Parental styles and quality of life in the families with adolescents suffering from inflammatory bowel diseases

2017 ◽  
Vol 41 (S1) ◽  
pp. S317-S317
Author(s):  
D. Zmeskalova ◽  
J. Prasko ◽  
M. Ociskova ◽  
E. Karaskova ◽  
V. Mihal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parenting Styles ◽  
Inflammatory Bowel Diseases ◽  
Well Being ◽  
Healthy Controls ◽  
Parental Style ◽  
Parental Styles ◽  
Bowel Diseases ◽  
Inflammatory Bowel

BackgroundInflammatory bowel diseases (IBD) in adolescents are chronic medical conditions with a substantial influence on the well-being of the family members.MethodsTotal of 27 adolescents suffered from IBD, and 39 healthy adolescents completed questionnaires ADOR (parenting styles assessed by teenagers), KidScreen-10 (quality of life), SAD (Scale of Anxiety in Children), and CDI (Children's Depression Inventory). Their parents completed the Beck Anxiety Inventory (BAI), Beck Depression Inventory (BDI-II), and Pediatrics Quality of Life Family Impact Module (PedsQL).ResultsThe parental styles of mothers and fathers of IBD adolescents and the parents of healthy controls were without statistically significant differences except for the fathers’ positive parental style, which was significantly higher in the fathers of controls. There were no statistically significant differences between IBD children and the healthy controls in the quality of life assessed. However, the parents’ quality of life of ill children was statistically significantly lower than of the parents of the controls. The mothers of IBD adolescents were significantly more anxious and the fathers more depressed than the parents of the healthy controls, but there was no difference in the levels of anxiety or depression between IBD adolescents and the controls. Positive parental style of parents of IBD children positively correlated with the quality of life of adolescents. Positive parental style of the fathers correlated negatively with the state and trait children's anxiety and negatively correlated with severity of childhood depression.ConclusionsThe parents of the adolescents with IBD represent important group for psychosocial support.Disclosure of interestThe authors have not supplied their declaration of competing interest.

scholarly journals N11 Complementary and alternative methods to improve quality of life in patients with inflammatory bowel diseases: a systematic literature review

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S613-S614
Author(s):  
M Martinato ◽  
R I Comoretto ◽  
A Zampieri ◽  
E Monaco ◽  
B Barberio ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Literature Review ◽  
Systematic Literature Review ◽  
Inflammatory Bowel Diseases ◽  
Well Being ◽  
Alternative Methods ◽  
Bowel Diseases ◽  
Inflammatory Bowel ◽  
Complementary And Alternative

Abstract Background Inflammatory Bowel Diseases (IBD) shoved an increasing incidence in the last decade. They can occur at any age, but especially between 15 and 30. They have multifactorial aetiology, including genetic, intestinal bacterial, immunological and environmental causes. These diseases present invasive and often disabling symptoms. Typically, patients complained of abdominal pain, diarrhoea and rectal bleeding, and frequently they present complications such as malabsorption, malnutrition, water and electrolyte imbalances accompanied by nausea and vomiting, and intestinal obstruction or stricture. Moreover, the effects of IBD extend to the systemic level, with extraintestinal manifestations generally located at the musculoskeletal apparatus, skin or eyes, as well as psychiatric complications, including depression and anxiety. There is no definitive cure for IBD, and the severity of symptoms affect patients’ well-being, compromising their quality of life (QoL) which is, in fact, generally lower as compared to healthy population. This leads patients to search for self-care methods that allow them to achieve greater control and management of the disease, i.e., complementary and alternative methods (CAMs). Methods The purpose of the paper is to investigate the efficacy of mind-body CAMs in improving the QoL of patients suffering from IBD. Therefore, we focused on CAMs’ impact on the psychological and physical spheres of the subjects, considering outcomes such as anxiety, depression, stress, gastrointestinal symptoms and QoL. A systematic literature review was performed consulting the online databases PubMed, Cinahl, Cochrane, and Google Scholar regarding interventional studies performed in the last twenty years. Results 312 papers were identified and 21 of them were selected according to inclusion criteria applied to title and abstract. 8 of them were then excluded after full-text assessment according to exclusion criteria. The interventions described in the 13 papers included fell within the dimension of mind-body techniques in the sphere of mindfulness and relaxation. A quantitative synthesis was not performed because, among the identified evidence, the treatment effect is never reported for more than two studies. Overall, time-correlated positive developments were recorded in all the outcomes considered in patients with a greater degree of psychological stressors at the initial assessment, guaranteed an increase in the QoL or an avoidance of impairment of QoL during flare-ups. Conclusion Mind-body CAMs have the potential to allow patients suffering from IBD to improve their compromised QoL. However, this area needs further investigation, carrying out more homogeneous studies, with larger samples and longer intervention and follow-up periods.

