scholarly journals Understanding the psychosocial impact of oral cancer on the family caregivers and their coping up mechanism: A qualitative study in Rural Wardha, Central India

2019 ◽  
Vol 25 (3) ◽  
pp. 421
Author(s):  
Sourav Goswami ◽  
SubodhSaran Gupta ◽  
Abhishek Raut
Keyword(s):  
Oral Cancer ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Central India ◽  
Psychosocial Impact ◽  
The Family

scholarly journals How cancer of oral cavity affects the family caregivers? – A cross-sectional study in Wardha, India, using the Caregiver Quality of Life Index – Cancer questionnaire

2020 ◽  
Vol 09 (01) ◽  
pp. 62-65
Author(s):  
Sourav Goswami ◽  
Subodh Saran Gupta
Keyword(s):  
Oral Cancer ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Psychosocial Impact ◽  
Cross Sectional ◽  
The Family ◽  
Caregiver Quality ◽  
Quality Of Life Index ◽  
Index Cancer ◽  
Study Participants

Abstract Introduction: Oral cancer is now a major public health problem in India. It does not only affect the patient, but also has a deep psychosocial impact on the family caregivers who are deeply involved with the cancer patient for nursing, timely medication, and consulting the doctor. Studies have found that the caregivers often suffer from depression, anxiety, and fear of losing their near and dear ones. This study aims to capture the psychosocial impact of oral cancer on the family caregivers. Materials and Methods: This was a cross-sectional study carried out in a tertiary care hospital with the primary caregivers of those oral cancer patients who completed their treatment and came for follow-up after 2–3 months of treatment completion. The study participants were recruited till a sample size of 100 was reached. This was adequate to report proportions with an error of 10%. We have used “The Caregiver Quality of Life Index – Cancer” scale to capture the psychosocial impact of oral cancer on primary caregiver of the patient. The study was initiated after obtaining approval from the Institutional Ethics Committee. Informed written consents were obtained from all the study participants before beginning the interviews. Results: Caregivers played an important role in the recovery of the patients. However, the strain of caregiving resulted in increased emotional stress among them. We found 56% of the family caregivers were female and 41% were male. Majority of the caregivers who accompanied the patients to hospital were the spouses. For the caregivers, the mean score for burden of the disease was found to be 60.0 (±20.2), that for disruption was 50.4 (±21.7), and for positive adaptation was 61.4 (±20.7). Conclusion: Caregivers, who are usually invisible to the health-care team, should be recognized and their mental and physical well-being should also be given attention.

Care without sufficient knowledge of people with home enteral tube feeding: a qualitative study

2021 ◽  
Vol 19 (10) ◽  
pp. 26-34
Author(s):  
Mehri Doosti-Irani ◽  
Farangis Heidari Goojani ◽  
Leila Rafiee Vardanjani ◽  
Kobra Noorian
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Health Professionals ◽  
Tube Feeding ◽  
Interview Data ◽  
Negative Consequences ◽  
Correct Position ◽  
Face To Face ◽  
Enteral Tube Feeding ◽  
The Family

Aim: This study aimed to explore family caregivers' experiences with tube feeding at home in Iran. Methods: This qualitative study was conducted with purposefully selected family caregivers who participated in an in-depth, semi-structured, face-to-face interview. Data analysis was performed through content analysis and rigor was investigated. Results: In total, 20 caregivers were interviewed. Two main categories were found in the interview data: ‘abandoned training’ and ‘lack of knowledge of nutrition’. Participants felt abandoned and unsupported by health professionals. Participants also reported feeling that health professionals passed the training responsibility to other health professionals who did not give training. This resulted in participants feeling obligated to learn from their peers. Participants lacked knowledge about nutrition, as well as how to prepare home-made formula for feeding, the correct position for feeding and feeding times. Conclusion: Despite having a heavy and vital responsibility, participants felt that they had not been adequately trained and thus faced making errors, resulting in negative consequences for the patient and the family. Therefore, appropriate plans must be made to promote preparation for home care.

