Self-perception and quality of life in adolescents during treatment for a primary malignant bone tumour

The hypothesis posed was whether being part of a football/soccer team influenced the quality of life (QL) of the people who participated in it since their perception of themselves is enhanced by factors, such as self-determination, social inclusion, emotional well-being, physical well-being, material well-being, rights, personal development, and internal relationships. The objective was to evaluate the QL of people with Down Syndrome (DS) using their self-perception (n = 39) and the perception of the informants (family members, teachers) (n = 39). The KidsLife-Down Scale, with a few modifications, was used. In general, differences of opinion between the subgroups of participants with DS and informants showed that results were higher in terms of perception for participants in the DS subgroup. Scores for all variables were higher for those participants with DS who said they did engage in practicing competitive football/soccer. Although the perception of informants provides a great deal of information regarding the QL of participants with DS, participants with DS should also be involved in the evaluation process and their self-perceptions taken into account. It is not participating in a football team that causes the conclusions of the study, but training (which includes the friendly matches that are played), the cause correlated with the improvements detected in the athlete’s DS.

Download Full-text

Self-Perception of Voice and Swallowing Handicap in Parkinson’s Disease

Journal of Parkinson s Disease ◽

10.3233/jpd-212621 ◽

2021 ◽

pp. 1-8

Author(s):

Alice K. Silbergleit ◽

Lonni Schultz ◽

Kendra Hamilton ◽

Peter A. LeWitt ◽

Christos Sidiropoulos

Keyword(s):

Quality Of Life ◽

Parkinson’S Disease ◽

Parkinson's Disease ◽

Disease Duration ◽

Self Perception ◽

Functional Aspects ◽

Dysphagia Handicap Index ◽

Relationship Of ◽

The Relationship

Background: Hypokinetic dysarthria and dysphagia are known features of Parkinson’s disease; however, self-perception of their handicapping effects on emotional, physical, and functional aspects of quality of life over disease duration is less understood. Objective: 1) Based upon patient self-perception, to determine the relationship of the handicapping effects of dysphagia and dysphonia with time since diagnosis in individuals with Parkinson’s disease; 2)To determine if there is a relationship between voice and swallowing handicap throughout the course of Parkinson’s disease. Method: 277 subjects completed the Dysphagia Handicap Index and the Voice Handicap Index. Subjects were divided into three groups based on disease duration: 0–4 years, 5–9 years, and 10 + years. Results: Subjects in the longer duration group identified significantly greater perceptions of voice and swallowing handicap compared to the shorter duration groups. There was a significant positive correlation between the DHI and VHI. Conclusion: Self-perception of swallowing and voice handicap in Parkinson’s disease are associated with later stages of disease and progress in a linear fashion. Self-perception of voice and swallowing handicap parallel each other throughout disease progression in Parkinson’s disease. Individuals may be able to compensate for changes in voice and swallowing early while sensory perceptual feedback is intact. Results support early targeted questioning of patient self-perception of voice and swallowing handicap as identification of one problem indicates awareness of the other, thus creating an opportunity for early treatment and maintenance of swallowing and communication quality of life for as long as possible.

Download Full-text

Is it safe to preserve the deltoid when resecting the proximal humerus for a primary malignant bone tumour?

The Bone & Joint Journal ◽

10.1302/0301-620x.99b9.2016-1317.r1 ◽

2017 ◽

Vol 99-B (9) ◽

pp. 1244-1249 ◽

Cited By ~ 5

Author(s):

V. Cladière-Nassif ◽

C. Bourdet ◽

V. Audard ◽

A. Babinet ◽

P. Anract ◽

...

Keyword(s):

Proximal Humerus ◽

Bone Tumour ◽

Malignant Bone Tumour ◽

Primary Malignant Bone Tumour

Download Full-text

Self-perception of quality of life and practice of physical activity

10.14198/jhse.2021.16.proc2.14 ◽

2021 ◽

Author(s):

Jorge Santos ◽

João Petrica ◽

João Serrano ◽

Marco Batista ◽

Samuel Honório

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Self Perception ◽

Perception Of Quality

Download Full-text

Self-perception in health and quality of life: association with social determinants

European Journal of Public Health ◽

10.1093/eurpub/ckaa166.447 ◽

2020 ◽

Vol 30 (Supplement_5) ◽

Author(s):

S M Aguiar Lemos ◽

L J Vasconcellos ◽

R Tavares ◽

A G Escarce ◽

E M Melo

Keyword(s):

