scholarly journals Moving intersex/DSD rights and care forward: Lay understandings of common dilemmas

2019 ◽  
Vol 7 (1) ◽  
pp. 354-377 ◽  
Author(s):  
Tove Lundberg ◽  
Ingrid Dønåsen ◽  
Peter Hegarty ◽  
Katrina Roen

When sex characteristics develop in ways that do not conform to binary models, dilemmas arise regarding how to understand the situation and what terminology to use to describe it. While current medical nomenclature suggests that it should be understood as a disorder of sex development (DSD) prompting medical responses, many describe intersex as a human variation in sexed embodiment that should be protected under discrimination laws. These opposing perspectives suggest different principles to employ in responding to dilemmas about gender assignment, early genital surgery and full disclosure of medical information. In this discursive psychological study, we explore how lay people, without prior knowledge or experience of intersex/DSD, make sense of these dilemmas and the underpinning discourses giving rise to how they talk about these situations. By using the discursive framework of ideological dilemmas, we analyse how people make sense of sex and gender (as binary or non-binary), how they deal with difference (as problematic or not), and how they understand who is in a position to make decisions in such situations. We conclude that engaging with dilemmas in-depth is more constructive than favouring one principle over others in moving social science research, reflexive clinical practice, and wider political debates on intersex/DSD forward.

Sociology ◽  
2020 ◽  
Author(s):  
Morgan Carpenter

Intersex people are described by United Nations institutions as born with variations of sex characteristics that differ from medical and social norms for female or male bodies (see, for example, the 2019 report “Human Rights Violations against Intersex People,” by the Office of the High Commissioner for Human Rights). These variations are diverse and innate. Intersex human rights defenders and human rights institutions challenge the stigma and discrimination that intersex people face because of their physical variations, but few jurisdictions so far have tackled the human rights violations that intersex people suffer. There are multiple additional, contested, and incommensurate lenses through which intersex people are viewed. These express different values and beliefs about the same people, including their meaning, treatment, concerns, and demands. Medical lenses view intersex traits as “disorders of sex development” (DSD), and people with those traits are viewed as female or male and subjects for treatment. Anthropology and queer and gender studies have viewed intersex as an illustration of fallacies that underpin subjective cultural norms for sex and gender. Law increasingly views intersex people as members of a third sex. Historical research shows that intersex people, often termed hermaphrodites, have always existed, and often been accommodated.


2017 ◽  
Vol 313 (4) ◽  
pp. F1009-F1017 ◽  
Author(s):  
Jennifer C. Sullivan ◽  
Ellen E. Gillis

Hypertension is a complex, multifaceted disorder, affecting ~1 in 3 adults in the United States. Although hypertension occurs in both men and women, there are distinct sex differences in the way in which they develop hypertension, with women having a lower incidence of hypertension until the sixth decade of life. Despite observed sex differences in hypertension, little is known about the molecular mechanisms underlying the development of hypertension in females, primarily because of their underrepresentation in both clinical and experimental animal studies. The first goal of this review is to provide a concise overview of the participation of women in clinical trials, including a discussion of the importance of including females in basic science research, as recently mandated by the National Institutes of Health. The remaining portion of the review is dedicated to identifying clinical and experimental animal studies that concentrate on gender and sex differences in hypertensive kidney disease, ending with a proposed role for T cells in mediating sex differences in blood pressure.


2017 ◽  
Author(s):  
Farah Purwaningrum ◽  
Anastasiya Shtaltovna

This paper aims to reflect on positionality, in partic- ular insider-outsider binary and gender, while con- ducting research across Asia in Uzbekistan, Tajikistan, Kazakhstan, Indonesia and Brunei Darussalam be- tween 2008 and 2014. The paper addresses the fol- lowing question: how does positionality under divergent conditions (in restrictive or in friendly re- search zones) facilitate or impede the qualitative re- search process? Ethnographic fieldwork was used to collect data. Two proxies of comparisons are used in examining the role of positionality, namely gender and insider-outsider in Central Asia (CA) and South East Asia (SEA). It is demonstrated that understand- ing one’s position in the field is vital to be able to con- sciously reflect and negotiate space for fieldwork. Next, one’s positionality is not an automatic result of one’s native identity. Rather, choosing the stance to opt during the fieldwork can be a conscious decision for the researcher. This is decisive for the researcher’s personal security and for the collection of the unique data. With regard to gender, despite being rather an unfriendly environment for conducting social science research, CA turned out to be a much easier space for a female researcher to manoeuver, than SEA.


