scholarly journals The psychosocial impact of caregiving on the family caregivers of chronically ill AIDS and/or HIV patients in home-based care: A qualitative study in Zimbabwe

2017 ◽  
Vol 18 (1) ◽  
Author(s):  
Claire Van Deventer ◽  
Anne Wright
Keyword(s):  
Qualitative Study ◽  
Family Caregiver ◽  
Chronically Ill ◽  
Psychosocial Impact ◽  
Aids Patients ◽  
Psychosocial Experiences ◽  
Home Based ◽  
Family Issues ◽  
The Family ◽  
Food Transport

Background: The family caregiver has a pivotal role to play in the management of the chronically ill HIV and/or AIDS patients. The wellbeing of caregivers is therefore crucial because impairment of their physical or mental health could impact negatively on the management of their HIV-positive family member. The purpose of this qualitative study was to explore the psychosocial impact of caregiving on the family caregiver of the chronically ill HIV and/or AIDS patients in home-based care.Method: Unstructured interviews were conducted with 11 caregivers recruited at an adult HIV clinic at United Bulawayo Hospitals, Bulawayo, Zimbabwe. Relevant demographic information was collected from each participant. The interviews were then transcribed and analysed.Results: Caregivers’ biggest challenge was meeting care costs such as food, transport and medical costs. Certain conditions relating to the care-recipient’s health and family issues, such as abandonment of the ill patient as well as that of orphans, added to the burden of care. Carers also had to deal with their own health and physical problems. All the above resulted in a spectrum of emotions such as helplessness, sadness, anxiety and anger. Despite this, caregivers also reported on the positive aspects regarding their caregiving role.Conclusion: There were both negative and positive psychosocial experiences by caregivers of HIV and/or AIDS patients. The study highlighted practical areas where support could be provided.

scholarly journals Study of Physical, Psychological, and Spiritual Impact of Family Caregiver In Home-Based Stroke Treatment: A Systematic Review

2021 ◽  
Vol 9 (T4) ◽  
pp. 236-239
Author(s):  
Anggi Stiexs ◽  
Nur Chayati
Keyword(s):  
Systematic Review ◽  
Home Care ◽  
Family Caregiver ◽  
Care Home ◽  
Stroke Patients ◽  
Term Care ◽  
Stroke Treatment ◽  
Home Based ◽  
The Family ◽  
Home Based Care

BACKGROUND: Family support during stroke treatment at home is crucial. However, post-stroke patients’ long-term care will be a problem for families, reducing the level of life satisfaction and physical burden for caregivers. Furthermore, families may experience depression. AIM: Analyzing family conditions related to physical, psychological, and spiritual conditions that receive home-based health worker interventions. METHODS: Study implemented systematic review design with Prisma guidelines, initially with the identification of article sources, following by article screening, checking the eligibility of studies then appraised the selected articles. Three databases were used, Ebsco, PubMed, and PROQUEST. Only studies using quasi-experimental, pre-experimental, and RCT designs were included in this study. Furthermore, those articles were published between 2014 until 2019, full type article and conducted anykind of home intervention for stroke patients and/or family member. Keywords that were employed “Stroke, Apoplexy, Cerebrovascular Accident, Vascular Accident, Home Care Services, home care, Home Health Care, Domiciliary Care, Physical, Physics, Psychological Factors, Psychological Side Effects, Psychosocial Factors, Spirituality.” Totally, 19,528 articles were obtained. Finally, only six eligible articles met review requirements. RESULTS: Implementation of home-based care lowered the physical fatigue of the family. In psychological responses showed that home-based care could reduce the incidence of depression and anxiety levels. Another impact was that the family felt helped because patients could more independently do their activities. Furthermore, the family always supported to motivate the patients to do their daily tasks. CONCLUSION: Home-based interventions for stroke patients can reduce depression, anxiety, and fatigue for the family caregiver.

scholarly journals Financial Literacy and the Impact of Movement Control Order (MCO) Among the Muslim Mompreneurs: A Qualitative Study

2021 ◽  
Vol 8 (Special Issue) ◽  
pp. 377-386
Author(s):  
Syarah Syahira Mohd Yusoff
Keyword(s):  
Qualitative Study ◽  
Financial Literacy ◽  
Urban Areas ◽  
Movement Control ◽  
Home Based ◽  
The Family ◽  
Financial Income ◽  
Control Order ◽  
The Impact

