Quality of life in psychiatry: a systematic contribution to construct validation and the development of the integrative assessment tool "modular system for quality of life"

Abstract Background Bone metastasis (BM) is the most common site of disease in metastatic breast cancer (MBC) patients. BM impacts health-related quality of life (HRQoL). We tested prospectively the psychometric properties of the Bone Metastasis Quality of Life (BOMET-QoL-10) measure on MBC patients with BM. Methods Patients completed the BOMET-QoL-10 questionnaire, the Visual Analogue Scale (VAS) for pain, and a self-perceived health status item at baseline and at follow-up visits. We performed psychometric tests and calculated the effect size of specific BM treatment on patients´ HRQoL. Results Almost 70% of the 172 patients reported symptoms, 23.3% experienced irruptive pain, and over half were receiving chemotherapy. BOMET-QoL-10 proved to be a quick assessment tool performing well in readability and completion time (about 10 min) with 0–1.2% of missing/invalid data. Although BOMET-QoL-10 scores remained fairly stable during study visits, differences were observed for patient subgroups (e.g., with or without skeletal-related events or adverse effects). Scores were significantly correlated with physician-reported patient status, patient-reported pain, symptoms, and perceived health status. BOMET-QoL-10 scores also varied prospectively according to changes in pain intensity. Conclusions BOMET-QoL-10 performed well as a brief, easy-to-administer, useful, and sensitive HRQoL measure for potential use for clinical practice with MBC patients. Trial registration NCT03847220. Retrospectively registered on clinicaltrials.gov (February the 20th 2019).

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The Keloid Intervention Benefit Inventory 21: A New Assessment Tool for the Quality of Life of Patients with Auricular Keloids

Facial Plastic Surgery ◽

10.1055/s-0041-1722913 ◽

2021 ◽

Author(s):

Daniel Häussler ◽

Stefanie Hüttemann ◽

Christel Weiß ◽

Nicole Karoline Rotter ◽

Haneen Sadick

Keyword(s):

Quality Of Life ◽

Internal Consistency ◽

Social Impact ◽

Assessment Tool ◽

Clinical Symptoms ◽

Physical Symptoms ◽

Medical Intervention ◽

Medical Interventions ◽

Before And After

Abstract Purpose The assessment of the quality of life (QoL) of patients with chronic diseases before and after medical interventions has gained increasing importance in recent decades. Particularly for patients with visible keloid scars in the head and neck region, standardized measurement tools are either absent or have been shown to be insufficient. The aim of the present study was to create a new standardized questionnaire that is specific to auricular keloid patients and reflects their clinical symptoms and QoL. Methods The Keloid Intervention Benefit Inventory 21 (KIBI-21) questionnaire was developed in two stages. First, a group of experts identified a pool of 26 questions and modified and supplemented the items through a comparison with existing QoL assessments so that they related to keloid-specific clinical symptoms and the QoL of patients with auricular keloids before and after a medical intervention. This questionnaire was distributed to 27 outpatients who had undergone medical interventions for visible auricular keloids. Second, a sequential statistical analysis was conducted. This included a single-item assessment and reduction, analysis for internal consistency, construct validity, and divergence validity as well as a factor analysis. The analyses were performed for the entire questionnaire and for the items in the subcategories General Health, Physical Symptoms, Self-Esteem, and Social Impact. Results The final version of this newly validated and standardized KIBI questionnaire consisted of 21 items, of which each item was assigned to only one subscale. The questionnaire showed a Cronbach's α of 0.84 with a good internal consistency. In the item correlation validity, strong associations were found in all subscales, except for the Social Impact Subscale. Conclusion The keloid-specific QoL questionnaire KIBI-21 proved to be a reliable and reproducible instrument to assess the QoL and clinical symptoms in patients suffering from auricular keloids before and after a medical treatment.

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Development and construct validation of a parent-proxy quality of life instrument in children with bronchopulmonary dysplasia aged 4–8 years old

Quality of Life Research ◽

10.1007/s11136-018-2029-7 ◽

2018 ◽

Vol 28 (2) ◽

pp. 523-533 ◽

Cited By ~ 2

Author(s):

Lysbert Meijer-Schaap ◽

Anthony E. J. Dubois ◽

Boudewijn J. Kollen ◽

Jet Tijmens-van der Hulst ◽

Bertine M. J. Flokstra-de Blok ◽

...

