scholarly journals This is what life with cancer looks like: exploring experiences of adolescent and young adults with cancer using two visual approaches

2022 ◽  
Author(s):  
Zarah M. Bood ◽  
Floor van Liemt ◽  
Mirjam A. G. Sprangers ◽  
Annita Kobes ◽  
Yvonne Weeseman ◽  
...  
Keyword(s):  
Young Adults ◽  
Negative Impact ◽  
Illness Experience ◽  
Self Image ◽  
The Future ◽  
Open Coding ◽  
Adolescent And Young Adults ◽  
Education And Employment ◽  
Living With Cancer ◽  
Cancer Experience

Abstract Introduction Talking about illness experience can be challenging for adolescents and young adults (AYAs) with cancer. Visual tools, in addition to spoken language, might make this easier, such as rich pictures and photovoice. We aimed to obtain a comprehensive view of the cancer experience of AYAs by using rich pictures and photovoice. Methods AYAs (18–35 years old) who had any type of cancer, or were in remission from cancer, were eligible. AYAs drew rich pictures about their experience of living with cancer and explained these during subsequent interviews. Some of the AYAs also participated in photovoice and spent two days with a photographer to make photos about their illness experience. Rich pictures and photos were first analyzed separately, using open coding, after which the identified themes were compared. Results Twelve AYAs made rich pictures (RPs), of whom seven also participated in photovoice. The two most predominant themes emerging from the data were struggles related to the future and defining one’s identity. The AYAs expressed concerns for the future related to relationships, education, and employment. Relating to defining one’s identity, many AYAs expressed that the cancer had a negative impact on their body- and self-image. The main themes were visible in the RPs as well as in the photovoice; however, subtle differences in sub-themes were found. Conclusions We found that cancer has an effect on many aspects of AYAs’ lives. Further research on how the identified themes play a role in the lives of AYAs with cancer is needed.

scholarly journals Generalized Joint Hypermobility and Anxiety in Adolescents and Young Adults, the Impact on Physical and Psychosocial Functioning

Healthcare ◽  
2021 ◽  
Vol 9 (5) ◽  
pp. 525
Author(s):  
Janneke de Vries ◽  
Jeanine Verbunt ◽  
Janine Stubbe ◽  
Bart Visser ◽  
Stephan Ramaekers ◽  
...  
Keyword(s):  
Young Adults ◽  
Psychosocial Functioning ◽  
Negative Impact ◽  
Pain Catastrophizing ◽  
Joint Hypermobility ◽  
Adolescents And Young Adults ◽  
P Value ◽  
High Performing ◽  
Generalized Joint Hypermobility ◽  
The Impact

The purpose of this study was to study the association between the presence of generalized joint hypermobility (GJH) and anxiety within a non-clinical high performing group of adolescents and young adults. Second, to study the impact of GJH and/or anxiety on physical and psychosocial functioning, 168 adolescents and young adults (mean (SD) age 20 (2.9)) were screened. Joint (hyper)mobility, anxiety, and physical and psychosocial functioning were measured. In 48.8% of all high performing adolescents and young adults, GJH was present, whereas 60% had symptoms of anxiety. Linear models controlled for confounders showed that adolescents and young adults with GJH and anxiety had decreased workload (ß (95%CI) −0.43 (−0.8 to −0.08), p-value 0.02), increased fatigue (ß (95%CI) 12.97 (6.3–19.5), p-value < 0.01), and a higher level of pain catastrophizing (ß (95%CI) 4.5 (0.5–8.6), p-value 0.03). Adolescents and young adults with only anxiety had increased fatigue (ß (95%CI) 11 (4.9–19.5). In adolescents and young adults with GJH alone, no impact on physical and psychosocial functioning was found. Adolescents and young adults with the combination of GJH and anxiety were significantly more impaired, showing decreased physical and psychosocial functioning with decreased workload, increased fatigue, and pain catastrophizing. Presence of GJH alone had no negative impact on physical and psychosocial functioning. This study confirms the association between GJH and anxiety, but especially emphasizes the disabling role of anxiety. Screening for anxiety is relevant in adolescents and young adults with GJH and might influence tailored interventions.

scholarly journals Risk factors and mechanisms of stroke in young adults: The FUTURE study

2017 ◽  
Vol 38 (9) ◽  
pp. 1631-1641 ◽  
Author(s):  
Mayte E van Alebeek ◽  
Renate M Arntz ◽  
Merel S Ekker ◽  
Nathalie E Synhaeve ◽  
Noortje AMM Maaijwee ◽  
...  
Keyword(s):  
Risk Factors ◽  
Young Adults ◽  
Future Study ◽  
The Elderly ◽  
Classification Systems ◽  
Unknown Etiology ◽  
Stroke Patients ◽  
Young Stroke ◽  
Starting Point ◽  
The Future

