scholarly journals A life ability and care experience of the care family of the dementia elderly person who lives at home

2020 ◽  
Vol 9 (1-2) ◽  
pp. 1-8
Author(s):  
Hiromi Kimura ◽  
Midori Nishio ◽  
Hiroko Kukihara ◽  
Kayoko Koga ◽  
Yuriko Inou
Keyword(s):  
Elderly Person ◽  
Care Experience ◽  
Care Family ◽  
At Home

98 Parental perspective on changes in health care following integration to a complex care program

2021 ◽  
Vol 26 (Supplement_1) ◽  
pp. e71-e71
Author(s):  
Louis-Philippe Thibault ◽  
Maria Marano ◽  
Lydia Saad ◽  
Nathalie Gaucher ◽  
Karine Couture ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Utilization ◽  
Driving Forces ◽  
Care Program ◽  
Care Utilization ◽  
Complex Care ◽  
Healthcare Resources ◽  
Care Experience ◽  
Ed Visits ◽  
At Home

Abstract Primary Subject area Complex Care Background Quantitative studies have found that integration into a complex care program (CCP) leads to decreased number of visits to the emergency department (ED) and hospitalization days for children with medical complexity (CMC). However, little is known about CMC families’ experiences regarding their healthcare resource utilization patterns following their child’s integration in the CCP. Objectives To analyze parental perspectives regarding changes in healthcare resources utilization following CCP admission. Design/Methods This study was conducted in our tertiary care pediatric university hospital, between December 2019 and January 2021 using individual semi-structured interviews. To assess the effect of CCP admission on healthcare resources utilization, only patients with at least 6 months of chronic disease before inclusion were eligible (32 families). The interview guide was co-constructed by our CCP team of nurses, doctors, social worker and parents of CMC. Participation rate was over one third (12/32) throughout, for which a satisfactory level of data saturation was obtained, as core themes specific to the research question were repeatedly identified. Verbatims were analyzed with NVivo. Descriptive thematic analysis was performed by coding themes emerging from the data. Results Sixteen parents from twelve families were interviewed (11 mothers, 5 fathers, including 4 couples). Most parents had experienced a decrease in ED visits with improvement in their perceived satisfaction regarding the provided healthcare services following CCP admission. Visits to the CCP pediatrician led to appreciated, continuous and tailored care. In comparison, the constant change of pediatricians in the ED and during hospitalization on the ward seemed to complicate their care experience. Also, the support from pivot nurses and social workers for daily health issues, drug prescription and paperwork was perceived as a relief. This directly favorably influenced care experience. Profound knowledge of patients’ health conditions and families’ personal challenges and strengths, led to personalized care and trust that greatly improved parents’ confidence in care and empowered families. Individualized advice by the CCP team leading to prompt treatment and preventive measures started early at home were identified by parents as the main driving forces leading to the observed decrease in ED visits. When hospitalized, confidence in the quality of care provided by parents at home with close follow-up by CCP were identified as the main driving forces leading to the quicker discharge. Conclusion Changes in health care utilization following admission to CCP was associated with an improved care experience. Parents identified individualized care and close follow-ups as key factors leading to decreased health care utilization.

The elderly person with a self-care deficit at home and the implications for the relative caregiver

2011 ◽  
Vol 5 (10) ◽  
pp. 2545
Author(s):  
Ricardo Saraiva Aguiar
Keyword(s):  
Elderly Person ◽  
Self Care ◽  
The Elderly ◽  
Care Deficit ◽  
At Home

RESUMOObjetivo: identificar as principais implicações para o cuidador familiar do fato de o idoso apresentar déficit de autocuidado. Metodologia: trata-se de um estudo do tipo revisão integrativa da literatura realizada em livros e bases de dados (LILACS, BDENF e SciELO), utilizando os seguintes descritores: cuidadores; idoso; saúde do idoso; e enfermagem geriátrica. Foram selecionadas 13 produções científicas brasileiras, de 2000 a 2010, que versavam sobre o objeto do estudo.  Resultados: prevaleceram as publicações do ano de 2008 (38,4%). As publicações foram agrupadas nos seguintes temas: o cuidador familiar; cuidados em domicílio; a enfermagem no cuidado domiciliar; e principais implicações para o cuidador familiar. Conclusão: foi verificado que os cuidadores familiares de idosos com déficit de autocuidado estão sujeitos a diversos efeitos negativos em sua saúde, como: dores lombares; doenças psiquiátricas; artrite; doenças somáticas; isolamento social; entre outros. Com isso, torna-se necessário que a saúde do cuidador familiar também seja priorizada no planejamento da assistência domiciliar, para que os possíveis efeitos negativos de sua assistência sejam minimizados ao máximo. Descritores: cuidadores; idoso; saúde do idoso; enfermagem geriátrica. 