This empirical paper investigates how the mompreneurs manage their businesses during the Covid 19 lockdown and how the pandemic affects their family. The role of a mother in a family encompasses the livelihood of the family members, which extends to the family’s financial standing. A mother’s role in a family ranges from a homemaker and, to a certain extent, a financial provider. In Malaysia, it was reported in 2018 that 60.2% of entrepreneurs are housewives. However, it is believed that many women are working at and from home with high cost of living, especially in urban areas. They become home-based entrepreneurs, especially during this unprecedented pandemic, i.e. Covid-19, and restricted by the Movement Control Order (MCO). This study adopted an exploratory qualitative study whereby six (6) mompreneurs who are operating their businesses from home were interviewed to understand how the pandemic and the lockdown have affected their lives. This paper further examines their coping mechanism to the pandemic and financial income during this crisis. Mompreneurs’ financial literacy is also observed in this paper to explore their financial understanding. This research is an exploratory study, and it only provides general ideas on how a home-based businesswoman survive and cope during the lockdown. The findings from this paper are suitable to be used as a benchmark for an extensive quantitative study in the future to further understand the behaviour of the mompreneurs, especially in Malaysia.

FEMALE ENTREPRENEURS IN AUSTRALIA: AN INVESTIGATION OF FINANCIAL AND FAMILY ISSUES

1995 ◽  
Vol 03 (04) ◽  
pp. 445-461 ◽  
Author(s):  
JOHN BREEN ◽  
CHERYL CALVERT ◽  
JUDY OLIVER
Keyword(s):  
Family Business ◽  
Female Entrepreneurs ◽  
Services Sector ◽  
Home Based ◽  
Start Up ◽  
Family Issues ◽  
The Family ◽  
Survey Results ◽  
Female Entrepreneur ◽  
Personal Savings

This paper discusses the findings of a survey of female entrepreneurs in Australia and provides a profile of the female entrepreneur and their business activity. The characteristics of the entrepreneur are described, including their motivation for going into business, their attitudes toward training and joining networks. The issues of access to finance and family/business conflict are further investigated in the light of current literature. The results indicate that female entrepreneurs in Australia are well educated and tend to commence their businesses with low start-up capital obtained from personal savings or from family and friends. Their businesses are concentrated in the services sector, with a significant number starting out as home-based businesses. Despite evidence that female entrepreneurs have difficulty in obtaining loan funds, the survey results indicated that a high proportion of female entrepreneurs applying for loans were successful. Further analysis of the survey data indicated that the reason for the loan success had little to do with the strength of the business. This was evidenced by the respondents advising that the main type of information requested at the loan interview was personal financial details, that a high proportion of loans were secured by the family home, and that financial institutions required little in the way of ongoing reporting.

scholarly journals Expanding the Palliative Care Domains to Meet the Needs of a Community-Based Supportive Care Model

2017 ◽  
Vol 35 (2) ◽  
pp. 258-265 ◽  
Author(s):  
Eric W. Anderson ◽  
Monica S. Frazer ◽  
Sandra E. Schellinger
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Family Caregiver ◽  
Course Of Illness ◽  
Serious Illness ◽  
Home Based ◽  
The Family ◽  
Financial Domain ◽  
Care Family ◽  
Group Interviews

Background: Whole person care is appropriate for seriously ill persons. The current framework of palliative care domains in the National Consensus Project (NCP) Guidelines for Quality Palliative Care offers an opportunity to reassess the domains of care delivered at home, earlier in the course of illness. Objective: This qualitative study was used to test the applicability of a proposed, expanded set of domains. The results were used to inform a home-based, upstream model of supportive care for serious illness. Methods: Quotes relating to the experience of late-life serious illness were derived from transcripts of 12 semi-structured group interviews conducted with patients, family, and professionals. Quotes originally coded to the NCP domains of palliative care were then coded to the proposed domain set, which included new categories of family/caregiver, legal/financial, and legacy/bereavement domains. Results: A total of 489 quotes were assigned to the proposed expanded set of domains. One hundred one (19%) coded to the family/caregiver domain, 28 (5%) to the legacy/bereavement domain, and 27 (5%) to the legal/financial domain. Ninety-seven (87%) of the 111 quotes coded to family/caregiver had been initially coded to the NCP social aspects of care. Family/caregiver themes included challenges, rewards, insights, and family growth. Conclusion: The preponderance of family-related issues suggests that including the family domain may promote recognition and support of family caregivers and the services they provide. Although this study provides some support for including the legacy/bereavement and legal/financial domains, additional research is needed to determine whether there is a basis for including them in the domain structure.

