Predictors the quality of life and psychological well-being of mothers of students with intellectual disability mediated by the mother's perceived social support

Background The purpose of this study was to explore the association between perceived social support and COPD outcomes and to determine whether the associations are mediated by depressive symptoms. Methods Subjects with COPD who were enrolled as part of SPIROMICS were included in this analysis. Questionnaires relating to quality of life, symptom burden, and functional status were administered at annual clinic visits for over a 3 year period. In both cross-sectional and longitudinal analyses, we examined the association of social support as measured by the FACIT-F with COPD outcomes. Cross sectional analyses used multivariable linear or logistic regression, adjusting for covariates. For longitudinal analyses, generalized linear mixed models with random intercepts were used. Models were adjusted with and without depressive symptoms and mediation analyses performed. Results Of the 1831 subjects with COPD, 1779 completed the FACIT- F questionnaire. In adjusted cross-sectional analysis without depressive symptoms, higher perceived social support was associated with better quality of life, well-being, 6 minute walk distance, and less dyspnea. When also adjusting for depressive symptoms, all associations between social support and COPD outcomes were attenuated and no longer statistically significant. Mediation analysis suggested that depressive symptoms explained the majority (> = 85%) of the association between social support and measured COPD outcomes. Results of the longitudinal analysis were consistent with the cross-sectional analyses. There was no association between social support and odds of exacerbations. Conclusion Higher social support was associated with better COPD outcomes across several measures of morbidity including quality of life, respiratory symptoms, and functional status. In addition, these associations were largely attenuated when accounting for depressive symptoms suggesting that the beneficial association of social support with COPD outcomes may be largely mediated by the association between social support and depression. Trial registration SPIROMICS was approved by Institutional Review Boards at each center and all participants provided written informed consent (clinicaltrials.gov: NCT01969344).

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FACTORS AFFECTING QUALITY OF LIFE AND LEVEL OF SOCIAL SUPPORT IN CANCER PATIENTS

Belitung Nursing Journal ◽

10.33546/bnj.48 ◽

2017 ◽

Vol 3 (2) ◽

pp. 54-64 ◽

Cited By ~ 2

Author(s):

Ayse Berivan BAKAN ◽

Asuman GURAKSIN

Keyword(s):

Quality Of Life ◽

Social Support ◽

Cancer Patients ◽

Social Relations ◽

Perceived Social Support ◽

Well Being ◽

Global Quality ◽

Quality Of Life Scale ◽

Global Quality Of Life

Background: When people face health problems, their life satisfaction levels and social relations could be ruined. When it comes to an eerie, deadly and chronic disease like cancer, the individual is much more likely to be affected by it.Objective: This descriptive study aims to identify quality of life and level of social support and the affecting factors in cancer patients.Methods: The sample included 170 patients who applied to Internal Diseases, Radiation Oncology, Thorax diseases clinics and Chemotherapy polyclinic in a university hospital in Turkey between March and August, 2005, who met the research criteria, and who volunteered to participate in the study. The sample represented 20 % of the target population. Data were collected through SF-36 Quality of Life Scale and Multidimensional Scale of Perceived Social Support.Results: The patients’ Global Quality of Life mean score was found 38.67 ± 13.64, and mean score for the Perceived Social Support was found 59.19 ± 17.5. Global Quality of Life score was higher in those who underwent an operation and who received ambulatory health care. Although Global Quality of Life was not influenced by the gender variable, male patients’ level of well-being was found to be higher. Perceived Social Support total score was found to be higher in those who knew about their disease. Family support was found to be higher in those who were married and who lived in town; it was found to be low in those who had low socio-economic level and who received inpatient treatment. Friend support was found to be high in those who knew about their disease.Conclusion: There was a linear relationship between Perceived Social Support and Quality of Life. It is recommended that more studies with wider groups of participants would shed more light to the issue of identifying quality of life, social support level and the relationships between them in cancer patients.

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Measurement of Inter-Individual Variability in Assessing the Quality of Life in Respondents with Celiac Disease

Psych ◽

10.3390/psych2040023 ◽

2020 ◽

Vol 2 (4) ◽

pp. 296-314

Author(s):

Silvia Bacci ◽

Daniela Caso ◽

Rosa Fabbricatore ◽

Maria Iannario

Keyword(s):

