scholarly journals Breaking the Mould: A Theory Explaining How Young Adults Living with WS Learn Life Skills through Music

2021 ◽  
Vol 19 (1) ◽  
pp. 49
Author(s):  
Ewie Erasmus
Keyword(s):  
Young Adults ◽  
Music Education ◽  
Thematic Analysis ◽  
Life Skills ◽  
Opportunity To Learn ◽  
Care Ethics ◽  
Structured Interviews ◽  
Safe Environment ◽  
Analysis Strategy ◽  
Field Notes

This article presents a theory explaining how young adults living with Williams syndrome (WS) learn life skills through music. The article answers the question: What theory explains how young adults living with WS learn life skills through music? The theory presented in this article is informed by principles of care ethics and compassionate music education and theories of wellbeing and flourishing. The theory is further informed by empirical data, including data collected during semi-structured interviews, casual conversations, observations, field notes, and social media and blog posts collected at Berkshire Hills Music Academy, Massachusetts, USA, over six weeks. Thematic analysis was the data analysis strategy. The theoretical proposition represented by the findings is: (i) If young adults living with WS have the opportunity to learn through engagement in music activities within a safe environment in which they are engaged, supported, appreciated, motivated, feel that they belong and feel that they are competent, and (ii) if educators are willing to focus on the abilities of these young adults by putting their needs first, (iii) then young adults living with WS should be able to overcome various challenges and ultimately develop the life skills they need to live well.

scholarly journals Understanding the relationship transitions and associated end of life clinical needs of young adults with life-limiting illnesses: A triangulated longitudinal qualitative study

2016 ◽  
Vol 4 ◽  
pp. 205031211666642 ◽  
Author(s):  
Bridget Johnston ◽  
Divya Jindal-Snape ◽  
Jan Pringle ◽  
Libby Gold ◽  
Jayne Grant ◽  
...  
Keyword(s):  
Young Adults ◽  
Young Adult ◽  
Qualitative Study ◽  
End Of Life ◽  
Thematic Analysis ◽  
Significant Others ◽  
Evidence Base ◽  
Clear Understanding ◽  
Structured Interviews ◽  
Relationship Transitions

Background: Care of young adults with life-limiting illnesses can often be complex due to the fact that they are growing and developing within the continuing presence of their illness. There is little research conducted nationally and internationally, which has examined the life issues of young adults or taken a longitudinal approach to understand such issues over a period of time. Aim: To gain clear understanding of one particular and pertinent life issue—relationship transition—occurring in the context of being a young adult with a life-limiting illness and the clinical needs arising from this. Design: This was a triangulated, longitudinal, qualitative study involving young adults with life-limiting illnesses and their significant others, namely, family members and healthcare professionals. Semi-structured interviews were conducted with participants and analysed using thematic analysis. Clinical case note reviews were also carried out. Setting/participants: A total of 12 young adults (aged between 17 and 23 years) from 2 hospices and 22 nominated significant others participated in a total of 58 interviews. Results: Thematic analysis revealed 4 main themes and 11 subthemes. The main themes were ‘Dependence dichotomy’, ‘In it together’, ‘Biographical uncertainty’, and ‘Conserving integrity’. These themes helped to establish the nature of relationship transitions that the young adult participants from the study experienced and additionally allowed insight into their possible needs at their end of life. Conclusion: This study has identified the nature of relationship transitions pertinent to young adults and has highlighted associated end of life clinical needs. This study can influence further research into the transitions and end of life needs of this particular patient group receiving palliative care, while informing the lacking evidence base which exists internationally.

scholarly journals Young Adults’ Perceptions of Online Self-Disclosure

2021 ◽  
Vol 13 (1) ◽  
pp. 26
Author(s):  
Megan A. Edwards ◽  
John G. Howcroft ◽  
Tania Lambert
Keyword(s):  
Young Adults ◽  
South African ◽  
Psychosocial Factors ◽  
Thematic Analysis ◽  
Online Communication ◽  
Qualitative Approach ◽  
Structured Interviews ◽  
Self Disclosure ◽  
African Context ◽  
Primary Instrument

