Italian Consensus Statement on Patient Engagement in Chronic Care: Process and Outcomes

Patient engagement has been recognized as a key priority in chronic care. However, scholars agree that guidelines are needed to ensure effective patient engagement strategies. To this end, a Consensus Conference process was promoted with the following methodological steps: (1) extensive literature review about patient engagement initiatives in chronic care; (2) a stakeholders survey to collect best practices and (3) workshops with experts. On the basis of the information collected, a consensus statement was drafted, revised, and finalized by a panel of select renowned experts. These experts agreed in defining engagement as an eco-systemic concept involving multiple actors all of which contribute to influence patients’ willingness and ability to engage in chronic care. Moreover, experts recommended, whenever possible, to adopt standardized instruments to assess engagement levels and related unmet needs. Then, experts strongly advised appropriate trainings for healthcare professionals about patient engagement strategies. Furthermore, the importance of promoting healthcare professionals’ wellbeing has been advocated. Family caregivers, as well as patients’ organizations - should be trained and engaged to increase the effectiveness of interventions dedicated to patients. Finally, experts agreed that digital technologies should be considered as a crucial enhancer for patient engagement in chronic care.

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Recommendations for Promoting Patient Engagement in Chronic Care: A Consensus Conference Statement

10.20944/preprints202002.0016.v1 ◽

2020 ◽

Author(s):

Guendalina Graffigna ◽

Serena Barello ◽

Giuseppe Riva ◽

Massimo Corbo ◽

Gianfranco Damiani ◽

...

Keyword(s):

Patient Engagement ◽

Chronic Care ◽

New Technologies ◽

Consensus Conference ◽

Services Research ◽

Systematic Analysis ◽

Scientific Databases ◽

Key Stakeholders ◽

Effective Care ◽

Definition Of

Patient engagement is receiving a growing attention in the healthcare context. However, although worldwide healthcare stakeholders agree that patient engagement is a priority for quality and effective care, no shared recommendations on how to promote patient engagement are currently available. Based on these premises, a Consensus Conference (CC) was promoted to address four main issues: What is the definition of Patient Engagement? How measuring Patient Engagement? What are the most recommended methodologies and the tools to promote Patient Engagement? What is the role of new technologies in promoting of Patient Engagement? The consensus was obtained through an iterative process that began with a systematic synthesis of the available literature in each domain followed by plenary expert discussions. This CC - including the systematic analysis of internationals scientific evidences (2749 sources across the major international scientific databases) together with experiences of a multi-disciplinary consortium of investigators and key stakeholders - attempted to provide the first evidence-based Expert Consensus Statement for the promotion of Patient Engagement in chronic care. These recommendations should be envisaged as inspirational principles to promote a real eco-system of engagement and might orient health services research and interventions.

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Take Care and Care Well

Canadian Journal of Nursing Research ◽

10.1177/0844562117701599 ◽

2017 ◽

Vol 49 (2) ◽

pp. 43-45

Author(s):

Mary Coughlin McNeil

Keyword(s):

Clinical Practice ◽

Best Practices ◽

Patient Care ◽

Patient Outcomes ◽

Healthcare Professionals ◽

Care Process ◽

Evidence Based ◽

Quality And Safety ◽

Patient Values ◽

Patient Care Process

Evidence-based practice supports the patient care process by integrating patient values and preferences with clinician expertise and the best available evidence. This approach to patient care focuses on quality and safety with the aim of improving patient outcomes. Despite its obvious value, healthcare professionals struggle to integrate evidence-based best practices into their clinical practice

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Faculty Opinions recommendation of Consensus summary statement of the International Multidisciplinary Consensus Conference on Multimodality Monitoring in Neurocritical Care: a statement for healthcare professionals from the Neurocritical Care Society and the European Society of Intensive Care Medicine.

Faculty Opinions – Post-Publication Peer Review of the Biomedical Literature ◽

10.3410/f.718872155.793504565 ◽

2015 ◽

Author(s):

Masao Nagayama

Keyword(s):

Intensive Care ◽

Intensive Care Medicine ◽

European Society ◽

Neurocritical Care ◽

Healthcare Professionals ◽

Consensus Conference ◽

Care Society ◽

Multimodality Monitoring ◽

Summary Statement

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Factors associated with emotional exhaustion in healthcare professionals involved in the COVID-19 pandemic: an application of the job demands-resources model

International Archives of Occupational and Environmental Health ◽

10.1007/s00420-021-01669-z ◽

2021 ◽

Author(s):

Serena Barello ◽

Rosario Caruso ◽

Lorenzo Palamenghi ◽

Tiziana Nania ◽

Federica Dellafiore ◽

...

