scholarly journals Defining the concept of family caregiver burden in patients with schizophrenia: a systematic review protocol

2019 ◽  
Vol 8 (1) ◽  
Author(s):  
Zahra Tamizi ◽  
Masoud Fallahi-Khoshknab ◽  
Asghar Dalvandi ◽  
Farahnaz Mohammadi-Shahboulaghi ◽  
Eesa Mohammadi ◽  
...  

Abstract Background Since the deinstitutionalization policy, in psychiatric hospitals, the care of patients with schizophrenia was left to their families which has been imposing a heavy burden on them. Family caregiver burden could have consequences for caregivers, patients, and the society. There is very little consensus on the definition and dimensions of the caregiver burden, which leads to a lack of consistency in the results of research. Thus, the present study was aimed to redefine the family caregiver burden of patients with schizophrenia. Methods The databases PubMed, Scopus, Web of Science, MEDLINE (Via Ovid), ProQuest, SCI, Magiran, SID, and IranDoc will be searched from 1940 to 2018 using subject headings and appropriate terms in both Farsi and English languages. Also, gray literature and the reference list of included articles will be used to offer an appropriate definition of the family caregiver burden in patients with schizophrenia. Two independent reviewers will participate in study selection, data collection, and quality assessment steps. The result will be presented in tabular form, and meta-synthesis will be performed. Discussion The result of this systematic review will help present the comprehensive definition of the family caregiver burden in patients with schizophrenia according to its evolutionary trend. Systematic review registration PROSPERO CRD42018099372

2017 ◽  
Vol 6 (1) ◽  
Author(s):  
Thom Ringer ◽  
Afeez Abiola Hazzan ◽  
Arnav Agarwal ◽  
Adam Mutsaers ◽  
Alexandra Papaioannou

Author(s):  
A. Nenobais ◽  
Ah. Yusuf ◽  
S.R.D Andayani

The primary caregiver of schizophrenia patients is a family member. Caring for schizophrenia patients with other routine activities makes the family as caregivers experiences substantive stress or burden. The aims of this study is to describe the burden of the family caregivers of patiens with schizophrenia. This study was a descriptive study with a sample of 104 family nurse patients with schizophrenia, who visited the outpatient and inpatient care of Naimata Mental Hospital in Kupang, East Nusa Tenggara. The burden of family caregivers was measured using The Zarit Burden Interview. The results showed mild to moderate burden was 23.1%, moderate to severe burden 49%, severe burden 22.1% and little or no burden 5.8%. Family caregiver burden is an important indicator for the provision of mental health services because it impacts on the ability of families to maintain their caregiving role. Keywords: family; caregiver; burden; schizophrenia ABSTRAK Pengasuh utama pasien Skizofrenia adalah anggota keluarga. Merawat pasien skizofrenia dengan kegiatan rutin lainnya menjadikan keluarga sebagai pengasuh mengalami stres atau beban yang substansial. Tujuan dari penelitian ini adalah untuk menggambarkan beban pengasuh keluarga pasien skizofrenia. Penelitian ini adalah penelitian deskriptis dengan sampel penelitian 104 perawat keluarga pasien dengan skizofrenia, yang berkunjung di rawat jalan dan rawat inap Rumah Sakit Jiwa Naimata di Kupang Nusa Tenggara Timur. Beban pengasuh keluarga diukur menggunakan The Zarit Burden Interview. Hasil penelitian menunjukkan beban ringan sampai sedang adalah 23,1%, beban sedang hingga berat 49%, beban berat 22,1% dan sedikit atau tidak ada beban 5,8%. Beban pengasuh keluarga merupakan indikator penting untuk penyediaan layanan kesehatan mental karena berdampak pada kemampuan keluarga untuk mempertahankan peran pengasuhan mereka. Kata kunci: keluarga; caregiver; beban; skizofrenia


Author(s):  
Jian-An Su ◽  
Chih-Cheng Chang

Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.


Author(s):  
Mariana Lázaro ◽  
Luísa Carvalhão Gil ◽  
Ana Margarida Mota ◽  
Filomena Bacelar

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