scholarly journals Home Care Process for the Frail Elderly by the Family: The Process of the Competing Needs among Family Members that Arises from the ^|^ldquo;Shiwayose^|^rdquo; of Caregiving at Home

2002 ◽  
Vol 22 (4) ◽  
pp. 33-43 ◽  
Author(s):  
Motoko Kita
2012 ◽  
Vol 25 (spe1) ◽  
pp. 74-80
Author(s):  
Esperança Alves Gago ◽  
Manuel José Lopes

OBJECTIVE: To understand the interaction process between the elderly and the family and the nurses during home care. METHODS: Grounded theory qualitative study in a community where 40% of the population is aged 65 or above. The collection of data was made via the non-participating observation of nursing practice during 41 home visits and semi-structured interviews to nurses, the elderly and the family. RESULTS: the following categories emerged - structural organization of at-home care, diagnostic assessment in context and therapeutic intervention in context. CONCLUSION: the central category was "Building the relationship in an at-home context", due to the fact that the relationship between the nurse, the elderly and the family is central across the entire care process. The relation is, simultaneously, the context for all the care and a therapeutic instrument.


2018 ◽  
Vol 12 (3) ◽  
pp. 599
Author(s):  
Fernanda Misawa ◽  
Rafaely De Cássia Nogueira Sanches ◽  
Anderson Da Silva Rêgo ◽  
Cremilde Aparecida Trindade Radovanovic

RESUMOObjetivo: compreender a vivência dos familiares no cuidado domiciliar após a alta hospitalar de um familiar acometido por Acidente Vascular Encefálico. Método: estudo qualitativo, descritivo, do tipo convergente assistencial, com quatro famílias. O cenário do estudo foi o domicílio, com média de 16 visitas por família, uma vez por semana ou quando houvesse necessidade de assistência. Para a análise dos dados, utilizou-se a técnica de Análise de Conteúdo, na modalidade Análise Temática. Resultados: evidenciou-se que a experiência de cuidar no domicílio levou os membros da família a lidarem com sentimentos como o medo, a tristeza, a angústia e a fragilidade e os membros adoecidos relataram ansiedade, desânimo, frustração e revolta por estarem adoecidos. Conclusão: o estudo permitiu a compreensão da experiência de cuidar no domicílio e a vivência das famílias de familiar acometido por Acidente Vascular Encefálico oportunizando que a prática assistencial e a pesquisa ocorressem ao mesmo tempo e, assim, proporcionou a oportunidade de interação e criação de vínculo com os participantes do estudo e a compreensão da experiência e a repercussão do cuidado no domicílio entre os familiares. Descritores: Acidente Vascular Encefálico; Família; Assistência Domiciliar; Cuidados De Enfermagem; Enfermagem; Doenças Crônicas.ABSTRACT Objective: to understand the experience of family members in home care after hospital discharge from a family member affected by stroke. Method: qualitative, descriptive, convergent type study with four families. The study scenario was the household, with an average of 16 visits per family, once a week or when there was a need for assistance. For the analysis of the data, the technique of Content Analysis was used in the Thematic Analysis modality. Results: It was evidenced that the experience of caring at home led family members to deal with feelings such as fear, sadness, anguish and frailty, and the sick members reported anxiety, discouragement, frustration and revolt at being sick. Conclusion: the study allowed the understanding of the home care experience and the family life of the family members affected by stroke, allowing care practice and research to occur at the same time and, thus, provided the opportunity for interaction and bonding with study participants and the understanding of the experience and the repercussion of care at home among the family members. Descritores: Cerebrovascular Accident; Family; Home Care; Nursing Care; Nursing; Chronic Disease.RESUMEN Objetivo: comprender la vivencia de los familiares en el cuidado domiciliar después del alta hospitalaria de un familiar acometido por Accidente Vascular Encefálico. Método: estudio cualitativo, descriptivo, del tipo convergente asistencial, con cuatro familias. El escenario del estudio fue el domicilio, con promedio de 16 visitas por familia, una vez por semana o cuando hubiera necesidad de asistencia. Para el análisis de los datos, se utilizó la técnica de Análisis de Contenido, en la modalidad Análisis Temático. Resultados: se evidenció que la experiencia de cuidar en el domicilio llevó a los miembros de la familia a lidiar con sentimientos como el miedo, la tristeza, la angustia y la fragilidad y los miembros enfermos relataron ansiedad, desánimo, frustración y revuelta por estar enfermos. Conclusión: el estudio permitió la comprensión de la experiencia de cuidar en el domicilio y la vivencia de las familias de familiar acometido por Accidente Vascular Encefálico, posibilitando que la práctica asistencial y la investigación ocurrieran al mismo tiempo, y así, proporcionó la oportunidad de interacción y creación de vínculo con los participantes del estudio y la comprensión de la experiencia y la repercusión del cuidado en el domicilio entre los familiares. Descritores: Accidente Vascular Encefálico; Familia; Asistencia Domiciliar; Atención de Enfermería; Enfermería; Enfermedad Crónica.


