Verlieservaringen bij kinderen: een leidraad voor hulpverleners

Author(s):  
L. KEIRSE ◽  
S. WILLEMS ◽  
E. NELIS ◽  
H. GEERTS ◽  
E. HOLVOET ◽  
...  

Loss experience in children: a guideline for primary care Everyone gets confronted with severe loss experiences during life, such as bereavement of a significant other, loss of a loved one after a divorce or loss of one’s own capabilities due to illness. Health care providers need to be equipped with substantial knowledge about children’s experiences of grief and distress in order to support family members properly. Moreover, this can influence the next generation’s capabilities to cope with stressful life events. The current article describes the characteristics of loss experiences in children up to 11 years. Developmental phases, as well as the need to explain to children the 4 fundamental characteristics of death will be discussed (i.e. finality, irreversibility, universality and causality). While grief and distress in children can generally be managed by the immediate surrounding of the child, sometimes professional support is necessary, which is also discussed in this article. Finally, the authors present 4 key principles and concrete recommendations on how adults can respond to children who lost someone so that they can regain pleasure in life.

2016 ◽  
Vol 27 (7) ◽  
pp. 994-1005 ◽  
Author(s):  
Dolores Angela Castelli Dransart

The objective of this study is to identify patterns (components and processes) of reconstruction of suicide survivors. In-depth interviews were conducted with 50 survivors of suicide in Switzerland. Data were analyzed using ATLAS.ti and according to the Grounded Theory principles. Survivors of suicide face four major challenges: dealing with the impact of suicide, searching for meaning, clarifying responsibility, and finding a personal style of reaction and coping. The various ways in which survivors fare through the specific processes of the challenges result in various patterns of reconstruction: the vulnerability, transformation, commitment, and hard blow. The unique characteristics and dynamics of each of them are highlighted. Health care providers would benefit from an approach based on the dynamics of the various patterns of reconstruction in providing appropriate support to survivors of suicide.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S426-S426
Author(s):  
Sara M Moorman

Abstract This paper examined racial/ethnic differences in opinions about passive euthanasia (withdrawing or withholding treatment), suicide, and physician-assisted suicide. Data came from 1,832 participants in the 2013 Pew Religion and Public Life Project. Respondents from all racial/ethnic backgrounds were most likely to favor multiple forms of euthanasia. However, persons of color had a wider variety of opinions about euthanasia than did non-Hispanic whites. In multivariate multinomial logistic regressions, non-Hispanic whites had a 63% chance of approving broadly of euthanasia, while non-Hispanic blacks had a 40% chance, and Hispanics, a 49% chance. Opposition to euthanasia was most common among people with multiple disadvantages (e.g., educational attainment, immigrant status). Neither trust in health care providers nor recent experience with the death of a loved one explained these group differences. Results highlight large differences of opinion between the people who set policy and practice guidelines and those who lack this power and access.


2017 ◽  
Vol 35 (5_suppl) ◽  
pp. 189-189
Author(s):  
Finly Zachariah ◽  
Stefanie Mooney ◽  
Chandana Banerjee ◽  
Sorin Buga ◽  
Bonnie Freeman

189 Background: Family members will carry the memory of the death of their loved-one with them for the rest of their lives. If they perceive their loved-one suffered as they died there is a risk they will develop Post Traumatic Stress Disorder or other psychological dysfunctions. It is crucial the family be educated and holistically supported during the dying process. Health care providers and care givers require information that will enable them to act as patient advocates and work effectively with families toward the common goal of a peaceful death. Resources that provide basic explanations, suggestions for care, open communication, and prepare families and care givers about the dying process are essential. Methods: Final Journey is a patient and family centric booklet developed based on the CARES tool, which is a guide to help medical teams better care for the dying and their family. CARES stands for comfort, airway, restlessness and delirium, emotional and spiritual support, and self-care. Final Journey details in each section what patients and families may experience, helps families understand what constitutes suffering, and suggests what families can do to help their loved ones. Results: There is a need for education tools that are easily understood, pertinent, and made accessible to help improve the dying experience for all parties involved. Final Journey helps assure families are informed and more emotionally prepared. Furthermore, the booklet expands the available resources available to medical providers, allowing them to more effectively address the challenges of caring for the dying. Final Journey will be available as a free download from the Department of Supportive Care Medicine website. Conclusions: We anticipate utilization of the Final Journey booklet will improve knowledge and understanding for health care providers, care givers, and families regarding a normal dying process and how to distinguish this from suffering, provide them suggestions on how to offer support and comfort during the dying process, promote communication between health care providers, care givers, and families of dying patients and supply resources and information on the importance of self-care when working with a dying patient.


