Adolescent Experience With Parental Cancer and Involvement With Medical Professionals: A Heuristic Phenomenological Inquiry

Terminal Illness ◽

Hospital Setting ◽

Heuristic Inquiry ◽

Medical Professionals ◽

Medical Setting ◽

Parental Cancer ◽

Phenomenological Inquiry ◽

Loved One

Experiencing the death of a loved one can be a difficult occurrence. Adolescents, in particular, experience death in a unique way. Yet there is relatively little research on adolescents’ experience with parental death and their involvement in the medical setting during a parent’s terminal illness. This qualitative study utilized heuristic inquiry, a type of phenomenological research, to investigate adolescents’ involvement in the hospital setting during parental terminal illness. Qualitative analysis of participants’ experiences resulted in two primary categories associated with adolescents’ involvement with medical professionals during parental illness: factors influencing hospital involvement and experience with health care professionals. The findings have implications for medical and mental health professionals who work with adolescent family members of terminally ill patients.

Anticipatory Grief, Proactive Coping, Social Support, and Growth: Exploring Positive Experiences of Preparing for Loss

OMEGA - Journal of Death and Dying ◽

10.1177/0030222818761461 ◽

2018 ◽

Vol 81 (1) ◽

pp. 107-129 ◽

Cited By ~ 2

Author(s):

Kylie B. Rogalla

Keyword(s):

Social Support ◽

Posttraumatic Growth ◽

Personal Growth ◽

Terminal Illness ◽

Significant Degree ◽

Proactive Coping ◽

Future Research ◽

Anticipatory Grief ◽

Loved One

All mental health professionals will inevitably serve clients who face the expected death of a loved one. Prominent theories on the grieving process tend to begin after a death or other loss has occurred. Many individuals experience anticipatory grief prior to the physical death. Participants in this study consisted of 120 adults who were anticipating the death of a loved one due to terminal illness. The purpose of this investigation was to assess the relationship between the positive disposition of proactive coping and two forms of growth. Both personal and posttraumatic growth were present to a significant degree, and proactive coping illustrated unique predictive power in personal growth. Social support was a significant mediator of proactive coping and growth and was determined to be an outcome of the assertive nature of this disposition. Implications for helping professionals who serve anticipatory grievers as well as directions for future research are discussed.

Leadership assumptions on implementation of patient involvement methods

BMC Health Services Research ◽

10.1186/s12913-021-06497-y ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Kathrine Håland Jeppesen ◽

Kirsten Frederiksen ◽

Marianne Johansson Joergensen ◽

Kirsten Beedholm

Keyword(s):

Health Care ◽

Organizational Learning ◽

Large Scale ◽

Patient Involvement ◽

Hospital Setting ◽

Implementation Process ◽

University Hospital ◽

Structured Interviews ◽

Implementation Processes

Abstract Background From 2014 to 17, a large-scale project, ‘The User-involving Hospital’, was implemented at a Danish university hospital. Research highlights leadership as crucial for the outcome of change processes in general and for implementation processes in particular. According to the theory on organizational learning by Agyris and Schön, successful change requires organizational learning. Argyris and Schön consider that the assumptions of involved participants play an important role in organizational learning and processes. The purpose was to explore leaders’ assumptions concerning implementation of patient involvement methods in a hospital setting. Methods Qualitative explorative interview study with the six top leaders in the implementation project. The semi-structured interviews were conducted and analyzed in accordance with Kvale and Brinkmanns’ seven stages of interview research. Result The main leadership assumptions on what is needed in the implementation process are in line with the perceived elements in organizational learning according to the theory of Argyris and Schön. Hence, they argued that implementation of patient involvement requires a culture change among health care professionals. Two aspects on how to obtain success in the implementation process were identified based on leadership assumptions: “The health care professionals’ roles in the implementation process” and “The leaders’ own roles in the implementation process”. Conclusion The top leaders considered implementation of patient involvement a change process that necessitates a change in culture with health care professionals as crucial actors. Furthermore, the top leaders considered themselves important facilitators of this implementation process.

