scholarly journals 403: Impact of quality of race and ethnicity data in the assessment of maternal health disparities

2020 ◽  
Vol 222 (1) ◽  
pp. S266
Author(s):  
Fernanda C. da Graca Polubriaginof ◽  
Julie Ewing ◽  
Silis Jiang ◽  
Kelly Fitzgerald ◽  
Dena Goffman
Cureus ◽  
2022 ◽  
Author(s):  
Ruben D Vega Perez ◽  
Lyndia Hayden ◽  
Jefri Mesa ◽  
Nina Bickell ◽  
Pamela Abner ◽  
...  

2019 ◽  
Vol 26 (8-9) ◽  
pp. 730-736 ◽  
Author(s):  
Fernanda C G Polubriaginof ◽  
Patrick Ryan ◽  
Hojjat Salmasian ◽  
Andrea Wells Shapiro ◽  
Adler Perotte ◽  
...  

Abstract Objective We sought to assess the quality of race and ethnicity information in observational health databases, including electronic health records (EHRs), and to propose patient self-recording as an improvement strategy. Materials and Methods We assessed completeness of race and ethnicity information in large observational health databases in the United States (Healthcare Cost and Utilization Project and Optum Labs), and at a single healthcare system in New York City serving a racially and ethnically diverse population. We compared race and ethnicity data collected via administrative processes with data recorded directly by respondents via paper surveys (National Health and Nutrition Examination Survey and Hospital Consumer Assessment of Healthcare Providers and Systems). Respondent-recorded data were considered the gold standard for the collection of race and ethnicity information. Results Among the 160 million patients from the Healthcare Cost and Utilization Project and Optum Labs datasets, race or ethnicity was unknown for 25%. Among the 2.4 million patients in the single New York City healthcare system’s EHR, race or ethnicity was unknown for 57%. However, when patients directly recorded their race and ethnicity, 86% provided clinically meaningful information, and 66% of patients reported information that was discrepant with the EHR. Discussion Race and ethnicity data are critical to support precision medicine initiatives and to determine healthcare disparities; however, the quality of this information in observational databases is concerning. Patient self-recording through the use of patient-facing tools can substantially increase the quality of the information while engaging patients in their health. Conclusions Patient self-recording may improve the completeness of race and ethnicity information.


2020 ◽  
Vol 41 (1) ◽  
Author(s):  
Adweeti Nepal ◽  
Santa Kumar Dangol ◽  
Anke van der Kwaak

Abstract Background The persistent quality gap in maternal health services in Nepal has resulted in poor maternal health outcomes. Accordingly, the Government of Nepal (GoN) has placed emphasis on responsive and accountable maternal health services and initiated social accountability interventions as a strategical approach simultaneously. This review critically explores the social accountability interventions in maternal health services in Nepal and its outcomes by analyzing existing evidence to contribute to the informed policy formulation process. Methods A literature review and desk study undertaken between December 2018 and May 2019. An adapted framework of social accountability by Lodenstein et al. was used for critical analysis of the existing literature between January 2000 and May 2019 from Nepal and other low-and-middle-income countries (LMICs) that have similar operational context to Nepal. The literature was searched and extracted from database such as PubMed and ScienceDirect, and web search engines such as Google Scholar using defined keywords. Results The study found various social accountability interventions that have been initiated by GoN and external development partners in maternal health services in Nepal. Evidence from Nepal and other LMICs showed that the social accountability interventions improved the quality of maternal health services by improving health system responsiveness, enhancing community ownership, addressing inequalities and enabling the community to influence the policy decision-making process. Strong gender norms, caste-hierarchy system, socio-political and economic context and weak enforceability mechanism in the health system are found to be the major contextual factors influencing community engagement in social accountability interventions in Nepal. Conclusions Social accountability interventions have potential to improve the quality of maternal health services in Nepal. The critical factor for successful outcomes in maternal health services is quality implementation of interventions. Similarly, continuous effort is needed from policymakers to strengthen monitoring and regulatory mechanism of the health system and decentralization process, to improve access to the information and to establish proper complaints and feedback system from the community to ensure the effectiveness and sustainability of the interventions. Furthermore, more study needs to be conducted to evaluate the impact of the existing social accountability interventions in improving maternal health services in Nepal.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Laura Tucker ◽  
Alan Cuevas Villagomez ◽  
Tamar Krishnamurti

Abstract Background The United States is currently facing a maternal morbidity and mortality crisis, with the highest rates of any resource-rich nation. In efforts to address this, new guidelines for postpartum care suggest that mobile health (mHealth) apps can help provide complementary clinical support for new mothers during the postpartum period. However, to date no study has evaluated the quality of existing mHealth tools targeted to this time period in terms of sufficiency of maternal health information, inclusivity of people of color, and app usability. Methods Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) standards were used to review the peripartum apps from the Apple and Google Play stores in either the Health/Fitness, Medical, or Education categories. Apps were evaluated for extent and quality of maternal health information and inclusivity of people of color using an a priori coding scheme. App usability was evaluated using the Mobile Application Rating Scale (MARS) score. Results Of the 301 apps from the Apple and Google Play stores, 25 met criteria for final evaluation. Of the 30 maternal health topics coded for, the median number addressed by apps was 19.5 (65%). Peripartum behaviors were more frequently addressed than peripartum outpatient care topics and peripartum acute health risks. The coverage of maternal health information and inclusivity of people of color in app imagery both correlated positively with the MARS usability score of the app. Only 8 apps (32%) portrayed greater than 24% images of people of color- the percent of non-white Americans according to 2019 census estimates. There was no correlation between MARS usability score and number of app users, as estimated by number of ratings for the app available on the app store. In addition, apps with evidence-based maternal health information had greater MARS engagement, information, and aesthetics scores. However, presence of evidence-based information did not correlate with greater numbers of app users. Conclusions Current commercially available peripartum apps range widely in quality. Overall current app offerings generally do not provide adequate maternal health information and are not optimally accessible to the target users in terms of inclusivity of women of color or app usability. Apps delivering evidence-based information and more usable design are more likely to meet these standards but are not more likely to be downloaded by users.