Online communication has become the primary instrument utilised by many individuals to maintain and form relationships, and self-disclosure plays an important role in the formation of close relationships online. An extensive amount of research has investigated the experiences of adolescents online. However, available knowledge about the influence of social media on young adults within the South African context is limited. Consequently, exploring young adults’ perceptions of online self-disclosure becomes more relevant. The aim of this study was to explore and describe young adults’ perceptions of online self-disclosure, specifically exploring what young adults’ self-disclose online and what psychosocial factors impact thereupon. The present study utilised a qualitative approach and was exploratory and descriptive in design. The sample size of the present study was 13, and semi-structured interviews were utilised as the method of data collection. The data obtained was analysed using thematic analysis and six main themes were identified. This article highlights one of those themes, namely Online Self-disclosure, focusing specifically on the psychosocial factors impacting upon online self-disclosure.

Reactions to the Metaphors of Disability: The Mediating Effects of Physical Activity

2004 ◽  
Vol 21 (4) ◽  
pp. 379-398 ◽  
Author(s):  
Donna L. Goodwin ◽  
Robin Thurmeier ◽  
Paul Gustafson
Keyword(s):  
Physical Activity ◽  
Young People ◽  
Thematic Analysis ◽  
Physical Disabilities ◽  
Mediating Effects ◽  
Structured Interviews ◽  
Field Notes ◽  
People With Physical Disabilities ◽  
Stigma Theory

The purpose of this study was to describe the metaphors of disability to which young people with physical disabilities felt they were exposed and the moderating influence of physical activity on the meanings ascribed to those metaphors. Fourteen participants (7 males, 7 females) with physical disabilities between the ages of 14 and 24 years participated in the study. Their experiences were captured by way of one-on-one audio taped semi-structured interviews and the use and interpretation of artifacts and field notes. Three themes emerged from the thematic analysis: don’t treat me differently, managing emotions, and physical activity balances perceptions. The implications of the findings are discussed within the context of stigma theory and the liminality of social indefinition.

scholarly journals Taking on choice and control in personal care and support: The experiences of physically disabled young adults

2016 ◽  
Vol 17 (4) ◽  
pp. 413-433 ◽  
Author(s):  
Wendy Mitchell ◽  
Bryony Beresford ◽  
Jenni Brooks ◽  
Nicola Moran ◽  
Caroline Glendinning
Keyword(s):  
Young Adults ◽  
Parental Support ◽  
Life Skills ◽  
Social Care ◽  
Life Experience ◽  
Life Stage ◽  
Minority Group ◽  
Structured Interviews ◽  
Physically Disabled ◽  
Self Confidence

Summary Research on self-directed care has focused on older people and adults with learning or mental health difficulties. This article reports physically disabled young adults’ experiences of self-directed care. Such work is important because young adults are a ‘minority’ group within adult social care. This, and their still developing life-skills and lack of life experience, may have a bearing on their experiences of self-directed care and associated support needs. An exploratory qualitative study using semi-structured interviews investigated this issue. Participants were 19–29 years with a range of congenital and acquired impairments. Findings Many aspects of interviewees’ experiences of self-directed care appeared to be influenced by their limited life experience, the fact they are still developing life-skills and are a minority group within adult social care. Interviewees identified their lack of life experience and self-confidence as making them cautious in assuming responsibility for their care arrangements and, typically, their desire for on-going parental support. They also believed their age and life stage contributed to difficulties managing carers and PAs. Preferences around characteristics of carers/PAs were influenced by their age and desire to integrate into mainstream activities. Information provided by statutory services did not (fully) acknowledge that some users were young adults. Applications Compared to other physically disabled users of adult social care, young adults’ under-developed life-skills and lack of life experience influences their experiences as users, and the support they needed to assume control of their care arrangements. Tailored information and support for this ‘minority group’ is required.

scholarly journals Effect of Technology Enhanced Language Learning on Vocabulary Acquisition of EFL Learners

2017 ◽  
Vol 6 (3) ◽  
pp. 262 ◽  
Author(s):  
Imtiaz Hassan Taj ◽  
Fatimah Ali ◽  
Muhammad Aslam Sipra ◽  
Waqar Ahmad
Keyword(s):  
Language Learning ◽  
Thematic Analysis ◽  
Qualitative Method ◽  
Qualitative Data ◽  
Structured Interviews ◽  
Efl Learners ◽  
Related Research ◽  
Field Notes ◽  
Research Questions ◽  
Teachers Perspectives

