Cancer Information Centers and Systems

1980 ◽  
pp. 156-169
Author(s):  
G. Wagner
Keyword(s):  
Cancer Information

Influences of eHealth literacy on obtaining knowledge about colorectal cancer among Internet users accessing a reputable cancer website (Preprint)

2019 ◽  
Author(s):  
Seigo Mitsutake ◽  
Ai Shibata ◽  
Kaori Ishii ◽  
Rina Miyawaki ◽  
Koichiro Oka
Keyword(s):  
Colorectal Cancer ◽  
Risk Factor ◽  
Health Knowledge ◽  
Information Service ◽  
Internet Survey ◽  
Cancer Center ◽  
Cancer Information ◽  
The Internet ◽  
Ehealth Literacy ◽  
Internet Users

BACKGROUND To develop websites that enhance Internet users’ health knowledge, it is important to identify relevant factors associated with obtaining health knowledge via the Internet. Although an association between eHealth literacy (eHL) and knowledge of colorectal cancer (CRC) has been reported, little is known whether eHL is associated with obtaining knowledge of CRC via the Internet. OBJECTIVE This study aimed to compare the results obtained from Internet users with high or low eHL in searching and using a reputable cancer website to gain CRC knowledge. METHODS This study used respondents to Internet based pre-and post-surveys conducted in 2012. Potential respondents (n = 3,307) were identified from registered individuals aged 40–59 years (n = 461,160) in a Japanese Internet survey company. A total of 1,069 participants responded (response rate: 32.3%), and these pre-survey responders were then divided into high or low eHL groups using the Japanese eHealth Literacy Scale median score (23.5 points). From each group, 130 randomly selected individuals were invited to review the contents of a reputable CRC website, the Cancer Information Service managed by the National Cancer Center, and to respond to a post-survey via e-mail; responses were obtained from 107 individuals from each group. Twenty responses to knowledge statements regarding the definition, risk factors, screening prevention and symptoms of CRC were obtained at pre- and post-surveys, and differences in the correct responses between high and low eHL groups compared using the McNemar test. RESULTS The mean age of the participants was 49.1 (5.5) years. Four statements showed a significant increase in correct responses in both eHL groups pre- and post-survey: “S4. The risk of CRC is greater as a person gets older” (high eHL: P = 0.039, low eHL: P = 0.012), “S8. Cigarette smoking is a risk factor for CRC” (high eHL: P < 0.001, low eHL: P = 0.020), “S11. Obesity is a risk factor for CRC” (high eHL: P = 0.030, low eHL: P = 0.047), and “S12. Excess alcohol consumption is a risk factor for CRC” (high eHL: P = 0.002, low eHL: P = 0.003). Three statements showed a statistically significant increase in correct responses in the high eHL group only: “S1. CRC is cancer of the colon or rectum” (P = 0.003), “S5. The risk of CRC is the same between men and women” (P = 0.041), and “S9. Red meat intake is a risk factor for CRC” (P = 0.002), whereas only one response did in the low eHL group: “S17. Bloody stools are a symptom of CRC” (P = 0.004). CONCLUSIONS Low eHL Internet users appeared less capable of obtaining knowledge of CRC through searching and understanding information from a reputable cancer website than high eHL Internet users.

Barriers to Seeking Cancer Information Among Spanish-Speaking Cancer Survivors

2009 ◽  
Vol 24 (3) ◽  
pp. 167-171 ◽  
Author(s):  
Sharon Watkins Davis ◽  
Marynieves Diaz-Mendez ◽  
Maria Talosig Garcia
Keyword(s):  
Cancer Survivors ◽  
Cancer Information ◽  
Spanish Speaking

scholarly journals Using the Exploratory Sequential Mixed Methods Design to Investigate Dental Patients’ Perceptions and Needs Concerning Oral Cancer Information, Examination, Prevention and Behavior

2021 ◽  
Vol 18 (14) ◽  
pp. 7562
Author(s):  
Mohammed Jafer ◽  
Rik Crutzen ◽  
Abdalla Ibrahim ◽  
Ibtisam Moafa ◽  
Haitham Zaylaee ◽  
...  
Keyword(s):  
Risk Factors ◽  
Mixed Methods ◽  
Oral Cancer ◽  
Cancer Information ◽  
Mixed Methods Design ◽  
Dental Patients ◽  
Sequential Mixed Methods ◽  
Dental Practitioners ◽  
And Behavior ◽  
Oral Cancer Examinations

Objectives: The objective of this study was to investigate dental patients’ behavior, thoughts, opinions and needs for oral cancer information, and dentists’ behavior regarding prevention and examination of oral cancer. Materials and Methods: This study utilized an exploratory sequential mixed methods design. Semi-structured interviews with open-ended questions were conducted for forty dental patients of both sexes. Based on the qualitative analysis, a structured questionnaire was developed and distributed among the participants. Data were analyzed for 315 participants to quantify their thoughts, needs, behavior and behavior expected from dentists regarding oral cancer. Frequency, percentages and cumulative percentages were calculated. Results: This study reveals that patients’ oral cancer knowledge levels were adequate, but most reported that their dentist had never examined them for oral cancer. Additionally, the participants had never performed self-examinations for oral cancer, nor were they aware of the possibility of doing so. Participants showed a preference for being examined and educated by their dentist about oral cancer and believed it would help early detection. Conclusions: The study participants are aware of oral cancer and its risk factors. The practice of oral cancer examinations and patient education of its risk factors by dental practitioners is limited. Patients feel a need for more attention to be paid to oral cancer examinations, preventive measures and targeted information on oral cancer risk factors.