Keyword(s):

Quality Of Life ◽

Bronchopulmonary Dysplasia ◽

Construct Validation ◽

Life Instrument ◽

Parent Proxy

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Construct Validation of Quality of Life for the Severely Mentally Ill

Journal of Methods and Measurement in the Social Sciences ◽

10.2458/azu_jmmss.v1i2.101 ◽

2011 ◽

Vol 6 (1) ◽

Author(s):

Gwendolyn Watkins Johnson ◽

Aurelio José Figueredo ◽

Richard R. Bootzin ◽

Michael R. Berren ◽

Lee H. Sechrest

Keyword(s):

Quality Of Life ◽

Mentally Ill ◽

Construct Validation ◽

Severely Mentally Ill

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Multiple children in the context of an analysis of the quality of life, satisfaction and further procreative plans of women - cross-sectional study

Kwartalnik Naukowy Fides et Ratio ◽

10.34766/fetr.v47i3.929 ◽

2021 ◽

Vol 47 (3) ◽

pp. 60-71

Author(s):

Grażyna Bączek ◽

Monika Szyszka ◽

Sylwia Rychlewicz

Keyword(s):

Quality Of Life ◽

Life Satisfaction ◽

Religious Beliefs ◽

Assessment Tool ◽

Cross Sectional Study ◽

Multiple Choice Questions ◽

Satisfaction Scale ◽

Cross Sectional ◽

Huge Impact

Introduction: The definition of motherhood is manifold. The responsibilities of motherhood should be considered biologically, psychologically and socially. Conscious motherhood is characterized amongst others by the responsibility of parents for procreative decisions, care for the health, development and safety of the child. In Poland, the model of a woman as mother, who dedicates her life to birthing and raising her offspring, dominates. This has a huge impact on the future functioning of the offspring as citizens of Poland. Materials and method: Study was conducted through a diagnostic survey in a group of 365 women (284 of which are mothers of three or more children, the remaining 81 being mothers of one child). A self-developed survey containing 29 multiple choice questions with a single correct response as well as a standardized assessment tool SWLS- Life Satisfaction Scale E. Diener, R.A. Emmons, R.J. Larson, S. Griffin (adaptation: Z. Juczyński) were used as a research tool. Results: The vast majority of respondents are satisfied with their role as mother (97.1%). Many of the women do not plan to have more children (44.1%). In the respondents' opinion, childbirth is a social privilege of a woman (p<0.05). Mothers of more than one child have definitively declared that having multiple children does not decrease the quality of life of women, is a source of life satisfaction, aids in the fulfillment of societal roles and does not impede professional development (p<0.05). A constant partner, religious beliefs and relations with other women having more than two children are important factors for respondents when deciding to expand their family (p<0.05). Women who have given birth to three or more children have greater life satisfaction as compared to mothers of a single child (p<0.05). Conclusion: Women are happy to be mothers. Motherhood is not a factor hindering their social and private functioning. Women's procreative decisions are influenced by fixed income, formal relationships and religious beliefs. Mothers of large families have greater life satisfaction in comparison to mothers of one child who do not desire more children.

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Determination of the Influence of Peripheral Neuropathy Symptoms on Quality of Life in Breast Cancer Patients Receiving Paclitaxel: Prospective Cross Sectional Study With Four Follow-ups

10.21203/rs.3.rs-984164/v1 ◽

2021 ◽

Author(s):

BERNA KURT ◽

ZEYNEP SİPAHİ KARSLI ◽

BERNA ÖMÜR ÇAKMAK ÖKSÜZOĞLU ◽

EMİNE ÖZTÜRK ◽

NESLİHAN DEMİRÖRS ◽

...

Keyword(s):

Breast Cancer ◽

Quality Of Life ◽

Peripheral Neuropathy ◽

Assessment Tool ◽

Life Questionnaire ◽

Breast Cancer Patients ◽

Cross Sectional ◽

Quality Of Life Questionnaire

Abstract Background The objective of this study is to evaluate the impact of peripheral neuropathy on the quality of life of breast cancer patients throughout with monthly follow-up during 4 months of paclitaxel treatment.Material and methods The research was conducted with a prospective cross sectional with four follow-ups descriptive design. The study population consisted of female patients with breast cancer at Ankara Oncology Training and Research Hospital between August 2018 and January 2019. Data were collected the ‘’Patient Information Form’’,‘’EORTC C30 Cancer Quality Of Life Questionnaire’’ and ‘’Chemotherapy-Induced Peripheral Neuropathy Assessment Tool’’. The study was undertaken in accordance with the STROBE checklist for cross-sectional studies. Results Of 79 patients included in the Chemotherapy-Induced Peripheral Neuropathy Assessment Tool except for the general activity subdimension were statistically significant in the ratings of 2nd, compared to 1st; 3rd compared to 1st and 2nd; 4th compared to 1st, 2nd, and 3rd follow-up periods. The overall mean of EORTC C30 Cancer Quality of Life Questionnaire, functional subdimension, symptom severity, and general well-being in the evaluations of 2nd, compared with 1st; 3rd compared with 1st and 2nd; 4th compared with 1st, 2nd, and 3rd follow-up periods it was found that the mean values of symptom that decreased gradually were statistically significant.Conclusion The neuropathy scale was found to be higher in 2nd, 3rd, 4th follow-up periods than in 1st follow-up. Also, EORTC C30 Cancer QLQ subdimensions were high initially but gradually decreased after the fourth cycle. Thus, it was found that the increase in neuropathy symptoms negatively affects the quality of life.