The aim of the present study was to understand the reasons of MA TEFL students’ silence and unwillingness to participate in class discussions as perceived by their professors. A qualitative method was conducted to understand the issue from teachers’ perspectives at three different Iranian universities (Alzahra University, Tehran University and Azad University). Qualitative data were collected through observational check-list, field notes and semi-structured interviews with 12 professors to reflect their understanding of students’ silence and the ways of involving them in class activities. Then, thematic analysis was run to answer the related research questions. The results of professors’ perspective through thematic analysis have mirrored four different reasons including affective, lingu-cognitive, sociocultural and pedagogical reasons. Some further strategies were proposed by the professors for breaking the wall of silence. The study ended with a number of pedagogical implications.

scholarly journals Rural Islandness as a Lens for (Rural) HCI

2021 ◽  
Vol 28 (3) ◽  
pp. 1-32
Author(s):  
Sarah Robinson ◽  
Nicola J. Bidwell ◽  
Roberto Cibin ◽  
Conor Linehan ◽  
Laura Maye ◽  
...  
Keyword(s):  
Thematic Analysis ◽  
Small Island ◽  
Community Radio ◽  
Structured Interviews ◽  
Community Members ◽  
Technology Appropriation ◽  
Analytic Tool ◽  
Field Notes ◽  
Rural Context

This article contributes to research that aims to better understand and describe the rural context for rural computing. We argue that the particularities of rurality are heightened by the experience of ‘islandness’. We report on our experiences of engaging on one small island as islanders established community radio using a novel platform. Data comes from 12 semi-structured interviews with community members and ethnographic field notes assembled through eight researcher visits to the island. Transcripts and notes were analysed using thematic analysis. We discuss how rural islandness as a socio-cultural lens influenced technology appropriation and factors to support participation. We explore the elements of rural islandness that can be used as an analytic tool for rural HCI and HCI more broadly, through three main contributions of rural islandness that we believe have not yet been sufficiently explored in HCI. These are (1) separateness, (2) pushing things ahead, and (3) publics and rural pluralities.

Continuum of Care Following Sports-Related Concussion

2020 ◽  
Vol 29 (3) ◽  
pp. 1389-1403
Author(s):  
Jessica Brown ◽  
Kelly Knollman-Porter
Keyword(s):  
Young Adults ◽  
Life Span ◽  
Sports Injuries ◽  
Continuum Of Care ◽  
Medical Professional ◽  
Structured Interviews ◽  
Youth Athletes ◽  
Speech Language Pathologist ◽  
History Of ◽  
Injury Reporting

Purpose Although guidelines have changed regarding federally mandated concussion practices since their inception, little is known regarding the implementation of such guidelines and the resultant continuum of care for youth athletes participating in recreational or organized sports who incur concussions. Furthermore, data regarding the role of speech-language pathologists in the historic postconcussion care are lacking. Therefore, the purpose of this retrospective study was to investigate the experiences of young adults with history of sports-related concussion as it related to injury reporting and received follow-up care. Method Participants included 13 young adults with history of at least one sports-related concussion across their life span. We implemented a mixed-methods design to collect both quantitative and qualitative information through structured interviews. Participants reported experiencing 42 concussions across the life span—26 subsequent to sports injuries. Results Twenty-three concussions were reported to a parent or medical professional, 14 resulted in a formal diagnosis, and participants received initial medical care for only 10 of the incidents and treatment or services on only two occasions. Participants reported concussions to an athletic trainer least frequently and to parents most frequently. Participants commented that previous experience with concussion reduced the need for seeking treatment or that they were unaware treatments or supports existed postconcussion. Only one concussion incident resulted in the care from a speech-language pathologist. Conclusion The results of the study reported herein shed light on the fidelity of sports-related concussion care management across time. Subsequently, we suggest guidelines related to continuum of care from injury to individualized therapy.