2021 ◽  
Author(s):  
Mary Lynd Phan ◽  
Tyler L Renshaw

Low-income and ethnically diverse youth in the United States have unmet needs for mental health services; however, these same youth are unlikely to be connected with high-quality mental health care. Promoting social-emotional competencies through school-based service delivery is one potential solution for improving the accessibility and quality of care for diverse youth facing mental health disparities. Mindfulness, conceived as a set of practices to cultivate social-emotional competencies, can therefore be useful for improving the accessibility and quality of care for diverse youth facing mental health disparities. Given the growing interest in MBSIs and the need to enhance equity in youth mental health services more generally, we provide guidelines to help practicing clinicians successfully adapt and implement MBSIs with underserved youth. First, we offer recommendations for clinicians to enhance underserved youths’ engagement with MBSIs. Next, we overview implementation approaches that clinicians could use for increasing access to MBIs in school settings. Following, we discuss strategies clinicians might employ when working with teachers to effectively implement MBSIs with underserved youth in their classrooms. Ultimately, we hope the guidelines offered in this paper might help inform better practice—as well as motivate further, better research—that advances equitable mental health care in schools with underserved youth.


2016 ◽  
Vol 32 (7) ◽  
pp. 993-1017
Author(s):  
Min Zhan ◽  
Xiaoling Xiang ◽  
William Elliott

This study examines the association between educational loans and college graduation rates, with a focus on differences by race and ethnicity. Data come from the 1997 National Longitudinal Survey of Youth. Results from the event history analyses indicate that educational loans are positively related to college graduation rates, but only up to a point (about US$19,753). Although this nonlinear relationship holds true among White, Black, and Hispanic students, there are differences in the level of loans where its effect turns negative on graduate rates. There is little evidence overall that educational loans reduce racial and ethnic disparities in college graduation.


2006 ◽  
Vol 12 (2) ◽  
pp. 141-151 ◽  
Author(s):  
Peter J. Aspinall

The quality, completeness and coverage of ethnicity data in mental health services has long been regarded as unsatisfactory. The Department of Health's new 5-year action plan for delivering race equality in mental healthcare seeks to improve this key building block by setting out actions to improve both the quality of information and its analysis and dissemination. However, those that are tangible and specific are few: annual surveys of service users, national censuses of mental health in-patients and tables of National Confidential Inquiry suicide cases and in-patient deaths by ethnicity. The opportunity to seek improvements in the quality and coverage of key routine data-sets such as ethnic monitoring in primary care and the Hospital Episode Statistics database has not been seized. Moreover, the plan does not mention proposed changes in civil registration (births and deaths) and the coroner service and their potential benefit. The continuing gaps in the information base justify a stronger emphasis on the processes necessary to bring about change rather than on what ethnic monitoring should provide.


2018 ◽  
Vol 3 (1) ◽  
pp. 103
Author(s):  
Wira Meiriza ◽  
Aladin Aladin ◽  
Edison Edison

Infant Mortality Rate in West Sumatra still increased from 96 cases in 2015 becomes 111 cases in 2016. One of the contributors to this was the case of Low Birth Weight Babies (LBWB), wich is birth weight < 2500 grams. Causative factors of LBWB are derived from maternal factors because it is related to fetal growth, starting from the moment of conception until the baby is born. Maternal health is very influential towards the growth and development of the fetus. In addition, Antenatal Care is also require to monitor maternal health. Antenatal service care quality can detect the occurrence of risk in pregnancy. This study aims to determine the relationship of maternal factors based on maternal age, parity, distance of pregnancy, complications of pregnancy, economic status, nutritional status, anemia status, antenatal care implementation and the quality of antenatal care services with LBWB incidence on health facilities level 1 in Padang City.This study used a comparative cross-sectional design totalling 72 respondents consisting of a group of mothers who gave birth to babies with birth weight < 2500 grams and ≥ 2500 grams using consecutive sampling technique. Then conducted interviews and observations by using questionnaires as well as data processing were carried out using SPSS. The results showed there was a correlation between pregnancy complications (p = 0.033), anemia status (p = 0.016) and the implementation of antenatal care (p = 0.000) with the incidence of LBWB, while the unrelated were maternal age (p = 0.405), parity (p = 1,000), pregnancy distance (p = 1,000), economic status (p = 0.637), nutritional status (p = 0.326), and quality of antenatal care services (p = 0.812).The conclusion of this study is that there is no correlation between the quality of antenatal care services and the incidence of LBWB, and the implementation of antenatal care is the dominant factor related with the incidence of LBWB in Padang City.


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