scholarly journals A Secure Occupational Therapy Framework for Monitoring Cancer Patients’ Quality of Life

Sensors ◽  
2019 ◽  
Vol 19 (23) ◽  
pp. 5258 ◽  
Author(s):  
Md. Abdur Rahman ◽  
Md. Mamunur Rashid ◽  
Julien Le Kernec ◽  
Bruno Philippe ◽  
Stuart J. Barnes ◽  
...  

Once diagnosed with cancer, a patient goes through a series of diagnosis and tests, which are referred to as “after cancer treatment”. Due to the nature of the treatment and side effects, maintaining quality of life (QoL) in the home environment is a challenging task. Sometimes, a cancer patient’s situation changes abruptly as the functionality of certain organs deteriorates, which affects their QoL. One way of knowing the physiological functional status of a cancer patient is to design an occupational therapy. In this paper, we propose a blockchain and off-chain-based framework, which will allow multiple medical and ambient intelligent Internet of Things sensors to capture the QoL information from one’s home environment and securely share it with their community of interest. Using our proposed framework, both transactional records and multimedia big data can be shared with an oncologist or palliative care unit for real-time decision support. We have also developed blockchain-based data analytics, which will allow a clinician to visualize the immutable history of the patient’s data available from an in-home secure monitoring system for a better understanding of a patient’s current or historical states. Finally, we will present our current implementation status, which provides significant encouragement for further development.

2020 ◽  
pp. 105566562098133
Author(s):  
Alyssa Fritz ◽  
Diana S. Jodeh ◽  
Fatima Qamar ◽  
James J. Cray ◽  
S. Alex Rottgers

Introduction: Oronasal fistulae following palatoplasty may affect patients’ quality of life by impacting their ability to eat, speak, and maintain oral hygiene. We aimed to quantify the impact of previous oronasal fistula repair on patients’ quality of life using patient-reported outcome psychometric tools. Methods: A cross-sectional study of 8- to 9-year-old patients with cleft palate and/or lip was completed. Patients who had a cleft team clinic between September 2018 and August 2019 were recruited. Participants were divided into 2 groups (no fistula, prior fistula repair). Differences in the individual CLEFT-Q and Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19) Oral Health scores between the 2 groups were evaluated using a multivariate analysis controlling for Veau classification and syndromic diagnosis. Results: Sixty patients with a history of cleft palate were included. Forty-two (70%) patients had an associated cleft lip. Thirty-two (53.3%) patients had no history of fistula and 28 (46.7%) patients had undergone a fistula repair. CLEFT-Q Dental, Jaw, and Speech Function were all higher in patients without a history of a fistula repair; however, none of these differences were statistically significant. The COHIP-SF 19 Oral Health score demonstrated a significantly lower score in the fistula group, indicating poorer oral health ( P = .05). Conclusions: One would expect that successful repair of a fistula would result in improved function and patient satisfaction, but the consistent trend toward lower CLEFT-Q scores and significantly increased COHIP-SF 19 Oral Health scores in our study group suggests that residual effects linger and that the morbidity of a fistula may not be completely treated with a secondary correction.


2000 ◽  
Vol 9 (1) ◽  
pp. 52-63 ◽  
Author(s):  
Johan Herlitz ◽  
Kenneth Caidahl ◽  
Ingela Wiklund ◽  
Helén Sjöland ◽  
Björn Karlson ◽  
...  

2018 ◽  
Vol 89 (2) ◽  
pp. 187-205 ◽  
Author(s):  
Kyle S. Page ◽  
Bert Hayslip ◽  
Dee Wadsworth ◽  
Philip A. Allen

Persons with and without a family history of dementia report concerns for developing this syndrome; yet, less is known about the specific aspects of dementia that are feared. The Fear of Dementia (FOD) scale was created to assess these concerns. This study examined the psychometric properties of the FOD scale using a sample of middle-aged and older adults ( N = 734). We then explored the factor structure of the scale 2 years later using a smaller sample from the first study ( N = 226). Three factors emerged, highlighting several main areas of concern: Burden and Loss, Quality of Life, and Perceived Social and Cognitive Loss. Preliminary data suggest that the FOD scale is a reliable and valid instrument for assessing the multidimensional nature of the concern about developing dementia. Attention to what specifically is feared may help further our understanding of health behaviors, coping, and targeted supports.


2017 ◽  
pp. 118-122
Author(s):  
O.I. Zadnipryanaya ◽  

The objective: the study of clinical and psychological features of acne and quality of life in women with infertility. Patients and methods. 151 patients were included in the study: 111 with acne and infertility, 40 fertile women with acne entered the comparison group. An anamnesis, a dermatological and gynecological status, a hormonal background, an assessment of the psycho-emotional state and quality of life of patients (a Dermatological Index of Quality of Life – DIQL, the Hospital Scale of Anxiety and Depression – HADS), and the psychological and social effect of acne (APSEA questionnaire) were evaluated. Results. Infertile women with acne reliably recorded open and closed comedones, more often papules, stagnant spots, hyperpigmentation, enlarged pores, as well as atrophic scars were more often detected. They are characterized by a later menarche, an early onset of sexual activity. In 56.8% of infertile patients in the history of the disease, sexually transmitted diseases, abortions (8.1%), miscarriages and stagnant pregnancies (12.6%), ectopic pregnancy (4.5%). It was found that infertility lasts on average 4.9±3.6 years, with primary infertility diagnosed in 69.4% of cases. The endocrine nature of infertility was confirmed in 48 (43.2%) patients, tubo-peritoneal – in 63 (56.8%) of the women. It was found that the disease has a very strong effect on the quality of their life (13.3±6.2 points), causes a strong psychological and social effect (87.8±28.1 points), clinically expressed anxiety (11.8±4.4 points) and depressiveness (11.6±3.8 points). Conclusion. Acne in infertile patients in addition to clinical features is accompanied by significant violations of the psycho-emotional sphere and a decrease in the quality of life. Key words: women with acne and infertility, quality of life, psycho-emotional disorders, psychological and social effect of acne.


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