scholarly journals The potential use of social media and other internet-related data and communications for child maltreatment surveillance and epidemiological research: Scoping review and recommendations

2018 ◽  
Vol 85 ◽  
pp. 187-201 ◽  
Author(s):  
Laura M. Schwab-Reese ◽  
Wendy Hovdestad ◽  
Lil Tonmyr ◽  
John Fluke
BMJ Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. e040671
Author(s):  
Charline Bour ◽  
Susanne Schmitz ◽  
Adrian Ahne ◽  
Camille Perchoux ◽  
Coralie Dessenne ◽  
...  

IntroductionMore than one-third of the world population uses at least one form of social media. Since their advent in 2005, health-oriented research based on social media data has largely increased as discussions about health issues are broadly shared online and generate a large amount of health-related data. The objective of this scoping review is to provide an evidence map of the various uses of social media for health research purposes, their fields of applications and their analysis methods.Methods and analysisThis scoping review will follow the Arksey and O’Malley methodological framework (2005) as well as the Joanna Briggs Institute Reviewer’s manual. Relevant publications will be first searched on the PudMed/MEDLINE database and then on Web of Science. We will focus on literature published between January 2005 and April 2020. All articles related to the use of social media or networks for health-oriented research purposes will be included. A first search will be conducted with some keywords in order to identify relevant articles. After identifying the research strategy, a two-part study selection process will be systematically applied by two reviewers. The first part consists of screening titles and abstracts found, thanks to the search strategy, to define the eligibility of each article. In the second part, the full texts will be screened and only relevant articles will be kept. Data will finally be extracted, collated and charted to summarise all the relevant methods, outcomes and key findings in the articles.Ethics and disseminationThis scoping review will provide an extensive overview of the use of social media for health research purposes. Opportunities as well as future ethical, methodological and technical challenges will also be discussed based on our findings to define a new research agenda. Results will be disseminated through a peer-reviewed publication.


2020 ◽  
Author(s):  
Charline Bour ◽  
Susanne Schmitz ◽  
Adrian Ahne ◽  
Camille Perchoux ◽  
Coralie Dessenne ◽  
...  

BACKGROUND As social media are increasingly used worldwide, more and more scientists are relying on them for their health-related projects. But so far, social media features, methodologies and ethical issues are unclear with no overview of this relatively young field of research. OBJECTIVE This scoping review aimed to provide an evidence map of the different uses of social media for health research purposes, their fields of applications and their analysis methods. METHODS We followed the scoping review methodologies developed by Arksey and O’Malley and the Joanna Briggs Institute. After developing search strategies based on keywords (e.g., Social media, health research), comprehensive searches were conducted in Pubmed/MEDLINE and Web of Science databases. We limited the search strategies to documents written in English and published between 2005/01/01 and 2020/04/09. After removing duplicates, articles were screened at title/abstract and at full text level by two independent reviewers. One reviewer extracted data that were descriptively analyzed to map the available evidence. RESULTS After screening 1237 titles and abstracts and 407 full-texts, 268 unique papers were included, dating from 2009 to 2020 with an average annual growth rate of 32.71% for the 2009-2019 period. Studies mainly came from America (64.55%, N=173/268, including 151 from the USA). Articles used machine learning or data mining techniques (N=60/268) to analyze the data, discussed opportunities and limitations of the use of social media for research (N=59/268), assessed the feasibility of recruitment strategies (N=45/268) or discussed ethical issues (N=16/268). Communicable (e.g., influenza, N=122/268) and then chronic (e.g., cancer, N=40/268) diseases were the two main areas of interest. CONCLUSIONS Since their early days, social media have been recognized as a resource of high potential for health research purposes but yet the field is still suffering from a strong heterogeneity in the methodologies used, which prevents the research from comparison and generalisability. For the field to be fully recognized as a valid, complementary approach to more traditional health research study designs, there is now a need for more guidance by types of applications of social media for health research, both from a methodological and an ethical perspective.


Author(s):  
Christian Reuter ◽  
Thomas Ludwig ◽  
Therese Friberg ◽  
Sylvia Pratzler-Wanczura ◽  
Alexis Gizikis

Social media is much just used for private as well as business purposes, obviously, also during emergencies. Emergency services are often confronted with the amount of information from social media and might consider using them – or not using them. This article highlights the perception of emergency services on social media during emergencies. Within their European research project EMERGENT, the authors therefore conducted an interview study with emergency service staff (N=11) from seven European countries and eight different cities. Their results highlight the current and potential use of social media, the emergency service's participation in research on social media as well as current challenges, benefits and future plans.


