Augmentative and Alternative Communication Effects on Quality of Life in Patients with Locked-in Syndrome and Their Caregivers

2017 ◽  
Vol 26 (9) ◽  
pp. 1929-1933 ◽  
Author(s):  
Francesco Corallo ◽  
Lilla Bonanno ◽  
Viviana Lo Buono ◽  
Simona De Salvo ◽  
Carmela Rifici ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Augmentative And Alternative Communication ◽  
Alternative Communication ◽  
Communication Effects

scholarly journals Quality of life in aphasia: differences between fluent and non-fluent aphasic Augmentative and Alternative Communication users

2014 ◽  
Vol 19 (4) ◽  
pp. 352-359 ◽  
Author(s):  
Mariana Mendes Bahia ◽  
Regina Yu Shon Chun
Keyword(s):  
Quality Of Life ◽  
Augmentative And Alternative Communication ◽  
Social Roles ◽  
Structure Interview ◽  
Alternative Communication ◽  
Stroke Patients ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Transversal Study

Purpose To investigate and to compare quality of life (QOL) in fluent and non-fluent aphasics. Methods This is a prospective, quantitative, and transversal study. We included 11 stroke patients with aphasia (five non-fluent aphasics augmentative and alternative communication users and six fluent aphasics). Data was gathered from the Stroke Specific Quality of Life Scale (SS-QOL), a structure interview, and The Modified Rankin Scale. Results The non-fluent aphasics presented poorer Rankin and quality of life than the fluent aphasics. The major difference occurred in the fields of language and upper extremity function. The three most affected domains in non-fluent aphasics were language, social roles, and thinking, whereas in the fluent aphasics were personality, social roles, and thinking. All the subjects referred a worse quality of life after stroke. The domains of language and self-care were identified as the most affected after stroke. Conclusion This study demonstrated that, in general, non-fluent aphasics have lower quality of life than fluent aphasics. However, this difference is not homogeneous among the several quality of life domains. Additionally, this research evidences a relationship between aphasia severity and individual functionality, implying impairment in quality of life, especially for non-fluent aphasics.

scholarly journals Evaluation of the Effects of a Bullying at Work Intervention for Middle Managers

2020 ◽  
Vol 17 (20) ◽  
pp. 7566
Author(s):  
Elena Baixauli ◽  
Ángela Beleña ◽  
Amelia Díaz
Keyword(s):  
Quality Of Life ◽  
Conflict Resolution ◽  
Role Conflict ◽  
Leadership Practices ◽  
Role Ambiguity ◽  
Middle Managers ◽  
Second Phase ◽  
Communication Effects ◽  
Work Intervention

The aim of the study is to evaluate the effects of a workplace bullying intervention based on the training of middle managers regarding bullying awareness, the consequences of bullying, strategies in conflict resolution and mediation/negotiation abilities. Overall, 142 randomly selected middle managers participated in the study. First, participants completed an information record and two scales assessing bullying strategies, role conflict and role ambiguity. The last two scales were completed again in a second phase three months after the intervention had finished. The intervention produced a decrease in the following bullying strategies: effects on self-expression and communication, effects on personal reputation and effects on occupational situation and quality of life, with all of the mentioned bullying strategies being suffered by part of the sample. In addition, the conflict role decreased in the group which received the intervention. Moreover, the decrease in the effects of the bullying strategy effects on occupational situation and quality of life was especially important in managers with higher responsibilities within the workplace. Results are discussed in the framework that (1) leadership practices and, more specifically, conflict resolution skills are strongly responsible for bullying at work; and (2) the importance of intervening in the early stages of the bullying process as a key element in the correction, but also as a potential prevention element, of bullying in the workplace.

scholarly journals Menores y SAAC. Visión comprensiva de las familias y del papel de los profesionales