Incidence of ischemic stroke and transient ischemic attack in young adults is rising. However, etiology remains unknown in 30–40% of these patients when current classification systems designed for the elderly are used. Our aim was to identify risk factors according to a pediatric approach, which might lead to both better identification of risk factors and provide a stepping stone for the understanding of disease mechanism, particularly in patients currently classified as “unknown etiology”. Risk factors of 656 young stroke patients (aged 18–50) of the FUTURE study were categorized according to the “International Pediatric Stroke Study” (IPSS), with stratification on gender, age and stroke of “unknown etiology”. Categorization of risk factors into ≥1 IPSS category was possible in 94% of young stroke patients. Chronic systemic conditions were more present in patients aged <35 compared to patients ≥35 (32.6% vs. 15.6%, p < 0.05). Among 226 patients classified as “stroke of unknown etiology” using TOAST, we found risk factors in 199 patients (88%) with the IPSS approach. We identified multiple risk factors linked to other mechanisms of stroke in the young than in the elderly . This can be a valuable starting point to develop an etiologic classification system specifically designed for young stroke patients.

Redisign of the Air Traffic Control System-Moving People through Distributed Management

1978 ◽  
Vol 22 (1) ◽  
pp. 485-485
Author(s):  
John G. Kreifeldt
Keyword(s):  
Decision Making ◽  
Control System ◽  
Traffic Control ◽  
Air Traffic Control ◽  
Negative Impact ◽  
Air Traffic ◽  
Critical Function ◽  
Congressional Hearings ◽  
The Future ◽  
Traffic Control System

The present national Air Traffic Control system is a ground-centralized, man intensive system which through design allows relatively little meaningful pilot participation in decision making. The negative impact of this existing design can be measured in delays, dollars and lives. The FAA's design plans for the future ATC system will result in an even more intensive ground-centralized system with even further reduction of pilot decision making participation. In addition, controllers will also be removed from on-line decision making through anticipated automation of some or all of this critical function. Recent congressional hearings indicate that neither pilots nor controllers are happy or sanguine regarding the FAA's design for the future ATC system.

Final Report of the FOPE II Pediatric Generalists of the Future Workgroup

PEDIATRICS ◽  
2000 ◽  
Vol 106 (Supplement_E1) ◽  
pp. 1199-1223 ◽  
Author(s):  
Laurel Leslie ◽  
Peter Rappo ◽  
Herbert Abelson ◽  
Renee R. Jenkins ◽  
Sydney R. Sewall ◽  
...  
Keyword(s):  
Young Adults ◽  
21St Century ◽  
Task Force ◽  
Care Delivery ◽  
Health Needs ◽  
Adolescents And Young Adults ◽  
Final Report ◽  
Pediatric Practice ◽  
Pediatric Education ◽  
The Future

The Future of Pediatric Education II (FOPE II) Project was a 3-year, grant-funded initiative, which continued the work begun by the 1978 Task Force on the Future of Pediatric Education. Its primary goal was to proactively provide direction for pediatric education for the 21st century. To achieve this goal, 5 topic-specific workgroups were formed: 1) the Pediatric Generalists of the Future Workgroup, 2) the Pediatric Specialists of the Future Workgroup, 3) the Pediatric Workforce Workgroup, 4) the Financing of Pediatric Education Workgroup, and 5) the Education of the Pediatrician Workgroup. The FOPE II Final Report was recently published as a supplement toPediatrics (The Future of Pediatric Education II: organizing pediatric education to meet the needs of infants, children, adolescents, and young adults in the 21st century.Pediatrics. 2000;105(suppl):161–212). It is also available on the project web site at: www.aap.org/profed/fope1.htm This report reflects the deliberations and recommendations of the Pediatric Generalists of the Future Workgroup of the Task Force on FOPE II. The report looks at 5 factors that have led to changes in child health needs and pediatric practice over the last 2 decades. The report then presents a vision for the role and scope of the pediatrician of the future and the core attributes, skills, and competencies pediatricians caring for infants, children, adolescents, and young adults will need in the 21st century. Pediatrics 2000;106(suppl):1199–1223;pediatrics, medical education, children, adolescents, health care delivery.

Challenges of Clinical Management of Adolescent and Young Adults With Bone and Soft Tissue Sarcoma

2018 ◽  
Vol 24 (6) ◽  
pp. 301-306 ◽  
Author(s):  
Andrea Ferrari ◽  
Patrizia Gasparini ◽  
Jonathan Gill ◽  
Richard Gorlick
Keyword(s):  
Young Adults ◽  
Soft Tissue ◽  
Soft Tissue Sarcoma ◽  
Clinical Management ◽  
Adolescent And Young Adults
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