2020 ◽  
Vol 8 ◽  
pp. 232470962097224
Author(s):  
Asim Kichloo ◽  
Azkia Khan ◽  
Nadir Siddiqui ◽  
Hashim Ejaz ◽  
Michael Stanley Albosta ◽  
...  

Globally, health care providers have been challenged to provide adequate care during the coronavirus disease-2019 (COVID-19) pandemic. Due to the ever changing and rapidly evolving nature of the novel coronavirus, there is increased public anxiety and knowledge gaps that have created major dilemmas in health care delivery. In this environment, there is tremendous pressure on clinicians to diagnose each and every case of COVID-19. This has led to a situation in which clinicians are primed to suspect all respiratory illness is due to COVID-19 infection until proven otherwise. Because of this, providers may misdiagnose patients who have illnesses that are distinct from COVID-19 but present in a similar manner. In the current article, we present the case of e-cigarette- and vaping-associated acute lung injury (EVALI) mimicking pneumonia secondary to the novel coronavirus. It is unknown if vaping puts patients at higher risk of respiratory failure if coinfected with COVID-19. Therefore, exposure history in patients presenting with pneumonia-like syndrome is important. Physicians should be aware of the overlap between these conditions and should pay particular attention during history taking to distinguish EVALI from COVID-19 pneumonia.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S35-S35
Author(s):  
Manpreet Boparai ◽  
Rosario Costas Muniz ◽  
Natalie Gangai ◽  
Ruth Manna ◽  
Beatriz Korc-Grodzicki

Abstract Older adult patients often have multiple comorbidities, see multiple providers, leading to poor medication management (MM). Educational seminars were conducted to health care providers (HCPs) and community-based organizations to deliver health programs to linguistically diverse communities by a pharmacist utilizing interpreters. Participant knowledge was assessed using matched pre-post surveys (translated to participants’ respective languages). Behavioral intention was measured using a Likert scale. Results indicate participation from 136 community dwelling adults via 6 educational sessions; 44 caregivers via 5 sessions, and 22 HCPs (4 students and 22 residents) participated in one session. 91% of the community population were born outside of the US, 67% coming from South Asian countries, speaking over 7 different languages. Knowledge about medication management increased from an average of 44% correct responses pre-session to 48% correct post-session – a statistically significant change (t (135) =-2.26, p<.03). Most caregivers were females (82%) and born in a South Asian country (87%). Knowledge about medication management when caring for a loved one increased significantly from an average from pre (46%) to post (60%) (t (41) =-3.07, p< .01) Finally, most HCPs were females (53%), 63% Asian; 87% were born outside of the US, predominantly in East Asia. Providers had a significant increase on knowledge (t (21) =-3.03, p< .01) about prescribing for older adults. Detailed results of the programs will be presented. Despite challenges in diverse audience members, all three target populations indicated a statistically significant change in knowledge indicating the value in targeted and tailored health education topics.


