The role of grandparents of children with cancer in the hospital

ABSTRACT Objective: To understand the role of grandparents of hospitalized children with cancer. Methods: In a qualitative study, we interviewed eleven grandparents of children with cancer hospitalized at a referral center for pediatric oncology in São Paulo. The data were analyzed using the Hybrid Framework of Thematic Analysis. Results: Six themes were found to describe the role of grandparents in this context: Being the family’s support, Sharing love to my child and my grandchild, Being there for my child and my grandchild, Offering spiritual support to my child and my grandchild, Making an effort to be able to manage my own feelings and Balancing the demands of hospitalization with available resources. Final considerations: The findings show the significance of the grandparents’ role in this experience and emphasize the value of being considered, by health professionals, as part of the family and care.

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Physical activity promotion in primary health care in Slovenia

Swiss Sports & Exercise Medicine ◽

10.34045/ssem/2014/13 ◽

2014 ◽

Vol 62 (2) ◽

Keyword(s):

Physical Activity ◽

Cardiovascular Disease ◽

Health Promotion ◽

Health Professionals ◽

Healthy Lifestyle ◽

Graduate Nurses ◽

Primary Health ◽

The Family ◽

Prevention Of Cardiovascular Disease

In Slovenia, the role of general practitioners in counselling physical activity for prevention of cardiovascular disease (CVD) is well recognized. The role of general practitioners in advising healthy lifestyle for individuals who are at risk of developing CVD is formally defined in the National Program for Primary Prevention of Cardiovascular Disease, which has been running since 2001. Part of the program is counselling on healthy lifestyle including physical activity, performed in all health centres across the country. First a screening and medical examination is performed. In case of higher risk for CVD (>20%) the physician should give advice on the particular risk factor and direct patients to health-education centres, where they can participate in healthy lifestyle workshops lead by health professionals. Physicians and other health professionals who are involved in the implementation of prevention activities within the program need knowledge and skills that are crucial for successful counselling on healthy lifestyle. The educational program “basic education in health promotion and prevention of chronic non-communicable diseases in primary health care/family medicine” consists of two parts. The first part of the training is open to all health professionals working within the program. The second part is intended for health professionals working in health-education workshops. In the last few years a new family practice model has been introduced and disseminated. Some duties of the family physician, including health promotion and counselling, are being transferred to graduate nurses who become part of the family practice team. This new division of work undoubtedly brings many advantages, both in terms of the work organization, and of high-quality patient care. Nevertheless preventive action cannot be fully passed on to graduate nurses. Careful planning and education are needed to ensure a comprehensive approach in healthy life style counselling.

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Use of symptom checkers for COVID-19-related symptoms among university students: a qualitative study

BMJ Innovations ◽

10.1136/bmjinnov-2020-000498 ◽

2021 ◽

pp. bmjinnov-2020-000498

Author(s):

Stephanie Aboueid ◽

Samantha B Meyer ◽

James R Wallace ◽

Shreya Mahajan ◽

Teeyaa Nur ◽

...

Keyword(s):

Young Adults ◽

Qualitative Study ◽

Thematic Analysis ◽

Health Professionals ◽

Qualitative Interviews ◽

Healthcare Services ◽

Healthcare Systems ◽

Positive Experience ◽

Perceived Credibility ◽

Inductive Thematic Analysis

ObjectiveSymptom checkers are potentially beneficial tools during pandemics. To increase the use of the platform, perspectives of end users must be gathered. Our objectives were to understand the perspectives and experiences of young adults related to the use of symptom checkers for assessing COVID-19-related symptoms and to identify areas for improvement.MethodsWe conducted semistructured qualitative interviews with 22 young adults (18–34 years of age) at a university in Ontario, Canada. Interviews were audio-recorded, transcribed, and analysed using inductive thematic analysis.ResultsWe identified six main themes related to the decision of using a symptom checker for COVID-19 symptoms: (1) presence of symptoms or a combination of symptoms, (2) knowledge about COVID-19 symptoms, (3) fear of seeking in-person healthcare services, (4) awareness about symptom checkers, (5) paranoia and (6) curiosity. Participants who used symptom checkers shared by governmental entities reported an overall positive experience. Individuals who used non-credible sources reported suboptimal experiences due to lack of perceived credibility. Five main areas for improvement were identified: (1) information about the creators of the platform, (2) explanation of symptoms, (3) personalised experience, (4) language options, and (5) option to get tested.ConclusionsThis study suggests an increased acceptance of symptom checkers due to the perceived risks of infection associated with seeking in-person healthcare services. Symptom checkers have the potential to reduce the burden on healthcare systems and health professionals, especially during pandemics; however, these platforms could be improved to increase use.

