Measurement of Inter-Individual Variability in Assessing the Quality of Life in Respondents with Celiac Disease

Quality of life of Celiac Disease (CD) patients is affected by constraints in their physical, social and emotional behaviour. Our objective is to assess differences in two relevant dimensions of the Celiac Quality of Life (CQoL) scale, Limitations due to the disease and Dysphoria (i.e., feelings of depression and discomfort), in relation to the perceived social support and some individual and disease-related characteristics. The paper exploits suitable unidimensional Item Response Theory (IRT) models to individually analyse the two mentioned dimensions of the CQoL and Multidimensional Latent Class IRT models for ordinal polytomous items in order to detect sub-populations of CD patients that are homogenous with respect to the perceived CQoL. The latter methods allow to address patients with similar characteristics to the same treatment, performing at the same time a more tailored overture to health promotion programmes. The analysis extracts the relevant patterns and relations among CD patients, disentangling respondents receiving CD diagnosis in adolescence or adult age rather than in childhood (the first perceive high levels of Limitations and Dysphoria), patients with high perceived social support, a factor influencing in a positive way motivation to engage in management of CD-related distress and psychological well-being, and participants who are married or cohabiting. The latter report higher latent trait levels.

Download Full-text

The influence of social support on COPD outcomes mediated by depression

PLoS ONE ◽

10.1371/journal.pone.0245478 ◽

2021 ◽

Vol 16 (3) ◽

pp. e0245478

Author(s):

Leonard Turnier ◽

Michelle Eakin ◽

Han Woo ◽

Mark Dransfield ◽

Trisha Parekh ◽

...

Keyword(s):

Quality Of Life ◽

Social Support ◽

Depressive Symptoms ◽

Functional Status ◽

Perceived Social Support ◽

Well Being ◽

Institutional Review Boards ◽

Longitudinal Analyses ◽

Cross Sectional

Background The purpose of this study was to explore the association between perceived social support and COPD outcomes and to determine whether the associations are mediated by depressive symptoms. Methods Subjects with COPD who were enrolled as part of SPIROMICS were included in this analysis. Questionnaires relating to quality of life, symptom burden, and functional status were administered at annual clinic visits for over a 3 year period. In both cross-sectional and longitudinal analyses, we examined the association of social support as measured by the FACIT-F with COPD outcomes. Cross sectional analyses used multivariable linear or logistic regression, adjusting for covariates. For longitudinal analyses, generalized linear mixed models with random intercepts were used. Models were adjusted with and without depressive symptoms and mediation analyses performed. Results Of the 1831 subjects with COPD, 1779 completed the FACIT- F questionnaire. In adjusted cross-sectional analysis without depressive symptoms, higher perceived social support was associated with better quality of life, well-being, 6 minute walk distance, and less dyspnea. When also adjusting for depressive symptoms, all associations between social support and COPD outcomes were attenuated and no longer statistically significant. Mediation analysis suggested that depressive symptoms explained the majority (> = 85%) of the association between social support and measured COPD outcomes. Results of the longitudinal analysis were consistent with the cross-sectional analyses. There was no association between social support and odds of exacerbations. Conclusion Higher social support was associated with better COPD outcomes across several measures of morbidity including quality of life, respiratory symptoms, and functional status. In addition, these associations were largely attenuated when accounting for depressive symptoms suggesting that the beneficial association of social support with COPD outcomes may be largely mediated by the association between social support and depression. Trial registration SPIROMICS was approved by Institutional Review Boards at each center and all participants provided written informed consent (clinicaltrials.gov: NCT01969344).

Download Full-text

FACTORS AFFECTING QUALITY OF LIFE AND LEVEL OF SOCIAL SUPPORT IN CANCER PATIENTS

Belitung Nursing Journal ◽

10.33546/bnj.48 ◽

2017 ◽

Vol 3 (2) ◽

pp. 54-64 ◽

Cited By ~ 2

Author(s):

Ayse Berivan BAKAN ◽

Asuman GURAKSIN

Keyword(s):

Quality Of Life ◽

Social Support ◽

Cancer Patients ◽

Social Relations ◽

Perceived Social Support ◽

Well Being ◽

Global Quality ◽

Quality Of Life Scale ◽

Global Quality Of Life

Background: When people face health problems, their life satisfaction levels and social relations could be ruined. When it comes to an eerie, deadly and chronic disease like cancer, the individual is much more likely to be affected by it.Objective: This descriptive study aims to identify quality of life and level of social support and the affecting factors in cancer patients.Methods: The sample included 170 patients who applied to Internal Diseases, Radiation Oncology, Thorax diseases clinics and Chemotherapy polyclinic in a university hospital in Turkey between March and August, 2005, who met the research criteria, and who volunteered to participate in the study. The sample represented 20 % of the target population. Data were collected through SF-36 Quality of Life Scale and Multidimensional Scale of Perceived Social Support.Results: The patients’ Global Quality of Life mean score was found 38.67 ± 13.64, and mean score for the Perceived Social Support was found 59.19 ± 17.5. Global Quality of Life score was higher in those who underwent an operation and who received ambulatory health care. Although Global Quality of Life was not influenced by the gender variable, male patients’ level of well-being was found to be higher. Perceived Social Support total score was found to be higher in those who knew about their disease. Family support was found to be higher in those who were married and who lived in town; it was found to be low in those who had low socio-economic level and who received inpatient treatment. Friend support was found to be high in those who knew about their disease.Conclusion: There was a linear relationship between Perceived Social Support and Quality of Life. It is recommended that more studies with wider groups of participants would shed more light to the issue of identifying quality of life, social support level and the relationships between them in cancer patients.