Keyword(s):

Emotional Exhaustion ◽

Patient Engagement ◽

Healthcare Professionals ◽

Job Demands ◽

Cross Sectional Study ◽

Personal Resources ◽

Sectional Study ◽

Cross Sectional ◽

The Impact

Abstract Purpose The purpose of the present cross-sectional study is to investigate the role of perceived COVID-19-related organizational demands and threats in predicting emotional exhaustion, and the role of organizational support in reducing the negative influence of perceived COVID-19 work-related stressors on burnout. Moreover, the present study aims to add to the understanding of the role of personal resources in the Job Demands-Resources model (JD-R) by examining whether personal resources—such as the professionals’ orientation towards patient engagement—may also strengthen the impact of job resources and mitigate the impact of job demands. Methods This cross-sectional study involved 532 healthcare professionals working during the COVID-19 pandemic in Italy. It adopted the Job-Demands-Resource Model to study the determinants of professional’s burnout. An integrative model describing how increasing job demands experienced by this specific population are related to burnout and in particular to emotional exhaustion symptoms was developed. Results The results of the logistic regression models provided strong support for the proposed model, as both Job Demands and Resources are significant predictors (OR = 2.359 and 0.563 respectively, with p < 0.001). Moreover, healthcare professionals’ orientation towards patient engagement appears as a significant moderator of this relationship, as it reduces Demands’ effect (OR = 1.188) and increases Resources’ effect (OR = 0.501). Conclusions These findings integrate previous findings on the JD-R Model and suggest the relevance of personal resources and of relational factors in affecting professionals’ experience of burnout.

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Gender differences in patient journey to diagnosis and disease outcomes: results from the European Map of Axial Spondyloarthritis (EMAS)

Clinical Rheumatology ◽

10.1007/s10067-020-05558-7 ◽

2021 ◽

Author(s):

Marco Garrido-Cumbrera ◽

◽

Denis Poddubnyy ◽

Laure Gossec ◽

Raj Mahapatra ◽

...

Keyword(s):

Gender Differences ◽

Psychological Distress ◽

Disease Activity ◽

Healthcare Professionals ◽

Unmet Needs ◽

Axial Spondyloarthritis ◽

Diagnostic Delay ◽

Hla B27 ◽

Patient Journey ◽

Disease Characteristics

Abstract Introduction/objectives To evaluate the journey to diagnosis, disease characteristics and burden of disease in male and female patients with axial spondyloarthritis (axSpA) across Europe. Method Data from 2846 unselected patients participating in the European Map of Axial Spondyloarthritis (EMAS) study through an online survey (2017–2018) across 13 countries were analysed. Sociodemographic characteristics, lifestyle, diagnosis, disease characteristics and patient-reported outcomes (PROs) [disease activity –BASDAI (0–10), spinal stiffness (3–12), functional limitations (0–54) and psychological distress (GHQ-12)] were compared between males and females using chi-square (for categorical variables) and student t (for continuous variables) tests. Results In total, 1100 (38.7%) males and 1746 (61.3%) females participated in the EMAS. Compared with males, females reported considerable longer diagnostic delay (6.1 ± 7.4 vs 8.2 ± 8.9 years; p < 0.001), higher number of visits to physiotherapists (34.5% vs 49.5%; p < 0.001) and to osteopaths (13.3% vs 24.4%; p < 0.001) before being diagnosed and lower frequency of HLA-B27 carriership (80.2% vs 66.7%; p < 0.001). In addition, females reported higher degree of disease activity in all BASDAI aspects and greater psychological distress through GHQ-12 (4.4 ± 4.2 vs 5.3 ± 4.1; p < 0.001), as well as a greater use of alternative therapies. Conclusion The patient journey to diagnosis of axSpA is much longer and arduous in females, which may be related to physician bias and lower frequency of HLA-B27 carriership. Regarding PROs, females experience higher disease activity and poorer psychological health compared with males. These results reflect specific unmet needs in females with axSpA needing particular attention. Key Points• Healthcare professionals’ perception of axSpA as a predominantly male disease may introduce some bias during the diagnosis and management of the disease. However, evidence about male-female differences in axSpA is scarce.• EMAS results highlight how female axSpA patients report longer diagnostic delay and higher burden of the disease in a large sample of 2846 participants of 13 European countries.• Results reflect unmet needs of European female patients. Healthcare professionals should pay close attention in order to accurately diagnose and efficiently manage axSpA cases while further research should be developed on the cause of reported gender differences.