2017 ◽  
Vol 33 (2) ◽  
pp. 334 ◽  
Author(s):  
M. Pilar García ◽  
Dolores Madrid ◽  
Rafael Galante
Keyword(s):  
Quality Of Life ◽  
Data Collection ◽  
Intervention Program ◽  
Font Size ◽  
Alternative Communication ◽  
Early Intervention Program ◽  
Whole Process ◽  
Communication Problems ◽  
The Family

<span style="font-family: 'Garamond',serif; font-size: 8pt; mso-bidi-font-size: 10.0pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-ansi-language: ES-TRAD; mso-fareast-language: AR-SA; mso-bidi-language: AR-SA;" lang="ES-TRAD">The present study accounts for the experience conducted with eight children, their families and the professionals in charge of the Early Intervention Program (EI) working with them during the whole process of learning, training and generalizing of an Augmentative or Alternative Communication System (AACs) used to try and </span><span style="font-family: 'Garamond',serif; font-size: 8pt; mso-bidi-font-size: 10.0pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-ansi-language: EN-SG; mso-fareast-language: AR-SA; mso-bidi-language: AR-SA;" lang="EN-SG">find</span><span style="font-family: 'Garamond',serif; font-size: 8pt; mso-bidi-font-size: 10.0pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-ansi-language: ES-TRAD; mso-fareast-language: AR-SA; mso-bidi-language: AR-SA;" lang="ES-TRAD"> resources that will improve the quality of life of these participants. A qualitative paradigm has been applied and the data collection has been performed using focal groups during five one-hour-and-a-halves to two-hour sessions. Results obtained show the emotions and feelings arising within the family circles when other communication problems between the different environments where these children interact are added up to the functional diversity; professional experts in many contexts need to provide resources to respond to these necessities and requests originated by these children and their families. The resulting data underline the importance of the intervention used to enhance the attribution of competencies that capacitates families and neutralizes the attributions generating stress situations to finally find the most autonomous solutions to these issues. Reflections provided by professionals show the importance of knowing better the necessities of these children and their families for them to provide an efficient collaboration during the resource-finding process.</span>

scholarly journals Alternative communication technology applied inlaryngectomized people due to head and neck cancer

2016 ◽  
Vol 49 (5) ◽  
pp. 463
Author(s):  
Cristiane A. Gomes ◽  
Fernanda C. Rugno ◽  
Gabriela Rezende ◽  
Renata C. Cardoso ◽  
Marysia M. R. P. De Carlo
Keyword(s):  
Quality Of Life ◽  
Head And Neck Cancer ◽  
Head And Neck ◽  
Communication Technology ◽  
Neck Cancer ◽  
Head And Neck Neoplasms ◽  
Alternative Communication

Modelo do estudo: Revisão Integrativa da Literatura. Objetivo: sintetizar os principais resultados de pesquisas e publicações relacionados ao uso de tecnologias de comunicação alternativa por pessoas com restrições de sua capacidade de comunicação, particularmente daquelas laringectomizadas por câncer de cabeça e pescoço. Método: estudo baseado em levantamento bibliográfico nas bases de dados eletrônicas: PubMed, LILACS, SCIELO e CINAHL, através do uso dos descritores: “Head and Neck Neoplasms”, “Head and Neck Cancer”, “Quality of Life” e “Communication”, seus correspondentes em português e seus cruzamentos. Resultados: Foram selecionados 14 artigos, publicados no período de 2004 à 2014, categorizados em duas unidades de análise: I: Impacto do adoecimento e do tratamento na qualidade de vida e aspectos físicos, funcionais e sintomas (N=5), II: Aspectos psicossociais relacionados ao tratamento de câncer de cabeça e pescoço (N=9). Os artigos indicaram que o adoecimento e o tratamento do câncer causam alterações corporais, por vezes traumáticas, com impactos importantes sobre os aspectos funcionais e estéticos, com alterações da fala, da alimentação e aparência física, além de afetar fatores psicológicos. A laringectomia é altamente estressante e compromete a comunicação e as interações sociais, particularmente em relação a seus familiares e equipe de saúde. Essas consequências manifestam-se na vida cotidiana desses sujeitos, incluindo respostas emocionais que variam de forma singular a cada individuo. O uso de recursos de comunicação alternativa pode favorecer a participação social ativa por parte de pessoas com dificuldades de comunicação e favorecer, assim, sua qualidade de vida (QV). Conclusão: O uso de recursos alternativos para a comunicação, por parte de laringectomizados parciais ou totais, favorece o exercício da autonomia, a manutenção da capacidade de comunicação, a ativa participação social e melhora da QV da pessoa com câncer