2021 ◽  
Vol 10 (Supplement_1) ◽  
Author(s):  
ERWIN Erwin ◽  
ELLY Nurachmah ◽  
TUTI Herawati

Abstract Funding Acknowledgements Type of funding sources: None. Background The client"s condition for heart failure requires environmental support to be able to be confident and able to carry out activities according to the directions given while the patient is undergoing treatment in the hospital, but sometimes in the client"s time period at home there will be situations where patients may experience complaints or changes in conditions that can affect his cardiovascular status. Purpose this study is conducted to identify psychological and social problems and needs of heart failure clients with a qualitative approach of observation, invite individuals or families to participate, motivate individuals to develop the potential to maintain optimal health. In addition, this study was conducted to assess the need and effectiveness of the practice of consulting for heart failure nursing in hospital outpatients Method qualitative observation approach in nursing consulting practice using steps of the nursing process consisting of an assessment of physical, psychological and social conditions and client needs, formulating problems, making plans and taking care of actions in accordance with the problems that exist by nurses in the outpatient clinic at home sick. Results Clients who came to the outpatient clinic had various  psychological and social problems. From the observations and interviews it was found that psychological and social problems were the most common causes. Psychosocial problems arise due to the client himself, life companion (husband or wife) and family members who live together. So that the family system to support clients with heart failure is not awakened. Health education and promotion to clients, life companions, and family members of heart failure clients who live at home are needed when the client controls health to maintain the client"s health support system while at home. All clients and families in this study stated that the practice of nursing consultations in hospital outpatients is very helpful for clients and families to improve the situation they face. Conclusion the practice of nursing consultations can identify the problems and needs of clients and families. Strengthening the client support system for heart failure at home is needed so that psychological and social problems can be reduced when the client is in the family environment. Nursing consultation practices at outpatient hospitals are needed to help motivate clients and families in maintaining and increasing care and support for clients who suffer from heart failure while at home. Psychosocial problems The client felt anxious, lack of attention, complained sleeping difficulty, often forgot taking medicine, and forgot managing fluid intakeThe client,while at home, was fastidious and wanted to many, was difficult to be told or managed, was always suspicious with their spouse"s activity easily got angry or temperamental, the client"s child felt annoyed because the client acted annoying, the client"s spouse felt annoyed because the client was impatient and temperamentalPsychological, and social problems in heart failure patients


2021 ◽  
pp. 1-7
Author(s):  
Megan Weber Falk ◽  
Rakel Eklund ◽  
Ulrika Kreicbergs ◽  
Anette Alvariza ◽  
Malin Lövgren