scholarly journals Existential transformations in the process of facing amyotrophic lateral sclerosis by the family caregiver

2021 ◽  
Vol 42 ◽  
Author(s):  
Lays Pedrosa dos Santos Costa ◽  
Isabel Comassetto ◽  
Regina Maria dos Santos ◽  
Amuzza Aylla Pereira dos Santos ◽  
Guilherme Oliveira de Albuquerque Malta ◽  
...  
Keyword(s):  
Decision Making ◽  
Amyotrophic Lateral Sclerosis ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Transformation Process ◽  
Existential Phenomenology ◽  
The Family ◽  
Philosophical Framework ◽  
Lateral Sclerosis

ABSTRACT Objective To understand the existential transformations of the family caregiver of a person living with Amyotrophic Lateral Sclerosis. Method Qualitative study based on assumptions of Martin Heidegger Existential Phenomenology, with 12 family caregivers of the person with Amyotrophic Lateral Sclerosis, in Alagoas. The testimonies were obtained from June 2019 to March 2020 and analyzed, categorized, and discussed based on the theoretical-philosophical framework adopted and thematic literature. Results Phenomenological sense of the existential transformations of the family caregiver of a person living with Amyotrophic Lateral Sclerosis, unveiled with the categories: Being the caregiver of the person living with ALS; Being responsible for decision making; Resignifying the existence in view of the possibility of loss; Spirituality influencing the transformation process. Conclusions The family caregiver has an appropriate life due to the inherent vicissitudes of the disease, which provides moving moments that lead him to rethink his existence and to value life.

scholarly journals How a "Special Caring Bond" is Formed Between the Chronically ill Patient and the Family Caregiver

Aquichan ◽  
2011 ◽  
Vol 11 (1) ◽  
pp. 7-22 ◽  
Author(s):  
Lorena Chaparro ◽  
Keyword(s):  
Family Caregiver ◽  
Chronically Ill ◽  
The Family ◽  
Investigación Cualitativa

La formación de vínculos en el ser humano tiene su origen en las relaciones de cuidado existentes a lo largo de la vida. Existen teorías que aplican para las situaciones en que el ser humano se encuentra en riesgo o al límite como la situación de enfermedad crónica. Objetivo: describir la forma como se constituye el “vínculo especial” de cuidado entre la díada cuidador familiar-persona con enfermedad crónica. Método: corresponde a la conclusión central de una investigación cualitativa en la que se construyó una teoría sustantiva que describe el proceso por el cual se constituye el “vínculo especial” que surgió con un abordaje de teoría fundamentada. Hallazgos: una estructura teórica que muestra el patrón construido en las díadas frente al significado del cuidado en un diagrama representativo producto de una investigación doctoral. Conclusiones: el esquema construido muestra al inicio una separación entre las dos personas de la díada, y a medida que se comparte la experiencia y van haciéndose más cercanos los intereses, la díada alcanza mayor expansión de su conciencia en el cuidado. En el mismo sentido, la funcionalidad de la persona con enfermedad crónica disminuye y el nivel de habilidad de cuidado aumenta.

scholarly journals Spiritual needs experienced by the patient's family caregiver under Oncology palliative care

2018 ◽  
Vol 71 (suppl 6) ◽  
pp. 2635-2642 ◽  
Author(s):  
Renata Carla Nencetti Pereira Rocha ◽  
Eliane Ramos Pereira ◽  
Rose Mary Costa Rosa Andrade Silva ◽  
Angelica Yolanda Bueno Bejarano Vale de Medeiros ◽  
Sueli Maria Refrande ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Coping Strategy ◽  
Family Caregiver ◽  
Spiritual Needs ◽  
Phenomenology Of Perception ◽  
The Family ◽  
The Moment ◽  
Phenomenological Interview

ABSTRACT Objective: To understand the spiritual needs of the patients' family caregiver under Oncology palliative care. Method: A descriptive, qualitative study with 20 family caregivers of patients hospitalized in an Oncology palliative unit. The data were collected through a phenomenological interview, and analyzed by the method of Amadeo Giorgi supported in the Merleau-Ponty's Phenomenology of Perception. Results: The categories were unveiled: "Spirituality as a foundation for life"; "Spiritual needs sublimated by the family caregiver"; and "Care expected by the nurse". Conclusion: Family caregivers appropriate spirituality as a coping strategy and meeting the purpose and meaning of the moment experienced. It is profitable for the nurse to contemplate the spiritual needs of the caregiver in order to provide a guided assistance in the humanization of care and comprehensive care. Therefore, there is a need for new studies that address this dimension to the family caregiver in the field of Oncology, since this care is incipient by the nurse.

