scholarly journals Resolving Stakeholder Tussles in Healthcare Systems: Ethical Challenges to Data Protection

Author(s):  
Brian Pickering ◽  
Giuliana Faiella ◽  
Fabrizio Clemente
10.2196/23776 ◽  
2020 ◽  
Vol 7 (12) ◽  
pp. e23776
Author(s):  
Nicole Martinez-Martin ◽  
Ishan Dasgupta ◽  
Adrian Carter ◽  
Jennifer A Chandler ◽  
Philipp Kellmeyer ◽  
...  

Social distancing measures due to the COVID-19 pandemic have accelerated the adoption and implementation of digital mental health tools. Psychiatry and therapy sessions are being conducted via videoconferencing platforms, and the use of digital mental health tools for monitoring and treatment has grown. This rapid shift to telehealth during the pandemic has given added urgency to the ethical challenges presented by digital mental health tools. Regulatory standards have been relaxed to allow this shift to socially distanced mental health care. It is imperative to ensure that the implementation of digital mental health tools, especially in the context of this crisis, is guided by ethical principles and abides by professional codes of conduct. This paper examines key areas for an ethical path forward in this digital mental health revolution: privacy and data protection, safety and accountability, and access and fairness.


2021 ◽  
pp. 11-25
Author(s):  
Daniel W. Tigard

AbstractTechnological innovations in healthcare, perhaps now more than ever, are posing decisive opportunities for improvements in diagnostics, treatment, and overall quality of life. The use of artificial intelligence and big data processing, in particular, stands to revolutionize healthcare systems as we once knew them. But what effect do these technologies have on human agency and moral responsibility in healthcare? How can patients, practitioners, and the general public best respond to potential obscurities in responsibility? In this paper, I investigate the social and ethical challenges arising with newfound medical technologies, specifically the ways in which artificially intelligent systems may be threatening moral responsibility in the delivery of healthcare. I argue that if our ability to locate responsibility becomes threatened, we are left with a difficult choice of trade-offs. In short, it might seem that we should exercise extreme caution or even restraint in our use of state-of-the-art systems, but thereby lose out on such benefits as improved quality of care. Alternatively, we could embrace novel healthcare technologies but in doing so we might need to loosen our commitment to locating moral responsibility when patients come to harm; for even if harms are fewer – say, as a result of data-driven diagnostics – it may be unclear who or what is responsible when things go wrong. What is clear, at least, is that the shift toward artificial intelligence and big data calls for significant revisions in expectations on how, if at all, we might locate notions of responsibility in emerging models of healthcare.


2020 ◽  
Author(s):  
Nicole Martinez-Martin ◽  
Ishan Dasgupta ◽  
Adrian Carter ◽  
Jennifer A Chandler ◽  
Philipp Kellmeyer ◽  
...  

UNSTRUCTURED Social distancing measures due to the COVID-19 pandemic have accelerated the adoption and implementation of digital mental health tools. Psychiatry and therapy sessions are being conducted via videoconferencing platforms, and the use of digital mental health tools for monitoring and treatment has grown. This rapid shift to telehealth during the pandemic has given added urgency to the ethical challenges presented by digital mental health tools. Regulatory standards have been relaxed to allow this shift to socially distanced mental health care. It is imperative to ensure that the implementation of digital mental health tools, especially in the context of this crisis, is guided by ethical principles and abides by professional codes of conduct. This paper examines key areas for an ethical path forward in this digital mental health revolution: privacy and data protection, safety and accountability, and access and fairness.


Information ◽  
2020 ◽  
Vol 11 (12) ◽  
pp. 586
Author(s):  
Dimitra Georgiou ◽  
Costas Lambrinoudakis

Currently, there are several challenges that cloud-based healthcare systems around the world are facing. The most important issue is to ensure security and privacy, or in other words, to ensure the confidentiality, integrity, and availability of the data. Although the main provisions for data security and privacy were present in the former legal framework for the protection of personal data, the General Data Protection Regulation (GDPR) introduces new concepts and new requirements. In this paper, we present the main changes and the key challenges of the GDPR and, at the same time, we present how a cloud-based security policy could be modified in order to be compliant with the GDPR, as well as how cloud environments can assist developers to build secure and GDPR compliant cloud-based healthcare systems. The major concept of this paper is dual-purpose; primarily, to facilitate cloud providers in comprehending the framework of the new GDPR and secondly, to identify security measures and security policy rules, for the protection of sensitive data in a cloud-based healthcare system, following our risk-based security policy methodology that assesses the associated security risks and takes into account different requirements from patients, hospitals, and various other professional and organizational actors.


2021 ◽  
Vol 11 (21) ◽  
pp. 9977
Author(s):  
Daan Storm van Leeuwen ◽  
Ali Ahmed ◽  
Craig Watterson ◽  
Nilufar Baghaei

Faced with the biggest virus outbreak in a century, world governments at the start of 2020 took unprecedented measures to protect their healthcare systems from being overwhelmed in the light of the COVID-19 pandemic. International travel was halted and lockdowns were imposed. Many nations adopted measures to stop the transmission of the virus, such as imposing the wearing of face masks, social distancing, and limits on social gatherings. Technology was quickly developed for mobile phones, allowing governments to track people’s movements concerning locations of the virus (both people and places). These are called contact tracing applications. Contact tracing applications raise serious privacy and security concerns. Within Europe, two systems evolved: a centralised system, which calculates risk on a central server, and a decentralised system, which calculates risk on the users’ handset. This study examined both systems from a threat perspective to design a framework that enables privacy and security for contact tracing applications. Such a framework is helpful for App developers. The study found that even though both systems comply with the General Data Protection Regulation (GDPR), Europe’s privacy legislation, the centralised system suffers from severe risks against the threats identified. Experiments, research, and reviews tested the decentralised system in various settings but found that it performs better but still suffers from inherent shortcomings. User tracking and re-identification are possible, especially when users report themselves as infected. Based on these data, the study identified and validated a framework that enables privacy and security. The study also found that the current implementations using the decentralised Google/Apple API do not comply with the framework.