Implementation of Wireless “Intelligent” Pump IV Infusion Technology in a Not-for-Profit Academic Hospital Setting

Hospital Pharmacy ◽

10.1310/hpj4209-832 ◽

2007 ◽

Vol 42 (9) ◽

pp. 832-840 ◽

Cited By ~ 16

Author(s):

Lor Siv-Lee ◽

Linda Morgan

Keyword(s):

Health Care ◽

Hospital Setting ◽

The United States ◽

Main Campus ◽

For Profit ◽

Not For Profit ◽

Drug Concentrations ◽

Wireless Infrastructure ◽

Infusion System

Purpose This paper describes the implementation of wireless “intelligent” pump intravenous (IV) infusion technology in a not-for-profit academic, multicampus hospital system in the United States. Methods The process of implementing a novel infusion system in a multicampus health care institution (main campus plus three satellite campuses) is described. Details are provided regarding the timelines involved, the process for the development of the drug libraries, and the initial implementation within and across campuses. Results In early 2004, with the end of the device purchase contract period nearing, a multidisciplinary committee evaluated potential IV infusion pumps for hospital use. In April 2004, the committee selected the Plum A+ infusion system with Hospira MedNet software and wireless capabilities (Hospira Inc., Lake Forest, IL). Implementation of the single-channel IV infusion system took place July through October 2005 following installation of the wireless infrastructure throughout the multicampus facility. Implementation occurred in July, one campus at a time; the three smaller satellite campuses went “live” before the main campus. Implementation of the triple-channel IV infusion system took place in March 2006 when the wireless infrastructure was completed and fully functional throughout the campuses, software was upgraded, and drug library revisions were completed and uploaded. Conclusion “Intelligent” pump technology provided a framework to standardize drug concentrations used in the intensive care units. Implementation occurred transparently without any compromise of patient care. Many lessons were learned during implementation that explained the initial suboptimal compliance with safety software use. In response, the committee developed strategies to increase software utilization rates, which resulted in improved acceptance by nursing staff and steadily improving compliance rates. Wireless technology has supported remote device management, prospective monitoring, the avoidance of medication error, and the timely education of health care professionals regarding potential medication errors.

Experience of stigma among Chinese mental health patients in Hong Kong

Psychiatric Bulletin ◽

10.1192/pb.28.12.451 ◽

2004 ◽

Vol 28 (12) ◽

pp. 451-454 ◽

Cited By ~ 51

Author(s):

K. F. Chung ◽

M. C. Wong

Keyword(s):

Mental Health ◽

Mental Illness ◽

Hong Kong ◽

Mental Health Problems ◽

Chinese People ◽

The People ◽

Mental Health Patients ◽

Stigma Of Mental Illness

Aims and MethodThe study was intended to rectify the lack of data on how Chinese people experience the stigma of mental illness. A questionnaire on perceived stigmatisation, experiences of rejection and ways of coping with stigma was completed by 193 persons attending a psychiatric out-patient clinic in Hong Kong.ResultsMost of the participants were aware of the stigma associated with mental illness, but experiences of rejection were relatively less frequent. Eleven per cent of the respondents indicated that they were neglected by health care professionals and 8% had been avoided by family members. The most frequently reported coping method was maintaining secrecy about the illness.Clinical ImplicationsIn China, people with mental health problems experience stigma in various degrees. However, some of the people surveyed expressed feelings of relief that others were supportive and sympathetic towards their illness. Mental health professionals should maintain optimism in helping their patients to cope with the stigma.

National Guidelines for Statewide Implementation of EMS “Do Not Resuscitate” (DNR) Programs

Prehospital and Disaster Medicine ◽

10.1017/s1049023x00041042 ◽

1994 ◽

Vol 9 (2) ◽

pp. 137-139 ◽

Cited By ~ 5

Author(s):

◽

Keyword(s):

Home Health Care ◽

Terminal Illness ◽

Respiratory Arrest ◽

Chronic Illnesses ◽

Do Not Resuscitate ◽

National Guidelines ◽

Loved One ◽

Statutory Authority ◽

Attending Physicians ◽

Dying Patient

With the growth of hospice and home health care, more patients with terminal illness are electing to avoid hospitalization until the final stages of illness. Many of these patients, as well as others with advanced chronic illnesses, have decided with the help and support of their attending physicians, that they do not wish to be resuscitated in the event of cardiac or respiratory arrest. However, as death draws near, well-meaning family or friends, or perhaps the patient, may call emergency medical services (EMS) personnel to transport the dying patient to the hospital; the prehospital providers who respond to these calls may be the last medical persons to attend terminally ill patients at home or in nursing homes. In many cases, these calls to EMS personnel are intended only to obtain transportation or comfort measures for the loved one. However, unless the state provides statutory authority for EMS personnel to honor a “do not resuscitate” (DNR) order, there may be a requirement for such personnel to attempt resuscitation, regardless of the patient's wishes and the physician's directive.