scholarly journals Neglected Needs of Family Caregivers during the COVID-19 Pandemic and What They Need Now: A Qualitative Study

Diseases ◽  
2021 ◽  
Vol 9 (4) ◽  
pp. 70
Author(s):  
Jasneet Parmar ◽  
Sharon Anderson ◽  
Bonnie Dobbs ◽  
Peter George J. Tian ◽  
Lesley Charles ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Qualitative Methodology ◽  
Negative Impact ◽  
Term Care ◽  
The Family ◽  
Pandemic Planning ◽  
Caregiver Role ◽  
Community Systems

COVID-19 has had a negative impact on family caregivers, whether the care receivers lived with the caregiver, in a separate community home, in supportive living, or in long-term care. This qualitative study examines the points of view of family caregivers who care in diverse settings. Family caregivers were asked to describe what could have been done to support them during the COVID-19 pandemic and to suggest supports they need in the future as the pandemic wanes. Thorne’s interpretive qualitative methodology was employed to examine current caregiver concerns. Thirty-two family caregivers participated. Family caregivers thought the under-resourced, continuing care system delayed pandemic planning, and that silos in health and community systems made caregiving more difficult. Family caregivers want their roles to be recognized in policy, and they cite the need for improvements in communication and navigation. The growth in demand for family caregivers and their contributions to the healthcare system make it critical that the family caregiver role be recognized in policy, funding, and practice.

scholarly journals Perceived Needs of The Family Caregivers of People with Dementia in a Mediterranean Setting: A Qualitative Study

2019 ◽  
Vol 16 (6) ◽  
pp. 993 ◽  
Author(s):  
Sara Moreno-Cámara ◽  
Pedro Palomino-Moral ◽  
Lourdes Moral-Fernández ◽  
Antonio Frías-Osuna ◽  
Laura Parra-Anguita ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Emotional Health ◽  
Educational Interventions ◽  
Care Process ◽  
Perceived Needs ◽  
People With Dementia ◽  
The Family ◽  
Field Notes ◽  
Primary Health Care Centers

The purpose of this study was to identify, classify and analyze the perceived needs of caregivers of elderly people with dementia during the care process. A descriptive phenomenological qualitative study using seven focus groups was conducted in different primary health care centers in the province of Jaén (Spain) between July 2012 and February 2013. Eighty-two family caregivers who were caring for people with dementia in different stages of the disease were selected by purposeful maximum variation sampling. Data were analyzed and organized thematically, considering the semantic and pragmatic content and field notes. Two main categories of the perceived needs of caregivers were identified. The first was related to the management of caring for a relative with dementia, and the second was related to the management of the caregivers’ own care. Our findings support the provision of comprehensive interventions for the improvement of caregivers’ emotional health that encompass more than one care need. This is where psycho-educational interventions aimed at managing the various aspects of dementia and self-care in caregivers can be accommodated. In addition, proactive interventions to develop important skills to care for a relative with dementia, which are not perceived as needs by the caregivers, are needed. These include skills in family negotiation, planning and searching for resources outside the family.

scholarly journals Experiences with making difficult decisions of the family caregivers of patients on prolonged mechanical ventilation: a qualitative study

2020 ◽  
Vol 9 (4) ◽  
pp. 1742-1751
Author(s):  
Yi-Wei Lee ◽  
Yu-Shan Hsieh ◽  
Feng-Hang Chang ◽  
Yi-Ling Wu ◽  
Sheng-Jean Huang ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Prolonged Mechanical Ventilation ◽  
The Family

scholarly journals Existential transformations in the process of facing amyotrophic lateral sclerosis by the family caregiver

2021 ◽  
Vol 42 ◽  
Author(s):  
Lays Pedrosa dos Santos Costa ◽  
Isabel Comassetto ◽  
Regina Maria dos Santos ◽  
Amuzza Aylla Pereira dos Santos ◽  
Guilherme Oliveira de Albuquerque Malta ◽  
...  
Keyword(s):  
Decision Making ◽  
Amyotrophic Lateral Sclerosis ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Transformation Process ◽  
Existential Phenomenology ◽  
The Family ◽  
Philosophical Framework ◽  
Lateral Sclerosis