2016 ◽  
Vol 3 (3) ◽  
pp. 46-71 ◽  
Author(s):  
Anatoliy Gruzd ◽  
Drew Paulin ◽  
Caroline Haythornthwaite

In just a short period of time, social media have altered many aspects of our daily lives, from how we form and maintain social relationships to how we discover, access and share information online. Now social media are also affecting how we teach and learn. In this paper, we discuss methods that can help researchers and educators evaluate and understand the observed and potential use of social media for teaching and learning through content and network analyses of social media texts and networks. This paper is based on a workshop given at the 2014 Learning Analytics and Knowledge conference, and presents an overview of the measures and potential of a multi-method approach for studying learning via social media. The theoretical discussion is augmented with study of the case of Twitter discussion from a cMOOC class.


2020 ◽  
Author(s):  
Shaista Salman Guraya ◽  
Salman Yousuf Guraya ◽  
Muhammad Saiful Bahri Yusoff

Abstract Background Despite a rapid rise of use of social media in medical disciplines, uncertainty prevails among healthcare professionals for providing medical content on social media. There are also growing concerns about unprofessional behaviors and blurring of professional identities that are undermining digital professionalism. This review tapped the literature to determine the impact of social media on medical professionalism and how can professional identities and values be maintained in digital era. Methods We searched the databases of PubMed, ProQuest, ScienceDirect, Web of Science, and EBSCO host using (professionalism AND (professionalism OR (professional identity) OR (professional behaviors) OR (professional values) OR (professional ethics))) AND ((social media) AND ((social media) OR (social networking sites) OR Twitter OR facebook)) AND (health professionals). The research questions were based on participants (health professionals), concept (professionalism), and context (social media, digital world). We screened initial yield of titles using pre-determined inclusion and exclusion criteria and selected a group of articles for qualitative analysis. We used the Biblioshiny® software package for generation of popular concepts as clustered keywords. Results Our search yielded 44 articles with four leading themes; marked rise in use of social media by healthcare professionals and students, negative impact of social media on digital professionalism, blurring of medical professional values, behaviors, and identity in digital era, limited evidence for teaching and assessing digital professionalism. A high occurrence of violation of patient privacy and professional integrity and cyberbullying is reported. There are no existing guidelines and policies for digital professionalism that can safeguard healthcare professionals, students and patients. Conclusion Our scoping review reports a rapid rise of unprofessional behaviors on social media among healthcare professionals. The boundaries between personal and professional practices are mystified in digital professionalism. These findings call for potential educational ramifications to resurrect professional virtues, behaviors and identities of healthcare professionals and students.


2020 ◽  
Author(s):  
Florian Fischer ◽  
Sina Kleen

BACKGROUND The broad availability of smartphones and the number of health applications (health apps) in app stores have risen in recent years. Health apps have benefits for individuals to monitor their health as well as for the researcher to collect data in population-based, clinical, and observational studies. Although the number of health apps on the global app market is huge and its potential seems to be high, smartphone app-based questionnaires for collecting patient-related data have not played an important role so far. OBJECTIVE This study aims to provide an overview of studies that have collected patient data using an app-based approach, with a particular focus on longitudinal studies. This literature review describes the current state of affairs in terms of the extent to which smartphones have been used for collecting (patient) data for research purposes, and the potentials and challenges associated with this approach. METHODS A scoping review of studies using data collection via apps was conducted. PubMed was used to identify studies describing the utilization of smartphone app questionnaires for collecting data over time. Overall, 17 articles were included in the summary. RESULTS There are only a few studies integrating smartphone apps into data-collection approaches. Studies dealing with the collection of health-related data via smartphone apps have mainly been developed in the field of psychosomatic, neurodegenerative, respiratory, and cardiovascular diseases, as well as malign neoplasm. The study duration for data collection varied from four weeks to twelve months, and the participants’ mean ages ranged from 7 to 69 years. Potential can be seen for real-time information transfer, fast data synchronization from entry to provision (which saves time and increases effectivity), and the possibility of tracking responses longitudinally. Furthermore, smartphone-based data-collection techniques might prevent biases such as reminder bias or mistakes occurring during manual data transfers. In chronic diseases, real-time communication with the physician and early detection of symptoms enable rapid modifications in the management of the disease. CONCLUSIONS The results indicate that using mobile technologies can help to overcome challenges linked with data collection in epidemiological research. However, further feasibility studies need to be conducted in the near future to test the applicability and acceptance of these mobile applications for epidemiological research in various subpopulations. CLINICALTRIAL


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