What Is Wrong with My Child? Narcolepsy and Its Emotional Burden on Parents

2021 ◽  
pp. 81-86
Author(s):  
Anna Wani ◽  
Rachel Rosen ◽  
S. Kamal Naqvi
Keyword(s):  
Emotional Burden

Retóricas, metáforas y su papel en el cambio organizacional

Oikos ◽  
2014 ◽  
Vol 16 (33) ◽  
pp. 69
Author(s):  
Luis Muñoz Medina ◽  
Rafael Pizarro Rodríguez
Keyword(s):  
Scientific Literature ◽  
Organisational Change ◽  
Change Processes ◽  
Emotional Burden ◽  
New Approaches ◽  
Palabras Clave ◽  
The Creation ◽  
Change Concept

The Role of Rhetoric and Metaphors in Organisational Change  RESUMEN El presente artículo es una recopilación de literatura científica que demuestra la relevancia de comprender nuevas formas de construir el concepto de cambio organizacional a través del lenguaje, en especial a través de claves lingüísticas como la retórica y metáfora. Esta construcción ayuda a generar procesos de cambio organizacional que presenten una menor intensidad y carga emocional negativa para los individuos, así como una mejor comprensión del mismo cambio para los empleados. Palabras clave: cambio, organización, retórica, metáfora. ABSTRACT This article is a compilation of scientific literature about the importance of understanding new approaches to the construction of the organisational change concept through language, especially through linguistic devices such as rhetorical and metaphorical ones. This construction helps the creation of organisational change processes with lower levels of impact and a lower negative emotional burden for individuals as well as a better understanding of such changesKeywords: changes; organisation; rhetoric; metaphor. 

scholarly journals A World Through Glass: A Narrative Around the Family Experiences During the Confinement of COVID-19

2021 ◽  
pp. 0192513X2110249
Author(s):  
Gustavo González-Calvo ◽  
Marta Arias-Carballal
Keyword(s):  
School Children ◽  
Health Crisis ◽  
Family Experiences ◽  
Emotional Burden ◽  
Outdoor Activities ◽  
The Family ◽  
The World ◽  
Narrative Methodology

COVID-19 was declared a pandemic in March 2020, and the world has witnessed significant changes since then. Spain has been forced to go into extreme lockdown, cancelling all school classes and outdoor activities for children. Our study explores how parents of a group of school children aged 7 to 8 years have experienced confinement due to the COVID-19 health crisis. Following a narrative methodology, the results have been organized around a story that takes as a reference the period of confinement for a mother and worker in times of confinement. The conclusions of our study suggest that participants have experienced significant changes in their routines, having faced numerous personal and professional dilemmas in a climate of great emotional burden. This study is the first of its kind in investigating how the COVID-19 pandemic has influenced the ways that children and their families live and its possible implications for their futures.

scholarly journals Ethical climate in a Belgian psychiatric inpatient setting: relation with burnout and engagement in psychiatric nurses

2013 ◽  
Vol 1 (2) ◽  
pp. 443
Author(s):  
Astrid Faelens ◽  
Marleen Claeys ◽  
Bernard Sabbe ◽  
Didier Schrijvers ◽  
Patrick Luyten
Keyword(s):  
Job Satisfaction ◽  
Turnover Intention ◽  
Ethical Climate ◽  
Ethical Issues ◽  
Psychiatric Inpatient ◽  
Psychiatric Nurses ◽  
Inpatient Setting ◽  
Cross Sectional ◽  
Emotional Burden ◽  
The Relationship

Research suggests a relation between the ethical climate – that is, the organisational conditions and practices that affect the way ethical issues with regard to patient care are discussed and decided - and job satisfaction of nurses. Yet no study to date has investigated the relationship between ethical climate and job satisfaction in psychiatric nurses. This study aimed to address this critical gap in our knowledge by investigating the relationships among ethical climate and features of both burnout and engagement based on the Job Demands-Resources Model (JD - R model) in a large cross-sectional study of 265 nurses working in a large psychiatric inpatient hospital in Flanders, Belgium. Correlational and multiple hierarchical regression analyses were used to investigate the relationship between ethical climate, burnout and engagement. In addition, based on the JD-R model, we also investigated whether engagement mediated the relationship between ethical climate on the one hand and job satisfaction and turnover intention on the other and whether ethical climate moderated the relationship between emotional burden and burnout. Results showed that a positive ethical climate was related to lower levels of emotional exhaustion and distancing and higher levels of engagement and job satisfaction. Furthermore, although ethical climate did not buffer against the effects of emotional burden on burnout, higher levels of engagement explained in part the relationship between ethical climate and job satisfaction.

Diabetes-related Distress and Self-care Practices among Patients attending two Secondary Care Hospitals in Lagos - A strategy for tailored Interventions

2019 ◽  
Vol 1 (1) ◽  
pp. 22-29
Author(s):  
E.E. Onwuchuluba ◽  
◽  
B.A. Aina ◽  
C.P. Ngolube ◽  
B.O. Ogbonna ◽  
...  
Keyword(s):  
Glycaemic Control ◽  
Self Care ◽  
Health Care Facilities ◽  
Diabetes Distress ◽  
Cross Sectional ◽  
Emotional Burden ◽  
Targeted Interventions ◽  
Special Diet ◽  
Care Practices ◽  
Distress Scale