scholarly journals Cuidado ao familiar após acidente vascular encefálico

2018 ◽  
Vol 12 (3) ◽  
pp. 599
Author(s):  
Fernanda Misawa ◽  
Rafaely De Cássia Nogueira Sanches ◽  
Anderson Da Silva Rêgo ◽  
Cremilde Aparecida Trindade Radovanovic
Keyword(s):  
Home Care ◽  
Family Members ◽  
Care Practice ◽  
Care Experience ◽  
Home Care Nursing ◽  
The Family ◽  
Qualitative Descriptive ◽  
Study Participants ◽  
Care Nursing ◽  
At Home

RESUMOObjetivo: compreender a vivência dos familiares no cuidado domiciliar após a alta hospitalar de um familiar acometido por Acidente Vascular Encefálico. Método: estudo qualitativo, descritivo, do tipo convergente assistencial, com quatro famílias. O cenário do estudo foi o domicílio, com média de 16 visitas por família, uma vez por semana ou quando houvesse necessidade de assistência. Para a análise dos dados, utilizou-se a técnica de Análise de Conteúdo, na modalidade Análise Temática. Resultados: evidenciou-se que a experiência de cuidar no domicílio levou os membros da família a lidarem com sentimentos como o medo, a tristeza, a angústia e a fragilidade e os membros adoecidos relataram ansiedade, desânimo, frustração e revolta por estarem adoecidos. Conclusão: o estudo permitiu a compreensão da experiência de cuidar no domicílio e a vivência das famílias de familiar acometido por Acidente Vascular Encefálico oportunizando que a prática assistencial e a pesquisa ocorressem ao mesmo tempo e, assim, proporcionou a oportunidade de interação e criação de vínculo com os participantes do estudo e a compreensão da experiência e a repercussão do cuidado no domicílio entre os familiares. Descritores: Acidente Vascular Encefálico; Família; Assistência Domiciliar; Cuidados De Enfermagem; Enfermagem; Doenças Crônicas.ABSTRACT Objective: to understand the experience of family members in home care after hospital discharge from a family member affected by stroke. Method: qualitative, descriptive, convergent type study with four families. The study scenario was the household, with an average of 16 visits per family, once a week or when there was a need for assistance. For the analysis of the data, the technique of Content Analysis was used in the Thematic Analysis modality. Results: It was evidenced that the experience of caring at home led family members to deal with feelings such as fear, sadness, anguish and frailty, and the sick members reported anxiety, discouragement, frustration and revolt at being sick. Conclusion: the study allowed the understanding of the home care experience and the family life of the family members affected by stroke, allowing care practice and research to occur at the same time and, thus, provided the opportunity for interaction and bonding with study participants and the understanding of the experience and the repercussion of care at home among the family members. Descritores: Cerebrovascular Accident; Family; Home Care; Nursing Care; Nursing; Chronic Disease.RESUMEN Objetivo: comprender la vivencia de los familiares en el cuidado domiciliar después del alta hospitalaria de un familiar acometido por Accidente Vascular Encefálico. Método: estudio cualitativo, descriptivo, del tipo convergente asistencial, con cuatro familias. El escenario del estudio fue el domicilio, con promedio de 16 visitas por familia, una vez por semana o cuando hubiera necesidad de asistencia. Para el análisis de los datos, se utilizó la técnica de Análisis de Contenido, en la modalidad Análisis Temático. Resultados: se evidenció que la experiencia de cuidar en el domicilio llevó a los miembros de la familia a lidiar con sentimientos como el miedo, la tristeza, la angustia y la fragilidad y los miembros enfermos relataron ansiedad, desánimo, frustración y revuelta por estar enfermos. Conclusión: el estudio permitió la comprensión de la experiencia de cuidar en el domicilio y la vivencia de las familias de familiar acometido por Accidente Vascular Encefálico, posibilitando que la práctica asistencial y la investigación ocurrieran al mismo tiempo, y así, proporcionó la oportunidad de interacción y creación de vínculo con los participantes del estudio y la comprensión de la experiencia y la repercusión del cuidado en el domicilio entre los familiares. Descritores: Accidente Vascular Encefálico; Familia; Asistencia Domiciliar; Atención de Enfermería; Enfermería; Enfermedad Crónica.

