Adolescent Experience With Parental Cancer and Involvement With Medical Professionals: A Heuristic Phenomenological Inquiry

2021 ◽  
pp. 074355842098544
Author(s):  
Vaida Kazlauskaite ◽  
Stephen T. Fife
Keyword(s):  
Mental Health Professionals ◽  
Health Care Professionals ◽  
Terminal Illness ◽  
Hospital Setting ◽  
Heuristic Inquiry ◽  
Medical Professionals ◽  
Medical Setting ◽  
Parental Cancer ◽  
Phenomenological Inquiry ◽  
Loved One

Experiencing the death of a loved one can be a difficult occurrence. Adolescents, in particular, experience death in a unique way. Yet there is relatively little research on adolescents’ experience with parental death and their involvement in the medical setting during a parent’s terminal illness. This qualitative study utilized heuristic inquiry, a type of phenomenological research, to investigate adolescents’ involvement in the hospital setting during parental terminal illness. Qualitative analysis of participants’ experiences resulted in two primary categories associated with adolescents’ involvement with medical professionals during parental illness: factors influencing hospital involvement and experience with health care professionals. The findings have implications for medical and mental health professionals who work with adolescent family members of terminally ill patients.

scholarly journals Parental cancer: Health-related quality of life and current psychosocial support needs of cancer survivors and their children

2014 ◽  
Vol 135 (11) ◽  
pp. 2668-2677 ◽  
Author(s):  
Johanna Christine Bultmann ◽  
Volker Beierlein ◽  
Georg Romer ◽  
Birgit Möller ◽  
Uwe Koch ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Psychosocial Support ◽  
Support Needs ◽  
Parental Cancer ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals “You told me it was too late”: An autoethnographic reflection on (not) knowing and bereavement

2021 ◽  
Author(s):  
Nicole Dulysh
Keyword(s):  
Lung Cancer ◽  
Palliative Care ◽  
Mental Capacity ◽  
Terminal Cancer ◽  
Parental Cancer ◽  
Cancer Communication ◽  
Best Interest ◽  
Vocal Cords ◽  
Life And Death ◽  
Grieving Process

A parent diagnosed with terminal cancer is focused on their own struggle with life and death. They often do not have the mental capacity to think rationally about what is in the best interest of their child at this time. Without a doubt, the grieving process of a child 1who is informed about their parent’s diagnosis will have a different experience than a child who is not informed. Following on an autoethnographic approach I will revisit my past experience of my mom’s diagnosis with lung cancer and my father’s diagnosis of a cancerous tumor on his vocal cords as I share, explore, and reflect upon my involvement in both matters. These experiences will be shared along with the six stages of grief by Elisabeth Kübler-Ross and David Kessler as I provide a deeper understanding of how a child being informed or uninformed throughout the diagnosis can impact their feelings of guilt and sorrows leading up to death. Keywords: Palliative care, Cancer, Children, Parental Cancer, Communication, Relationship, Behaviour

scholarly journals Experience of parental cancer in childhood is a risk factor for psychological distress during genetic cancer susceptibility testing

2006 ◽  
Vol 17 (7) ◽  
pp. 1090-1095 ◽  
Author(s):  
I. van Oostrom ◽  
H. Meijers-Heijboer ◽  
H.J. Duivenvoorden ◽  
A.H.J.T. Bröcker-Vriends ◽  
C.J. van Asperen ◽  
...  
Keyword(s):  
Risk Factor ◽  
Psychological Distress ◽  
Susceptibility Testing ◽  
Cancer Susceptibility ◽  
Parental Cancer ◽  
Genetic Cancer Susceptibility

The experience of adolescents who have a parent with advanced cancer: A phenomenological inquiry

2014 ◽  
Vol 13 (4) ◽  
pp. 1057-1069 ◽  
Author(s):  
Farya Phillips
Keyword(s):  
Advanced Cancer ◽  
Healthcare Professionals ◽  
Well Being ◽  
Phenomenological Approach ◽  
Parental Cancer ◽  
Open Communication ◽  
Phenomenological Inquiry ◽  
Hermeneutic Phenomenological ◽  
Semistructured Interviews ◽  
Being There

AbstractObjective:Adolescents are considered the group most susceptible to negative psychosocial outcomes when faced with a parent's illness. However, there has been extremely limited research on the adolescent's adjustment to advanced parental cancer. The aim of our study was to gain understanding of the experiences of adolescents, in their own words, to gather pilot data about the needs of this population that will be valuable in developing interventions for adolescents facing parental cancer.Method:A hermeneutic phenomenological approach was applied using in-depth semistructured interviews to inquire about adolescents' experiences. Some 10 adolescents (7 males, 3 females) aged 14–17 were interviewed.Results:Four essential themes about adolescents living with a parent's advanced cancer emerged from the analysis: “life interrupted,” “being there,” “managing emotions,” and “positives prevail.” These findings underscore the significant impact an advanced cancer diagnosis can have on a family unit and suggest that the experience may also have the potential of creating opportunities for growth and well-being. Our findings reinforce previous results that advocate for the importance of family and peer support, positive attitude, and open communication when a family is coping with advanced parental cancer.Significance of results:Understanding how adolescents gain strength from their relationships with family and peers offers healthcare professionals an opportunity to have services and strategies in place to foster these relationships.

A systematic review of the current interventions available to support children living with parental cancer

2019 ◽  
Vol 102 (10) ◽  
pp. 1812-1821 ◽  
Author(s):  
Elise Alexander ◽  
Moira O’Connor ◽  
Clare Rees ◽  
Georgia Halkett
Keyword(s):  
Systematic Review ◽  
Parental Cancer

Mental disorder diagnoses of offspring affected by parental cancer before early adulthood: the 1987 Finnish Birth Cohort study

2016 ◽  
Vol 25 (12) ◽  
pp. 1477-1484 ◽  
Author(s):  
Mika Niemelä ◽  
Reija Paananen ◽  
Helinä Hakko ◽  
Marko Merikukka ◽  
Mika Gissler ◽  
...  
Keyword(s):  
Cohort Study ◽  
Mental Disorder ◽  
Birth Cohort ◽  
Early Adulthood ◽  
Birth Cohort Study ◽  
Parental Cancer
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