2014 ◽  
Vol 14 (1) ◽  
pp. 50-63
Author(s):  
Jennifer Germon

Purpose – The purpose of this paper is to engage with a foundational gendered imaginary in Western medical and popular discourse regarding fetal sexual development. It is an imaginary that consists of dual narratives that bolster an oppositional complementary model of sex-gender. By these accounts male sexual development results from complex and multi-faceted processes generated by the Y chromosome while female sexual development is straightforward, articulated through a discourse of “default sex” (Jost, 1953). Such apparent truths fit seamlessly with the timeworn notion of maleness and masculinity as always already active, and femaleness and femininity always and inevitably passive. In other words, he does and she is. Design/methodology/approach – Despite embryogenetic findings thoroughly debunking these ideas, contemporary medical and biological textbooks remain haunted by outdated androcentric models of sex development. This paper attends to biomedical and everyday understandings of sex and gender to demonstrate how fresh lines of inquiry produce conditions that enable new ways of understanding bodies and embodied experiences. Findings – This paper demonstrates how new ways of thinking can lead to a new understanding with regards to sex, gender, bodies, and experiences. Originality/value – This paper attends to biomedical and everyday understandings of sex and gender to demonstrate how fresh lines of inquiry produce conditions that enable new ways of understanding bodies and embodied experiences.


2017 ◽  
Vol 6 (3) ◽  
pp. 58 ◽  
Author(s):  
V Raveenthiran

Management of ambiguous genitalia is highly controversial. This condition was known previously as intersex and presently as disorders of sex development (DSD). There is no consensus regarding the choice, timing and method of sex assignment in neonates with DSD. Consensus conferences could not unify the views of various stakeholders and third parties. This article philosophically examines the nature and origin of such controversies. Misconception, bias and conflicting priorities are identified as the three cardinal sources of controversies. Conceptual duality of sexes, confused notion of sex and gender, bias towards penetrative intercourse, conflict between utopian ideals and reality, unwillingness to compromise are identified as perpetuators of controversies. Suggestions are made regarding sex assignment in various types of DSD based on the understanding of published literature and the author’s personal experience.


BioSocieties ◽  
2021 ◽  
Author(s):  
Victoria Boydell ◽  
Katharine Dow

AbstractThe ever-expanding availability of reproductive technologies, the continued roll-out of ‘family planning’ and maternity services across low- and middle-income settings and the rapid development of the fertility industry mean that it is more likely than ever that individuals, especially women and gender non-conforming people, will engage with more than one RT at some point in their life. These multiple engagements with RTs will affect users’ expectations and uptake, as well as the technologies’ availability, commercial success, ethical status and social meanings. We argue that an integrated approach to the study of RTs and their users not only makes for better research, but also more politically conscious research, which questions some of the ideological precepts that have led to reproduction being parcelled out into biomedical specialisations and a disproportionate focus on particular forms of reproduction in particular disciplines within public health and social science research. We offer this article as part of a wider movement in the study of reproduction and reproductive technologies, which takes inspiration from the reproductive justice framework to address forms of exclusion, discrimination and stratification that are perpetuated in the development and application of reproductive technologies and the ways in which they are studied and theorised.


2016 ◽  
Author(s):  
Daniel Hirschman

Stylized facts are empirical regularities in search of theoretical, causal explanations. Stylized facts are both positive claims (about what is in the world) and normative claims (about what merits scholarly attention). Much of canonical social science research can be usefully characterized as the production or contestation of stylized facts. Beyond their value as grist for the theoretical mill of social scientists, stylized facts also travel directly into the political arena. Drawing on three recent examples, I show how stylized facts can interact with existing folk causal theories to reconstitute political debates and how tensions in the operationalization of folk concepts drive contention around stylized fact claims.


Author(s):  
Jun Jie Benjamin Seng ◽  
Cheng Teng Yeam ◽  
Caleb Weihao Huang ◽  
Ngiap Chuan Tan ◽  
Lian Leng Low