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The Influence of Masculinity and the Moderating Role of Religion on the Workplace Well-Being of Factory Workers in China

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18126250 ◽

2021 ◽

Vol 18 (12) ◽

pp. 6250

Author(s):

Quan Gao ◽

Orlando Woods ◽

Xiaomei Cai

Keyword(s):

Well Being ◽

Spiritual Support ◽

Social Psychological ◽

Factory Workers ◽

The Social ◽

Being There ◽

Role Of Religion ◽

Depth Interviews ◽

Moderating Role

This paper explores how the intersection of masculinity and religion shapes workplace well-being by focusing on Christianity and the social construction of masculinity among factory workers in a city in China. While existing work on public and occupational health has respectively acknowledged masculinity’s influences on health and the religious and spiritual dimensions of well-being, there have been limited efforts to examine how variegated, and especially religious, masculinities influence people’s well-being in the workplace. Drawing on ethnography and in-depth interviews with 52 factory workers and 8 church leaders and factory managers, we found that: (1) Variegated masculinities were integrated into the factory labor regime to produce docile and productive bodies of workers. In particular, the militarized and masculine cultures in China’s factories largely deprived workers of their dignity and undermined their well-being. These toxic masculinities were associated with workers’ depression and suicidal behavior. (2) Christianity not only provided social and spiritual support for vulnerable factory workers, but also enabled them to construct a morally superior Christian manhood that phytologically empowered them and enhanced their resilience to exploitation. This paper highlights not only the gender mechanism of well-being, but also the ways religion mediates the social-psychological construction of masculinity.

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Exploring novice Indian school counsellors’ experiences collaborating with teachers and administrators

Journal of Psychologists and Counsellors in Schools ◽

10.1017/jgc.2021.13 ◽

2021 ◽

pp. 1-15

Author(s):

Aashna Sadana ◽

Aneesh Kumar

Keyword(s):

School Climate ◽

Qualitative Study ◽

Thematic Analysis ◽

Training Programs ◽

Indian School ◽

School Counsellors ◽

Improved Outcomes ◽

Semistructured Interviews ◽

Collaboration Strategies

Abstract Previous studies have shown that collaboration between school counsellors and other stakeholders such as teachers and administrators leads to improved outcomes for students and a better school climate. The current qualitative study explored the experiences and perceptions of novice school counsellors in India regarding collaboration with teachers and administrators. The sample included 11 novice school counsellors working in five different cities who were recruited using purposive sampling. The thematic analysis of the data collected via semistructured interviews revealed six main themes: ‘Counsellors’ perceptions about collaboration’, ‘Collaboration with teachers’, ‘Collaboration with administrators’, ‘Challenges faced during collaboration’, ‘Strategies helpful in collaboration’ and ‘Impact of training’. Implications discussed include the need for school counsellors to advocate for their role, the need for training programs to prepare stakeholders for collaboration, and the need for policies to integrate the role of a school counsellor into schools.

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The function of the social networks of families of hospitalized children

Escola Anna Nery ◽

10.1590/2177-9465-ean-2018-0311 ◽

2019 ◽

Vol 23 (4) ◽

Author(s):

Rita de Cássia Melão de Morais ◽

Tania Vignuda de Souza ◽

Isabel Cristina dos Santos Oliveira ◽

Juliana Rezende Montenegro Medeiros de Moraes ◽

Elena Araújo Martinez ◽

...

Keyword(s):

Social Networks ◽

Social Network ◽

Family Members ◽

Main Role ◽

Hospitalized Children ◽

Pediatric Hospitalization ◽

The Social ◽

The Family ◽

Main Components

ABSTRACT Objective: To analyze the role of the social network configured by the family/companion and their implications for their stay during the hospitalization of the child in the pediatric hospitalization unit. Method: Qualitative study with ten family members/companions of hospitalized children. Data collection was done through the technique of individual interview, which occurred in the period from February to December 2015. The analysis was thematic, in light of the theoretical reference of "Social Networks" described by Lia Sanicola. Results and discussion: The main role of the social network was emotional and material support, and the main components of this network were: companion, mother, aunt and daughter, as well as nursing team, physician and other family members/companions. Final considerations and implications for the practice: It was verified that the totality of the interviewees was female, however, the husband was the most important member of the social network for the family members involved, since they perform the material/financial and emotional function. In addition, the participants consider that they are responsible for all care to the family and, in the condition in that they are, they understand it as a favor provided by the other members of the network. Identifying the composition of the social networks of family members/companions provides a better targeting of care in order to strengthen the social support received.

