scholarly journals Parent-Child Communication about Congenital Adrenal Hyperplasia: Filipino Mothers’ Experience

2017 ◽  
Vol 51 (3) ◽  
Author(s):  
Peter James B. Abad ◽  
Mercy Y. Laurino ◽  
Sandra Daack-Hirsch ◽  
Lorna R. Abad ◽  
Carmencita D. Padilla

Background. Family communication facilitates coping from a genetic condition by ensuring accurate understanding of the illness, its inheritance pattern, associated recurrence risks and risk perception. Objective. This paper explores Filipino mothers’ experience in communicating information about congenital adrenal hyperplasia (CAH) to their children. Methods. Descriptive qualitative design was used. Families affected with CAH were recruited via a CAH support group. Semi-structured interviews with mothers were done on the following topics: content and understanding of information communicated, reasons for communicating, and changes and adjustments in the family. Thematic analysis was used to analyze the data. Results. Five families consisting of 11 individuals, including four mothers, were interviewed. Findings revealed that while mothers are open to communicate with their child about CAH, this is often triggered by questions from the child. Mothers find it challenging to discuss about the condition and when they do discuss, this is most often done to facilitate better understanding among the siblings. There is an attempt to explain the inheritance of CAH but this is also limited to the mother’s understanding. Conclusion. The findings of the study provide guidance to health professionals on how they can support parents, particularly mothers, in discussing CAH with their children.

2014 ◽  
Vol 23 (1) ◽  
pp. 167-175 ◽  
Author(s):  
Mayara de Melo Pereira ◽  
Thiffany Pestana da Penha ◽  
Elenice Maria Cecchetti Vaz ◽  
Neusa Collet ◽  
Altamira Pereira da Silva Reichert

Qualitative research in order to identify the conceptions of health education that guide the practice of professionals working in the Family Health Strategy with families of children/adolescents with chronic disease. Data were collected from August to December 2011, through semi-structured interviews conducted with 21 professionals in two Integrated Family Health Units in João Pessoa-PB. Thematic analysis revealed that some professionals do the essence of health education activities and others do not develop targeted educational practice for this group, not recognizing children/adolescents with chronic illness in their coverage area. We emphasize the need for health professionals to adopt new ways of doing health and guided by dialogic relations that include health education.


2021 ◽  
pp. 107780122110145
Author(s):  
Belinda Nixon ◽  
Elly Quinlan

The literature on sexual abuse indicates low rates of inquiry by mental health professionals. This study explores early career psychologists’ experiences of inquiry into their clients’ sexual abuse histories. Twelve Australian psychologists participated in semi-structured interviews with transcripts analyzed using thematic analysis. The vast majority of participants reported that they did not routinely inquire about sexual abuse with barriers including not knowing what to do, discomfort, stigma, and fear of negative outcomes. Participants asserted that their university training in sexual abuse inquiry was inadequate. Findings emphasize the need for the development of an evidence-based framework for sexual abuse training.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
J. Huglin ◽  
L. Whelan ◽  
S. McLean ◽  
K. Greer ◽  
D. Mitchell ◽  
...  

Abstract Background Allied health assistants (AHAs) support allied health professionals (AHPs) to meet workforce demands in modern healthcare systems. Previous studies have indicated that AHAs may be underutilised in some contexts. This study aims to identify factors contributing to the effective utilisation of AHAs across health, aged care and disability sectors and possible pathway elements that may optimise AHA careers in Victoria. Methods Using an interpretive description approach data collection included a workforce survey and semi structured interviews (individual and group). Data analysis included descriptive statistics, independent t-tests and thematic analysis. Participants included allied health assistants, allied health professionals and allied health leaders in the health, aged care or disability sectors; educators, managers or student of allied health assistance training; and consumers of Victorian health, disability or aged care services. Results The literature scan identified numerous potential barriers to and enablers of AHA workforce utilisation. A total of 727 participants completed the survey consisting of AHAs (n = 284), AHPs & allied health leaders (n = 443). Thirteen group and 25 individual interviews were conducted with a total of 119 participants. Thematic analysis of the interview data identified four interrelated factors (system, training, individual and workplace) in pre-employment training and workplace environments. These factors were reported to contribute to effective utilisation of the AHA workforce across health, aged care and disability sectors. Study findings were also used to create a conceptual diagram of potential AHA career pathway elements. Conclusion This study identified pre-employment and workplace factors which may contribute to the optimal utilisation of the AHA workforce across Victorian health, aged care and disability sectors. Further study is needed to investigate the transferability of these findings to national and global contexts, and testing of the conceptual model.