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Assessing Urban Quality of Life: Developing the Criteria for Saudi Cities

Frontiers in Built Environment ◽

10.3389/fbuil.2021.682391 ◽

2021 ◽

Vol 7 ◽

Author(s):

Jamal Al-Qawasmi ◽

Muhammad Saeed ◽

Omar S. Asfour ◽

Adel S. Aldosary

Keyword(s):

Quality Of Life ◽

Assessment Tool ◽

Group Analysis ◽

Urban Life ◽

Assessment Tools ◽

Urban Quality Of Life ◽

Wide Range ◽

Depth Analysis ◽

Urban Quality

Urban quality of life (QOL) is a complex and multidimensional concept. A wide range of urban QOL assessment tools has been developed worldwide to measure and monitor the quality of urban life taking into account the particular conditions of cities/regions and the needs of their residents. This study aims to develop an urban QOL assessment tool appropriate for the context of Saudi Arabia (SA). For this purpose, this study developed and used a structured approach that consists of an in-depth analysis of 21 urban QOL assessment tools in use worldwide, combined with focus group analysis and feedback from a panel of experts. The results revealed that there is a lack of consensus among the existing tools regarding the usage of QOL indicators and domains, and that the majority of the tools demonstrate a lack of proper coverage of QOL subdomains. The results also show wide variations in the number of indicators used and that most of the examined tools are using objective measurable indicators. This study has identified 67 indicators distributed across 13 domains that constitute the core criteria of the proposed QOL assessment tool. The selected indicators and domains cover all the attributes of urban QOL and are evaluated by experts as important criteria to assess/measure QOL. Moreover, the results demonstrate the advantage of the developed framework and comprehensive list of criteria (CLC) as a structured and efficient approach to design better QOL assessment tools.

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Measuring quality of life of people with predementia and dementia and their caregivers: a systematic review protocol

BMJ Open ◽

10.1136/bmjopen-2017-019082 ◽

2018 ◽

Vol 8 (3) ◽

pp. e019082 ◽

Cited By ~ 7

Author(s):

Filipa Landeiro ◽

Katie Walsh ◽

Isaac Ghinai ◽

Seher Mughal ◽

Elsbeth Nye ◽

...

Keyword(s):

Quality Of Life ◽

Literature Review ◽

Systematic Literature Review ◽

Assessment Tool ◽

Public Health Practice ◽

Data Access ◽

Cochrane Central Register ◽

Full Spectrum ◽

People With Dementia

IntroductionDementia is the fastest growing major cause of disability globally and may have a profound impact on the health-related quality of life (HRQoL) of both the patient with dementia and those who care for them. This review aims to systematically identify and synthesise the measurements of HRQoL for people with, and their caregivers across the full spectrum of, dementia from its preceding stage of predementia to end of life.Methods and analysisA systematic literature review was conducted in Medical Literature Analysis and Retrieval System Online , ExcerptaMedicadataBASE, Cochrane Database of Systematic Reviews , Cochrane Central Register of Controlled Trials, Database of Abstracts of Reviews of Effect, National Health Service Economic Evaluation Database and PsycINFO between January 1990 and the end of April 2017. Two reviewers will independently assess each study for inclusion and disagreements will be resolved by a third reviewer. Data will be extracted using a predefined data extraction form following best practice. Study quality will be assessed with the Effective Public Health Practice Project quality assessment tool. HRQoL measurements will be presented separately for people with dementia and caregivers by instrument used and, when possible, HRQoL will be reported by disease type and stage of the disease. Descriptive statistics of the results will be provided. A narrative synthesis of studies will also be provided discussing differences in HRQoL measurements by instrument used to estimate it, type of dementia and disease severity.Ethics and disseminationThis systematic literature review is exempt from ethics approval because the work is carried out on published documents. The findings of the review will be disseminated in a related peer-reviewed journal and presented at conferences. They will also contribute to the work developed in the Real World Outcomes across the Alzheimer’s disease spectrum for better care: multimodal data access platform (ROADMAP).Trial registration numberCRD42017071416.

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Tele-Treatment Application Design for Disable Patients with Wireless Sensors

Applied Sciences ◽

10.3390/app10031142 ◽

2020 ◽

Vol 10 (3) ◽

pp. 1142

Author(s):

Alberto Arteta Albert ◽

Luis Fernando de Mingo López ◽

Nuria Gómez Blas

Keyword(s):

Quality Of Life ◽

Wireless Sensors ◽

Modular System ◽

Health Administration ◽

Educational Training ◽

Intelligent Monitoring ◽

Single Solution ◽

Virtual Interaction ◽

Treatment Application

This paper consists of the development of a system to help patients with different disabilities, affected by rare or chronic diseases or any kind of dependence through tele assistance, virtual interaction and intelligent monitoring. The main goal is to increase the quality of life of the minorities who cannot take full advantage of the healthcare system by providing an alternative way of monitoring them with the technology embedded in this paper. The result of the paper is not intended to be a single solution, but a modular system that allows the construction of an application that is able to measure the needs of a health administration and the patients. The paper also pursues an educational training to the facultative trainees in a new way to approach patient treatments. It can improve the quality of life of the patients by saving them time and other resources in moving to the Health center and the professionals can also save time as they can take advantage of the online treatments by using the proposed system.

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