Culturally Adapted Psychoeducation among Family Caregivers of Schizophrenic Clients: A Scoping Review

Background: As psychoeducation was originally developed from Western, this intervention should be integrated with a culture to obtain effective outcomes. However, how culturally adapted psychoeducation on family caregivers of schizophrenic client developed in previous studies has not been systematically documented. The purpose of this review was to map culturally adapted psychoeducation in previous studies. Methods: This scoping review followed Arksey & O'Malley approach. Inclusion criteria including family caregiver, culture, psychoeducation, schizophrenia. Non-primary and non-experiment studies, non-English language and non-free articles were excluded. Advanced search technique used keywords family caregiver, culture, psychoeducation, schizophrenia on CINAHL, PubMed, and PsycInfo databases. Screening was done by checking duplication, title, and abstract. Full text of relevant articles was read in detail to select eligible articles. Selection results were described in the PRISMA flow chart. Data were analyzed after these were extracted and resumed on the table. Result: A total of 8 studies were included in this review. More than half of articles used randomized control trial (RCT) but these studies did not conduct follow up. Most of studies were in Asia (6) and it conducted in the outpatient department (6). Almost all studies modified multifamily group psychoeducation with culture theories. The longest duration of intervention was 12 months. Multidiscipline health professional delivered the intervention and most of the were psychiatrist. Coping was the most family caregiver outcomes in reviewed studies. Conclusion: In conclusion, limited studies were obtained in various ethnics and ways. Further studies need to measure effectiveness of the intervention in long term effect.

Download Full-text

Suicidality in family caregivers of people with long-term illnesses and disabilities: A scoping review

Comprehensive Psychiatry ◽

10.1016/j.comppsych.2021.152261 ◽

2021 ◽

pp. 152261

Author(s):

Siobhan T. O'Dwyer ◽

Astrid Janssens ◽

Anna Sansom ◽

Lucy Biddle ◽

Becky Mars ◽

...

Keyword(s):

Family Caregivers ◽

Scoping Review

Download Full-text

Interventions for Women As Family Caregivers

Annual Review of Nursing Research ◽

10.1891/0739-6686.19.1.125 ◽

2001 ◽

Vol 19 (1) ◽

pp. 125-142 ◽

Cited By ~ 10

Author(s):

MARGARET J. BULL

Keyword(s):

Family Caregivers ◽

Caregiver Burden ◽

Family Caregiver ◽

Family Caregiving ◽

Nursing Practice ◽

Long Term Care ◽

Chronically Ill ◽

Term Care ◽

Family Caregiver Burden

Family caregivers are the mainstay of long-term care, as they enable chronically ill elders and children to remain at home. The majority of family caregivers are women and historically their caregiving role has been viewed as an extension of their roles as wife and mother. Although numerous studies report the stresses associated with family caregiving and are predictors of burden, less attention has been given to interventions for family caregivers. The objective of this review is to examine reports of interventions to reduce family caregiver burden, to consider their implications for nursing practice, and to identify directions for future nursing research.

Download Full-text

Findings From RAISE Act Research: Family Caregiver Priorities

Innovation in Aging ◽

10.1093/geroni/igab046.243 ◽

2021 ◽

Vol 5 (Supplement_1) ◽

pp. 64-64

Author(s):

Pamela Nadash ◽

Eileen Tell ◽

Carol Regan ◽

Taylor Jansen ◽

Andrew Alberth ◽

...

Keyword(s):

Qualitative Analysis ◽

Family Caregivers ◽

Family Caregiver ◽

Advisory Council ◽

Financial Security ◽

Diverse Populations ◽

Policy Changes ◽

Publicity Campaign ◽

Services And Supports

Abstract To understand the needs and policy priorities of family caregivers, the Advisory Council commissioned research: first, through a request for information (RFI) in the Federal Register, which garnered roughly 1600 responses. Qualitative analysis revealed that family caregivers have diverse needs spanning their financial security as well as their needs for caregiver-focused supports; recommendations were similarly diverse, including requests for caregiver pay, improved access to respite, and other major policy changes. These findings fed into 12 focus groups focusing on diverse populations of caregivers, yielding more depth around caregiver priorities. Six stakeholder listening sessions built on these results, aiming to develop concrete suggestions for a national caregiver strategy – a key outcome of the Advisory Council. Such strategies ranged from a major publicity campaign creating awareness of family caregivers, to suggestions on implementing caregiver assessments, to more ambitious goals such as improved financing for long term services and supports more broadly.