Background: The challenges of diabetes mellitus are huge. Keeping up with the daily requirements of a life-long chronic illness is rigorous.Objectives: This study assessed diabetes-related distress and self-care practices and determined the extent to which they impact each other. Methods: This was a cross-sectional descriptive study carried out among patients attending follow-up diabetic clinic of two secondary health care facilities in Lagos over a three-month period. One hundred and seventy-six type 2 diabetes patients that met the inclusion criteria were consecutively recruited.Patients’ diabetes-related distress and self-care practices were assessed using a interviewer-administered questionnaire that incorporated two validated measures - The Diabetes Distress Scale (DDS17) and the Summary of Diabetes Self-care Activities (SDSCA: 11 items). Data were analyzed using descriptive and inferential statistics. P-values of < 0.05 was considered significant. Results: Of the 176 respondents, 70% were females, 73.9% were 51 years and above and 67% had poor glycaemic control (FBS=135.7 ± 47.48mg/dl). The mean score for Total Diabetes Distress (TDD) is 2.89 ± 0.90. Majority (64%) viewed emotional burden (3.30± 1.38) and regimen-related distress (3.35± 1.45) as moderate distress. Dieting was adequate among respondents with “Special diet” being the most frequently practiced (3.58±1.73 days/week). Dieting is associated with total diabetes distress, emotional burden, regimen-related distress and physician-related distress (˂0.001). Regimen-related distress is also associated with glycaemic control (p=0.037). Conclusion: Diabetes distress and low self-care practices are common and impact each other. Targeted interventions incorporating emotional support and effective communication is critical.

O-12 (15:07 to 15:19): The Emotional Burden of Esophageal Atresia

2016 ◽  
Vol 29 (3) ◽  
pp. 288-289
Author(s):  
J.M. Laberge ◽  
R.O.B.E.R Baird ◽  
D.L. Lévesque
Keyword(s):  
Esophageal Atresia ◽  
Emotional Burden

Parents With Advanced Cancer: Worries About Their Children’s Unspoken Concerns

2020 ◽  
pp. 104990912096912
Author(s):  
Mary Ellen Shands ◽  
Frances Marcus Lewis
Keyword(s):  
Content Analysis ◽  
Grounded Theory ◽  
Pilot Study ◽  
Advanced Cancer ◽  
Telephone Intervention ◽  
Incurable Cancer ◽  
Emotional Burden ◽  
Cancer Data ◽  
Study Results ◽  
Parent Concerns

Background: Parents with advanced cancer struggle initiating conversations with their children about the cancer. When parents do not have the tools to talk with their children, they silently watch their children attempt to navigate their illness but can only wonder but not know what their children are thinking. The objective of the current study is to describe, from parents living with advanced cancer, the worries and concerns parents wonder their child holds, but has not spoken, about the parent’s cancer. Methods: Twenty-seven parents with incurable cancer enrolled in a 5 session telephone intervention pilot study during which they were asked, “What questions do you have about what your child is thinking or feeling about the cancer?” Data were transcribed and inductively coded using content analysis methods adapted from grounded theory. Results: Analysis yielded 14 categories of parent concerns organized into 6 larger conceptual domains: Being Concerned and Scared about My Cancer; Worrying about Me; Changing How We Talk and Live Day-to-Day; Not Knowing What Will Happen; Having Unanswered Questions about My Cancer; and Understanding My Disease Is Terminal. Conclusions: Study results add to our understanding of the magnitude of the emotional burden parents with advanced cancer carry as they struggle to balance their diagnosis and treatment and their life as parents.

scholarly journals Psychometric Properties of the Spanish Version of the Caregiver Burden Inventory

2019 ◽  
Vol 16 (2) ◽  
pp. 217 ◽  
Author(s):  
Fernando Vázquez ◽  
Patricia Otero ◽  
Miguel Simón ◽  
Ana Bueno ◽  
Vanessa Blanco
Keyword(s):  
Mental Disorder ◽  
Psychometric Properties ◽  
Caregiver Burden ◽  
Emotional Distress ◽  
Internal Consistency ◽  
Personal Life ◽  
Emotional Burden ◽  
Social Burden ◽  
Physical Burden ◽  
Total Burden

Although the Caregiver Burden Inventory (CBI) is the most widely used multidimensional burden instrument for assessing perceived burden of caregivers, there is no data on its psychometric properties in Spanish, nor on caregivers of dependent persons with various diseases. The objective of this study was to translate the CBI into Spanish and validate it in caregivers of dependent persons with various diseases. Trained evaluators administered the CBI and assessed emotional distress and probable mental disorder in 201 caregivers (87.1% women, mean age 56.2 years). The internal consistency of the CBI was 0.89 (0.74–0.83 among the subscales). There was a significant correlation of emotional distress with both the total burden and each subscale (p < 0.001 in all cases). A total score of 39 and scores of 16, 9, 8, 4, and 2 in burden per time dedicated to care, personal life burden, physical burden, social burden, and emotional burden were suitable cut-off points to discriminate caregivers with probable mental disorder (sensitivity = 63.0%–75.6%, specificity = 63.4%–74.4%). To achieve a greater goodness of fit, the model was re-specified, resulting in a shortened (15-item) instrument. The internal consistency reliability coefficients of the 15-item CBI were satisfactory (Cronbach α = 0.83; 0.77–0.86 among the subscales). Within the 15-item CBI, emotional distress was significantly correlated with the total burden, personal life burden, physical burden, social burden (p < 0.001 in all those cases), and emotional burden (p = 0.001). A total score of 25 and scores of 12, 5, 5, 3, and 1, respectively, in the subscales were identified as cut-off points to discriminate caregivers with probable mental disorder (sensitivity = 46.2%–70.6%, specificity = 43.9%–79.3%). Therefore, the 15-item CBI validly measured caregiver burden with better fit and more parsimoniously than the original CBI.

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