Download Full-text

Perceived social support and quality of life among adolescents in residential youth care: a cross-sectional study

Health and Quality of Life Outcomes ◽

10.1186/s12955-021-01676-1 ◽

2021 ◽

Vol 19 (1) ◽

Author(s):

Marianne Tevik Singstad ◽

Jan Lance Wallander ◽

Hanne Klæboe Greger ◽

Stian Lydersen ◽

Nanna Sønnichsen Kayed

Keyword(s):

Quality Of Life ◽

Social Support ◽

Perceived Social Support ◽

Skills Training ◽

Well Being ◽

Youth Care ◽

Self Esteem ◽

Moderating Effect ◽

Residential Youth Care

Abstract Background Residential youth care (RYC) institutions aim to provide care and stability for vulnerable adolescents with several previous and present challenges, such as disrupted attachments, wide-ranging adverse childhood experiences, mental health problems, and poor quality of life (QoL). To the best of our knowledge, the present study is the first to provide knowledge of the associations between perceived social support and QoL and to explore the potential moderating effect of perceived social support on QoL for adolescents who have experienced maltreatment and polyvictimization. Methods All RYC institutions with adolescents between the ages 12–23 in Norway were asked to participate in the study. A total of 86 institutions housing 601 adolescents accepted the invitation, from which 400 adolescents volunteered to participate. The Child and Adolescent Psychiatric Interview was used to gather information on maltreatment histories and degree of victimization; the Kinder Lebensqualität Fragebogen was used to measure QoL through several domains (overall QoL, physical well-being, emotional well-being, and self-esteem); and the Social Support Questionnaire was used to measure perceived social support. Linear regression and independent samples t-test were used to study the associations between perceived social support and QoL as well as the potential moderating effect of perceived social support in the association between maltreatment history and QoL. Results Perceived social support was positively associated with QoL for both girls and boys, with domain-specific findings. A higher number of different types of support persons was associated with overall QoL, emotional well-being, and self-esteem for boys, but only with self-esteem for girls. Individual social support from RYC staff and friends was associated with higher QoL for girls. However, perceived social support did not moderate the association between maltreatment history and reduced QoL for either sex. Conclusions This study emphasizes the importance of maintaining social support networks for adolescents living in RYC, the crucial contribution of RYC staff in facilitating social support, and the potential value of social skills training for these vulnerable adolescents. Furthermore, a wider range of initiatives beyond social support must be carried out to increase QoL among adolescents with major maltreatment and polyvictimization experiences.

Download Full-text

LC and LC-IRT Models in the Identification of Polish Households with Similar Perception of Financial Position

Sustainability ◽

10.3390/su13084130 ◽

2021 ◽

Vol 13 (8) ◽

pp. 4130

Author(s):

Ewa Genge

Keyword(s):

Quality Of Life ◽

Latent Class ◽

Finite Mixture Models ◽

Well Being ◽

Family Type ◽

Subjective Well Being ◽

Financial Position ◽

Irt Models ◽

Latent Structures

One of the pillars of sustainable development is related to the elimination of poverty and improvement of quality of life. Financial situation of the households plays a crucial role in the subjective well-being, quality of life and overall satisfaction. According to most recent Eurostat data, Poland is one of the countries with the lowest level of subjective material well-being. In this paper we aim to find latent structures of Poles with similar tendency of self-reporting their income position additionally influenced by the socio-economic features and analyze the item characteristics of the questionnaire as well. To address the questions at hand, first we apply the variant of finite mixture models, i.e., latent class (LC) model for data from all, eight waves (2000–2015) of the Polish Household Panel. We are especially focused on the constrained version of the model under IRT parameterization. We compare the results for LC and LC-IRT models and show the influence of the covariates such as family type, socio-economic status and place of living on the probability of belonging to the three identified classes of Polish households, based both on multinomial and global logit parameterization. In this way we can show which types of families tend to be more satisfied with their financial position and those whose members are prone to belong to the worst situated group of Poles. Note that, we present the results for the data including survey weighs, being omitted in most of the studies concerning Polish financial well-being.

Download Full-text

The effect of perceived social support on the quality of life of hemodialysis patients. A preliminary study.

Progress in Health Sciences ◽

10.5604/01.3001.0014.1912 ◽

2020 ◽

Vol 10 (1) ◽

pp. 19-25

Author(s):

P Theofilou ◽

M Stefanidou ◽

N Giannakopoulou ◽

F Tzavella ◽

S Zyga ◽

...