Quality Of Life ◽

Social Support ◽

Celiac Disease ◽

Latent Class ◽

Perceived Social Support ◽

Well Being ◽

Individual Variability ◽

Adult Age ◽

Irt Models

Quality of life of Celiac Disease (CD) patients is affected by constraints in their physical, social and emotional behaviour. Our objective is to assess differences in two relevant dimensions of the Celiac Quality of Life (CQoL) scale, Limitations due to the disease and Dysphoria (i.e., feelings of depression and discomfort), in relation to the perceived social support and some individual and disease-related characteristics. The paper exploits suitable unidimensional Item Response Theory (IRT) models to individually analyse the two mentioned dimensions of the CQoL and Multidimensional Latent Class IRT models for ordinal polytomous items in order to detect sub-populations of CD patients that are homogenous with respect to the perceived CQoL. The latter methods allow to address patients with similar characteristics to the same treatment, performing at the same time a more tailored overture to health promotion programmes. The analysis extracts the relevant patterns and relations among CD patients, disentangling respondents receiving CD diagnosis in adolescence or adult age rather than in childhood (the first perceive high levels of Limitations and Dysphoria), patients with high perceived social support, a factor influencing in a positive way motivation to engage in management of CD-related distress and psychological well-being, and participants who are married or cohabiting. The latter report higher latent trait levels.

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Perceived social support and quality of life among adolescents in residential youth care: a cross-sectional study

Health and Quality of Life Outcomes ◽

10.1186/s12955-021-01676-1 ◽

2021 ◽

Vol 19 (1) ◽

Author(s):

Marianne Tevik Singstad ◽

Jan Lance Wallander ◽

Hanne Klæboe Greger ◽

Stian Lydersen ◽

Nanna Sønnichsen Kayed

Keyword(s):

Quality Of Life ◽

Social Support ◽

Perceived Social Support ◽

Skills Training ◽

Well Being ◽

Youth Care ◽

Self Esteem ◽

Moderating Effect ◽

Residential Youth Care

Abstract Background Residential youth care (RYC) institutions aim to provide care and stability for vulnerable adolescents with several previous and present challenges, such as disrupted attachments, wide-ranging adverse childhood experiences, mental health problems, and poor quality of life (QoL). To the best of our knowledge, the present study is the first to provide knowledge of the associations between perceived social support and QoL and to explore the potential moderating effect of perceived social support on QoL for adolescents who have experienced maltreatment and polyvictimization. Methods All RYC institutions with adolescents between the ages 12–23 in Norway were asked to participate in the study. A total of 86 institutions housing 601 adolescents accepted the invitation, from which 400 adolescents volunteered to participate. The Child and Adolescent Psychiatric Interview was used to gather information on maltreatment histories and degree of victimization; the Kinder Lebensqualität Fragebogen was used to measure QoL through several domains (overall QoL, physical well-being, emotional well-being, and self-esteem); and the Social Support Questionnaire was used to measure perceived social support. Linear regression and independent samples t-test were used to study the associations between perceived social support and QoL as well as the potential moderating effect of perceived social support in the association between maltreatment history and QoL. Results Perceived social support was positively associated with QoL for both girls and boys, with domain-specific findings. A higher number of different types of support persons was associated with overall QoL, emotional well-being, and self-esteem for boys, but only with self-esteem for girls. Individual social support from RYC staff and friends was associated with higher QoL for girls. However, perceived social support did not moderate the association between maltreatment history and reduced QoL for either sex. Conclusions This study emphasizes the importance of maintaining social support networks for adolescents living in RYC, the crucial contribution of RYC staff in facilitating social support, and the potential value of social skills training for these vulnerable adolescents. Furthermore, a wider range of initiatives beyond social support must be carried out to increase QoL among adolescents with major maltreatment and polyvictimization experiences.

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Quality of Life of Mothers of Children with Intellectual Disability: Do Social Support, Maternal Stress and Socio-Economic Status Play a Role?

Engagement : Jurnal Pengabdian Kepada Masyarakat ◽

10.29062/engagement.v5i1.643 ◽

2021 ◽

Vol 5 (1) ◽

Author(s):

Udeme Jacob ◽

Jace Pillay ◽

Bolanle Misitura Oyundoyin

Keyword(s):

Quality Of Life ◽

Social Support ◽

Intellectual Disability ◽

Maternal Stress ◽

Perceived Social Support ◽

Economic Status ◽

Socio Economic Status ◽

Relative Contribution ◽

Children With Intellectual Disability

This study investigate the influence of perceived social support, maternal stress and socio-economic status on quality of life of mothers of children with intellectual disability, Oyo State, Nigeria. A total of 93 mothers of children with intellectual disability were respondents to a structured questionnaire. Findings revealed that perceived social support and socio-economic status had significant positive relationship with quality of life of mothers of children with intellectual disability. Result showed that the relationship between maternal stress and quality of life was negative and significant. Moreover, the study revealed that perceived social support had the highest relative contribution on quality of life of mothers followed by socio-economic status while the least was by maternal stress. Furthermore, the joint contribution of perceived social support, maternal stress and socio-economic status on quality of life of mothers was significant; therefore, the three variables should be given proper consideration so as to enhance quality of life mothers of children with intellectual disability.

