scholarly journals Listening to Caregivers’ Voices: The Informal Family Caregiver Burden of Caring for Chronically Ill Bedridden Elderly Patients

2022 ◽  
Vol 19 (1) ◽  
pp. 567
Author(s):  
Jinpitcha Mamom ◽  
Hanvedes Daovisan
Keyword(s):  
Palliative Care ◽  
Elderly Patients ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Matrix Multiplication ◽  
Chronically Ill ◽  
External Support ◽  
Family Caregiver Burden ◽  
Taking Responsibility

The informal family caregiver burden (IFCB) for chronically ill bedridden elderly patients (CIBEPs) is a major issue worldwide. It is a significant challenge due to the ongoing increased palliative care in the family setting; therefore, we explored the IFCB of caring for CIBEPs in Thailand. This article utilized a qualitative method, the total interpretive structural modeling (TISM) approach, with purposive sampling of thirty respondents between September and December 2020. The data were analyzed using cross-impact matrix multiplication applied to classification (MICMAC) to determine the relationship between the driving and dependence power of the enabling factors. The IFCB of the palliative care of CIBEPs was associated with primary care, nursing, extrinsic monitoring and complication prevention. The results showed that the IFCB involves taking responsibility, daily workload, follow-up caring, caring tasks, caregiving strain, financial distress, patient support, external support and caregiving strategy; thus, assistance with taking responsibility, extrinsic monitoring and follow-up care daily tasks may reduce the caregiver burden.

Interventions for Women As Family Caregivers

2001 ◽  
Vol 19 (1) ◽  
pp. 125-142 ◽  
Author(s):  
MARGARET J. BULL
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Family Caregiving ◽  
Nursing Practice ◽  
Long Term Care ◽  
Chronically Ill ◽  
Term Care ◽  
Family Caregiver Burden

Family caregivers are the mainstay of long-term care, as they enable chronically ill elders and children to remain at home. The majority of family caregivers are women and historically their caregiving role has been viewed as an extension of their roles as wife and mother. Although numerous studies report the stresses associated with family caregiving and are predictors of burden, less attention has been given to interventions for family caregivers. The objective of this review is to examine reports of interventions to reduce family caregiver burden, to consider their implications for nursing practice, and to identify directions for future nursing research.

scholarly journals The Association between Family Caregiver Burden and Subjective Well-Being and the Moderating Effect of Social Participation among Japanese Adults: A Cross-Sectional Study

Healthcare ◽  
2020 ◽  
Vol 8 (2) ◽  
pp. 87
Author(s):  
Taiji Noguchi ◽  
Hiroko Nakagawa-Senda ◽  
Yuya Tamai ◽  
Takeshi Nishiyama ◽  
Miki Watanabe ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Social Participation ◽  
Family Caregiver ◽  
Linear Regression Analysis ◽  
Well Being ◽  
Moderating Effect ◽  
Subjective Well Being ◽  
Cross Sectional ◽  
Japanese Adults ◽  
Family Caregiver Burden

We examined the association between family caregiver burden and subjective well-being with social participation’s moderating effect among Japanese adults. Data were obtained from a cross-sectional survey by the Japan Multi-Institutional Collaborative Cohort Study in the Okazaki area between 2013 and 2017. Study participants included 5321 adults who visited the Public Health Center for annual health check-ups and answered a questionnaire regarding health status and lifestyle. Subjective well-being was assessed by a single item, out of 10 points, and analyzed with multivariable linear regression analysis models by subjective family caregiver burden (“none”, “mild”, “severe”), stratified by gender. Ultimately, 2857 men and 2223 women were included. Mean participant age (standard deviation) in years was 64.7 (10.4) for men and 61.3 (10.0) for women. Multivariable analysis revealed that, among women, higher caregiver burden was inversely associated with subjective well-being (p for trend < 0.001), and the interaction of severe caregiver burden and social participation on subjective well-being was positive and significant (p for interaction < 0.05). High family caregiver burden was inversely associated with subjective well-being among Japanese women, but moderated by the caregiver’s social participation, suggesting the importance of community development that enables family caregivers’ social participation to protect their subjective well-being.

scholarly journals Defining the concept of family caregiver burden in patients with schizophrenia: a systematic review protocol

2019 ◽  
Vol 8 (1) ◽  
Author(s):  
Zahra Tamizi ◽  
Masoud Fallahi-Khoshknab ◽  
Asghar Dalvandi ◽  
Farahnaz Mohammadi-Shahboulaghi ◽  
Eesa Mohammadi ◽  
...  
Keyword(s):  
Systematic Review ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Psychiatric Hospitals ◽  
Reference List ◽  
Evolutionary Trend ◽  
Study Selection ◽  
The Family ◽  
Definition Of ◽  
Family Caregiver Burden

Abstract Background Since the deinstitutionalization policy, in psychiatric hospitals, the care of patients with schizophrenia was left to their families which has been imposing a heavy burden on them. Family caregiver burden could have consequences for caregivers, patients, and the society. There is very little consensus on the definition and dimensions of the caregiver burden, which leads to a lack of consistency in the results of research. Thus, the present study was aimed to redefine the family caregiver burden of patients with schizophrenia. Methods The databases PubMed, Scopus, Web of Science, MEDLINE (Via Ovid), ProQuest, SCI, Magiran, SID, and IranDoc will be searched from 1940 to 2018 using subject headings and appropriate terms in both Farsi and English languages. Also, gray literature and the reference list of included articles will be used to offer an appropriate definition of the family caregiver burden in patients with schizophrenia. Two independent reviewers will participate in study selection, data collection, and quality assessment steps. The result will be presented in tabular form, and meta-synthesis will be performed. Discussion The result of this systematic review will help present the comprehensive definition of the family caregiver burden in patients with schizophrenia according to its evolutionary trend. Systematic review registration PROSPERO CRD42018099372

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