Nutritional management of cancer patients: perspective of patients and healthcare professionals in Spain

Abstract Background A good audio-visual educational material for caregivers on nutrition management of pediatric oncology patients can improve treatment effectiveness, recovery rate, and nutritional status of patients. This study aimed to develop and evaluate a series of video-based educational materials for nutritional management of pediatric oncology patients among healthcare professionals and caregivers.Methods The development of the video series began with subtopic selection and content refinement based on a printed booklet project previously published by the groups of five experts in dietetics and oncology medicine and five caregivers of pediatric cancer patients. 10 healthcare professionals (medical doctors and dietitians with over 5 years of working experience) and 15 caregivers then evaluated the video series for acceptability and relevance using the Malay version of the Patient Education Materials Assessment Tools for Audio-Visual materials (PEMAT-AV). Sets of understandability and actionability statements were given a score of 0 (disagree) or 1 (agree), and the overall percentage was calculated.ResultFour main topics were selected from the booklet and adopted into 5 video series ranging from 3 to 8 minutes in length developed in the Malay language entitled (i) Introduction to Cancer and the Treatment, (ii) The Side Effects of Cancer Treatment and Management (Part 1), (iii) The Side Effects of Cancer Treatment and Management (Part 2), (iv) Nutrition Management in Children with Cancer, and (v) You Ask, We Answer. The average understandability and actionability scores rated by the healthcare professionals were 98.6%% and 98.7%respectively. Whereas the caregivers’ average score for understandability was 99.5% and 99.6% for actionability.ConclusionsThe findings revealed that a high-quality video series was successfully developed and rated as highly understandable and actionable by both healthcare professionals and caregivers. This reflects positive acceptance and relevance of the nutritional management educational videos by both groups who manage and care for pediatric cancer patients. Trial RegistrationCentre for Research and Instrumentation Management, Research Ethics Committee of The National University of Malaysia; Ref. No. UKM/PPI/111/8/JEP-2021-266

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Nutritional management in cancer patients with SARS-CoV-2infection

Medical alphabet ◽

10.33667/2078-5631-2020-20-54-59 ◽

2020 ◽

pp. 54-59

Author(s):

E. V. Gameeva ◽

A. V. Dmitriev ◽

A. E. Shestopalov

Keyword(s):

Cancer Patients ◽

Nutritional Management

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Are Healthcare Professionals in Norway Confident in Talking about Life-threatening Illness with Cancer Patients and their Relatives?

10.26226/morressier.5c76c8b3e2ea5a7237611f57 ◽

2019 ◽

Author(s):

Bardo Driller

Keyword(s):

Cancer Patients ◽

Healthcare Professionals ◽

Life Threatening Illness ◽

Life Threatening

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Cancer patients’ information seeking behavior related to online electronic healthcare records

Health Informatics Journal ◽

10.1177/14604582211024708 ◽

2021 ◽

Vol 27 (3) ◽

pp. 146045822110247

Author(s):

Hanife Rexhepi ◽

Isto Huvila ◽

Rose-Mharie Åhlfeldt ◽

Åsa Cajander

Keyword(s):

Cancer Patients ◽

Health Information ◽

Information Seeking ◽

Healthcare Professionals ◽

Medical Information ◽

Information Seeking Behavior ◽

The Internet ◽

Seeking Behavior ◽

Information Horizons ◽

Health Information Sources

Patients’ online access to their EHR together with the rapid proliferation of medical information on the Internet has changed how patients use information to learn about their health. Patients’ tendency to turn to the Internet to find information about their health and care is well-documented. However, little is known about patients’ information seeking behavior when using online EHRs. By using information horizons as an analytical tool this paper aims to investigate the information behavior of cancer patients who have chosen to view their EHRs (readers) and to those who have not made that option (non-readers). Thirty interviews were conducted with patients. Based on information horizons, it seems that non-reading is associated with living in a narrower information world in comparison to readers. The findings do not suggest that the smallness would be a result of active avoidance of information, or that it would be counterproductive for the patients. The findings suggest, however, that EHRs would benefit from comprehensive linking to authoritative health information sources to help users to understand their contents. In parallel, healthcare professionals should be more aware of their personal role as a key source of health information to those who choose not to read their EHRs.