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Care without sufficient knowledge of people with home enteral tube feeding: a qualitative study

Gastrointestinal Nursing ◽

10.12968/gasn.2021.19.10.26 ◽

2021 ◽

Vol 19 (10) ◽

pp. 26-34

Author(s):

Mehri Doosti-Irani ◽

Farangis Heidari Goojani ◽

Leila Rafiee Vardanjani ◽

Kobra Noorian

Keyword(s):

Qualitative Study ◽

Family Caregivers ◽

Health Professionals ◽

Tube Feeding ◽

Interview Data ◽

Negative Consequences ◽

Correct Position ◽

Face To Face ◽

Enteral Tube Feeding ◽

The Family

Aim: This study aimed to explore family caregivers' experiences with tube feeding at home in Iran. Methods: This qualitative study was conducted with purposefully selected family caregivers who participated in an in-depth, semi-structured, face-to-face interview. Data analysis was performed through content analysis and rigor was investigated. Results: In total, 20 caregivers were interviewed. Two main categories were found in the interview data: ‘abandoned training’ and ‘lack of knowledge of nutrition’. Participants felt abandoned and unsupported by health professionals. Participants also reported feeling that health professionals passed the training responsibility to other health professionals who did not give training. This resulted in participants feeling obligated to learn from their peers. Participants lacked knowledge about nutrition, as well as how to prepare home-made formula for feeding, the correct position for feeding and feeding times. Conclusion: Despite having a heavy and vital responsibility, participants felt that they had not been adequately trained and thus faced making errors, resulting in negative consequences for the patient and the family. Therefore, appropriate plans must be made to promote preparation for home care.

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Health conceptions under the perspective of lay caregiver women accompanying hospitalized children

Revista Latino-Americana de Enfermagem ◽

10.1590/s0104-11692009000100014 ◽

2009 ◽

Vol 17 (1) ◽

pp. 88-93 ◽

Cited By ~ 1

Author(s):

Wiliam Wegner ◽

Eva Neri Rubim Pedro

Keyword(s):

Health Care ◽

Teaching Hospital ◽

Thematic Analysis ◽

Hospitalized Children ◽

Children With Cancer ◽

Cancer Data ◽

Qualitative Descriptive ◽

Health Conceptions ◽

Institutional Stakeholders ◽

Group Technique

This study aims to present and discuss part of the findings of a research carried out at a teaching hospital. It is a qualitative descriptive-exploratory and interventionist study with nine lay caregiver women accompanying hospitalized children with cancer. Data were collected through the focal group technique, organized in the QSR Nvivo software and analyzed through thematic analysis. Results originated during the discussion on participants' health conceptions indicate the need to (re)think the rights of patients' companions and provide instruments to several social, political and institutional stakeholders in order to (re)plan health actions that can be developed during professionals' education and qualification in the context of health care, which can be the focus of discussion within diverse contexts of society.

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Using Photo-Elicitation to Explore Families’ Experiences of Burn Camp

Journal of Family Nursing ◽

10.1177/1074840718817630 ◽

2018 ◽

Vol 25 (1) ◽

pp. 81-108 ◽

Cited By ~ 1

Author(s):

Laura Armstrong-James ◽

Julia Cadogan ◽

Heidi Williamson ◽

Nichola Rumsey ◽

Diana Harcourt

Keyword(s):

Qualitative Study ◽

Thematic Analysis ◽

Family Members ◽

Photo Elicitation ◽

The Family ◽

Carer Support

A qualitative study using photo-elicitation was conducted to investigate the experiences of family members attending a residential burn camp. Six families were provided with cameras and asked to take photographs of their time at camp. They were subsequently interviewed about their experiences of camp, using their photographs as prompts. Thematic analysis of interview transcripts identified three main themes: benefits for the family as a whole (new activities and experiences and lasting impacts), benefits for the child (having fun without feeling different), and benefits for the parent/carer (support from those who understand). This is the first study to specifically investigate the experience of the whole family at a burn camp and suggests that attendance may offer a number of benefits for parents/carers and children. Photo-elicitation was an effective method for encouraging participants to recall and discuss their time at camp, and should be considered in future burns research.

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