2021 ◽  
Vol 8 ◽  
Author(s):  
Ghiath Alahmad ◽  
Hanie Richi ◽  
Ala'a BaniMustafa ◽  
Adel F. Almutairi

The new and dangerous coronavirus disease (COVID-19) has posed a serious challenge to the ability of healthcare systems of many countries to contain the spread of the disease and to mitigate its various consequences. The disease posed many ethical challenges both in itself and in the methods used in its management. Although the ethical principles that healthcare operates under are universal, a thorough understanding of the ethical difficulties it poses necessitates consideration of contextual, societal, and cultural factors. This study provides an in-depth exploration of the ethical challenges related to the COVID-19 pandemic outbreak in relation to healthcare providers, medical researchers, and decision-makers in Saudi Arabia. Four themes were extracted from participants' responses, namely, ethical challenges about disease-control measures, challenges to actions in certain groups, challenges regarding software programs, and finally ethics in research practices. Each theme likewise contained sub-themes. The themes and sub-themes were discussed in light of the ethical principles: autonomy, beneficence, non-beneficence, and justice, as well as other principles, such as protecting confidentiality, privacy, and preventing stigma and discrimination.


2019 ◽  
Vol 10 (1) ◽  
pp. 77-93 ◽  
Author(s):  
Eduard Fosch-Villaronga ◽  
Jordi Albo-Canals

AbstractThe insertion of robotic and artificial intelligent (AI) systems in therapeutic settings is accelerating. In this paper, we investigate the legal and ethical challenges of the growing inclusion of social robots in therapy. Typical examples of such systems are Kaspar, Hookie, Pleo, Tito, Robota,Nao, Leka or Keepon. Although recent studies support the adoption of robotic technologies for therapy and education, these technological developments interact socially with children, elderly or disabled, and may raise concerns that range from physical to cognitive safety, including data protection. Research in other fields also suggests that technology has a profound and alerting impact on us and our human nature. This article brings all these findings into the debate on whether the adoption of therapeutic AI and robot technologies are adequate, not only to raise awareness of the possible impacts of this technology but also to help steer the development and use of AI and robot technologies in therapeutic settings in the appropriate direction. Our contribution seeks to provide a thoughtful analysis of some issues concerning the use and development of social robots in therapy, in the hope that this can inform the policy debate and set the scene for further research.


2018 ◽  
Vol 10 (6) ◽  
pp. 114
Author(s):  
Akindele Akinnagbe ◽  
K.Dharini Amitha Peiris ◽  
Oluyemi Akinloye

Big data is having a positive impact in almost every sphere of life, such as in military intelligence, space science, aviation, banking, and health. Big data is a growing force in healthcare. Even though healthcare systems in the developed world are recording some breakthroughs due to the application of big data, it is important to research the impact of big data in developing regions of the world, such as Africa. Healthcare systems in Africa are, in relative terms, behind the rest of the world. Platforms and technologies used to amass big data such as the Internet and mobile phones are already in use in Africa, thereby making big data applications to be emerging. Hence, the key research question we address is whether big data applications can improve healthcare in Africa especially during epidemics and through the public health system. In this study, a literature review is carried out, firstly to present cases of big data applications in healthcare in Africa, and secondly, to explore potential ethical challenges of such applications. This review will provide an update on the application of big data in the health sector in Africa that can be useful for future researchers and health care practitioners in Africa.


2021 ◽  
Vol 11 (6) ◽  
pp. 539
Author(s):  
Roel H. P. Wouters ◽  
Rieke van der Graaf ◽  
Tessel Rigter ◽  
Eline M. Bunnik ◽  
M. Corrette Ploem ◽  
...  

Learning healthcare systems have recently emerged as a strategy to continuously use experiences and outcomes of clinical care for research purposes in precision medicine. Although it is known that learning healthcare transitions in general raise important ethical challenges, the ethical ramifications of such transitions in the specific context of precision medicine have not extensively been discussed. Here, we describe three levers that institutions can pull to advance learning healthcare systems in precision medicine: (1) changing testing of individual variability (such as genes); (2) changing prescription of treatments on the basis of (genomic) test results; and/or (3) changing the handling of data that link variability and treatment to clinical outcomes. Subsequently, we evaluate how patients can be affected if one of these levers are pulled: (1) patients are tested for different or more factors than before the transformation, (2) patients receive different treatments than before the transformation and/or (3) patients’ data obtained through clinical care are used, or used more extensively, for research purposes. Based on an analysis of the aforementioned mechanisms and how these potentially affect patients, we analyze why learning healthcare systems in precision medicine need a different ethical approach and discuss crucial points to consider regarding this approach.


Sign in / Sign up

Export Citation Format

Share Document