=4.61), including support received, what they wish people understood about the experience, and ideas for programming. Interviews were recorded and transcribed. Data were analyzed using van Manen’s hermeneutic phenomenological approach. Results Findings supported PPBP’s unique experience coalescing into one theme—the never-ending trip from hell—conceptualized as, “I didn’t mean to get here—none of this is familiar and I can’t find anyone I know. What’s going on and when will it be over?” Mutual painful insights were parental guilt, sensory experiences related to the acute incident and aftercare, unknown prognosis and medical treatment expectations, physical/emotional health problems, family members insensitivity, managing the cruelty of others, isolation, marital strains, and sibling tensions. Families also reported positive outcomes: strength of informal support networks, empowerment through educating others, and creating new allies. PPBP emphasized the benefits associated with meeting other families who also endured a burn injury and the importance of mutual support. Conclusions Programs should address the needs of all family members, not just BIC. In order to mitigate the impact of burn trauma, the family system impact remains a critical primary consideration for research and interventions. Applicability of Research to Practice Findings can contribute to program planning with increased consideration of the family system. As a result of findings from this study, siblings are now included in a summer camp program historically serving only BIC.

28 Childhood Burn Injuries: The Uninjured Sibling Perspective

2020 ◽  
Vol 41 (Supplement_1) ◽  
pp. S21-S21
Author(s):  
Dana R Dillard
Keyword(s):  
Narrative Inquiry ◽  
Family System ◽  
Burn Injury ◽  
Meaning Making ◽  
Program Planning ◽  
Service Development ◽  
Structured Interviews ◽  
Injured Child ◽  
The Family ◽  
The Impact

Abstract Introduction When considering burn-injured children as part of a larger family unit, it is expected their injury will stress the system; yet the focus has mainly been on the injured child and treated as incidental for the family. Though research on the family is evolving, less is known from the uninjured sibling perspective. Sibling relationships have a unique impact on development. This study aimed to understand the experience of growing up with a burn-injured sibling in childhood, with attention to how identity was shaped. Acquiring knowledge from uninjured siblings will facilitate a more integrative understanding and holistic approach to aid families. Thus, this exploratory study fills a gap by engaging the uninjured sibling’s perspective with implications for program enhancement/development. Methods Narrative inquiry was utilized to explicate the narratives of adults who grew up with a burn-injured sibling in childhood via semi-structured interviews (N=7). The research questions were: 1) What are the experiences, or stories, of identified adults whose sibling experienced a burn injury? 2) What do the narratives of identified adults whose sibling experienced a burn injury reveal about how their identities were shaped? 3) What are the implications for program/service development and/or enhancement elucidated by identified adults whose sibling experienced a burn injury? A purposeful criterion sampling method was used, but challenges accessing participants resulted in sequential and emergence-driven strategies. Participants’ self-identified as Caucasian (n=7), female (n=4), and male (n=3). Age ranged from 20 to 57 (M=33.14, SD=14.32) at the time of the interview and 0 to 13 (M=5.25, SD=4.25) at the time of their siblings’ injury. Interviews queried the burn incident, family relations, communication, and support received. Riessman’s thematic approach to narrative inquiry was employed for analysis. Results Findings supported five themes: 1) separation and alternative caregiving, 2) altered interactions and ambivalent roles, 3) (r)evolving emotional pain, 4) communication concerns, and 5) identity through autobiographical reasoning. The data suggest uninjured siblings have their own unique narratives that have failed to be acknowledged in research and practice, though identity clarity and meaning-making were articulated in their reflections. Moreover, findings support consideration of many experiences as a primary trauma. Conclusions The needs of uninjured siblings—specifically related to inclusion, identity, and resource acquisition—should be addressed to mitigate the impact of burn trauma. The family system remains a critical area for research and program enhancement/development. Applicability of Research to Practice Findings can contribute to program planning for the family with increased attention to the uninjured sibling’s experience and concern for their specific needs.

Marital Satisfaction of Portuguese Families in Times of Social Lockdown

2021 ◽  
pp. 106648072110098
Author(s):  
Carla Sílvia Fernandes ◽  
Bruno Magalhães ◽  
Sílvia Silva ◽  
Beatriz Edra
Keyword(s):  
Marital Satisfaction ◽  
Exploratory Study ◽  
Social Economic ◽  
Future Research ◽  
Marital Relations ◽  
The Social ◽  
The Family ◽  
Convenience Sampling ◽  
Global Threat ◽  
The Impact

The COVID-19 pandemic represents a global threat and crisis situation, and its wide-reaching impact has also affected marital satisfaction. Dysfunction of the marital system puts the survival of the family unit at risk. This research aimed to determine the level of marital satisfaction of Portuguese families during the social lockdown and the association between the variables under study. A descriptive, exploratory study was conducted. During the social lockdown, 276 people of Portuguese nationality and residing in Portugal were recruited using nonprobabilistic convenience sampling. Marital satisfaction in the pandemic phase showed low values that may be associated with the social, economic, and political context experienced by the pandemic situation. Future research must be carried out in order to identify, prevent, and intervene in situations of violence. In addition, future research should explore not only marital satisfaction during the current pandemic but a more systemic assessment of marital relations during crises, expanding the impact of marital satisfaction in family functioning.

scholarly journals Parent-mediated early intervention for young children with autism spectrum disorders (ASD)

2016 ◽  
Vol 22 (3) ◽  
pp. 146-146 ◽  
Author(s):  
Inalegwu P. Oono ◽  
Emma J. Honey ◽  
Helen McConachie
Keyword(s):  
Autism Spectrum Disorders ◽  
Early Intervention ◽  
Social Interaction ◽  
Young Children ◽  
Cochrane Review ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Young Children With Autism ◽  
Spectrum Disorders

Young children with autism spectrum disorders (ASD) have impairments in the areas of communication and social interaction and often display repetitive or non-compliant behaviour. This early pattern of difficulties is a challenge for parents. Therefore, approaches that help parents develop strategies for interaction and management of behaviour are an obvious route for early intervention in ASD. This review updates a Cochrane review first published in 2002 but is based on a new protocol.

Experience and impact of the 1-2-3 magic parent programme for children with ADHD on the family unit from the mothers’ perspectives: A narrative analysis

2021 ◽  
pp. 136749352110399
Author(s):  
Stephanie Allen ◽  
Stephen K Bradley ◽  
Eileen Savage
Keyword(s):  
Narrative Analysis ◽  
Family Members ◽  
Study Data ◽  
Unintended Consequences ◽  
Structured Interviews ◽  
Children With Adhd ◽  
Family Unit ◽  
The Family ◽  
Narrative Constructions ◽  
The Impact

Parent programmes are often used in the clinical management of children with ADHD. Research into parent programmes has predominantly been concerned with their effectiveness and much less attention has been paid to the impact that they may be having on the family and the inter-relationships between family members. This study explores the perspectives and experiences of parents of children with ADHD, who participated in a parent programme, including its impact on the family unit. A purposive sample of six mothers of children with ADHD who completed a 1-2-3 Magic parent programme in Ireland was invited to take part in this qualitative study. Data were collected by means of individual in-depth, semi-structured interviews and a narrative inquiry approach further informed analysis of the interview data. Two major narrative constructions of experience: ‘parent programme as positive’ and ‘parent programme as negative’ were identified. Outcomes from this study illustrated some unintended consequences caused by the parent programme (i.e. sibling rivalry and conflict arising between family members). Mothers believed that the parent programme was a beneficial intervention, but it was not without its flaws and they felt it was helpful for their family when used in conjunction with other supports and mediations.

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