scholarly journals Geographic and Social Factors Associated With Chronic Disease Self-Management Program Participation: Going the “Extra-Mile” for Disease Prevention

2019 ◽  
Vol 16 ◽  
Author(s):  
Julie Bobitt ◽  
Liliana Aguayo ◽  
Laura Payne ◽  
Taylor Jansen ◽  
Andiara Schwingel
Keyword(s):  
Chronic Disease ◽  
Disease Prevention ◽  
Social Factors ◽  
Management Program ◽  
Self Management ◽  
Program Participation ◽  
Factors Associated

scholarly journals Factors Associated With Participation in the Chronic Disease Self-Management Program

Stroke ◽  
2020 ◽  
Vol 51 (10) ◽  
pp. 2910-2917
Author(s):  
Amy M. Lin ◽  
Barbara G. Vickrey ◽  
Frances Barry ◽  
Martin L. Lee ◽  
Monica Ayala-Rivera ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Stroke Prevention ◽  
Missing Values ◽  
Health Workers ◽  
Home Visits ◽  
Management Program ◽  
Self Management ◽  
Secondary Stroke Prevention ◽  
Financial Barriers ◽  
Factors Associated

Background and Purpose: Self-management programs may improve quality of life and self-efficacy for stroke survivors, but participation is low. In a randomized controlled trial of a complex, multidisciplinary, team-based secondary stroke prevention intervention, we offered participants Chronic Disease Self-Management Program (CDSMP) workshops in addition to clinic visits and home visits. To enhance participation, workshops were facilitated by community health workers who were culturally and linguistically concordant with most participants and scheduled CDSMP sessions at convenient venues and times. Over time, we implemented additional strategies such as free transportation and financial incentives. In this study, we aimed to determine factors associated with CDSMP participation and attendance. Methods: From 2014 to 2018, 18 CDSMP workshop series were offered to 241 English and Spanish-speaking individuals (age ≥40 years) with recent stroke or transient ischemic attack. Zero-inflated Poisson regression was used to identify factors associated with participation and attendance (ie, number of sessions attended) in CDSMP. Missing values were imputed using multiple imputation methods. Results: Nearly one-third (29%) of intervention subjects participated in CDSMP. Moderate disability and more clinic/home visits were associated with participation. Participants with higher numbers of clinic and home visits (incidence rate ratio [IRR], 1.06 [95% CI, 1.01–1.12]), severe (IRR, 2.34 [95% CI, 1.65–3.31]), and moderately severe disability (IRR, 1.55 [95% CI, 1.07–2.23]), and who enrolled later in the study (IRR, 1.12 [95% CI, 1.08–1.16]) attended more sessions. Individuals with higher chaos scores attended fewer sessions (IRR, 0.97 [95% CI, 0.95–0.99]). Conclusions: Less than one-third of subjects enrolled in the SUCCEED (Secondary Stroke Prevention by Uniting Community and Chronic Care Model Teams Early to End Disparities) intervention participated in CDSMP; however, participation improved as transportation and financial barriers were addressed. Strategies to address social determinants of health contributing to chaos and engage individuals in healthcare may facilitate attendance. Registration: URL: https://www.clinicaltrials.gov . Unique identifier: NCT01763203.

Factors Associated With Successful Completion of the Chronic Disease Self-Management Program by Adults With Type 2 Diabetes

2013 ◽  
Vol 36 (2) ◽  
pp. 147-157 ◽  
Author(s):  
Janet W. Helduser ◽  
Jane N. Bolin ◽  
Ann M. Vuong ◽  
Darcy M. Moudouni ◽  
Dawn S. Begaye ◽  
...  
Keyword(s):  
Type 2 Diabetes ◽  
Chronic Disease ◽  
Management Program ◽  
Self Management ◽  
Successful Completion ◽  
Factors Associated

Implementation and evaluation of the chronic-disease self-management program among Chinese immigrant older adults in the U.S.

2014 ◽  
Vol 35 (6) ◽  
pp. 448-450 ◽  
Author(s):  
XiaoRong Wang ◽  
Heather K. Hardin ◽  
Lei Zhou ◽  
Lei Fang ◽  
Pan Shi ◽  
...  
Keyword(s):  
Older Adults ◽  
Chronic Disease ◽  
Management Program ◽  
Self Management ◽  
Chinese Immigrant ◽  
The U.S

scholarly journals Standardising the Lay: Logics of Change in Programs of Disease Self-management

2012 ◽  
Vol 4 (3) ◽  
pp. 425-442 ◽  
Author(s):  
Annegrete Juul Nielsen ◽  
Lone Grøn
Keyword(s):  
Chronic Disease ◽  
Role Models ◽  
Chronic Condition ◽  
Expert Knowledge ◽  
Management Program ◽  
The Self ◽  
Self Management ◽  
Social Settings ◽  
Patient Centric ◽  
Forms Of Knowledge

The health political discourse on self-care is dominated by the view that the selfmanaging patient represents a more democratic and patient-centric perspective, as he or she is believed to renegotiate the terms on which patient participation in health care has hitherto taken place. The self-managing patient is intended as a challenge to traditional medical authority by introducing lay methods of knowing disease. Rather than a meeting between authoritative professionals and vulnerable patients, the self-managing patient seeks to open up new spaces for a meeting between experts. The present paper questions these assumptions through an ethnographic exploration of a patient-led self-management program called the Chronic Disease Self-Management Program. The program is concerned with what its developers call the social and mental aspects of living with a chronic disease and uses trained patients as role models and program leaders. Drawing inspiration from Annemarie Mol’s term ’logic’, we explore the rationale of ’situations of selfmanagement’ and identify what we call a ’logic of change’, which involves very specific ideas on how life with a chronic condition should be dealt with and directs attention towards particular manageable aspects of life with a chronic condition. This logic of change entails, we argue, a clash not between ’medical’ and ’lay’ forms of knowledge but between different logics or perceptions of how transformation can be achieved: through open-ended and ongoing reflection and experimentation in social settings or through standardised trajectories of change. Returning to the literature on lay forms of knowledge and illness perspectives, we question whether programs such as the Chronic Disease Self-Management Program – despite its apparent patient-centric perspective – reproduces classical hierarchical relations between lay and expert knowledge, albeit in new forms.

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