Individuals With Moderate to Severe Intellectual Disabilities: Perceptions of Community

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505098p1-7512505098p1
Author(s):  
Mayra Del Real ◽  
Erika Fimple ◽  
Nicole Renae Roberts
Keyword(s):  
Quality Of Life ◽  
Intellectual Disabilities ◽  
Severe Intellectual Disabilities ◽  
Primary Author

Abstract Date Presented 04/13/21 The purpose of this study was to understand how people with moderate to severe intellectual disabilities perceive community. It is important to consider an individual’s context when investigating perceptions of community. Having a better understanding of how this population perceives community can lead to improved policies and regulations that truly maximize participation in everyday occupations, which will ultimately improve this population’s health and quality of life. Primary Author and Speaker: Mayra Del Real Additional Authors and Speakers: Marie Holmefur, Gunnel Janeslätt, Afsaneh Roshanay, Kajsa Lidstroem Holmqvist, and Patrik Arvidsson

Does supported living work for people with severe intellectual disabilities?

2015 ◽  
Vol 9 (6) ◽  
pp. 338-351 ◽  
Author(s):  
Elizabeth Marlow ◽  
Nina Walker
Keyword(s):  
Quality Of Life ◽  
Intellectual Disabilities ◽  
Family Members ◽  
Model Of Care ◽  
Content Type ◽  
Supported Living ◽  
Working Practices ◽  
Severe Intellectual Disabilities ◽  
The Impact

Purpose – The purpose of this paper is to look at whether a move to a supported living model of care from traditional residential group homes could improve the quality of life for those with a severe intellectual disability and other challenging needs. Design/methodology/approach – Six men with severe intellectual disabilities moved from two residential homes into new-build individual flats. Their quality of life was measured using a battery of assessments looking at; environment, relationships, community participation, interactions, mood interest and pleasure, activities, physical health and challenging behaviour. These measures were taken before the move, immediately after and six months after the move. The views of staff and family carers were also assessed at each stage. Findings – The move had a positive effect on the tenants in that it caused an improvement in their mood and a decrease in their challenging behaviours. Further improvements could be made in the tenant’s quality of life by introducing more activities. The initial concerns of family members about the move decreased over time. However staff found the changes to their working practices stressful. Research limitations/implications – The study was a small scale one because of the small number of tenants. The tenants were unable to express their own views because of their limited communication abilities so a combination of direct observation and indirect measures were used. Practical implications – In the light of the Winterbourne view report by Stephen Bubb this study looks at the impact on quality of life of a move to supported living for a group of people with complex and challenging needs who might otherwise be placed in an out of borough placement similar to Winterbourne view. Social implications – The study also looks at the impact of such a move on the family members of the individuals and on the staff who had to change their working practices to adapt to both a new working environment and model of care. Originality/value – This study also looks at the impact of a model of supported living for people with severe intellectual disabilities and complex needs rather than those with mild intellectual disabilities. This is particularly important in the post Winterbourne view climate when the authors need to look carefully at positive alternative models of care for these individuals.

scholarly journals Active Time in Cooperative Activities, Quality of Life and Body Mass Index in Individuals with Intellectual Disabilities. A Model of Structural Equations

2021 ◽  
Vol 13 (4) ◽  
pp. 2341
Author(s):  
Gabriel González-Valero ◽  
Josep Vidal-Conti ◽  
Félix Zurita-Ortega ◽  
Pere Palou-Sampol
Keyword(s):  
Quality Of Life ◽  
Body Mass Index ◽  
Cooperative Learning ◽  
Intellectual Disabilities ◽  
Body Mass ◽  
Structural Equations ◽  
Overweight And Obesity ◽  
Active Time ◽  
Individuals With Intellectual Disabilities

Current research shows that individuals with intellectual disabilities do not engage in enough physical activity to acquire health benefits. However, cooperative learning has been shown to be an effective tool for inclusion and for improving healthy physical habits. The aim of this study is to contrast an explanatory model which incorporates quality of life, active time in cooperative activities, body mass index and age, as well as to analyze, using multi-group structural equations, the existing associations according to the sex of subjects with intellectual disabilities. The convenience sampling used allowed the collection of data from a total of 156 subjects in Granada (Spain), aged between 18–55 years. In terms of gender, the sample was homogeneous, representing 52.6% (n = 82) for women and 47.4% (n = 74) for men. The active time during the cooperative learning was recorded with the Xiaomi Mi Band 2 activity band, for the quality of life scale (GENCAT) was used, and the body mass index was calculated through its standardized equation. Age was directly associated with body mass index in both sexes. Likewise, age was positively related to the active time of women. Quality of life was directly associated with active time and body mass index was inversely related to active time. This study shows the importance of active time during work and cooperative learning in individuals with intellectual disabilities, as it is associated with an improvement in the quality of life and a reduction in the problems of sedentarism, overweight, and obesity.

scholarly journals Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e043358
Author(s):  
Angela Hassiotis ◽  
Athanasia Kouroupa ◽  
Rebecca Jones ◽  
Nicola Morant ◽  
Ken Courtenay ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cost Effectiveness ◽  
Intellectual Disabilities ◽  
Online Survey ◽  
Service Use ◽  
Cost Evaluation ◽  
Challenging Behaviour ◽  
Health And Social Care ◽  
Adults With Intellectual Disabilities