Grief counselling for bereaved families with children

Psychiatric Bulletin ◽

10.1192/pb.18.6.340 ◽

1994 ◽

Vol 18 (6) ◽

pp. 340-342

Author(s):

A. Ubeysekara

Keyword(s):

Mental Health ◽

Physical And Mental Health ◽

Loved One ◽

Child Psychiatric ◽

The Family ◽

Preventive Work ◽

Adults And Children ◽

Families With Children ◽

Causative Link

The effects of losing a loved one through death on the physical and mental health of both adults and children are well documented in the literature. Children are likely to be referred to mental health professionals for various behaviour and emotional problems which may have a causative link with a bereavement within the family. In this paper I discuss the need for preventive work and, propose a role for child psychiatric services in preventive work for bereaved families with surviving children and adolescents. A ten-point plan is suggested as a guideline.

Plain Talk About Health: Linguistic Aspects of Mediation between Amish and Mennonites and Health Care Professionals

The Journal of Plain Anabaptist Communities ◽

10.18061/jpac.v1i1.7803 ◽

2020 ◽

Vol 1 (1) ◽

pp. 1

Author(s):

Mark L. Louden

Keyword(s):

Health Care ◽

Health Care Providers ◽

Language Use ◽

Medical Professionals ◽

Care Providers ◽

Public Spheres ◽

Pennsylvania Dutch ◽

Old Order ◽

Cultural Mediator

As the population of Amish and Old Order Mennonites grows exponentially, so are the contacts between Plain people and medical professionals increasing. All Plain adults are bilingual; however, the fact that the primary everyday language for most is Pennsylvania Dutch is important for understanding how they navigate the health care system. In this article I give an overview of language-related questions involved in communication between Plain people and health care providers with a focus on three areas: translation, interpretation, and patterns of language use. Much of the information I present in this article is drawn from my experience as an interpreter and cultural mediator for Plain people in a number of different public spheres, mainly health care.

The perception of behaviour associated with dementia in the acute hospital

BJPsych Open ◽

10.1192/bjo.2021.693 ◽

2021 ◽

Vol 7 (S1) ◽

pp. S260-S260

Author(s):

Zumer Jawaid ◽

George Crowther ◽

Syeda Ashar

Keyword(s):

Qualitative Methodology ◽

Hospital Setting ◽

Photo Elicitation ◽

Experience Levels ◽

Hospitalised Patients ◽

High Prevalence ◽

Case Vignettes ◽

Medical Specialities

AimsGeneral hospital based Health Care Professionals (HCPs) use very varied language to describe behaviour in dementia. Lessons from medicine and other professions tell us that non-uniform communication is a source of error and subsequent poor decision making. Knowing how HCPs communicate behaviour in dementia in a hospital setting may help better understand these potential sources of communication error and identify training needs.BackgroundAround 25% of hospital beds occupied with people living with dementia. Hospitalised patients with dementia have a high prevalence of distressing symptoms (pain 70%, delirium 66%, depression 35%, anxiety 34%, hallucinations 14% delusions 11%). These symptoms often displayed as behaviour can be challenging for HCPs to interpret. Variations in communicating behaviour may lead to inconsistent understanding of the need, with the potential for missing treatable conditions that drive the behaviour. Standardizing communication and documentation have the potential to improve the quality of information handed over between HCPs which may improve the quality of care and patient outcomes.MethodQualitative methodology including photo elicitation was used. A purposive sample of 59 HCPs was selected. This was identified from a range of professional backgrounds, experience levels and medical specialities. They were presented with a photograph and case vignettes depicting 4 behaviours associated with distress (aggression, depression, delirium and psychosis). HCPs were asked to respond to the scenarios as if they were handing over to colleagues or documenting in the medical record. Data were analysed by thematic analysis.Result59 HCPs were interviewed with photo-elicitation. Participants recorded their responses in limited time to reflect time constraints in a busy ward environment. 2 HCPs declined to participate in research.When describing behaviour associated with aggression and depression HCPs were consistent with the language used (49/57). When presented with a delirium less consistency was observed (31/47). While describing psychosis each HCP chose either paranoia or suspiciousness among other descriptions.ConclusionOverall there has been consistency in describing the distress experienced by the patient even though HCPs came from very different roles and specialities. Doctors, Nurses, CSWs and dieticians all described the behaviour alike. Newer staff were more accurate which could be due to dementia training within National Dementia Action Alliance.