ABSTRACT Objective To understand the existential transformations of the family caregiver of a person living with Amyotrophic Lateral Sclerosis. Method Qualitative study based on assumptions of Martin Heidegger Existential Phenomenology, with 12 family caregivers of the person with Amyotrophic Lateral Sclerosis, in Alagoas. The testimonies were obtained from June 2019 to March 2020 and analyzed, categorized, and discussed based on the theoretical-philosophical framework adopted and thematic literature. Results Phenomenological sense of the existential transformations of the family caregiver of a person living with Amyotrophic Lateral Sclerosis, unveiled with the categories: Being the caregiver of the person living with ALS; Being responsible for decision making; Resignifying the existence in view of the possibility of loss; Spirituality influencing the transformation process. Conclusions The family caregiver has an appropriate life due to the inherent vicissitudes of the disease, which provides moving moments that lead him to rethink his existence and to value life.

scholarly journals The psychosocial impact of caregiving on the family caregivers of chronically ill AIDS and/or HIV patients in home-based care: A qualitative study in Zimbabwe

2017 ◽  
Vol 18 (1) ◽  
Author(s):  
Claire Van Deventer ◽  
Anne Wright
Keyword(s):  
Qualitative Study ◽  
Family Caregiver ◽  
Chronically Ill ◽  
Psychosocial Impact ◽  
Aids Patients ◽  
Psychosocial Experiences ◽  
Home Based ◽  
Family Issues ◽  
The Family ◽  
Food Transport

Background: The family caregiver has a pivotal role to play in the management of the chronically ill HIV and/or AIDS patients. The wellbeing of caregivers is therefore crucial because impairment of their physical or mental health could impact negatively on the management of their HIV-positive family member. The purpose of this qualitative study was to explore the psychosocial impact of caregiving on the family caregiver of the chronically ill HIV and/or AIDS patients in home-based care.Method: Unstructured interviews were conducted with 11 caregivers recruited at an adult HIV clinic at United Bulawayo Hospitals, Bulawayo, Zimbabwe. Relevant demographic information was collected from each participant. The interviews were then transcribed and analysed.Results: Caregivers’ biggest challenge was meeting care costs such as food, transport and medical costs. Certain conditions relating to the care-recipient’s health and family issues, such as abandonment of the ill patient as well as that of orphans, added to the burden of care. Carers also had to deal with their own health and physical problems. All the above resulted in a spectrum of emotions such as helplessness, sadness, anxiety and anger. Despite this, caregivers also reported on the positive aspects regarding their caregiving role.Conclusion: There were both negative and positive psychosocial experiences by caregivers of HIV and/or AIDS patients. The study highlighted practical areas where support could be provided.

scholarly journals Family caregivers challenges about caring for children with impaired skin integrity

2018 ◽  
Vol 22 (4) ◽  
Author(s):  
Ayana Carolina Gonçalves Teixeira Matos ◽  
Evanilda Souza de Santana Carvalho ◽  
Silvia da Silva Santos Passos ◽  
Rudval Souza da Silva
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
Home Care ◽  
Family Caregivers ◽  
Hospital Discharge ◽  
Skin Wounds ◽  
Material Resources ◽  
The Family ◽  
Skin Integrity ◽  
Discharge Method

Abstract Objective: To know the challenges of family caregivers members for the maintenance of care for children with impaired skin integrity after hospital discharge. Method: This is a qualitative study of action research, developed from March to July of 2017. Participants were ten family/caregivers of the children with impaired skin integrity. The data obtained through interviews were submitted to content analysis. Results: The family caregivers of the child with impaired skin integrity received guidelines for home care at discharge, experienced feelings of relief, getting out of the hospital and, for fear of causing physical and emotional damage, sought help in the services and neighborhood, overprotected the child, to avoid complications and readmission, and faced the lack of resources to care for. Conclusion: Maintenance of care for children with impaired skin integrity after hospital discharge requires application of measures of protection from skin wounds, constant surveillance of the child in order to prevent local traumas and infections, and the search for support in the Health, to obtain material resources and guidelines for care.