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Identifying and Managing Malnutrition, Frailty and Sarcopenia in the Community: A Narrative Review

Nutrients ◽

10.3390/nu13072316 ◽

2021 ◽

Vol 13 (7) ◽

pp. 2316

Author(s):

Shelley Roberts ◽

Peter Collins ◽

Megan Rattray

Keyword(s):

Healthcare Professionals ◽

Monitoring And Evaluation ◽

Community Dwelling ◽

Community Context ◽

Care Process ◽

Community Settings ◽

Community Based ◽

Comprehensive Overview ◽

Nutrition Care ◽

Community Dwelling Older Adults

Malnutrition, frailty and sarcopenia are becoming increasingly prevalent among community-dwelling older adults; yet are often unidentified and untreated in community settings. There is an urgent need for community-based healthcare professionals (HCPs) from all disciplines, including medicine, nursing and allied health, to be aware of, and to be able to recognise and appropriately manage these conditions. This paper provides a comprehensive overview of malnutrition, frailty and sarcopenia in the community, including their definitions, prevalence, impacts and causes/risk factors; and guidance on how these conditions may be identified and managed by HCPs in the community. A detailed description of the care process, including screening and referral, assessment and diagnosis, intervention, and monitoring and evaluation, relevant to the community context, is also provided. Further research exploring the barriers/enablers to delivering high-quality nutrition care to older community-dwelling adults who are malnourished, frail or sarcopenic is recommended, to inform the development of specific guidance for HCPs in identifying and managing these conditions in the community.

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American Academy of Clinical Neuropsychology (AACN) 2021 consensus statement on validity assessment: Update of the 2009 AACN consensus conference statement on neuropsychological assessment of effort, response bias, and malingering

The Clinical Neuropsychologist ◽

10.1080/13854046.2021.1896036 ◽

2021 ◽

pp. 1-54

Author(s):

Jerry J. Sweet ◽

Robert L. Heilbronner ◽

Joel E. Morgan ◽

Glenn J. Larrabee ◽

Martin L. Rohling ◽

...

Keyword(s):

American Academy ◽

Response Bias ◽

Neuropsychological Assessment ◽

Consensus Statement ◽

Consensus Conference ◽

Clinical Neuropsychology ◽

Validity Assessment

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Searching for an Operational Definition of Frailty: A Delphi Method Based Consensus Statement. The Frailty Operative Definition-Consensus Conference Project

The Journals of Gerontology Series A ◽

10.1093/gerona/gls119 ◽

2012 ◽

Vol 68 (1) ◽

pp. 62-67 ◽

Cited By ~ 543

Author(s):

Leocadio Rodríguez-Mañas ◽

Catherine Féart ◽

Giovanni Mann ◽

Jose Viña ◽

Somnath Chatterji ◽

...

Keyword(s):

Delphi Method ◽

Consensus Statement ◽

Operational Definition ◽

Consensus Conference ◽

Definition Of

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Mailed letter versus phone call to increase diabetic retinopathy screening engagement by patients in a team-based primary care practice: a prospective, single-masked, randomized trial.

10.21203/rs.3.rs-147881/v1 ◽

2021 ◽

Author(s):

Vess Stamenova ◽

Megan Nguyen ◽

Nike Onabajo ◽

Rebecca Merritt ◽

Olivera Sutakovic ◽

...

Keyword(s):

Primary Care ◽

Diabetic Retinopathy ◽

Usual Care ◽

Patient Engagement ◽

Primary Care Practice ◽

Phone Call ◽

Care Practice ◽

Diabetic Retinopathy Screening ◽

Engagement Strategies ◽

Retinopathy Screening

Abstract Background: Diabetic retinopathy is the leading cause of blindness among adults, but vision loss is preventable through regular screening. Urban areas in Canada have large numbers of unscreened individuals and teleophthalmology programs have been used to improve access and uptake of screening. The purpose of this study was to test different patient engagement approaches to expand teleophthalmology program to team-based primary care clinic in the city of Toronto, Canada.Methods: A teleophthalmology program was set up in a large urban academic team-based primary care practice. Patients over 18 years of age, with type 1 or type 2 diabetes were randomized to one of four engagement strategies: a phone call, a letter, a letter plus phone call, or usual care. Outreach was conducted by administrative staff within the clinic. The primary outcome was booking an appointment for diabetic retinopathy screening through a teleophthalmology program at the time of the call or within one week for the mail intervention. Results: A total of 23 patients in the phone, 28 in the mail, 32 in the mail and phone, and 27 in the control (usual care) were included in the analysis. After the intervention, 88% of patients in the phone intervention, 11% of patients in the mail group, and 100% in the mail and phone group booked an appointment with the teleophthalmology program compared to 0% in the control group. Phoning patients positively predicted patients booking a teleophthalmology appointment (p< .0001), while sending a letter had no effect. Conclusions: Patient engagement to book diabetic retinopathy screening via teleophthalmology in an urban academic team-based primary care practice using telephone calls was much more effective than letters or usual care. Practices that have access to a local DR screening programs and have the required resources to undertake such engagement strategies should consider using them as a means in improving their DR screening rates.

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