Abstract Objective The entire family is affected when a parent is severely ill. Parents often need and appreciate professional support when talking to children about illness and death. The family talk intervention (FTI) is family-centered and intends to promote communication about the illness and its consequences, support parenting to enhance family coping and help family members share experiences with each other to create a shared family history. This study aimed to explore potential effects of FTI in specialized palliative home care, as reported by parents. Method This pre-post test intervention pilot was conducted in specialized palliative home care. A convergent mixed-method design was used to analyze interview and questionnaire data. Twenty families with dependent children were recruited from two specialized palliative home care units in Stockholm, Sweden. Results Parents reported that family communication improved after participation in FTI as family members learned communication strategies that facilitated open sharing of thoughts and feelings. Increased open communication helped family members gain a better understanding of each other's perspectives. Parents reported that relationships with their partner and children had improved as they now shared several strategies for maintaining family relationships. Parents were also less worried following participation in FTI. The ill parents stated that they gained a sense of security and were less worried about the future. Significance of results This study adds to the evidence that FTI may be a useful intervention for families with dependent children and an ill parent in a palliative care setting. This trial is registered at ClinicalTrials.gov Identifier NCT03119545.


2019 ◽  
Vol 7 (1) ◽  
pp. 674-684
Author(s):  
Idauli Simbolon ◽  
Christine Sacha ◽  
Evelyn Hemme ◽  
Sapti Heru Widyarti

Introduction: Previous phenomenological studies explain that family member faced many consequences in caring for family members with Alzheimer’s Dementia at home. The consequences are in the form of the impact of financial, social and psychological pressure. Considering such consequences, families especially in Eastern cultures will continue to care for their elderly at home for reasons of compassion or retribution toward parents even though they feel frustrated and burdened. The purpose of this study is to describe the life experience of Seventh-day Adventist church member in caring for their parent who suffer from Alzheimer’s Dementia. Method: This qualitative study is using phenomenological design. There are 3 participants are selected who are fit with the inclusion criterions: immediate family member, seventh-day Adventist church member, live together with their Alzheimer’s Dementia parent who suffer at least 2 years of dementia, and agree to sign inform consent after the full explanation of the study. Data are gathered using semi structured face to face interview in participant’s home setting. Data than transcribed in to world document and analysed using Cresswel step by step content analysis. Result: There are five negative categories of family member experiences in taking care of their Alzheimer’s Dementia parent: 1) physical abuse, 2) psychological abuse, 3) social limitation, 4) spiritual distress, and 5) knowledge deficit. It also found that there are several coping mechanism or adaptation made by family member in caring their Alzheimer Dementia parent: 1) family members are motivated to learn more about Alzheimer Dementia, 2) spiritual growth that they pray more often and surrendered to God, 3) increase understanding toward elderly. Discussion:  Based on the result of the study, all the informants experienced pressures in all holistic aspects of life. If they are not able to cope with the pressure, illness may be arrived and made the family situation become worse. Therefore, professional health care must provide support to the family who take care of their Alzheimer Dementia family, Introduction: Previous phenomenological studies explain that family member faced many consequences in caring for family members with Alzheimer’s Dementia at home. The consequences are in the form of the impact of financial, social and psychological pressure. Considering such consequences, families especially in Eastern cultures will continue to care for their elderly at home for reasons of compassion or retribution toward parents even though they feel frustrated and burdened. The purpose of this study is to describe the life experience of Seventh-day Adventist church member in caring for their parent who suffer from Alzheimer’s Dementia. Method: This qualitative study is using phenomenological design. There are 3 participants are selected who are fit with the inclusion criterions: immediate family member, seventh-day Adventist church member, live together with their Alzheimer’s Dementia parent who suffer at least 2 years of dementia, and agree to sign inform consent after the full explanation of the study. Data are gathered using semi structured face to face interview in participant’s home setting. Data than transcribed in to world document and analysed using Cresswel step by step content analysis. Result: There are five negative categories of family member experiences in taking care of their Alzheimer’s Dementia parent: 1) physical abuse, 2) psychological abuse, 3) social limitation, 4) spiritual distress, and 5) knowledge deficit. It also found that there are several coping mechanism or adaptation made by family member in caring their Alzheimer Dementia parent: 1) family members are motivated to learn more about Alzheimer Dementia, 2) spiritual growth that they pray more often and surrendered to God, 3) increase understanding toward elderly. Discussion:  Based on the result of the study, all the informants experienced pressures in all holistic aspects of life. If they are not able to cope with the pressure, illness may be arrived and made the family situation become worse. Therefore, professional health care must provide support to the family who take care of their Alzheimer Dementia family,