Professionals harnessing experiential knowledge in Dutch mental health settings

Mental Health and Social Inclusion ◽

10.1108/mhsi-08-2021-0054 ◽

2021 ◽

Vol ahead-of-print (ahead-of-print) ◽

Author(s):

Simona Karbouniaris ◽

Alie Weerman ◽

Bea Dunnewind ◽

Jean Pierre Wilken ◽

Tineke A. Abma

Keyword(s):

Mental Health ◽

Health Professionals ◽

Experiential Knowledge ◽

Research Approach ◽

Content Type ◽

Action Research Approach ◽

Mental Health Settings ◽

Four Levels

Purpose This study aims to explore the perspectives of mental health professionals who are in a process of integrating their own experiential knowledge in their professional role. This study considers implications for identity, dilemmas and challenges within the broader organization, when bringing experiential knowledge to practice. Design/methodology/approach As part of a participatory action research approach, qualitative methods have been used, such as in-depth interviews, discussions and observations during training and project team. Findings The actual use of experiential knowledge by mental health care professionals in their work affected four levels: their personal–professional development; the relation with service users; the relation with colleagues; and their position in the organization. Research limitations/implications Because of its limited context, this study may lack generalisability and further research with regard to psychologists and psychiatrists, as well as perceptions from users, is desirable. Social implications According to this study, social change starts from a bottom-up movement and synchronously should be facilitated by top-down policy. A dialogue with academic mental health professionals seems crucial to integrate this source of knowledge. Active collaboration with peer workers and supervisors is desired as well. Originality/value Professionals with lived experiences play an important role in working recovery-oriented, demonstrating bravery and resilience. Having dealt with mental health distress, they risked stigma and rejections when introducing this as a type of knowledge in current mental health service culture. Next to trainings to facilitate the personal–professional process, investments in the entire organization are needed to transform governance, policy and ethics.

Attitudes Towards Assisted Suicide Among Hospital Workers: Results of a Large Multiprofessional Survey in French-Speaking Switzerland

Studia Universitatis Babeş-Bolyai Bioethica ◽

10.24193/subbbioethica.2021.spiss.65 ◽

2021 ◽

Vol 66 (Special Issue) ◽

pp. 102-103

Author(s):

Ralf J. Jox ◽

◽

Keyword(s):

Associated Factors ◽

Assisted Suicide ◽

Hospital Setting ◽

Favorable Attitude ◽

Hospital Workers ◽

Online Questionnaire ◽

Roles And Responsibilities ◽

French Speaking ◽

Tertiary Hospitals

"Background: Worldwide, assisted dying is currently on the rise. For health care professionals (HCP), this raises questions regarding roles and responsibilities. Switzerland is a social laboratory for a non-medicalized form of suicide assistance (SA). Aims: To describe experiences and attitudes of Swiss HCP toward SA in the hospital setting and to identify associated factors. Methods: An online questionnaire survey targeted all HCP involved in patient care at two tertiary hospitals in French-speaking Switzerland. The primary outcome was a favorable attitude toward SA. Associated factors were assessed using logistic regression. Results: A total of 5127 professionals responded (37.1%). The sample was representative of the hospitals, with 74% being female, 52% nurses, 23% physicians and 25% other professions. 69% supported the view that each HCP should have the choice to participate or not in SA. The majority favored access to SA in case of severe somatic illnesses, irrespective of prognosis, but less for patients with mental disorders or healthy seniors. 60% of all HCP were generally ready to be involved in SA, but only 30% of physicians would prescribe a lethal substance. 58% of HCP would consider assisted suicide for themselves in certain circumstances. Independent factors associated with a favorable attitude toward SA were: younger age, graduation in Switzerland, non-physician profession. Working in palliative care or being protestant was associated with a less favorable attitude. Conclusion: The diverse attitudes of HCP suggest that the Swiss model of SA may have to be reconsidered, including the question about the participation of hospital workers. "