scholarly journals Older people as peer researchers in ageing research

2020 ◽  
pp. 265-273
Author(s):  
Ke Chen ◽  
Justin Chun Ting Cheung ◽  
Joy Juan Wang ◽  
Vivian Wei Qun Lou
Keyword(s):  
Older People ◽  
Ageing Research ◽  
Peer Researchers

scholarly journals Community ageing research 75+ study (CARE75+): an experimental ageing and frailty research cohort

BMJ Open ◽  
2019 ◽  
Vol 9 (3) ◽  
pp. e026744 ◽  
Author(s):  
Anne Heaven ◽  
Lesley Brown ◽  
John Young ◽  
Elizabeth Teale ◽  
Rebecca Hawkins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Older People ◽  
Science Studies ◽  
Nursing Home Residents ◽  
Well Being ◽  
Community Dwelling ◽  
Ageing Research ◽  
Study Results

IntroductionThe Community Ageing Research 75+ Study (CARE75+) is a longitudinal cohort study collecting an extensive range of health, social and economic data, with a focus on frailty, independence and quality of life in older age. CARE75+ is the first international experimental frailty research cohort designed using Trial within Cohorts (TwiCs) methodology, to align applied epidemiological research with clinical trial evaluation of interventions to improve the health and well-being of older people living with frailty.Methods and analysisProspective cohort study using a TwiCs design. One thousand community-dwelling older people (≥75 years) will be recruited from UK general practices. Nursing home residents, those with an estimated life expectancy of 3 months or less and people receiving palliative care will be excluded. Data collection assessments will be face to face in the person’s home at baseline, 6 months, 12 months, 24 months and 48 months, including assessments of frailty, cognition, mood, health-related quality of life, comorbidity, medications, resilience, loneliness, pain and self-efficacy. A modified protocol for follow-up by telephone or web based will be offered at 6 months. Consent will be sought for data linkage and invitations to additional studies, including intervention studies using the TwiCs design. A blood sample biobank will be established for future basic science studies.Ethics and disseminationCARE75+ was approved by the NRES Committee Yorkshire and the Humber—Bradford Leeds 10 October 2014 (14/YH/1120). Formal written consent is sought if an individual is willing to participate and has capacity to provide informed consent. Consultee assent is sought if an individual lacks capacity.Study results will be disseminated in peer-reviewed scientific journals and scientific conferences. Key study results will be summarised and disseminated to all study participants via newsletters, local older people’s publications and local engagement events. Results will be reported on a bespoke CARE75+ website.Trial registration numberISRCTN16588124;Results stage

scholarly journals New Horizons in the use of routine data for ageing research

2020 ◽  
Vol 49 (5) ◽  
pp. 716-722 ◽  
Author(s):  
Oliver M Todd ◽  
Jennifer K Burton ◽  
Richard M Dodds ◽  
Joe Hollinghurst ◽  
Ronan A Lyons ◽  
...  
Keyword(s):  
Older People ◽  
Social Care ◽  
Routine Data ◽  
Steady Increase ◽  
Health Issues ◽  
Data Infrastructure ◽  
New Horizons ◽  
Ageing Research ◽  
Processing Power ◽  
Health And Social Care

Abstract The past three decades have seen a steady increase in the availability of routinely collected health and social care data and the processing power to analyse it. These developments represent a major opportunity for ageing research, especially with the integration of different datasets across traditional boundaries of health and social care, for prognostic research and novel evaluations of interventions with representative populations of older people. However, there are considerable challenges in using routine data at the level of coding, data analysis and in the application of findings to everyday care. New Horizons in applying routine data to investigate novel questions in ageing research require a collaborative approach between clinicians, data scientists, biostatisticians, epidemiologists and trial methodologists. This requires building capacity for the next generation of research leaders in this important area. There is a need to develop consensus code lists and standardised, validated algorithms for common conditions and outcomes that are relevant for older people to maximise the potential of routine data research in this group. Lastly, we must help drive the application of routine data to improve the care of older people, through the development of novel methods for evaluation of interventions using routine data infrastructure. We believe that harnessing routine data can help address knowledge gaps for older people living with multiple conditions and frailty, and design interventions and pathways of care to address the complex health issues we face in caring for older people.

scholarly journals Paving the translational ageing research pathway—training the next generation of researchers

2020 ◽  
Author(s):  
Ellen Tullo ◽  
Richard M Dodds ◽  
Matthew Birkbeck ◽  
Leena Habiballa ◽  
Avan Aihie Sayer
Keyword(s):  
Older People ◽  
Translational Research ◽  
Academic Research ◽  
Research Topic ◽  
Academic Disciplines ◽  
Next Generation ◽  
Specific Training ◽  
Laboratory Findings ◽  
Ageing Research ◽  
Collaborative Working

Abstract Ageing is an archetypal translational research topic, spanning a breadth of academic disciplines. This poses challenges for researchers aiming to act upon laboratory findings to develop and implement interventions that directly benefit older people. Divisions between distinct academic research cultures present barriers to collaborative working. We present potential strategies to improve the translation of ageing research with examples of successful projects working across disciplines. Researchers and clinicians in ageing should be supported to develop a translational interest and receive specific training about translational research.