A Comparison Study of Parental Adaptation Following a Child's Death at Home or in the Hospital

PEDIATRICS ◽  
1983 ◽  
Vol 71 (1) ◽  
pp. 107-112 ◽  
Author(s):  
Mary E. Lauer ◽  
Raymond K. Mulhern ◽  
Joyce M. Wallskog ◽  
Bruce M. Camitta
Keyword(s):  
Home Care ◽  
Care Program ◽  
Care Experience ◽  
Life And Death ◽  
Parental Adaptation ◽  
Dying Children ◽  
One Year ◽  
Child's Death ◽  
Voluntary Choice ◽  
At Home

Mothers and fathers of 37 deceased pediatric oncology patients were interviewed 3 to 28 months after their child's death. Twenty-four of these families had participated in a formal Home Care Program for dying children, whereas the remaining 13 families had children who died in the hospital. Parental adaptation following the home care experience appeared to be more favorable than following terminal care and death in the hospital. Specifically, the parents who had cared for their terminally ill child at home displayed more positive adjustment patterns as indexed by their perception of how the child's death had affected their marriage, social reorientation, religious beliefs, and views on the meaning of life and death. Ratings given by parents providing home care indicated a significant reduction in guilt during the home care experience which was maintained at 6 and 12 months following the child's death. In contrast, parents who did not provide home care reported intensified feelings of guilt during their child's terminal hospitalization which were unresolved at one year after the child's death. The results are discussed in terms of the practical and emotional benefits that may be derived from a family's voluntary choice of home care for dying children.

Feeling at home in a strange world? The reality of a demented elderly person in a nursing home: a different approach of interpretation.

Pflege ◽  
2002 ◽  
Vol 15 (3) ◽  
pp. 122-130
Author(s):  
Gerrit Beyer
Keyword(s):  
Nursing Home ◽  
Elderly Person ◽  
Feeling At Home ◽  
At Home

In einer qualitativen Fallstudie wurde mittels der teilnehmenden Beobachtung in einer Einrichtung der stationären Altenpflege dem Wirklichkeitserleben einer dementen alten Frau nachgegangen. Mit Hilfe von halbstrukturierten Interviews als Datensammlungsmethode war es ferner möglich, ein Bild der Bewohnerin aus Sicht der Pflegekräfte zu bekommen. Bei der Auswertung der Ergebnisse ergaben sich dabei Hinweise auf zwei unterschiedliche Bezugssysteme. Die Vergangenheit bildete die Grundlage für das gegenwärtige Erleben von Frau R. Interessant hierbei war, dass das beobachtete Verhalten der Bewohnerin während des täglichen Aufenthaltes in einer Sitzecke des Wohnbereiches Anzeichen von Normalität und eine im Zusammenhang mit der Wahrnehmung und dem Erleben dieser Sitzecke vermutete Identifikation mit dem «Zuhause» erkennen ließ. Die Pflegekräfte waren hinsichtlich ihrer Meinungsbildung und ihres Verhaltens gegenüber Frau R. in hohem Maße am Krankheitsbild orientiert. Biografische Kenntnisse waren nicht bzw. kaum vorhanden, die die vorherrschende krankheitsbezogene Sichtweise möglicherweise erweitert und die Wahrnehmung der Pflegekräfte von Frau R. verändert hätten.

scholarly journals Palliative Cares To Older Person Under The Nurse's Optics

10.3823/2440 ◽  
2017 ◽  
Vol 10 ◽  
Author(s):  
Willan Nogueira Lima ◽  
Cintia Lira Borges ◽  
Bruna Karen Cavalcante Fernandes ◽  
Valderina Moura Lopes ◽  
Saul Filipe Pedrosa Leite ◽  
...  
Keyword(s):  
Palliative Care ◽  
Hospice Care ◽  
Elderly Person ◽  
The Elderly ◽  
Structured Interview ◽  
Tertiary Hospital ◽  
Patient Centered ◽  
Cross Sectional ◽  
Care Experience ◽  
Care For The Elderly

INTRODUCTION: Chronic-degenerative diseases need specialized health care, especially in palliative care, since from the beginning of the disease the elderly is in this classification. In this context, the study aimed to know the meaning of palliative care to the elderly person from the nurse METHODS: This is a descriptive, cross-sectional, qualitative study carried out in a private tertiary hospital in the Northeast of Brazil. The survey was conducted from March to June 2016, with 19 nurses. In the data collection, a semi-structured interview, with four questions were used: what does palliative care mean to you? What does care for the elderly in hospice care mean to you? What strategies do you adopt to promote palliative care for the elderly? Tell me about your experience in providing palliative care to the elderly. The technique of data analysis and organization was the Discourse of the Collective Subject. RESULTS: Four categories of palliative care were produced: meaning palliative care; Experience in providing palliative care to the elderly; Meaning of caring for the elderly in palliative care; Strategies to promote palliative care for the elderly. CONCLUSION: The meaning of palliative care was synonymous with comfort and quality of life. It is important to emphasize the patient-centered care and to carry out further studies on the subject to make nursing professionals aware of the importance of promoting adequate behavior in palliative care.

