Self-Monitoring for Stroke Survivors Using Mobile Health Technology: Qualitative Study of User Experiences

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512500044p1-7512500044p1
Author(s):  
Joanne N. Chin ◽  
Shijia Li ◽  
Stephen C. L. Lau ◽  
Alex Wong

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. Mobile health devices promote self-monitoring of chronic conditions. We conducted an ecological momentary assessment among stroke survivors who used a mobile device to respond to survey questions about their daily life participation for 2 weeks. We report results from in-depth interviews to inquire about perceived barriers to and facilitators of using the device. Results also identify needs and wishes regarding the development and implementation of digital monitoring for long-term stroke outcomes. Primary Author and Speaker: Joanne N. Chin Additional Authors and Speakers: Shijia Li, Stephen C. L. Lau Contributing Authors: Alex Wong

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512500045p1-7512500045p1
Author(s):  
Shijia Li ◽  
Stephen C. L. Lau ◽  
Joanne N. Chin ◽  
Alex Wong

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. We examined cognitive and motor factors predicting adherence to smartphone-based ecological momentary assessment (EMA) for monitoring daily life participation in stroke survivors. Cognitive flexibility and dexterity were significant predictors of EMA adherence. We derived cutoff values to differentiate survivors with high and low adherence. OTs may use them to guide the selection of survivors who can use mobile health technology to monitor poststroke functioning. Primary Author and Speaker: Shijia Li Additional Authors and Speakers: Stephen C. L. Lau, Joanne N. Chin Contributing Authors: Alex Wong


2020 ◽  
Vol 33 (3) ◽  
pp. 280-289 ◽  
Author(s):  
Jennifer L. Warnick ◽  
Sarah C. Westen ◽  
Anastasia Albanese-O’Neill ◽  
Stephanie L. Filipp ◽  
Desmond Schatz ◽  
...  

2019 ◽  
Author(s):  
Rüdiger Pryss ◽  
Dennis John ◽  
Winfried Schlee ◽  
Wolff Schlotz ◽  
Johannes Schobel ◽  
...  

BACKGROUND The mobile phone app, TrackYourStress (TYS), is a new crowdsensing mobile health platform for ecological momentary assessments of perceived stress levels. OBJECTIVE In this pilot study, we aimed to investigate the time trend of stress levels while using TYS for the entire population being studied and whether the individuals’ perceived stress reactivity moderates stress level changes while using TYS. METHODS Using TYS, stress levels were measured repeatedly with the 4-item version of the Perceived Stress Scale (PSS-4), and perceived stress reactivity was measured once with the Perceived Stress Reactivity Scale (PSRS). A total of 78 nonclinical participants, who provided 1 PSRS assessment and at least 4 repeated PSS-4 measurements, were included in this pilot study. Linear multilevel models were used to analyze the time trend of stress levels and interactions with perceived stress reactivity. RESULTS Across the whole sample, stress levels did not change while using TYS (<italic>P</italic>=.83). Except for one subscale of the PSRS, interindividual differences in perceived stress reactivity did not influence the trajectories of stress levels. However, participants with higher scores on the PSRS subscale reactivity to failure showed a stronger increase of stress levels while using TYS than participants with lower scores (<italic>P</italic>=.04). CONCLUSIONS TYS tracks the stress levels in daily life, and most of the results showed that stress levels do not change while using TYS. Controlled trials are necessary to evaluate whether it is specifically TYS or any other influence that worsens the stress levels of participants with higher reactivity to failure.


2019 ◽  
Author(s):  
Rüdiger Pryss ◽  
Winfried Schlee ◽  
Burkhard Hoppenstedt ◽  
Manfred Reichert ◽  
Myra Spiliopoulou ◽  
...  