‘Are we on the same wavelength?’ International nurses and the process of confronting and adjusting to clinical communication in Australia

2017 ◽  
Vol 13 (3) ◽  
pp. 263-274 ◽  
Author(s):  
Tonia Crawford ◽  
Peter Roger ◽  
Sally Candlin
Keyword(s):  
Communication Skills ◽  
Thematic Analysis ◽  
Care Setting ◽  
Linguistically Diverse ◽  
The Other ◽  
Culturally And Linguistically Diverse ◽  
Central Theme ◽  
Structured Interviews ◽  
Clinical Communication ◽  
Professional Experiences

Effective communication skills are important in the health care setting in order to develop rapport and trust with patients, provide reassurance, assess patients effectively and provide education in a way that patients easily understand (Candlin and Candlin, 2003). However with many nurses from culturally and linguistically diverse (CALD) backgrounds being recruited to fill the workforce shortfall in Australia, communication across cultures with the potential for miscommunication and ensuing risks to patient safety has gained increasing focus in recent years (Shakya and Horsefall, 2000; Chiang and Crickmore, 2009). This paper reports on the first phase of a study that examines intercultural nurse patient communication from the perspective of four Registered Nurses from CALD backgrounds working in Australia. Five interrelating themes that were derived from thematic analysis of semi-structured interviews are discussed. The central theme of ‘adjustment’ was identified as fundamental to the experiences of the RNs and this theme interrelated with each of the other themes that emerged: professional experiences with communication, ways of showing respect, displaying empathy, and vulnerability.

“My Roommates Would Laugh at me”: Young Males Reveal Embarrassment over Lack of Food Skills

2020 ◽  
pp. 1-8
Author(s):  
Kristen Simonds ◽  
Lucy Yixuan Zhang ◽  
June I. Matthews
Keyword(s):  
Young Adults ◽  
Food Safety ◽  
Parental Influence ◽  
Comparative Method ◽  
Food Selection ◽  
Young Men ◽  
Structured Interviews ◽  
Young Males ◽  
Solid Foundation ◽  
And Storage

Purpose: This descriptive qualitative study explored young males’ perceptions of food skills in 3 domains: food selection and planning, food preparation, and food safety and storage. Methods: Semi-structured interviews were audio-recorded and transcribed verbatim. Data were analyzed using the constant comparative method. Results: Forty-four young men (aged 17–35) reported varying levels of food skills, from little/no confidence to very confident and skilled. Most participants learned food skills from their mothers. Greater involvement in food selection and planning at a young age appeared to be related to parental influence and encouragement, exposure to food skills at school, and interest in food-related activities, which, in turn, provided a solid foundation for being confident cooks as young adults. Most notable was the lack of knowledge about, or confidence in, food safety and storage. Young men with low self-perceived food skills were deeply embarrassed about this deficiency in front of peers who had higher levels of confidence and skills. Conclusions: Future interventions or curricula should emphasize food safety and storage. This research also illustrates the importance of the home environment in teaching food skills to youth and ensuring that food skills are taught well before young adults begin living independently.

Acceptance of the HPV Vaccine in a Multiethnic Sample of Latinx Mothers

2021 ◽  
Vol 31 (3) ◽  
pp. 472-483
Author(s):  
Ana Cristina Lindsay ◽  
Madelyne J. Valdez ◽  
Denisse Delgado ◽  
Emily Restrepo ◽  
Yessica M. Guzmán ◽  
...  
Keyword(s):  
Health Care Providers ◽  
Thematic Analysis ◽  
Hpv Vaccine ◽  
Female Adolescents ◽  
Future Research ◽  
Care Providers ◽  
Foreign Born ◽  
Structured Interviews ◽  
Direct Benefits ◽  
Multiethnic Sample

This descriptive qualitative study explored Latinx mothers’ acceptance of the human papillomavirus (HPV) vaccine for their adolescent children. Data were collected through individual, semi-structured interviews and analyzed using a hybrid method of thematic analysis that incorporated deductive and inductive approaches. Twenty-two ( n = 22), mostly foreign-born, Latinx mothers of male and female adolescents participated in the study. Three main themes and nine subthemes emerged from the analyses. Findings identified the need for increased efforts to raise awareness and knowledge among Latinx mothers of the direct benefits of the HPV vaccine for sons, including stressing prevention of HPV-associated cancers in males. Findings also underscore the need for improved health care providers’ communication and recommendation of the HPV vaccine for Latinx adolescent males. Future research should intervene upon the study’s findings to address barriers that remain and affect Latinx mothers’ acceptance and uptake of the HPV vaccine for their children, in particular their sons.

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