Does Infliximab Short Infusion have a Beneficial Impact on the Quality of Life in Patients with Inflammatory Bowel Diseases? A Single Centre Prospective Evaluation

2015 ◽  
Vol 24 (2) ◽  
pp. 165-170 ◽  
Author(s):  
Mariabeatrice Principi ◽  
Giuseppe Losurdo ◽  
Rosa Federica La Fortezza ◽  
Pasquale Lopolito ◽  
Rosa Lovero ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Inflammatory Bowel Diseases ◽  
Adverse Reactions ◽  
Severe Disease ◽  
Sexual Life ◽  
Necrosis Factor Alpha ◽  
Short Infusion ◽  
Bowel Diseases ◽  
Inflammatory Bowel

Background & Aims: Infliximab (IFX) is an anti-tumor necrosis factor alpha agent used in inflammatory bowel diseases (IBD) therapy. Usually, it is administered over a 2-hour intravenous infusion. However, shortening the infusion duration to 1 hour has proved to be feasible and safe. In the present study we evaluated whether shortening the IFX infusion could affect the patients' quality of life (QoL) compared to the standard protocol.Methods: Subjects affected by IBD receiving IFX were prospectively recruited. The main criterion to shorten the infusion was the absence of IFX-related adverse reactions during the previous three 2-h infusions. For each patient, demographic, clinical and anthropometric data were collected. A questionnaire investigating their overall/job/social/sexual QoL was administered. Ordinal regression was performed with odds ratios (OR) for significant independent variables.Results: Eighty-one patients were included (46 with ulcerative colitis - UC, 35 with Crohn's disease - CD). Sixteen received the 2-h infusion due to previous adverse reactions, and the remaining 65 underwent the 1-h schedule. Shortening the infusion to 1 hour determined a better QoL (OR=0.626). However, the QoL was negatively influenced by age (OR=1.023), female sex (OR=2.04) and severe disease activity (OR=7.242). One-hour IFX infusion induced a better outcome on work (OR=0.588) and social (OR=0.643) QoL. Long-standing disease was correlated with a slightly better sexual QoL (OR=0.93). Conversely, older age (OR=1.046), severe clinical score (OR=15.579), use of other immunomodulators (OR=3.693) and perianal CD (OR=3.265) were related to an unsatisfactory sexual life. The total number of infusions (OR=0.891), proctitis (OR=0.062) or pancolitis (OR=0.1) minimized the perception of infusion-related side effects.Conclusion: The 1-h short infusion improves overall, social and job QoL, so that, when indicated, it should be recommended.

scholarly journals Cannabis and Canabidinoids on the Inflammatory Bowel Diseases: Going Beyond Misuse

2020 ◽  
Vol 21 (8) ◽  
pp. 2940
Author(s):  
Antonelly Cassio Alves de Carvalho ◽  
Gabriela Achete de Souza ◽  
Samylla Vaz de Marqui ◽  
Élen Landgraf Guiguer ◽  
Adriano Cressoni Araújo ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Inflammatory Bowel Diseases ◽  
Literature Search ◽  
Cannabis Sativa ◽  
Antioxidant Properties ◽  
Number Of Patients ◽  
Bowel Diseases ◽  
Inflammatory Bowel ◽  
Anti Inflammatory

