Introduction: Chronicity and the Experience of Illness

2019 ◽  
pp. 1-18
Keyword(s):  
Experience Of Illness

scholarly journals Transforming the experience of illness into action – Patient and spouses experiences of involvement in a patient and family advisory council

2020 ◽  
Author(s):  
Malene Missel ◽  
Malene Haugaard Hansen ◽  
Nadja Buch Petersson ◽  
Jacqueline Forman ◽  
Ida Elisabeth Højskov ◽  
...  
Keyword(s):  
Advisory Council ◽  
Experience Of Illness

scholarly journals Pathology as a phenomenological tool

2021 ◽  
Author(s):  
Havi Carel
Keyword(s):  
Normal Function ◽  
Phenomenological Method ◽  
Experience Of Illness ◽  
Passive Object

AbstractThe phenomenological method (or rather, methods) has been fruitfully used to study the experience of illness in recent years. However, the role of illness is not merely that of a passive object for phenomenological scrutiny. I propose that illness, and pathology more generally, can be developed into a phenomenological method in their own right. I claim that studying cases of pathology, breakdown, and illness offer illumination not only of these experiences, but also of normal function and the tacit background that underpins it. In particular, I claim that the study of embodiment can be greatly enhanced, and indeed would be incomplete, without attending to bodily breakdown and what I term bodily doubt. I offer an analogy between illness and Husserl’s epoché, suggesting that both are a source of distancing, and therefore motivate a reflective stance.

scholarly journals The Illness Experience: Palliative Care Given the impossibility of Healing

2016 ◽  
Vol 50 (spe) ◽  
pp. 47-53 ◽  
Author(s):  
Margarida Maria Florêncio Dantas ◽  
Maria Cristina Lopes de Almeida Amazonas
Keyword(s):  
Palliative Care ◽  
Participant Observation ◽  
Descriptive Analysis ◽  
Terminally Ill ◽  
Medical Model ◽  
Structured Interview ◽  
Subject Position ◽  
The Subject ◽  
Experience Of Illness ◽  
Therapeutic Possibilities

This paper presents a reflection about being terminally ill and the various ways that the subject has at its disposal to deal with this event. The objective is to understand the experience of palliation for patients undergoing no therapeutic possibilities of cure. The methodology of this study has the instruments to semi-structured interview, the participant observation and the field diary, and the Descriptive Analysis of Foucault’s inspiration how the narratives of the subjects were perceived. The Results of paper there was the possibility of looking at the experience of illness through the eyes of a subject position assumed by the very sick. As conclusion we have than when choosing palliative care, the terminally ill opts for a way to feel more comfortable and resists the impositions of the medical model of prolonging life.

Sticks and Stones May Break My Bones . . . Reasoning About Illness Causality and Body Functioning in Children Who Have a Chronic Illness

PEDIATRICS ◽  
1991 ◽  
Vol 88 (3) ◽  
pp. 608-619
Author(s):  
Ellen C. Perrin ◽  
Aline G. Sayer ◽  
John B. Willett
Keyword(s):  
Chronic Illness ◽  
Age Differences ◽  
Conceptual Development ◽  
Seizure Disorder ◽  
Healthy Children ◽  
Cognitive Reasoning ◽  
Different Types ◽  
Reasoning Skills ◽  
Experience Of Illness ◽  
Different Levels

Children's concepts about illness causality and bodily functioning change in a predictable way with advancing age. Differences in the understanding of these concepts in healthy children vs children with a chronic illness have not been clearly delineated. This study included 49 children with a seizure disorder, 47 children with an orthopaedic condition, and 96 healthy children, all with normal intelligence and ranging in age from 5 to 16 years. It demonstrates systematic differences in children's general reasoning skills and in their understanding of concepts about illness causality and bodily functioning, as a function of their age and experience of illness. At all ages, children who had a condition with orthopaedic involvement reported less sophisticated general reasoning and concepts about illness than did healthy children; children with a seizure disorder reported similar general reasoning skills to those of healthy children, but considerably less sophisticated concepts about illness. children's concepts about body functioning did not differ as a function of the presence of a chronic illness. When their different levels of general cognitive reasoning were statistically controlled, children with a chronic illness had somewhat more sophisticated concepts about bodily functioning than did healthy children. Differences in conceptual development among children with different types of illnesses lead to interesting speculations with regard to the effects of particular illness characteristics on children's cognitive development.