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The Supportive Care Needs of Cancer Patients: a Systematic Review

Journal of Cancer Education ◽

10.1007/s13187-020-01941-9 ◽

2021 ◽

Author(s):

Madeleine Evans Webb ◽

Elizabeth Murray ◽

Zane William Younger ◽

Henry Goodfellow ◽

Jamie Ross

Keyword(s):

Cancer Patients ◽

Healthcare Professionals ◽

Treatment Options ◽

Complex Nature ◽

Narrative Synthesis ◽

Care Needs ◽

Wide Range ◽

Need Support ◽

Lack Of Control ◽

Everyday Work

AbstractCancer, and the complex nature of treatment, has a profound impact on lives of patients and their families. Subsequently, cancer patients have a wide range of needs. This study aims to identify and synthesise cancer patients’ views about areas where they need support throughout their care. A systematic search of the literature from PsycInfo, Embase and Medline databases was conducted, and a narrative. Synthesis of results was carried out using the Corbin & Strauss “3 lines of work” framework. For each line of work, a group of key common needs were identified. For illness-work, the key needs idenitified were; understanding their illness and treatment options, knowing what to expect, communication with healthcare professionals, and staying well. In regards to everyday work, patients wanted to maintain a sense of normalcy and look after their loved ones. For biographical work, patients commonly struggled with the emotion impact of illness and a lack of control over their lives. Spiritual, sexual and financial problems were less universal. For some types of support, demographic factors influenced the level of need reported. While all patients are unique, there are a clear set of issues that are common to a majority of cancer journeys. To improve care, these needs should be prioritised by healthcare practitioners.

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The patients’ perspective on coordinated action for cancer and AMR

European Journal of Public Health ◽

10.1093/eurpub/ckaa165.1153 ◽

2020 ◽

Vol 30 (Supplement_5) ◽

Author(s):

K Apostolidis

Keyword(s):

Quality Of Life ◽

Immune System ◽

Cancer Patients ◽

Cancer Treatments ◽

Unique Challenge ◽

Coordinated Action ◽

The Impact ◽

Patients Perspective

Abstract The speaker will present the perspective of the cancer patients, and the challenges they encounter across the spectrum of care and what measures they consider relevant in terms of prevention, diagnosis, treatment and, indeed, to raise awareness of the impact of AMR on rendering cancer treatments ineffective. She will elaborate on survivorship, and on the impact of AMR on the quality of life of patients, their carers, and families. Emphasis will be given on the implications of modern therapies, such as immunotherapy, representing a unique challenge in terms of better understanding the effect on overall health of patients, with the effect they have the immune system, further weakening the patient and leaving him/her exposed to infections potentially of higher risk than cancer itself.

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Understanding health-seeking and adherence to treatment by patients with esophageal cancer at the Uganda cancer Institute: a qualitative study

BMC Health Services Research ◽

10.1186/s12913-021-06163-3 ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Nakimuli Esther ◽

Ssentongo Julius ◽

Mwaka Amos Deogratius

Keyword(s):

Esophageal Cancer ◽

Data Collection ◽

Qualitative Study ◽

Cancer Patients ◽

Healthcare Professionals ◽

Transport Cost ◽

Adherence To Treatment ◽

Health Seeking ◽

Long Distance ◽

Cancer Symptoms

Abstract Background In the low- and middle-income countries, most patients with esophageal cancer present with advanced stage disease and experience poor survival. There is inadequate understanding of the factors that influence decisions to and actual health-seeking, and adherence to treatment regimens among esophageal cancer patients in Uganda, yet this knowledge is critical in informing interventions to promote prompt health-seeking, diagnosis at early stage and access to appropriate cancer therapy to improve survival. We explored health-seeking experiences and adherence to treatment among esophageal cancer patients attending the Uganda Cancer Institute. Methods We conducted an interview based qualitative study at the Uganda Cancer Institute (UCI). Participants included patients with established histology diagnosis of esophageal cancer and healthcare professionals involved in the care of these patients. We used purposive sampling approach to select study participants. In-depth and key informant interviews were used in data collection. Data collection was conducted till point of data saturation was reached. Thematic content analysis approach was used in data analyses and interpretations. Themes and subthemes were identified deductively. Results Sixteen patients and 17 healthcare professionals were included in the study. Delayed health-seeking and poor adherence to treatment were related to (i) emotional and psychosocial factors including stress of cancer diagnosis, stigma related to esophageal cancer symptoms, and fear of loss of jobs and livelihood, (ii) limited knowledge and recognition of esophageal cancer symptoms by both patients and primary healthcare professionals, and (iii) limited access to specialized cancer care, mainly because of long distance to the facility and associated high transport cost. Patients were generally enthused with patient – provider relationships at the UCI. While inadequate communication and some degree of incivility were reported, majority of patients thought the healthcare professionals were empathetic and supportive. Conclusion Health system and individual patient factors influence health-seeking for symptoms of esophageal cancer and adherence to treatment schedule for the disease. Interventions to improve access to and acceptability of esophageal cancer services, as well as increase public awareness of esophageal cancer risk factors and symptoms could lead to earlier diagnosis and potentially better survival from the disease in Uganda.

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