BACKGROUND Tinnitus is often described as the phantom perception of a sound and is experienced by 5.1% to 42.7% of the population worldwide, at least once during their lifetime. The symptoms often reduce the patient’s quality of life. The TrackYourTinnitus (TYT) mobile health (mHealth) crowdsensing platform was developed for two operating systems (OS)—Android and iOS—to help patients demystify the daily moment-to-moment variations of their tinnitus symptoms. In all platforms developed for more than one OS, it is important to investigate whether the crowdsensed data predicts the OS that was used in order to understand the degree to which the OS is a confounder that is necessary to consider. OBJECTIVE In this study, we explored whether the mobile OS—Android and iOS—used during user assessments can be predicted by the dynamic daily-life TYT data. METHODS TYT mainly applies the paradigms ecological momentary assessment (EMA) and mobile crowdsensing to collect dynamic EMA (EMA-D) daily-life data. The dynamic daily-life TYT data that were analyzed included eight questions as part of the EMA-D questionnaire. In this study, 518 TYT users were analyzed, who each completed at least 11 EMA-D questionnaires. Out of these, 221 were iOS users and 297 were Android users. The iOS users completed, in total, 14,708 EMA-D questionnaires; the number of EMA-D questionnaires completed by the Android users was randomly reduced to the same number to properly address the research question of the study. Machine learning methods—a feedforward neural network, a decision tree, a random forest classifier, and a support vector machine—were applied to address the research question. RESULTS Machine learning was able to predict the mobile OS used with an accuracy up to 78.94% based on the provided EMA-D questionnaires on the assessment level. In this context, the daily measurements regarding how users concentrate on the actual activity were particularly suitable for the prediction of the mobile OS used. CONCLUSIONS In the work at hand, two particular aspects have been revealed. First, machine learning can contribute to EMA-D data in the medical context. Second, based on the EMA-D data of TYT, we found that the accuracy in predicting the mobile OS used has several implications. Particularly, in clinical studies using mobile devices, the OS should be assessed as a covariate, as it might be a confounder.


2020 ◽  
pp. 136-155
Author(s):  
Gina S. Lovasi ◽  
Stephen E. Lankenau

To highlight quantitative and qualitative approaches to better understand perceptions and reflections of urban residents relevant to the links between environmental features discussed in Chapter 5 geographically referenced health outcomes discussed in Chapter 7. Strategies to capture what residents perceive, feel, and recommend regarding their environments include characterization of lived experiences (via surveys, focus groups, in depth interviews) as well as detailed assessments of taking place within urban contexts (via ecological momentary assessment, photovoice, ethnography). Participatory approaches that engage community members are illustrated with examples from Bogotá, Madrid, and Philadelphia.


2013 ◽  
Vol 25 (2) ◽  
pp. 416-423 ◽  
Author(s):  
Renee E. Magnan ◽  
Amber R. Köblitz ◽  
Kevin D. McCaul ◽  
Amanda J. Dillard

Author(s):  
Muhammad Iqbal Haji Mukhti ◽  
Mohd Ismail Ibrahim ◽  
Tengku Alina Tengku Ismail ◽  
Iliatha Papachristou Nadal ◽  
Sureshkumar Kamalakannan ◽  
...  

Background: Stroke is a chronic disease that requires stroke survivors to be supported long-term by their families. This is especially because of the inaccessibility to post-stroke rehabilitation outside hospitals. The Corona Virus Disease 2019 (COVID-19) crisis and the pandemic restrictions in Malaysia are expected to exponentially increase the demand from family caregivers in supporting stroke survivors. Thus, this study aims to explore the burden, experience, and coping mechanism of the family caregivers supporting stroke survivors during the COVID-19 pandemic. Methodology: A phenomenological qualitative study was conducted from November 2020 to June 2021 in Malaysia. A total of 13 respondents were recruited from two public rehabilitation centers in Kota Bharu, Kelantan. In-depth interviews were conducted with the participants. Comprehensive representation of perspectives from the respondents was achieved through purposive sampling. The interviews were conducted in the Kelantanese dialect, recorded, transcribed, and analyzed using thematic analysis. Results: Three themes on burdens and experiences were identified. They were worsening pre-existing issues, emerging new issues, and fewer burdens and challenges. Two themes on coping strategies were also identified. They were problem-focused engagement and emotion-focused engagement. Conclusions: The COVID-19 pandemic has changed the entire system of stroke management. While family caregivers mostly faced the extra burden through different experiences, they also encountered some positive impacts from the pandemic. The integrated healthcare system, especially in the era of digitalization, is an important element to establish the collaborative commitment of multiple stakeholders to compensate burden and sustain the healthcare of stroke survivors during the pandemic.


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