Download Full-text

Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18147294 ◽

2021 ◽

Vol 18 (14) ◽

pp. 7294

Author(s):

Patricia Marín-Maicas ◽

Silvia Corchón ◽

Leire Ambrosio ◽

Mari Carmen Portillo

Keyword(s):

Family Caregivers ◽

Scoping Review ◽

Self Management ◽

Narrative Synthesis ◽

Long Term Conditions ◽

Family Perspective ◽

The Family ◽

The Impact ◽

Different Levels

(1) Background: When living with one or more long term conditions (LTCs), both the patient and the family experience the impact of the condition at different levels. The family’s needs and perceptions should be considered in the process of caring for people with LTCs. The aim of this review is to understand “the process of living with LTCs” from a family perspective. (2) Methods: A scoping review and narrative synthesis were conducted using a systematic methodology in MEDLINE, CINAHL, Web of Science and PsycINFO, in English and Spanish, including evidence from 2018. (3) Results: A total of 28 articles were included in the review. Acceptance, coping, self-management, integration, and adjustment were key attributes in the process of living with LTCs from the perspective of family caregivers that interrelated in a dynamic way through different mechanisms: being aware of the changing situation, personal networks, information and education, personal conditions, attitude to life and communication. (4) Conclusions: The five attributes that comprise living with LTCs from the perspective of the family caregiver are closely connected of to those of patients living with LTCs; however, self-management and integration have a different meaning and application.

Download Full-text

Non-radiologist-performed abdominal point-of-care ultrasonography in paediatrics — a scoping review

Pediatric Radiology ◽

10.1007/s00247-021-04997-x ◽

2021 ◽

Author(s):

Elsa A. van Wassenaer ◽

Joost G. Daams ◽

Marc A. Benninga ◽

Karen Rosendahl ◽

Bart G. P. Koot ◽

...

Keyword(s):

Scoping Review ◽

English Language ◽

Point Of Care ◽

Case Reports ◽

Case Series ◽

Original Research ◽

Advanced Search ◽

Financial Consequences ◽

Level Of Training ◽

Point Of Care Ultrasonography

Abstract Background Historically, US in the paediatric setting has mostly been the domain of radiologists. However, in the last decade, there has been an uptake of non-radiologist point-of-care US. Objective To gain an overview of abdominal non-radiologist point-of-care US in paediatrics. Materials and methods We conducted a scoping review regarding the uses of abdominal non-radiologist point-of-care US, quality of examinations and training, patient perspective, financial costs and legal consequences following the use of non-radiologist point-of-care US. We conducted an advanced search of the following databases: Medline, Embase and Web of Science Conference Proceedings. We included published original research studies describing abdominal non-radiologist point-of-care US in children. We limited studies to English-language articles from Western countries. Results We found a total of 5,092 publications and selected 106 publications for inclusion: 39 studies and 51 case reports or case series on the state-of-art of abdominal non-radiologist point-of-care US, 14 on training of non-radiologists, and 1 each on possible harms following non-radiologist point-of-care US and patient satisfaction. According to included studies, non-radiologist point-of-care US is increasingly used, but no standardised training guidelines exist. We found no studies regarding the financial consequences of non-radiologist point-of-care US. Conclusion This scoping review supports the further development of non-radiologist point-of-care US and underlines the need for consensus on who can do which examination after which level of training among US performers. More research is needed on training non-radiologists and on the costs-to-benefits of non-radiologist point-of-care US.

Download Full-text

Collaboration between adult patients and practitioners when making decisions about prescribing opioid medicines for chronic non-cancer pain in primary care: a scoping review

British Journal of Pain ◽

10.1177/20494637211025560 ◽

2021 ◽

pp. 204946372110255

Author(s):

Nirlas Shantilal Bathia ◽

Robyn E McAskill ◽

Jennie E Hancox ◽

Roger D Knaggs

Keyword(s):

Primary Care ◽

Cancer Pain ◽

Scoping Review ◽

English Language ◽

Good Clinical Practice ◽

Opioid Therapy ◽

Advisory Group ◽

Video Recordings ◽

And Function

Background: Long-term opioid therapy (>12 months) is not effective for improving chronic non-cancer pain and function. Where patients are not experiencing pain relief with long-term opioids, the opioid should be tapered and discontinuation considered. Practitioners may find it challenging to tell patients experiencing pain that they are better off reducing or not taking medicines that do not help. This review aims to ascertain what is published about: (1) the interaction and (2) the nature of the relationship between practitioners and patients when prescribing opioids for chronic non-cancer pain in primary care. Method: A scoping review of English-language qualitative, quantitative or mixed-method studies in databases including: MEDLINE, Embase, PsycINFO, AMED, BNI, CINALH EMCARE and HMIC. The identified papers were reviewed to provide a descriptive summary of the literature. Results: The review identified 20 studies. The studies used a range of methods including interviews, focus groups, audio and video recordings of clinical consultations, telephone survey and data from patient records. One study reported that researchers had engaged with a patient advisory group to guide their research. Patients expressed the importance of being treated as individuals, not being judged and being involved in prescribing decisions. Practitioners expressed difficulty in managing patient expectations and establishing trust. Opioid risk and practitioner suspicion shape opioid prescribing decisions. There is a paucity of literature about how precisely practitioners overcome interactional challenges and implement personalised care in practice. Conclusion: The studies in this review ascertain that practitioners and patients often find it challenging to achieve shared decisions in opioid review consultations. Effective communication is essential to achieve good clinical practice. Collaborative research with PPI partners should be aimed at identifying communication practices that support practitioners to achieve shared decisions with patients when reviewing opioids for chronic non-cancer pain.

Download Full-text