Il vissuto di bambini e adolescenti con artrite idiopatica giovanile

2020 ◽  
Vol 39 (10) ◽  
pp. 638-641
Author(s):  
Lorenzoiara Mambelli ◽  
Agnese Menghi ◽  
Camilla Lama ◽  
Federico Marchetti
Keyword(s):  
Juvenile Idiopathic Arthritis ◽  
Chronically Ill ◽  
Behavioural Problems ◽  
Psychological Care ◽  
Voluntary Withdrawal ◽  
Increased Risk ◽  
Rheumatology Unit ◽  
Chronically Ill Children ◽  
Important Drug

Chronically ill children show an increased risk of developing a psychological-psychiatric disorder, with an important impact on their quality of life. The paper describes all the cases of Juvenile Idiopathic Arthritis (JIA) in the Paediatric Rheumatology Unit in Ravenna with documented psychological-behavioural problems. 23% of juvenile idiopathic arthritis patients have psychological-behavioural problems and 9% have requested cognitivebehavioural therapy, with good results. One of the most significant aspects is the treatment with methotrexate (MTX), which is an important drug in the management of JIA cases and, as it is known, is burdened with side effects such as malaise and vomiting, even before its intake. Half of the patients on MTX therapy show this "intolerance", which sometimes also leads to the voluntary withdrawal of the drug. Therefore, an anticipatory approach to these issues and an adequate and timely psychological care are increasingly necessary.

scholarly journals Relationship between pediatric liquid medicines (PLMs) and dental caries in chronically ill children

2019 ◽  
Vol 31 (3) ◽  
pp. 167
Author(s):  
Ankita Goyal ◽  
Vatchala Rani ◽  
Bhadravathi Cheluvaiah Manjunath ◽  
Kanupriya Rathore
Keyword(s):  
Dental Caries ◽  
Statistical Tests ◽  
Chronically Ill ◽  
Cross Sectional Study ◽  
Control Group ◽  
P Value ◽  
Cross Sectional ◽  
Increased Risk ◽  
Chronically Ill Children

Introduction: Purpose of this research is to assess the relationship between long-term pediatric liquid medicines (PLMs) consumption and dental caries in 2–12-years-old chronically ill children. Methods: A cross-sectional study was performed in a public pediatric hospital in India for a period of 6 months. A total of 455 children aged 2–12 years old with various chronic diseases who were receiving PLMs for more than 6 months were selected as the subjects in this study and compared with 531 children of similar age group and diseases who received other forms of medication. Dental caries was measured by DMFT/dmft and data collected were analyzed with SPSS (17th version) using statistical tests such as t-test and one-way ANOVA. Univariable logistic regression was used where the significance was fixed at a a p value of less than 0.001. Results: Children on PLMs had an increased risk of dental caries than those on other forms of medications (OR: 3.142, 95% CI: 2.37–4.15, p < 0.001). The prevalence of dental caries was higher (77.8%) in children consuming PLMs when compared to other forms of medication (52.7%). The mean DMFT and dmft scores were significantly higher in the study group when compared to the control group (p = 0.001). Conclusion: Long-term consumption of pediatric liquid medicines containing sucrose as a risk factor for dental caries among chronically ill children. sugar free options has to be used during prescription to prevent medication-triggered caries.Keywords: Paediatric liquid medicine, medication-triggered caries, sugar-free medication

Predictors of Depressive Symptoms in Parents of Chronically Ill Children Admitted to the Pediatric Intensive Care Unit

2011 ◽  
Vol 28 (8) ◽  
pp. 556-563 ◽  
Author(s):  
Karen R. Fauman ◽  
Kenneth J. Pituch ◽  
Yong Y. Han ◽  
Matthew F. Niedner ◽  
Janella Reske ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Depressive Symptoms ◽  
Pediatric Intensive Care Unit ◽  
Disease Incidence ◽  
Depression Scale ◽  
Pediatric Intensive Care ◽  
Chronically Ill ◽  
Increased Risk ◽  
Chronically Ill Children

Objective: To identify factors in the pediatric intensive care unit (PICU) patient population that may result in increased risk of depressive symptoms in their parents. Design: Six-month, prospective, observational study in a tertiary-level PICU on parents of chronically ill children admitted to PICU. Parents were assessed by background questionnaire and standardized depression scale. Results: Data was compared to various markers such as child’s diagnosis, admission reason, palliative care diagnosis type (ACT code), and course/length of disease. Incidence of depressive symptoms in parents was inversely correlated with duration of child’s chronic illness. Parents of children admitted for planned postoperative management were more likely to report depressive symptoms compared to parents of children admitted for acute changes in health. Conclusion: Parents of certain chronically ill children may benefit from routine screening for depression.