2016 ◽  
Vol 15 (1) ◽  
pp. 35
Author(s):  
Thomas Joseph Parayil ◽  
Tony Sam George

This paper explores the therapists’ views and experience on spiritual components in counselling. Qualitative data were collected through semi-structured interviews, and thematic analysis used. The participants were nine mental health professionals from different backgrounds with 15 to 30 years of experience in the field. The four main themes that emerged are faith in God, the power of prayer, forgiveness and wholesome treatment process  


Author(s):  
Oscar A. Martínez-Martínez ◽  
Javier Reyes ◽  
Eder Noda

Although Mexico presents high levels of poverty and marginalization, it is the second happiest nation in Latin America. This raises several questions about what factors are associated with happiness at each level of marginalization and how these factors vary according to marginalization levels. We conducted a qualitative study in urban municipalities in four Mexican states, using 184 semi-structured interviews and employing a thematic analysis approach. Results suggest that happiness is a multifactorial phenomenon. Factors such as the family, health, religion, friendships, economic conditions, and fulfillment of basic needs contribute to happiness, but each of these aspects has different importance and meaning based on the level of marginalization. Evidence also shows that unhappiness is more homogeneous, regardless of the level of marginalization; thus, we can find people in both low marginalized and high-marginalized contexts that are unhappy. The research findings are relevant for the design of public policies, because they show various unsatisfied needs by level of marginalization and how not having them may affect happiness in each social stratum.


2011 ◽  
Vol 5 (9) ◽  
pp. 2189
Author(s):  
Lucas Amaral Martins ◽  
Luzia Wilma Santana da Silva ◽  
Ninalva De Andrade Santos ◽  
Emanuelle Caires Dias Araújo Nunes ◽  
Aline Cristiane De Souza Azevedo Aguiar

ABSTRACTObjective: to know the perceptions of health professionals on the humanization in delivery and birth and its operationalization in the context of the praxis in health. Methodology: this is a descriptive-exploratory and qualitative study, carried out in a public hospital with 21 subjects identified with fictitious names, through individual semi-structured interviews recorded on magnetic tapes, performed in the maternity facilities and later on fully transcribed. The content analysis was driven by the interactive model, consisting in categories, something which resulted in a detailed procedure until reaching its understanding, and, finally, data verification in the preparation of the final remarks. This study was approved by the Ethics Committee of Universidade Estadual do Sudoeste da Bahia, under the Protocol 123/2009. Results: the data analysis resulted in two thematic axes: “the behaviors used to perform the delivery: counterpart between the delivery recommended by the Program for Humanization of Prenatal Care and Birth (PHPB) and the one put into practice” and “the family accompanying the delivery: perceptions from the team. Conclusions: humanization is a vast process, slow, and complex which faces resistance, since it involves behavior changes that arouse suspicion and fear. The new is always challenging, that is, PHPB is still a young program with very few insertions in the academic field and the system of care for women still lacks human, structural, and material resources to achieve its effective operationalization. Descriptors: humanized delivery; public policies; health personnel; family.RESUMOObjetivo: conhecer as percepções dos profissionais de saúde acerca da humanização no parto e no nascimento e a operacionalização no contexto de sua práxis em saúde. Metodologia: estudo descritivo-exploratório, de abordagem qualitativa, realizada nas dependências de uma maternidade pública, com 21 sujeitos, por meio de entrevista semiestruturada individuais gravadas em fitas magnéticas, e, posteriormente, transcritas na íntegra e identificadas com nomes fictícios. A análise de conteúdo foi guiada pelo modelo interativo, configurando-se em categorias, que se traduziu num procedimento minucioso até alcançar sua compreensão. Esse estudo foi aprovado pelo Comitê de Ética da Universidade Estadual do Sudoeste da Bahia, com número de protocolo nº 123/2009. Resultados: da análise dos dados resultaram dois eixos temáticos: As condutas utilizadas para realização do parto: contraposto entre o parto preconizado pelo PHPN e o executado, e A família no acompanhamento do parto: percepções da equipe. Considerações finais: a humanização é um processo amplo, demorado e complexo ao qual se oferecem resistências, pois envolve mudanças de comportamento que despertam receio e medo. O novo é sempre desafiante, ou seja, o PHPN é um programa jovem ainda com pouquíssimas inserções no meio acadêmico e o sistema de assistência à mulher ainda carece de recursos humanos, estruturais e materiais para a sua efetiva inserção. Descritores: parto humanizado; políticas públicas; pessoal de saúde; família.RESUMENObjetivo: conocer las percepciones de los profesionales de salud acerca de la humanización en el parto y nacimiento y la operacionalización en el contexto de la praxis en salud. Metodología: esto es un estudio descriptivo-exploratorio y cualitativo, realizado en hospital público con 21 sujetos identificados con nombres ficticios, por medio de entrevistas semi-estructuradas individuales grabadas en cintas magnéticas, realizadas en la dependencias de la maternidad y después transcriptas en su totalidad. El análisis de contenido fue guiado por el modelo interactivo, se configurando en categorías, lo que se tradució en un procedimiento minucioso hasta alcanzar su compreensión, y, por fin, la verificación de los datos en la elaboración de las consideraciones finales. Esto estudio fue aprobado por el Comité de Ética de la Universidade Estadual do Sudoeste da Bahia, bajo el Protocolo 123/2009. Resultados: del análisis de los datos resultaron dos eje temáticos: “las conductas utilizadas para realización del parto: contrapunto entre el parto recomendado por el Programa de Humanización en el Prenatal y Nacimiento (PHPN) y lo ejecutado” and “la familia en el acompañamiento del parto: percepciones del equipo”. Conclusiones: la humanización es un proceso amplio, demorado y complejo al que se ofrecen resistencias, porque se trata de cambios en el comportamiento que despiertan recelo y miedo. Lo nuevo es siempre un reto, es decir, PHPN sigue siendo un programa joven aún con muy pocas inserciones en el mundo académico y el sistema de atención a la mujer aún carece de recursos humanos, estructurales y materiales para atingir su operacionalización efectiva. Descriptores: parto humanizado; políticas públicas; personal de salud; familia.


