scholarly journals Data rescue: saving environmental data from extinction

2021 ◽  
Author(s):  
Ellen Bledsoe ◽  
Joseph B Burant ◽  
Gracielle Higino ◽  
Dominique Roche ◽  
Sandra Binning ◽  
...  

1.Historical and long-term environmental datasets are imperative to understanding how natural systems respond to our changing world, setting baselines and establishing trajectories of change. Although immensely valuable, these data are ultimately at risk of being lost unless they are actively managed, curated, and eventually archived on data repositories. 2.The practice of data rescue, which we define as identifying, preserving, and sharing valuable data and associated metadata at risk of loss, is an important means of ensuring the long-term viability and accessibility of such datasets. Improvements in policies and best practices around data management will hopefully limit the future need for data rescue; these changes, however, do not apply retroactively. While the concept of rescuing data is not new, the term lacks a formal definition, is often conflated with other terms (i.e., data reuse), and lacks general recommendations. 3.Here, we outline seven key guidelines for effective rescue of historically-collected and unmanaged datasets. We discuss how to prioritize which datasets to rescue, form effective data rescue teams, prepare the data and related metadata, and ultimately archive and share the rescued data. 4.In an era of rapid environmental change, the best policy solutions will require evidence from both contemporary and historical sources. It is, therefore, imperative that we identify and preserve valuable, at-risk environmental data before they are lost to science.

2020 ◽  
Author(s):  
Kebede Deribe ◽  
Hope Simpson ◽  
Rachel L. Pullan ◽  
Mbonigaba Jean Bosco ◽  
Samuel Wanji ◽  
...  

AbstractBackgroundPodoconiosis is a type of tropical lymphedema that causes massive swelling of the lower limbs. The disease is associated with both economic insecurity, due to long-term morbidity-related loss of productivity, and intense social stigma. The geographical distribution and burden of podoconiosis in Africa is uncertain.MethodsWe applied statistical modelling to the most comprehensive database compiled to date to predict the environmental suitability of podoconiosis in the African continent. By combining climate and environmental data and overlaying population figures, we predicted the suitability and human population at risk.ResultsIn Africa, environmental suitability for podoconiosis was predicted in 29 countries. By 2020, the total population in areas suitable for podoconiosis was estimated at 114.5 million people, (95% confidence interval: 109.4-123.9) with 16.9 million in areas suitable for both lymphatic filariasis and podoconiosis. Of the total 5,712 implementation units defined by WHO in Africa, 1,655 (29.0%) were found to be environmentally suitable for podoconiosis. The majority of IUs with high environmental suitability are located in Angola (80 IUs), Cameroon (170 IUs), the DRC (244 IUs), Ethiopia (495 IUs), Kenya (217 IUs), Uganda (116 IUs) and Tanzania (112 IUs). Of the 1,655 environmental suitable IUs, 960 (58.0%) require more detailed community-level mappingConclusionsOur estimates provide key evidence of the population at risk and geographical extent of podoconiosis in Africa, which will help decision-makers to better plan more integrated intervention programmes.


2004 ◽  
Author(s):  
K. S. W. H. Hendriks ◽  
F. J. M. Grosfeld ◽  
A. A. M. Wilde ◽  
J. van den Bout ◽  
I. M. van Langen ◽  
...  

Author(s):  
Chiaki Ura ◽  
Tsuyoshi Okamura ◽  
Akinori Takase ◽  
Masaya Shimmei ◽  
Yukan Ogawa

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Lisa-Marie Ohle ◽  
David Ellenberger ◽  
Peter Flachenecker ◽  
Tim Friede ◽  
Judith Haas ◽  
...  

AbstractIn 2001, the German Multiple Sclerosis Society, facing lack of data, founded the German MS Registry (GMSR) as a long-term data repository for MS healthcare research. By the establishment of a network of participating neurological centres of different healthcare sectors across Germany, GMSR provides observational real-world data on long-term disease progression, sociodemographic factors, treatment and the healthcare status of people with MS. This paper aims to illustrate the framework of the GMSR. Structure, design and data quality processes as well as collaborations of the GMSR are presented. The registry’s dataset, status and results are discussed. As of 08 January 2021, 187 centres from different healthcare sectors participate in the GMSR. Following its infrastructure and dataset specification upgrades in 2014, more than 196,000 visits have been recorded relating to more than 33,000 persons with MS (PwMS). The GMSR enables monitoring of PwMS in Germany, supports scientific research projects, and collaborates with national and international MS data repositories and initiatives. With its recent pharmacovigilance extension, it aligns with EMA recommendations and helps to ensure early detection of therapy-related safety signals.


2021 ◽  
Vol 544 ◽  
pp. 151609
Author(s):  
Luis Enrique Ángeles-González ◽  
Enrique Martínez-Meyer ◽  
Carlos Rosas ◽  
Paulina Valeria Guarneros-Narváez ◽  
Jorge A. López-Rocha ◽  
...  

2017 ◽  
Vol 33 (06) ◽  
pp. 581-590
Author(s):  
Patrick Cleveland ◽  
Jesse Smith

AbstractTraumatic injuries to the orbitofrontal region place some of the most important structures of the face at risk: the eyes, frontal skull, and brain. A thorough knowledge of complications from resultant trauma, and from attempted surgical corrections, is necessary to offer patients the best outcomes, ensuring proper healing with excellent long-term results.


2013 ◽  
Vol 23 (4) ◽  
pp. 498-515 ◽  
Author(s):  
Gertrud Haidvogl ◽  
Dmitry Lajus ◽  
Didier Pont ◽  
Martin Schmid ◽  
Mathias Jungwirth ◽  
...  

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