2016 ◽  
Vol 6 (3) ◽  
pp. 1008-1017
Author(s):  
Prof. Bader S. Dweik ◽  
Sara N. Al-Rahal

The purpose of this study is to investigate the domains of use of the Turkmen language and Arabic in Baghdad and to explore attitudes towards Turkmen and Arabic. A sample, comprising (100) subjects from the Turkmen of Baghdad, is selected purposefully to fill out a sociolinguistic questionnaire to solicit information about the participants' demographic background, language use in different contexts and language attitudes towards the ethnic language, Turkmen and the mainstream language, Arabic. The results have revealed that the Turkmen of Baghdad use their ethnic language in different domains especially at home and among the family members. Also, they use both languages (their ethnic language and Arabic) in different social domains such as neighborhood, place of work, schools, media and other public places and have displayed positive attitudes towards Turkmen and Arabic alike.


2017 ◽  
Vol 2 (1) ◽  
pp. 11
Author(s):  
Rita Sari

Immobilization is a problem faced by patients with chronic illness, the patients is very weak and paralyzed patients in a long time. This study have purpose  to gain a deep understanding of the experience of families in caring for family members is immobilized with pressure sores at home. This study used qualitative methods. Participants are families who care for patients at home who are immobilized with pressure sores. Collecting data with in-depth interviews by means of instrument is the researcher's own self, written questions as an interview, used recording devices and used field notes.  Criterion sampling by taking 6 participants. Analysis of data used a phenomenological approach. The results showed that the family had a positive experience; Can be more patient, and assume that caring for a sick family member has its own challenges, being able to be with other families in caring for patients, being able to give affection and obligation as a child to parents can help take care of it. There was also an unpleasant (negative) family experience during the care of sick family members, the family felt tired, not strong and bored during patient care. The conclusion of the study is that families have positive and negative experiences in caring for family members with decubitus


1994 ◽  
Vol 80 (4) ◽  
pp. 269-272 ◽  
Author(s):  
Claude Fusco-Karmann ◽  
Marcello Tamburini

Aims and background Ten years ago, a program o intervention by volunteers in cancer hospitals and at home was started. Home care is accomplished by teams of palliative care givers, in which volunteers are included. After a selective interview, all voluntary candidates with the necessary qualifications are trained and specific apprenticeship is done. Hence, their professional training is carried out through regular groups of supervision followed by a psychologist and a coordinator. A study was carried out to evaluate the activity of volunteers, in the hospital and at home, as judged by patients, nurses and the volunteers themselves. Methods On the whole, the data analyzed concerned 216 patients, 163 nurses and 92 volunteers in the hospital and 30 patients, 16 nurses and 35 volunteers at home. The questionnaires used for the study had four possible answers (no, a little, much, very much) or required an answer on a scale of 0 to 10. Results A high quota of patients gave a very positive opinion (“much” or “very much”) on the importance of the presence of volunteers in the hospital (76%) and at home (90%). In the second case, volunteers were particularly useful to improve a patient's mood (80%) and to solve practical problems (47%). General agreement was noted among nurses and volunteers on the activity of the latter. The main form of intervention of all volunteers is to give psychosocial support to patients. A score of 7 to 10 was given to this item by 60% of the nurses and by 82% of the hospital volunteers. At home, respectively 80% and 89% gave such a score for the same item. Other activities of the volunteer were support for the family, assistance in social activities, and to give information. Conclusions The presence of the volunteer in the hospital and at home appears to be helpful to the patient and the family by becoming part of the team without becoming involved directly in its clinical activity.


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