2013 ◽  
Vol 2013 ◽  
pp. 1-11 ◽  
Author(s):  
Vinaya K. C. Manchaiah ◽  
Dafydd Stephens ◽  
Thomas Lunner

The objective of this study was to further develop the Ida Institute model on communication partners’ (CPs) journey through experiences of person with hearing impairment (PHI), based on the perspectives of CPs. Nine CPs of hearing aid users participated in this study, recruited through the Swansea hearing impaired support group. Semi-structured interviews were conducted, the data were analysed using qualitative thematic analysis and presented with the use of process mapping approach. Seven main phases were identified in the CP journey which includes: (1) contemplation, (2) awareness, (3) persuasion, (4) validation, (5) rehabilitation, (6) adaptation, and (7) resolution. The Ida Institute model (based on professionals’ perspective) was compared with the new template developed (based on CPs’ perspectives). The results suggest some commonalities and differences between the views of professionals and CPs. A new phase, adaptation, was identified from CPs reported experiences, which was not identified by professionals in the Ida Institute model. The CP’s journey model could be a useful tool during audiological enablement/rehabilitation sessions to promote discussion between the PHI and the CP. In addition, it can be used in the training of hearing healthcare professionals.


2021 ◽  
Vol 74 (5) ◽  
Author(s):  
Leticia Bottcher Dias ◽  
Ana Márcia Chiaradia Mendes-Castillo

ABSTRACT Objective: To understand the role of grandparents of hospitalized children with cancer. Methods: In a qualitative study, we interviewed eleven grandparents of children with cancer hospitalized at a referral center for pediatric oncology in São Paulo. The data were analyzed using the Hybrid Framework of Thematic Analysis. Results: Six themes were found to describe the role of grandparents in this context: Being the family’s support, Sharing love to my child and my grandchild, Being there for my child and my grandchild, Offering spiritual support to my child and my grandchild, Making an effort to be able to manage my own feelings and Balancing the demands of hospitalization with available resources. Final considerations: The findings show the significance of the grandparents’ role in this experience and emphasize the value of being considered, by health professionals, as part of the family and care.