A difference in perception of quality of life in chronically ill children was found between parents and pediatricians

2005 ◽  
Vol 58 (5) ◽  
pp. 495-502 ◽  
Author(s):  
A.J. Janse ◽  
C.S.P.M. Uiterwaal ◽  
R.J.B.J. Gemke ◽  
J.L.L. Kimpen ◽  
G. Sinnema
Keyword(s):  
Quality Of Life ◽  
Chronically Ill ◽  
Perception Of Quality ◽  
Chronically Ill Children

Quality of life of chronically ill children from a theoretical perspective

2019 ◽  
Vol LXXX (3) ◽  
pp. 175-189
Author(s):  
Karolina Wiśniewska
Keyword(s):  
Quality Of Life ◽  
Chronic Diseases ◽  
Psychosocial Functioning ◽  
Negative Impact ◽  
Theoretical Perspective ◽  
Chronically Ill ◽  
Health Condition ◽  
Point Of View ◽  
Chronically Ill Children

In the article, I emphasize the interdisciplinary nature of the quality of life concept, which is used in many scientific disciplines. The approach to this issue depends largely on the perspective of the subject that is concerned with this problem. Quality of life changes with age, the level of self-awareness, and social roles and life tasks a person takes on. That is why I have sought to outline the determinants of quality of life and its dimensions. I stress the point that these issues are particularly important from the point of view of chronically ill children, as the development of illness may have a negative impact on their physical, mental, and social spheres. Moreover, the constantly increasing number of children with chronic diseases creates a need for a closer investigation into problems in their psychosocial functioning that are determined by their health condition. The article aims to present the issues of quality of life as well as illness and its impact on the quality of life of children with chronic diseases.

scholarly journals Primary School Teachers’ Awareness of Chronic Diseases of Children

2017 ◽  
Vol 7 (3) ◽  
pp. 111-121
Author(s):  
Barbora Plisková ◽  
Petr Snopek
Keyword(s):  
Chronic Diseases ◽  
Chronically Ill ◽  
Point Of View ◽  
School Age ◽  
Structured Interviews ◽  
School Life ◽  
Common School ◽  
Chronically Ill Children ◽  
School Care

Abstract Introduction: More and more children and adolescents suffering from chronic diseases are included in common school education. Unfortunately, teachers do not feel confident enough about how to cope, fulfil and satisfy the needs of these children in the educational, social and emotional spheres. The aim ofp this part of research was to discover how teachers work with chronically ill children of younger school-age. There were three aims. The first aim was to investigate if teachers have basic awareness and knowledge about selected chronic diseases in children of younger school-age. The second aim was to discover what experience and attitudes towards chronically ill children of younger school-age teachers have. The third aim was to discover, how the quality of school care of chronically ill children of younger school-age can be improved. Methods: We used qualitative research methodology. Data were processed and gathered from semi-structured interviews. Interviews were conducted with 12 teachers. Results: Our findings revealed that teachers should be acquainted with the disease itself and its consequences in all aspects. In some cases, teachers must be acquainted also with the practical aspects of a chronic disease, e.g. first aid and application of drugs and aids in order to assist children if necessary. Discussion: The study offers unique insights into primary teachers’ views and experiences with chronically ill children, how teachers work with chronically ill pupils of younger school-age and how the quality of school care of chronically ill children of younger school-age can be improved. Limitations: The research is still being conducted and therefore, it is not possible to provide more detailed results and conclusions. However, our main aim was to draw attention to the very problem from the point of view of teachers themselves and to highlight their vivid experiences. Conclusions: It is necessary to create interconnected networks of experts and families who will cooperate and communicate and who will participate in satisfying needs of a child together. These networks will ensure that children will be integrated into common school life in spite of their disease without serious consequences affecting their development and education.

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