Prioritizing Patient Perspectives When Designing Intervention Studies for Homeless Older Adults

2021 ◽  
pp. 104973152199555
Author(s):  
Sarah L. Canham ◽  
Harvey Bosma ◽  
Anita Palepu ◽  
Scott Small ◽  
Chris Danielsen
Keyword(s):  
Older Adults ◽  
Older People ◽  
Intervention Studies ◽  
Research Process ◽  
Participant Recruitment ◽  
Research Teams ◽  
Vulnerable Patient ◽  
Trauma Informed ◽  
Patient Groups ◽  
Peer Researchers

Purpose: Medical respite provides postacute care to people experiencing homelessness upon hospital discharge if they are too sick to recover on the streets or in a traditional shelter. The current study examined the feasibility of conducting a study to test the effectiveness of a medical respite intervention for older people experiencing homelessness. Methods: Fifteen patient and 11 provider participants were interviewed between July and November 2018. Results: Participants’ considerations for how to design a program of research included (1) desired qualities of researchers; (2) preferences for study design; (3) mechanisms for participant recruitment and retention; (4) what, where, and how to collect data; and (5) barriers and motivations to participation. Conclusions: Findings from this study build on an emerging research base on how to appropriately engage vulnerable patient groups, including older people experiencing homelessness, in trauma-informed research by including peer researchers on research teams to serve as advisors throughout the research process.

scholarly journals Community Ageing Research 75+ (CARE75+) REMOTE study: a remote model of recruitment and assessment of the health, well-being and social circumstances of older people

BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e048524
Author(s):  
Lesley Brown ◽  
Anne Heaven ◽  
Catherine Quinn ◽  
Victoria Goodwin ◽  
Carolyn Chew-Graham ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Data Collection ◽  
Older People ◽  
Service Use ◽  
Well Being ◽  
Community Dwelling ◽  
Social Care Service ◽  
Ageing Research

IntroductionThe Community Ageing Research 75+ (CARE75+) study is a longitudinal cohort study collecting extensive health and social data, with a focus on frailty, independence and quality of life in older age. CARE75+ was the first international experimental frailty research cohort designed using trial within cohorts (TwiCs) methodology, aligning epidemiological research with clinical trial evaluation of interventions to improve the health and well-being of older people. CARE75+ REMOTE is an extension of CARE75+ using a remote model that does not require face-to-face interactions for data collection in the current circumstances of a global pandemic and will provide an efficient, sustainable data collection model.Methods and analysisProspective cohort study using TwiCs. One thousand community-dwelling older people (≥75 years) will be recruited from UK general practices by telephone. Exclusions include: nursing home/care home residents; those with an estimated life expectancy of 3 months or less; and people receiving palliative care.Data collectionAssessments will be conducted by telephone, web-submission or postal questionnaire: baseline, 6 months, 12 months, 18 months, 24 months, 30 months and 36 months. Measures include activities of daily living, mood, health-related quality of life, comorbidities, medications, frailty, informal care, healthcare and social care service use. Consent will be sought for data linkage and invitations to additional studies (sub-studies).Ethics and disseminationCARE75+ was approved by the National Research Ethics Service (NRES) Committee Yorkshire and the Humber—Bradford Leeds 10 October 2014 (14/YH/1120). CARE75+ REMOTE (amendment 13) was approved on the 18th November 2020. Consent is sought if an individual is willing to participate and has capacity to provide informed consent. Consultee assent is sought if an individual lacks capacity. Results will be disseminated in peer-reviewed scientific journals and conferences. Results will be summarised and disseminated to study participants via newsletters, local engagement events and on a bespoke website.Trial registration numberISRCTN16588124.

scholarly journals Recruiting older people from the Pakistani community in Community Ageing Research 75+

2020 ◽  
Vol 25 (3) ◽  
pp. 110-113
Author(s):  
Ikhlaq Jacob ◽  
Farhat Mahmood ◽  
Lesley Brown ◽  
Anne Heaven ◽  
Saim Mahmood ◽  
...  
Keyword(s):  
Older People ◽  
South Asian ◽  
Language Barriers ◽  
Asian Population ◽  
Outcome Data ◽  
Recruitment Rate ◽  
South Asian Population ◽  
Ageing Research ◽  
Pakistani Origin ◽  
Research Studies

Older people from a South Asian background, particularly Pakistanis, are under-represented in health research, possibly because their recruitment to studies is hampered by language barriers and cultural differences. This article describes the observations of two bi-lingual researchers (FM and IJ) who successfully recruited older people (≥75 years) from Bradford's South Asian population to the Community Ageing Research 75+ Study (CARE 75+), a longitudinal cohort study collecting an extensive range of health, social and economic outcome data. The researchers recruited non-English-speaking Pakistani participants, ensuring they were flexible with appointments to accommodate the wishes of family members, who were often present during consent and assessment visits. Using community language was an important facilitator, and questions (and constructs) were translated to the community dialect (Potwari). To date, 233 South Asian people have been invited to participate in CARE75+, and 78 have been recruited (recruitment rate=33%), of which 62 are of Pakistani origin. The observed recruitment rate for South Asian participants is comparable to that of the whole study population (36%). Language barriers should not be used as a basis for excluding participants from research studies. Appropriate facilitation, through skilled researchers who have knowledge of, and are attuned to, the cultural sensitivities of the community, can allow recruitment of BME participants to research studies.

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