IntroductionApproximately 17% of adults with intellectual disabilities (ID) living in the community display behaviours that challenge. Intensive support teams (ISTs) have been recommended to provide high-quality responsive care aimed at avoiding unnecessary admissions and reducing lengthy inpatient stays in England. We have identified two models of ISTs (model 1: enhanced provision and model 2: independent provision). This study aims to investigate the clinical and cost-effectiveness of the two models of ISTs.Methods and analysisA cohort of 226 adults with ID displaying behaviour that challenges who receive support from ISTs from each model will be recruited and assessed at baseline and 9 months later to compare the clinical and cost-effectiveness between models. The primary outcome is reduction in challenging behaviour measured by the Aberrant Behaviour Checklist-Community (ABC-C). The mean difference in change in ABC score between the two IST models will be estimated from a multilevel linear regression model. Secondary outcomes include mental health status, clinical risk, quality of life, health-related quality of life, level of functioning and service use. We will undertake a cost-effectiveness analysis taking both a health and social care and wider societal perspective. Semistructured interviews will be conducted with multiple stakeholders (ie, service users, paid/family carers, IST managers/staff) to investigate the experience of IST care as well as an online survey of referrers to capture their contact with the teams.Ethics and disseminationThe study was approved by the London–Bromley Research Ethics Committee (REC reference: 18/LO/0890). Informed consent will be obtained from the person with ID, or a family/nominated consultee for those lacking capacity and from his/her caregivers. The findings of the study will be disseminated to academic audiences, professionals, experts by experience and arm’s-length bodies and policymakers via publications, seminars and digital platforms.Trial registration numberClinicalTrials.gov Registry (NCT03586375).

“I Would Like to Have a Normal Brother but I’m Happy With the Brother That I Have”: A Pilot Study About Intellectual Disabilities and Family Quality of Life From the Perspective of Siblings

2021 ◽  
pp. 0192513X2110428
Author(s):  
Raquel A. Correia ◽  
Maria João Seabra-Santos
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Intellectual Disabilities ◽  
Family Relationships ◽  
Leisure Activities ◽  
Well Being ◽  
Family Quality Of Life ◽  
Adult Sibling ◽  
The Disabled

The relationships between siblings are the most long-lasting in families. When one of the siblings is a person with intellectual disabilities (ID), this relationship assumes an even more important role since this brother/sister will most likely become the disabled individual’s main caregiver. This pilot study had two aims: to explore the experience as an adolescent or adult sibling of a person with ID and to understand the perceptions of these siblings about quality of life as a sibling and about family quality of life. In-depth interviews were conducted with six siblings. The results showed that the experience of a sibling is positive and the acceptance process is of extreme importance. The domains which, from the sibling perspective, contribute to family quality of life are as follows: Family relationships, Acceptance, Health, Influence of values, Financial well-being, Support from others, and Leisure activities. The implications of these findings for intervention are pointed out.

scholarly journals Giving Voice to Persons With Intellectual Disabilities About Family Quality of Life

2017 ◽  
Vol 14 (1) ◽  
pp. 59-67 ◽  
Author(s):  
Raquel Alveirinho Correia ◽  
Maria João Seabra-Santos ◽  
Paula Campos Pinto ◽  
Ivan Brown
Keyword(s):  
Quality Of Life ◽  
Intellectual Disabilities ◽  
Family Quality Of Life

Impact of Equine-Assisted Activities on Quality of Life and Relational Skills for Older Adults With Dementia: A Mixed-Methodology Research

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512520401p1-7512520401p1
Author(s):  
Charmaine Lim ◽  
Manisha Sheth
Keyword(s):  
Quality Of Life ◽  
Mixed Methodology ◽  
World Health ◽  
Significant Difference ◽  
The Moment ◽  
Health Organization ◽  
Equine Assisted ◽  
Primary Author ◽  
Relational Skills

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. The purpose of this research was to examine the efficacy of a 9-week equine-assisted program named "Horse in the Moment." Mixed-methodology research was conducted to explore the effectiveness of equine-assisted activities on quality of life (QOL) and relational skills for individuals diagnosed with dementia. Pre and post scores on World Health Organization QOL showed significant difference. Families of the participants also reported improvements in communication and socialization. Primary Author and Speaker: Charmaine Lim Additional Authors and Speakers: Manisha Sheth

Perceptions of Stress, Mindfulness, and Occupational Engagement Among Graduate-Level OT Students

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505140p1-7512505140p1
Author(s):  
Patricia A. Henton ◽  
Acacia Gambrel ◽  
Jerome Klah ◽  
Catherine Rink ◽  
Caroline Targonski ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Graduate Students ◽  
Coping Strategies ◽  
Mixed Methods Study ◽  
Coping Mechanism ◽  
Occupational Engagement ◽  
Graduate Level ◽  
Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. The exploratory mixed-methods study of 490 OT graduate students revealed that high levels of reported stress along with limited coping strategies impacted students’ perceived occupational engagement and quality of life. Students identified mindfulness as an effective coping mechanism; however, its reported use did not appear to alter quality of life. The study supported a link between mindfulness and occupational engagement and has broad implications for the field of OT. Primary Author and Speaker: Patricia A. Henton Additional Authors and Speakers: Acacia Gambrel, Jerome Klah, Catherine Rink, Caroline Targonski, and Sarah Wirtz

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