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Psychological well-being in palliative care: A systematic review

OMEGA - Journal of Death and Dying ◽

10.1177/00302228211019203 ◽

2021 ◽

pp. 003022282110192

Author(s):

Tamara Redondo Elvira ◽

Celia Ibáñez del Prado ◽

Juan Antonio Cruzado

Keyword(s):

Quality Of Life ◽

Social Support ◽

Palliative Care ◽

End Of Life ◽

Well Being ◽

Psychological Well Being ◽

Predictive Variables ◽

Spiritual Well Being ◽

Relevant Variables

Objective To review which are the most influential variables in achieving levels of psychological well-being at the end of life and to verify whether, as certain studies suggest, spirituality, resilience and social support are the pillars on which the psychological well-being construct is based. Method A systematic search through the Scopus, Pubmed and PsycInfo electronic databases was carried out using keywords such as: “wellbeing” OR “psychological-well-being” AND “resilience” AND “spirituality” AND “social support” AND “palliative care” and their multiple combinations. Results Eleven studies were selected, in which terms such as spiritual well-being, absence of discomfort and quality of life were used in substitution of psychological well-being and a certain consensus was found regarding whether resilience, spirituality and social support are predictive variables of psychological well-being. Conclusions Resilience, social support and spirituality are highly relevant variables at the end of life and contribute decisively towards psychological well-being.

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The effect of perceived social support on the quality of life of hemodialysis patients. A preliminary study.

Progress in Health Sciences ◽

10.5604/01.3001.0014.1912 ◽

2020 ◽

Vol 10 (1) ◽

pp. 19-25

Author(s):

P Theofilou ◽

M Stefanidou ◽

N Giannakopoulou ◽

F Tzavella ◽

S Zyga ◽

...

Keyword(s):

Quality Of Life ◽

Social Support ◽

Perceived Social Support ◽

Statistical Significance ◽

Well Being ◽

Total Sample ◽

Hemodialysis Patients ◽

Support Materials ◽

Quality Of Life Index

Purpose: Recent studies have shown that the role of social support is a predictive factor influencing the course of the disease. The current study is focused on patients’ assessment of quality of life and the relationship of the latter with perceived social support. Materials and methods: A total sample of 40 hemodialysis patients voluntarily participated in this study. Participants were recruited from two clinics in Athens and have been under hemodialysis. The measures used were the Missoula- Vitas Quality of Life Index–15 and the Multidimensional Scale of Perceived Social Support. For the data analysis descriptive statistics, parametric Pearson r test and Non-parametric Spearman’s rho test were used. Statistical level was set up at 0.05. Results: The results of the current study provide good quality of life of hemodialysis patients and significant statistical significance between quality of life in several domains. Conclusions: This study concludes that the participants’ assessment of quality of life is poor regarding the well-being dimension. Also, perceived social support is significantly related to quality of life

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A RCT on the effectiveness of a psychoeducation on quality of life, social support, psychological well-being, rewards of caregiving, and self-efficacy for family caregivers of a person in home hospice care

International Journal of Integrated Care ◽

10.5334/ijic.1495 ◽

2013 ◽

Vol 13 (8) ◽

Author(s):

M.Q.H. Leow ◽

S.W.C. Chan ◽

M.F. Chan

Keyword(s):

Quality Of Life ◽

Social Support ◽

Family Caregivers ◽

Self Efficacy ◽

Hospice Care ◽

Well Being ◽

Psychological Well Being ◽

Home Hospice Care

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Effects of Fear of COVID-19 on Mental Well-Being and Quality of Life: A path analysis

10.21203/rs.3.rs-59161/v1 ◽

2020 ◽

Cited By ~ 1

Author(s):

Mohsen Alyami ◽

Julia Vajda De Albuquerque ◽

Christian U. Krägeloh ◽

Hussain Alyami ◽

Marcus A Henning

Keyword(s):

Quality Of Life ◽

Social Support ◽

Path Analysis ◽

Online Survey ◽

Perceived Social Support ◽

Adult Population ◽

Well Being ◽

The Impact ◽

Mental Well Being

Abstract The COVID-19 pandemic has been very disruptive and thus likely to result in substantial challenges to mental health. This study aimed to investigate the effects of fear of COVID-19 on mental well-being and quality of life among Saudi adult population, and to evaluate the impact of perceived social support. A total of 1029 Saudi adults with a mean age of 33.7 years (SD 11.5) took part in an anonymous online survey. Path analysis indicated that fear of COVID-19 was directly associated with mental well-being, which in turn was associated with lower quality of life. Perceived social support had more influence on quality of life than mental well-being. No direct link between fear of COVID-19 and quality of life was found. These findings emphasize the importance of having effective systems, in addition to social support, in place in order to minimize the impact of the COVID-19 pandemic on mental well-being and quality of life.

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