Keyword(s):

Quality Of Life ◽

Social Support ◽

Perceived Social Support ◽

Statistical Significance ◽

Well Being ◽

Total Sample ◽

Hemodialysis Patients ◽

Support Materials ◽

Quality Of Life Index

Purpose: Recent studies have shown that the role of social support is a predictive factor influencing the course of the disease. The current study is focused on patients’ assessment of quality of life and the relationship of the latter with perceived social support. Materials and methods: A total sample of 40 hemodialysis patients voluntarily participated in this study. Participants were recruited from two clinics in Athens and have been under hemodialysis. The measures used were the Missoula- Vitas Quality of Life Index–15 and the Multidimensional Scale of Perceived Social Support. For the data analysis descriptive statistics, parametric Pearson r test and Non-parametric Spearman’s rho test were used. Statistical level was set up at 0.05. Results: The results of the current study provide good quality of life of hemodialysis patients and significant statistical significance between quality of life in several domains. Conclusions: This study concludes that the participants’ assessment of quality of life is poor regarding the well-being dimension. Also, perceived social support is significantly related to quality of life

Download Full-text

Predictors the quality of life and psychological well-being of mothers of students with intellectual disability mediated by the mother's perceived social support

The Journal Of Psychological Science ◽

10.52547/jps.20.104.1345 ◽

2021 ◽

Vol 20 (104) ◽

pp. 1345-1361

Author(s):

tayebe taziki ◽

Khoda Morad Momeni ◽

Jahangir Karami ◽

Gholamali Afroz ◽

◽

...

Keyword(s):

Quality Of Life ◽

Social Support ◽

Intellectual Disability ◽

Perceived Social Support ◽

Well Being ◽

Psychological Well Being

Download Full-text

Effects of Fear of COVID-19 on Mental Well-Being and Quality of Life: A path analysis

10.21203/rs.3.rs-59161/v1 ◽

2020 ◽

Cited By ~ 1

Author(s):

Mohsen Alyami ◽

Julia Vajda De Albuquerque ◽

Christian U. Krägeloh ◽

Hussain Alyami ◽

Marcus A Henning

Keyword(s):

Quality Of Life ◽

Social Support ◽

Path Analysis ◽

Online Survey ◽

Perceived Social Support ◽

Adult Population ◽

Well Being ◽

The Impact ◽

Mental Well Being

Abstract The COVID-19 pandemic has been very disruptive and thus likely to result in substantial challenges to mental health. This study aimed to investigate the effects of fear of COVID-19 on mental well-being and quality of life among Saudi adult population, and to evaluate the impact of perceived social support. A total of 1029 Saudi adults with a mean age of 33.7 years (SD 11.5) took part in an anonymous online survey. Path analysis indicated that fear of COVID-19 was directly associated with mental well-being, which in turn was associated with lower quality of life. Perceived social support had more influence on quality of life than mental well-being. No direct link between fear of COVID-19 and quality of life was found. These findings emphasize the importance of having effective systems, in addition to social support, in place in order to minimize the impact of the COVID-19 pandemic on mental well-being and quality of life.

Download Full-text

Impact of hemodialysis on the wellbeing of chronic kidney diseases patients: a pre-post analysis

Middle East Current Psychiatry ◽

10.1186/s43045-020-00060-x ◽

2020 ◽

Vol 27 (1) ◽

Author(s):

Um-e-Kalsoom ◽

Sabiha Khan ◽

Israr Ahmad

Keyword(s):

Quality Of Life ◽

Social Support ◽

Perceived Social Support ◽

Kidney Diseases ◽

Chronic Kidney Diseases ◽

Group I ◽

Significant Difference ◽

Group Ii ◽

The Impact

Abstract Background Hemodialysis may have serious psychological impact upon patients suffering from chronic kidney diseases. The aim of the present study is to investigate the impact of hemodialysis on the wellbeing of individuals with chronic kidney diseases (CKD). Result A sample consists of (N = 100) CKD patients referred from neurology ward of Leady Reading Hospital Peshawar. Data was collected from both male (50%) and female (50%) in 2017. Participants were divided into two groups on the basis of pre-set criteria. In group I, individuals with 4–5 stage of CKD referred first time for dialysis treatment were recruited. Group II comprised of CKD patients with 1–3 stage. Demographic data sheet, Pakistan Anxiety and Depression, WHO Quality of Life scale, and Perceived Social support scale (PSS) were used to test the hypotheses. Paired sample t test was use to see the difference between pre- and post-analysis of depression, anxiety, QOL, and PSS in group I (experimental group). Results suggests significant difference on depression (p > .001), anxiety (p > .001), and QOL (p > .001), while no significant difference was reported on perceived social support (p <.673). Findings also indicate no significant difference between group I and group II on QOL depression, anxiety, and PSS. Conclusion The findings concluded that patients under hemodialysis treatment suffered from depression, anxiety, and poor quality of life.

Download Full-text