HUBUNGAN PERAN FAMILY CAREGIVER TERHADAP QUALITAS HIDUP LANSIA

2019 ◽  
Vol 11 (1) ◽  
pp. 51-56
Author(s):  
RIANI PRADARA JATI ◽  
Sekar Farah Nabila
Keyword(s):  
Quality Of Life ◽  
Family Caregiver ◽  
Random Sampling ◽  
Simple Random Sampling ◽  
The Elderly ◽  
Chi Square ◽  
The Poor ◽  
The Family

  Penempatan peran yang baik bagi Family Caregiver sangatlah membantu lansia dalam meningkatkah qualitas hidupnya, meningkatkan motivasi dalam menjalankan hidup Penelitian ini bertujuan Mengetahui hubungan peran Family Caregiver dalam pemenuhan qualitas hidup bagi lansia di Kelurahan Langenharjo Kabupaten Kendal. DesainPenelitianDeskriptifKorelasional menggunakan pendekatan Krosectional,tehnikSamplingStratified Simple Random Sampling dengan karakteristik heterogen, dari populasi mempunyai hak yang sama untuk diseleksi sebagai sampel teknik undianPengambilan data dengan menggunakan kuesioner yang telah diuji validitas dan reliabilitasnya. Uji statistik Chi-square, dengan taraf signifikasi 5%jumlah sampel pada penelitian ini 70 sampel pada Family Caregiver dari 213 populasi yang ada. Hasil penelitian dari 70 responden didapatkan Peran Family Caregiver tidak baik dengan qualitas hidup tidak baik 33 (47,1%), sedangkan Peran Family Caregiver kurang baik dengan qualitas hidup lansia baik 3 (4,3%). Untuk distribusi Peran Family Caregiver kurang baik dengan qualitas hidup lansia tidak baik sebanyak 6 responden (8,6%) sedangkan untuk distribusi Peran Family Caregiver kurang baik dengan qualitas hidup lansia baik sebanyak 23 responden (32,9%). Terakhir, untuk distribusi Peran Family Caregiver baik dengan qualitas hidup lansia tidak baik didapatkan hasil 2 responden (2, 9%) sedangkan untuk distribusi Peran Family Caregiver baik dengan qualitas hidup lansia baik didapatkan hasil 3 responden (4,3%)Menunjukkan nilai ρ value 0,001 (ρ < 0,05) berarti ada hubungan antara dukungan keluarga dengan kepatuhan lansia dalam keikutsertaan posyandu lansia. Disarankan kepada semua Family Cregiver lansia untuk mampu memahami pentingnya perhatian, dukungan bagi lansia dalammeningkatkan qualitas hidup yang lebih baik bagi lansia.   Kata kunci : Peran family caregiver, qualitas hidup, lansia.   ABSTRACT Placement of a good role for Family Caregiver is very helpful for the elderly to improve their quality of life, increase motivation in living life Research Objective: To know the relationship between the role of Family Caregiver in fulfilling quality of life for the elderly in Langenharjo Village, Kendal Regency. Descriptive Correlational Research Design uses a cross sectional approach, Sampling Stratified Simple Random Sampling technique with heterogeneous characteristics, from the population has the same right to be selected as a sample lottery technique Retrieving data using a questionnaire that has been tested for validity and reliability. Test Chi-square statistics, with a significance level of 5% the number of samples in this study 70 samples on the Family Caregiver from 213 populations. Results of the Study Of 70 respondents found the role of Family Caregiver was not good with poor quality of life 33 (47.1%) , while the role of the Family Caregiver is not good with the quality of life of a good elderly 3 (4.3%). For the distribution of the role of Family Caregiver is not good with the quality of life of the poor family as many as 6 respondents (8.6%) while for the distribution of the Role of Family Caregiver is not good with the quality of life of good elderly as many as 23 respondents (32.9%). Finally, the distribution of the Role of Family Caregiver with good quality of life for the poor is obtained by 2 respondents (2, 9%), while the distribution of the Role of Family Caregiver with good quality of life for the elderly is obtained by 3 respondents (4.3%). 0.001 (ρ <0.05) means that there is a relationship between family support and the compliance of the elderly in the participation of the elderly posyandu. It is recommended to all elderly Cregiver families to be able to understand the importance of attention, support for the elderly in improving the quality of life better for the elderly   Keywords: Role of Family Caregiver, Quality of Life, Elderly

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