2016 ◽  
Vol 15 ◽  
pp. 549
Author(s):  
Daisy Cristina Rodrigues ◽  
Eliane Tatsch Neves ◽  
Leonardo Bigolin Jantsch ◽  
Andressa Da Silveira

Aim:  to  describe  the  access  of  children  in  chronic  conditions  toprimary  health  care  from  the  perspective  of  health  professionals.  Method:  this  is  an exploratory  and  descriptive  study,  using  a  qualitative  approach.  For  the  collection  of data,  semi-structured  interviews  will  be  carried  out  with  health  professionals  that integrate the teams of Basic Health Units and the Family Health Strategy in the South of Brazil.  The  data  will  be  treated  through  the  thematic  inductive  analysis.  Expected results:  the  expectation  is  to  contribute  with  resources  for  the  planning  of  the assistance,  allowing  access  for  the  coordination  of  care.  In  addition  to  encouraging moments and spaces for reflection for the health professionals participating in the study, who can rethink their daily practices.


2019 ◽  
Vol 13 ◽  
Author(s):  
Maria Clara Henrique Moreira Geraldo ◽  
Vanessa De Almeida Ferreira Corrêa ◽  
Mary Ann Menezes Freire ◽  
Juliana Roza Dias ◽  
Alex Simões De Mello ◽  
...  

Objetivo: compreender as práticas dos profissionais da saúde da Estratégia Saúde da Família a partir dos princípios teórico-metodológicos da Política Nacional de Educação Popular em Saúde, no âmbito do Sistema Único de Saúde. Método: trata-se de um estudo qualitativo, descritivo, com oito profissionais da saúde, por meio de entrevistas semiestruturadas, analisadas pela técnica da Análise de Conteúdo na modalidade Análise Temática-Categorial. Resultados: obtiveram-se as categorias << Fatores que fragilizam a prática da Educação Popular em Saúde >>, << Princípios norteadores da prática dos profissionais da saúde da Estratégia Saúde da Família >> e << Práticas de Educação Popular em Saúde desenvolvidas pelos profissionais da saúde >>. Conclusão: conclui-se que as práticas de Educação Popular em Saúde desenvolvidas pelos profissionais na Estratégia Saúde da Família se articulam aos princípios da Política Nacional de Educação Popular em Saúde. Descritores: Educação em Saúde; Estratégia Saúde da Família; Atenção Primária à Saúde; Prática Profissional; Participação da Comunidade; Política Pública.ABSTRACTObjective: to understand the practices of health professionals of the Family Health Strategy from the theoretical-methodological principles of the National Policy of Popular Health Education, within the scope of the Unified Health System. Method: this is a qualitative, descriptive study. with eight health professionals, through semi-structured interviews, analyzed by the Content Analysis technique in the Thematic-Categorical Analysis modality. Results: the following categories were obtained << Factors that weaken the practice of Popular Health Education >>, << Guiding principles of the practice of health professionals of the Family Health Strategy >> and << Practices of Popular Health Education developed by the health professionals >>. Conclusion: it is concluded that the practices of Popular Health Education developed by professionals in the Family Health Strategy are articulated with the principles of the National Policy of Popular Health Education. Descriptors: Health Education; Family Health Strategy; Primary Health Care; Professional Practice; Community Participation; Public Policy. RESUMENObjetivo: comprender las prácticas de los profesionales de la salud de la Estrategia de Salud de la Familia a partir de los principios teórico-metodológicos de la Política Nacional de Educación Popular en Salud, dentro del ámbito del Sistema Único de Salud. Método: se trata de un estudio cualitativo, descriptivo, con ocho profesionales de la salud, a través de entrevistas semiestructuradas, analizadas por la técnica de Análisis de contenido en la modalidad de Análisis temático-categórico. Resultados: se obtuvieron las categorías << Factores que debilitan la práctica de la Educación Popular en Salud >>, << Principios norteadores de la práctica de los profesionales de la salud de la Estrategia de Salud Familiar >> y << Prácticas de Educación Popular en Salud desarrolladas por los profesionales de la salud >>. Conclusión: se concluye que las prácticas de Educación Popular en Salud desarrolladas por profesionales en la Estrategia de Salud Familiar se articulan a los principios de la política Nacional de Educación Popular en Salud. Descriptores: Educación en Salud; Estrategia de Salud Familiar; Atención Primaria de Salud; Práctica Profesional; Participación de la Comunidad; Política Pública.


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