2010 ◽  
Vol 66 (2) ◽  
Author(s):  
D.L. Yates ◽  
J.M. Jelsma ◽  
R.E. Parker

In order to provide targeted information regarding understanding and  management  of  low  back  pain  (LBP),  it  is  necessary  to  understand  the life situation of patients. The objective of this study was to develop a profile of patients with LBP seeking care in an under-resourced area of Cape Town.The subjects were all patients attending a community health centre with a primary diagnosis of LBP. A self-designed questionnaire was used to gather relevant information such as BMI, smoking, physical activities at home and work and  potentially  stressful  life  events.  Questions  about  perceptions  of  LBP,  the role of health personnel, income and employment were included.  Subjects could also identify which information they would like to be given by their health care providers. Fifty  subjects  were  interviewed,  74%  were  female.  The  mean  ages  were  50.7  years  (SD  14.0)  and  54.1  years (SD  15.1)  for  males  and  females  respectively.  There  was  a  high  prevalence  of  smoking  and  obesity,  low  levels  of  education, and many reported high stress levels. There were a high percentage of manual workers and the nature of their activities could put them at risk for development and exacerbation of LBP. Few people knew what to expect with regard to the likely outcome of their pain and the majority identified the need for communication about the duration, prognosis, implications and management of LBP. Conclusion: A profile developed of the typical LBP patient in this community provided valuable information, which can be utilized to develop appropriate intervention strategies.


Author(s):  
Richard Schweid

The number of elderly and disabled Americans in need of home health care is increasing annually, even as the pool of people — almost always women — willing to do this job gets smaller and smaller. This book takes readers inside the reality of home health care by following the lives of women training and working as home health aides in the South Bronx. The book examines home health care in detail, focusing on the women who tend to our elderly and disabled loved ones and how we fail to value their work. They are paid minimum wage so that we might be absent, getting on with our own lives. The book calls for a rethinking of home health care and explains why changes are urgent: the current system offers neither a good way to live nor a good way to die. By improving the job of home health aide, we can reduce income inequality and create a pool of qualified, competent home health care providers who would contribute to the well-being of us all. The book also serves as a guide into the world of our home health care system. Nearly 50 million US families look after an elderly or disabled loved one. The book explains the issues and choices they face. It explores the narratives, histories, and people behind home health care in the United States, examining how we might improve the lives of both those who receive care and those who provide it.


2020 ◽  
Vol 30 (3) ◽  
pp. 243-248
Author(s):  
Ashley Yagelniski ◽  
Nicola Rosaasen ◽  
Louise Cardinal ◽  
Mark E. Fenton ◽  
Julian Tam ◽  
...  

Introduction: Providing support throughout the lung transplant process is an intensive task, which requires a dedicated caregiver. The needs of caregivers who must relocate with their loved one receiving the transplant are currently unknown. The objective of this study is to explore experiences and perceptions of lung transplant caregivers identified from a satellite clinic to inform the development of educational resources. Methods: A qualitative study with a phenomenology approach was undertaken with individuals who have taken on the role of a caregiver for lung transplant candidates or recipients and must travel to the specialized transplant center. Semistructured interviews were conducted with 12 caregivers. Interviews conducted by phone were audio-recorded and then transcribed verbatim. NVivo software was used to code the data and identify emerging themes. Results: Ideas were classified into the following 4 themes: (1) the stress of being a caregiver, (2) caregivers undertake a variety of roles, (3) caregivers require support, and (4) satisfaction with health care providers. Even though the caregivers lived an average of 7.1 (standard deviation 2) hours from the surgical transplant center, all expressed satisfaction with the level of care that they received. Caregivers identified several stressors during the transplant process and described various strategies for coping. Conclusion: Caregivers shared their experiences on the transplant process. It was evident that being a caregiver was a stressful and supports were necessary for those undertaking this role. These insights will help inform the development of a new educational resource for patients and caregivers.


1999 ◽  
Vol 27 (2) ◽  
pp. 203-203
Author(s):  
Kendra Carlson

The Supreme Court of California held, in Delaney v. Baker, 82 Cal. Rptr. 2d 610 (1999), that the heightened remedies available under the Elder Abuse Act (Act), Cal. Welf. & Inst. Code, §§ 15657,15657.2 (West 1998), apply to health care providers who engage in reckless neglect of an elder adult. The court interpreted two sections of the Act: (1) section 15657, which provides for enhanced remedies for reckless neglect; and (2) section 15657.2, which limits recovery for actions based on “professional negligence.” The court held that reckless neglect is distinct from professional negligence and therefore the restrictions on remedies against health care providers for professional negligence are inapplicable.Kay Delaney sued Meadowood, a skilled nursing facility (SNF), after a resident, her mother, died. Evidence at trial indicated that Rose Wallien, the decedent, was left lying in her own urine and feces for extended periods of time and had stage I11 and IV pressure sores on her ankles, feet, and buttocks at the time of her death.


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