scholarly journals Assessing Knowledge and Perceptions About Cancer Among American Indians of the Zuni Pueblo, NM

2021 ◽  
Author(s):  
Safia Safi ◽  
Donica Ghahate ◽  
Jeanette Bobelu ◽  
Andrew L. Sussman ◽  
Joseph Rodman ◽  
...  
Keyword(s):  
Cancer Screening ◽  
Focus Group ◽  
Cancer Risk ◽  
Focus Groups ◽  
Community Health ◽  
American Indians ◽  
Cultural Context ◽  
Cultural Beliefs ◽  
Cancer Information ◽  
Zuni Pueblo

AbstractAmerican Indians (AIs) in New Mexico have lower cancer screening rates compared to other populations and are more likely to be diagnosed with cancer at an advanced stage of the disease as reported by Li et al. (Archives of Internal Medicine 163(1):49–56, 2003). AIs also have the lowest 5-year cancer survival rates compared to any ethnic/racial group in the USA as reported by Clegg et al. (Arch Intern Med 162:1985–1993, 2002) and Edwards et al. (Cancer 97:1407–1427, 2005). Numerous barriers such as cultural beliefs, fear, fatalism, mistrust, stigma, and lack of culturally appropriate interventions could contribute to low cancer screening rates as reported by Daley et al. (J Health Dispar Res Pract 5(2), 2012); Filippi et al. (J Prim Care Community Health 4(3):160–166, 2013); James et al. (Prev Chronic Dis 10:E170, 2013); and Schumacher et al. (Cancer Causes Control 19(7):725–737, 2008). Trained Community Health Representatives (CHRs) from the Zuni Pueblo and native Zuni undergraduate students led six 1-h focus group sessions using a structured focus group guide with probes. The focus groups were conducted among 51 participants from different age groups (20–29 years, n = 19; 30–49 years, n = 17; and 50 years and older, n = 15) stratified by sex. Focus groups were conducted in both English and Shiwi (Zuni) languages. Sessions were audio recorded, and team members took notes. CHRs transcribed the notes and audio recordings, and created a codebook for qualitative data analysis. In the focus groups, participants provided Zuni-specific cultural context, opinion, and experience regarding (1) general knowledge about cancer, (2) cancer risk, (3) cancer risk reduction, (4) personal experiences with cancer, and (5) culturally competent delivery of cancer information and resources. Understanding the perceptions of cancer within the Zuni Pueblo is an essential component in the development of interventional/preventative measures and improvement of current care. Ultimately, this information will provide a basis for the next steps in culturally sensitive cancer care for the Zuni Pueblo.

scholarly journals Population-Based Estimates of the Age-Specific Cumulative Risk of Breast Cancer for Pathogenic Variants in CHEK2: Findings from the Australian Breast Cancer Family Registry

Cancers ◽  
2021 ◽  
Vol 13 (6) ◽  
pp. 1378
Author(s):  
Tú Nguyen-Dumont ◽  
James G. Dowty ◽  
Jason A. Steen ◽  
Anne-Laure Renault ◽  
Fleur Hammet ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cumulative Risk ◽  
Population Based ◽  
Case Control ◽  
Cancer Information ◽  
Case Control Studies ◽  
Breast Cancer Family ◽  
Pathogenic Variants ◽  
Increased Risk ◽  
Control Family

Case-control studies of breast cancer have consistently shown that pathogenic variants in CHEK2 are associated with about a 3-fold increased risk of breast cancer. Information about the recurrent protein-truncating variant CHEK2 c.1100delC dominates this estimate. There have been no formal estimates of age-specific cumulative risk of breast cancer for all CHEK2 pathogenic (including likely pathogenic) variants combined. We conducted a population-based case-control-family study of pathogenic CHEK2 variants (26 families, 1071 relatives) and estimated the age-specific cumulative risk of breast cancer using segregation analysis. The estimated hazard ratio for carriers of pathogenic CHEK2 variants (combined) was 4.9 (95% CI 2.5–9.5) relative to non-carriers. The HR for carriers of the CHEK2 c.1100delC variant was estimated to be 3.5 (95% CI 1.02–11.6) and the HR for carriers of all other CHEK2 variants combined was estimated to be 5.7 (95% CI 2.5–12.9). The age-specific cumulative risk of breast cancer was estimated to be 18% (95% CI 11–30%) and 33% (95% CI 21–48%) to age 60 and 80 years, respectively. These findings provide important information for the clinical management of breast cancer risk for women carrying pathogenic variants in CHEK2.

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