scholarly journals Patients' satisfaction with information on disease and morbidity

2009 ◽  
Vol 17 (3) ◽  
pp. 335-340 ◽  
Author(s):  
José Carlos Amado Martins
Keyword(s):  
Nursing Care ◽  
Health Professionals ◽  
Recent Experience ◽  
Symptom Checklist ◽  
Consecutive Sampling ◽  
Patients Satisfaction ◽  
Post Surgery ◽  
Two Samples ◽  
Experience Of Illness ◽  
Rotterdam Symptom Checklist

This descriptive-correlational study aimed to evaluate the relation between patients' satisfaction with information they have about their disease and its morbidity. A questionnaire was applied in two samples: 235 individuals with recent experience of illness (network sampling) and 254 hospitalized cancer patients post-surgery (consecutive sampling). The Escala de Conhecimentos sobre a Doença(12) [Patients' Satisfaction with Information Questionnaire - PSIQ] and the Rotterdam Symptom Checklist were used. Results show that participants were dissatisfied with information received and this dissatisfaction was more pronounced in hospitalized patients. An inverse statistically significant correlation (p<0.001) is observed between patients' satisfaction with information and physical, psychological and global morbidity. The conclusion is that obtained results appoint to the need for health professionals to invest more in patient information and reinforce the benefits of this area of nursing care.

scholarly journals What can be learned from patient stories about living with the chronicity of heart illness? A Narrative Inquiry

2021 ◽  
Author(s):  
Jasna Krmpotic Schwind ◽  
Suzanne Fredericks ◽  
Kateryna Metersky ◽  
Victoria Gaudit Porzuczek
Keyword(s):  
Narrative Inquiry ◽  
Chronic Illnesses ◽  
Three Dimensions ◽  
Experience Design ◽  
Reflective Process ◽  
Process Outcomes ◽  
Narrative Interview ◽  
Discharge From Hospital ◽  
Experience Of Illness ◽  
Patient Stories

Background: Patients’ illness stories are valuable information that supports person-centred care across the illness trajectory. Aims: To learn how older South Asian immigrant women experience living with heart illness long after discharge from hospital. Method: We used narrative inquiry, a personal experience method that explores and interprets lived and told stories through the three dimensions of experience. Design: Four participants, over the age of sixty, living with heart illness for over ten years, were invited to engage in narrative interview and Narrative Reflective Process. Outcomes: Giving patients voice, allows caregivers insight into the human experience of illness beyond hospitalization. Considering the increased migration of people around the globe, this knowledge is significant in provision of person-centred care. Implications: Person-centred care does not end with the hospitalization and outpatient clinics. Inter-disciplinary teams need to reconsider the trajectory of chronic illnesses and the care required throughout, especially for marginalized populations.

scholarly journals Intimacy and its violation: on the experience of illness in contemporary women's poetry

2021 ◽  
Author(s):  
Beata Morzyńska-Wrzosek
Keyword(s):  
Hospital Setting ◽  
The Body ◽  
Women's Poetry ◽  
Research Perspective ◽  
Artistic Representations ◽  
Body Boundary ◽  
New Type ◽  
The Subject ◽  
Experience Of Illness ◽  
Subjective Identity

This article discusses selected aspects of the problem of self-perception by a sick individual, specific to the poetry of Polish women of the last few decades. The aim of the analysis is to show that the body is central to the illness experience and that a new type of intimacy appears in connection with its ailment. This is a „clinical intimacy”, the specificity of which is defined by a confrontation with suffering, the proliferation of the feeling of isolation, the intensity of emotions related to making the body public, its discovery and exposure in a hospital setting. The issue of „gender expropriation” in a marginal situation is also important, as is the scar, wound, physical violation of the body boundary, read as the „punctum” of the patient's body. The interpretation emphasises the individualization of artistic representations of the aforementioned aspects of „clinical intimacy”. The anthropological research perspective adopted in the sketch allows for the diagnosis of the subject matter in the context of the process of shaping subjective identity.

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