Inflammatory bowel diseases (IBD) are characterized by a chronic and recurrent gastrointestinal condition, including mainly ulcerative colitis (UC) and Crohn’s disease (CD). Cannabis sativa (CS) is widely used for medicinal, recreational, and religious purposes. The most studied compound of CS is tetrahydrocannabinol (THC) and cannabidiol (CBD). Besides many relevant therapeutic roles such as anti-inflammatory and antioxidant properties, there is still much controversy about the consumption of this plant since the misuse can lead to serious health problems. Because of these reasons, the aim of this review is to investigate the effects of CS on the treatment of UC and CD. The literature search was performed in PubMed/Medline, PMC, EMBASE, and Cochrane databases. The use of CS leads to the improvement of UC and CD scores and quality of life. The medical use of CS is on the rise. Although the literature shows relevant antioxidant and anti-inflammatory effects that could improve UC and CD scores, it is still not possible to establish a treatment criterion since the studies have no standardization regarding the variety and part of the plant that is used, route of administration and doses. Therefore, we suggest caution in the use of CS in the therapeutic approach of IBD until clinical trials with standardization and a relevant number of patients are performed.

scholarly journals Quality-of-life estimation by Polish and American inflammatory bowel diseases patients – pilot study

2011 ◽  
Vol 6 ◽  
pp. 388-400
Author(s):  
Ludwika Jakubowska-Burek ◽  
Izabella Warmuz-Stangierska ◽  
Elżbieta Kaczmarek ◽  
Marcin A. Kucharski ◽  
Emilia Marcinkowska ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Inflammatory Bowel Diseases ◽  
Life Estimation ◽  
Bowel Diseases ◽  
Inflammatory Bowel

Quality of Life Considering Patients with Chronic Inflammatory Bowel Diseases - Natural and Parenteral Nutrition

2014 ◽  
Vol 86 (9) ◽  
Author(s):  
Aneta Raczkowska ◽  
Michał Ławiński ◽  
Aleksandra Gradowska ◽  
Urszula Zielińska-Borkowska
Keyword(s):  
Quality Of Life ◽  
Ulcerative Colitis ◽  
Crohn’S Disease ◽  
Crohn's Disease ◽  
Parenteral Nutrition ◽  
Inflammatory Bowel Diseases ◽  
Nutritional Therapy ◽  
Bowel Diseases ◽  
Inflammatory Bowel

AbstractOne of the elements of treatment considering inflammatory bowel diseases is nutritional therapy. The duration of the above-mentioned depends on the prevalence of such symptoms as fever, bowel move-ments, length of the functioning gastrointestinal tract, stoma and intestinal fistula presence. Nutritional therapy is an essential element of successful treatment alongside pharmacological, surgical, and biological therapy, as well as other methods. Crohn's disease and ulcerative colitis considered as chronic diseases, lead towards physical and biopsychosocial disability, being responsible for the reduction in the quality of life.was to determine the quality of life after surgical procedures in case of patients diagnosed with Crohn's disease and ulcerative colitis, subjected to natural and parenteral nutrition.The study group comprised 52 patients from the Department of Gastroen-terology, Military Medical Institute, and Department of Surgery and Clinical Nutrition, Clinical Hospital in Warsaw. The study was performed between October, 2011 and April, 2012. The World Health Organization Quality of Life Instrument - Bref (WHOQOL-BREF) questionnaire was used to deter-mine the patients’ quality of life.A lower quality of life was observed in case of patients subjected to parenteral nutrition, poor education, disease symptoms exacerbation, in the majority-rural inhabitants. The quality of life does not depend on gender, type of disease, family status, and additional medical care.

scholarly journals P701 Quality of life of patients with inflammatory bowel diseases who live with an ostomy: Results of a French national survey

2018 ◽  
Vol 12 (supplement_1) ◽  
pp. S466-S466
Author(s):  
G Pineton de Chambrun ◽  
M Liberatore ◽  
A Buisson ◽  
P Blanc ◽  
A Olympie
Keyword(s):  
Quality Of Life ◽  
National Survey ◽  
Inflammatory Bowel Diseases ◽  
Bowel Diseases ◽  
Inflammatory Bowel
Sign in / Sign up

Export Citation Format

Share Document