Quality Of Life ◽

High School ◽

Social Determinants ◽

Perceived Health ◽

Work And Family ◽

Minimum Wages ◽

Self Perception ◽

Medical Consultations ◽

Perception Of Health

Abstract Objective To investigate self-perceived health, quality of life and its association with social determinants in adults and the elderly. Methods Observational analytical cross-sectional study, with a probabilistic sample of 1,129 participants, adults and seniors, stratified by conglomerates, living in a municipality in Minas Gerais, Brazil. The response variables were the questions: 'How do you evaluate your health in the last two months?' and 'How do you evaluate your quality of life in the last two months?'. The explanatory variables were sociodemographic and technical-assistance data. For data analysis, a descriptive analysis of categorical and continuous variables and an association analysis (Chi-Square Pearson test) were performed, statistically significant those with a value of p0.05. Results The majority were female, classified the quality of life as good and presented positive self-perception of health. Most were aged between 30 and 39 years old, attended high school, were married, had formal work and family income of up to one minimum wage. The association between self-perceived health and quality of life with social determinants revealed that the interviewees who tended to present positive self-perception of health were female, had up to 39 years of age, studied until high school, received up to five minimum wages and had had between one and two medical consultations in the last 12 months. Regarding quality of life, the interviewees who reported there were good were female, between 30 and 39 years old, with high school, were married, had formal work, received up to two minimum wages and had between one and two medical consultations at last year. The univariate analysis revealed that respondents who said their health was positive also rated the quality of life as good. Conclusions In the sample studied, it was observed that positive self-perception of health is associated with good quality of life. Key messages Health public. Quality of life.

Download Full-text

Self-perception of quality of life in patients with functional voice disorders: the effects of psychological and vocal acoustic variables

European Archives of Oto-Rhino-Laryngology ◽

10.1007/s00405-018-5090-5 ◽

2018 ◽

Vol 275 (11) ◽

pp. 2745-2754

Author(s):

Mafalda Andrea ◽

Mario Andrea ◽

Maria Luísa Figueira

Keyword(s):

Quality Of Life ◽

Voice Disorders ◽

Self Perception ◽

Perception Of Quality

Download Full-text

Cognition, Health-Related Quality of Life, and Psychosocial Functioning After GH/GnRHa Treatment in Young Adults Born SGA

The Journal of Clinical Endocrinology & Metabolism ◽

10.1210/jc.2018-01463 ◽

2018 ◽

Vol 103 (11) ◽

pp. 3931-3938 ◽

Cited By ~ 2

Author(s):

Wesley Jim Goedegebuure ◽

Manouk van der Steen ◽

Justine Lenneke de With ◽

Anita Hokken-Koelega

Keyword(s):

Quality Of Life ◽

Young Adults ◽

Psychosocial Functioning ◽

Reference Population ◽

Study Group ◽

Health Related Quality ◽

Self Perception ◽

Related Quality ◽

Health Related

Abstract Background Children born small for gestational age (SGA) with a poor adult height (AH) expectation benefit from treatment with GH and additional gonadotropin-releasing hormone analog (GnRHa). Because both SGA birth and GnRHa treatment might negatively influence cognition, health-related quality of life (HRQoL), and psychosocial functioning, we assessed these outcomes at AH. Methods A randomized, dose-response GH study until AH involving 99 adolescents born SGA, of whom 61 children received 2 additional years of GnRHa treatment. At AH, the Wechsler Adult Intelligence Scale and TNO-AZL Adults Quality of Life questionnaire were administered to the study group. Additionally, the study group and 67 adolescents born SGA (19 GnRHa) from a second study group completed the Self-Perception Profile of Adolescents and Child/Adolescent Behavior Checklist at AH. Scores in GH-treated young adults with GnRHa treatment (GH/GnRHa group) were compared with GH-treated adolescents without GnRHa treatment (GH group) and a reference population. Results Mean age (SD) at AH was 17.5 (1.2) and 17.4 (1.4) years in the GH/GnRHa and GH group, respectively. Intelligence quotient scores were similar in GH/GnRHa and GH groups (96.33 vs 92.47). HRQoL was similar between both groups and also when compared with the reference population, but the GH/GnRHa group had a significantly lower perception of cognitive functioning. Self-perception and problem behavior were similar in the GH/GnRHa and GH groups. AH did not correlate with HRQoL, self-perception, or problem behavior. Conclusion Combined GH/GnRHa treatment has no long-term negative effects on cognition, HRQoL, self-perception, and behavior in early adulthood, compared with GH treatment only.

Download Full-text