scholarly journals Spiritual needs experienced by the patient's family caregiver under Oncology palliative care

2018 ◽  
Vol 71 (suppl 6) ◽  
pp. 2635-2642 ◽  
Author(s):  
Renata Carla Nencetti Pereira Rocha ◽  
Eliane Ramos Pereira ◽  
Rose Mary Costa Rosa Andrade Silva ◽  
Angelica Yolanda Bueno Bejarano Vale de Medeiros ◽  
Sueli Maria Refrande ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Coping Strategy ◽  
Family Caregiver ◽  
Spiritual Needs ◽  
Phenomenology Of Perception ◽  
The Family ◽  
The Moment ◽  
Phenomenological Interview

ABSTRACT Objective: To understand the spiritual needs of the patients' family caregiver under Oncology palliative care. Method: A descriptive, qualitative study with 20 family caregivers of patients hospitalized in an Oncology palliative unit. The data were collected through a phenomenological interview, and analyzed by the method of Amadeo Giorgi supported in the Merleau-Ponty's Phenomenology of Perception. Results: The categories were unveiled: "Spirituality as a foundation for life"; "Spiritual needs sublimated by the family caregiver"; and "Care expected by the nurse". Conclusion: Family caregivers appropriate spirituality as a coping strategy and meeting the purpose and meaning of the moment experienced. It is profitable for the nurse to contemplate the spiritual needs of the caregiver in order to provide a guided assistance in the humanization of care and comprehensive care. Therefore, there is a need for new studies that address this dimension to the family caregiver in the field of Oncology, since this care is incipient by the nurse.

scholarly journals Knowledge and healthcare-seeking behavior of family caregivers of children with pneumonia: A qualitative study in an urban community in Indonesia

2021 ◽  
Author(s):  
Nyimas Heny Purwati ◽  
Yeni Rustina ◽  
Bambang Supriyatno
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Urban Community ◽  
Integrated Management ◽  
Family Care ◽  
Structured Interview ◽  
Healthcare Seeking ◽  
The Family ◽  
Seeking Behavior ◽  
Healthcare Seeking Behavior

Background: Childhood pneumonia is the leading cause of death. Family caregivers may have a poor understanding of pneumonia, especially related to prevention and treatment. It is crucial to understand country-specific knowledge and healthcare-seeking behaviors of caregivers of children with pneumonia before planning programmatic responses, particularly in an urban community where the culture-social economic status is diverse.Objective: This study aimed to describe the knowledge and healthcare-seeking behavior of family caregivers of children with pneumonia in Indonesia’s urban community.Methods: A descriptive qualitative study was conducted at a public hospital in Jakarta, Indonesia, from 10 December 2019 to 28 January 2020. Ten family caregivers of children with pneumonia were included, and a semi-structured interview was conducted for data collection. The audio recording was transcribed verbatim, and the data were analyzed using content analysis.Results: The emerged data indicated low knowledge of the family caregivers, especially mothers, which considered pneumonia a common cold only, and they failed to understand the risk of its transmission. Using traditional medicines was the first stage of healthcare-seeking behavior. If the symptoms worsened, the caregivers brought their children to the nearest health center. If there was no change in the symptoms, they headed to the hospital. The health center’s location, condition, services, and staff attitude are considered factors to choose the services.Conclusion: Living in an urban area does not guarantee the family caregivers have better knowledge and good healthcare-seeking behavior. Therefore, nurses should provide comprehensive education about pneumonia, its symptoms, and treatment management to improve family care and prevent pneumonia-related deaths. Integrated management of children with illness is recommended to help the family caregivers of children with pneumonia receive treatment as quickly as possible. This study was funded by Universitas Muhammadiyah Jakarta, Indonesia

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