AbstractBackgroundHealth literacy plays an essential role in one’s ability to acquire and understand critical medical information in the COVID-19 infodemic and other pandemics.PurposeTo summarize the assessment, levels and determinants of pandemic related health literacy and its associated clinical outcomes.Data sourcesMedline®, Embase®, PsychINFO®, CINAHL®, arXiv, bioRxiv, medRxiv, and Social Science Research Network. The start date was unrestricted and current as of 22 April 2020.Study selectionStudies which evaluated health literacy related to novel coronavirus disease 2019 (COVID-19), Severe Acute Respiratory Syndrome (SARS) or Middle East Respiratory Syndrome (MERS)Data extractionData on the characteristics of study designs, instruments, participants and level of health literacy were collected. Items used in instruments were grouped under the themes of knowledge, attitudes and practices. Determinants of health literacy were grouped into five domains (socio-demographic, medical, psychological/psychiatric, health systems related and others).Data synthesisOf 2,065 articles screened, 70 articles were included. 21, 17 and 32 studies evaluated health literacy related to COVID-19, SARS and MERS, respectively. The rates of low pandemic health literacy ranged from 4.3 to 57.9% among medical-related populations and 4.0% to 82.5% among non-medical populations. Knowledge about symptoms and transmission of infection; worry about infection and, practices related to mask usage and hand hygiene was most frequently evaluated. Socio-demographic determinants of health literacy were most studied, where higher education level, older age and female gender were associated with better health literacy. No studies evaluated outcomes associated with health literacy.LimitationsNon-English articles were excluded.ConclusionThe level of pandemic related health literacy is sub-optimal. Healthcare administrators need to be aware of health literacy determinants when formulating policies in pandemics.


Author(s):  
Matthew Waites

The Commonwealth is the international governmental organization of states that emerged from the British empire, and since 2000 it has emerged as a focus for contestation relating to the regulation of same-sex sexualities, gender diversity, and diverse sex characteristics. Following colonial criminalizations focused on same-sex sexual acts, and later formal decolonizations, there have appeared many national movements for decriminalization and human rights in relation to sexuality and gender. The Commonwealth has emerged as a site of politics for some significant actors claiming human rights in relation to sexual orientation, gender identity and expression, and sex characteristics. This has been led by specific organizations of lesbian, gay, bisexual, and transgender (LGBT) people, increasingly with intersex people and allies, but it is also important to consider this in relation to queer people, understood more broadly here as people in all cultures experiencing forms of sexualities, biological sex and genders outside the social structure of heterosexuality, and its associated sex and gender binaries. A range of forms of activist and non-governmental organization (NGO) engagement have occurred, leading to shifts in Commonwealth civil society and among some state governments. This has required researchers to develop analyses across various scales, from local and national to international and transnational, to interpret institutions and movements. The British Empire criminalized same-sex sexual acts between males, and to a lesser extent between females, across its territories. In certain instances there were also forms of gender regulation, constraining life outside a gender binary. Such criminalization influenced some of those claiming LGBT human rights to engage the Commonwealth. Research shows that a majority of Commonwealth states continue to criminalize some adult consensual same-sex sexual activity. Yet the history of struggles for decriminalization and human rights within states in the Commonwealth has led up to such recent important decriminalizations as in India and Trinidad and Tobago in 2018. LGBT and queer activist engagements of the Commonwealth itself commenced in 2007 when Sexual Minorities Uganda and African allies demanded entry to the Commonwealth People’s Space during a Heads of Government meeting in Kampala. Activism has often focused on the biannual Heads of Government meetings that are accompanied by civil society forums. A particularly significant phenomenon has been the emergence of a “new London-based transnational politics of LGBT human rights,” evident in the creation from 2011 of new NGOs working internationally from the United Kingdom. Among these organizations was the Kaleidoscope Trust, which shaped the subsequent formation of The Commonwealth Equality Network as an international network of NGOs that became formally recognized by the Commonwealth. Significant developments occurred at the London Commonwealth Heads of Government meeting in April 2018; Prime Minister Theresa May expressed “regret” for past imperial criminalizations while announcing funding for Kaleidoscope Trust and other UK-based groups to use in international law reform work. These developments exemplify a wider problematic for both activists and analysts, concerning how LGBT and queer movements should engage in contexts that are still structured by imperial legacies and power relations associated with colonialism, persisting in the present.


2017 ◽  
Vol 10 (2) ◽  
Author(s):  
Paul J. Zwier

AbstractThis article will first describe the problem of Sexual and Gender-based Violence (SGBV) in Liberia, its history to views of its current status, and the debate about its cause. It will discuss the problems that result through trying to address the problem of SGBV through both formal and informal rule of law development strategies, including both traditional and customary dispute resolution processes within the Liberian setting. It will also describe the reasoning behind The Carter Center (TCC’s) support of traditional and community-based projects, including its use of NGO social science research in helping it monitor the progress being made in fighting SGBV. It will be a tale of discouragement as assessment showed the continuing prevalence of SGBV. Next the paper will discuss what led TCC to develop its Community Justice Advisor (CJA) Project. It will describe the project and its implementation. Finally it will look at the research attempts to measure CJA’s success and predict whether funding of additional CJAs will likely be effective in combating SGBV. It will conclude by making some modest observations about whether CJAs might work elsewhere in Africa, or in the developing world, and the promise and dangers of using individual paralegals as a major tool in combating SGBV.


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