scholarly journals “In the Bengali Vocabulary, There Is No Such Word as Care Home”:Caring Experiences of UK Bangladeshi and Indian Family Carers of People Living With Dementia at Home

2019 ◽  
Author(s):  
Ruminda Herat-Gunaratne ◽  
Claudia Cooper ◽  
Naaheed Mukadam ◽  
Penny Rapaport ◽  
Monica Leverton ◽  
...  
Keyword(s):  
Care Home ◽  
Care Recipient ◽  
Family Carers ◽  
Structured Interviews ◽  
Indian Family ◽  
People With Dementia ◽  
Care Family ◽  
Care Models ◽  
Design And Methods ◽  
At Home

Abstract Background and Objectives We aimed to explore experiences of South Asian carers of people with dementia receiving health or social care in the United Kingdom, purposively recruited to encompass a range of migration, economic and cultural experiences. While previous work in this area has reported carers’ understanding of, and attitudes to dementia, we explored how carers’ cultural identities and values influenced their experiences, negotiation of the caring role and relationship with services. Research Design and Methods We conducted semi-structured interviews with 10 Bangladeshi and Indian family carers of people living with dementia at home. We recruited participants from community settings in London and Bradford, UK. Interviews were audio recorded, transcribed and thematically analyzed. Results We identified 4 themes: an expectation and duty to care, expectation and duty as a barrier to accessing formal care (family carer reluctance, care recipient reluctance, and service organization), culturally (in)sensitive care, and the importance of support from informal care networks. Discussion and Implications Interviewees described tensions between generations with different understandings of familial care obligations. Expectations to manage led to burden and guilt, and the cost of caring, in terms of lost employment and relationships was striking. Unlike in previous studies, interviewees wanted to engage and be supported by services, but were frequently offered care models they could not accept. There was a tension between a state-provided care system obliged to provide care when there are no alternatives, and family carers who feel a duty to always provide alternatives. Informal social networks often provided valued support.

scholarly journals Elderly caring for the elderly: spirituality as tensions relief

2018 ◽  
Vol 71 (5) ◽  
pp. 2461-2468
Author(s):  
Monalisa Claudia Maria da Silva ◽  
Alexander Moreira-Almeida ◽  
Edna Aparecida Barbosa de Castro
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Care Service ◽  
Health Care Service ◽  
Elderly Person ◽  
The Elderly ◽  
Primary Health Care Service ◽  
Primary Health ◽  
Elderly Caregivers ◽  
At Home

ABSTRACT Objective: To investigate the forms of coping used to relieve tensions by elderly caregivers of elderly relatives and to know the type of support they receive from the Primary Health Care service at home. Method: A qualitative study with a theoretical-methodological contribution of Grounded Theory, carried out with 10 elderly caregivers interviewed between August 2014 and January 2015. Results: Participants use primarily religious coping to deal with adverse situations that arise in their lives; they attribute to the sacred the strength to continue to age and care for another elderly person at home. Religiousness was the main coping strategy used by the participants, but little recognized by the health service. Final considerations: It is recommended that the Primary Health Care service provide greater support to these caregivers and be attentive to the spiritual dimension as an auxiliary element in the process of comprehensive and inclusive health care of these elderly caregivers.

ZigBee Technology to Provide Elderly People with Well-being at Home

2021 ◽  
Vol 11 ◽  
Author(s):  
Majid H. Alsulami ◽  
Anthony S. Atkins ◽  
Abdulellah A. Alaboudi ◽  
Nayyar Ahmed Khan
Keyword(s):  
Real Time ◽  
Elderly People ◽  
Elderly Person ◽  
Well Being ◽  
The Elderly ◽  
Restricted Area ◽  
Aged People ◽  
Zigbee Technology ◽  
Care And Support ◽  
At Home

Background: The number of elderly people is growing, and it becomes a challenge for the families and governments regard their health. They are facing declines in their health and missing some of the quality of life that is provided to them. They are unable to control their self. They are vulnerable to fall and get in dangerous or restricted area. Aim: This study aims at conducing an experiment using Real-Time Location System (RTLS) via ZigBee technology in order to track the elderly person at his/her home. Objectives: To track the old age people and provide them proper care and support whenever they are in challenging times. Method: RTLS is a system that offers a real-time tracking and positioning of people or objects. Results: The results showed that the ZigBee technology provides valuable insights to determine the location of an elderly person at home and sends an alert when a person gets in a restricted area. Conclusion: ZigBee have contributed to be one of the best of its kind protocol that can help to track and mange old aged people at house.

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