A Systematic Review of Research on Augmentative and Alternative Communication Interventions for Children Aged 6–10 in the Last Decade

2021 ◽  
pp. 1-18
Author(s):  
Argia Langarika-Rocafort ◽  
Nahia Idoiaga Mondragon ◽  
Gorka Roman Etxebarrieta
Keyword(s):  
Systematic Review ◽  
Communication Skills ◽  
Augmentative And Alternative Communication ◽  
Methodological Quality ◽  
Common Type ◽  
Alternative Communication ◽  
Narrative Skills ◽  
Electronic Search ◽  
Communication Interventions

Purpose The purpose of this systematic review was to identify, appraise, and critically synthesize the latest available evidence on the effects of augmentative and alternative communication (AAC)-based interventions on communication skills in children aged between 6 and 10 years with mixed diagnoses. Method MEDLINE (OVID), PsycINFO (EBSCO), ERIC (ProQuest), SCIELO (WOS), Teacher Reference Center (EBSCO), and Education Database (ProQuest) were searched. The studies were independently selected by two reviewers for the purposes of the review. The methodological quality of the included studies was assessed, and characteristics and results of the studies were extracted. Results This review included 14 studies from a total of 1,204 found through an electronic search. The AAC interventions studied were effective at improving various outcomes in children with mixed diagnoses. Interventions that focused on narrative skills were the most common type. When considering the quality of the studies, the independence of assessors, data analysis, replication, and generalization of interventions were the weaker areas. Conclusions Interventions analyzed in this review improve communication skills, including phonological awareness, vocabulary, requesting, and developing narrative skills in children aged between 6 and 10 years with mixed diagnoses. The results of one study also indicate that the acquisition of skills using an AAC method is superior when the child prefers the method. Supplemental Material https://doi.org/10.23641/asha.14462256

Investigating the Assessment Procedures for Children With Complex Communication Needs

2020 ◽  
pp. 152574012096064
Author(s):  
Elena Theodorou ◽  
Eliada Pampoulou
Keyword(s):  
Augmentative And Alternative Communication ◽  
Comprehensive Assessment ◽  
Assessment Process ◽  
Alternative Communication ◽  
Complex Communication Needs ◽  
Language Communication ◽  
Speech And Language Pathologists ◽  
Communication Needs ◽  
Assessment Procedures

Successful intervention outcomes and comprehensive assessment is important, for people who rely on augmentative and alternative communication (AAC). However, the literature surrounding AAC assessment remains sparse. The purposes of this project were to describe the AAC assessment process followed by speech and language pathologists (SLPs) and to suggest areas for a comprehensive assessment. The research questions are (a) to identify the training received and (b) to explore the key elements of the assessment process. A questionnaire was developed based on the Participation Model and completed by 89 SLPs. The findings show that SLPs base their AAC assessment on clinical decisions, taking into consideration a number of elements, such as language, communication, and social skills. However, the process uncovered through this research cannot be characterized neither comprehensive nor systematic. The findings indicate that further training on AAC assessment is warranted, thus ensuring high quality of services for people with complex communication needs.

scholarly journals Augmentative and Alternative Communication Intervention for in-patient Individuals With Post-stroke Aphasia: Study Protocol of a Parallel-group, Pragmatic Randomized Controlled Trial

2021 ◽  
Author(s):  
Li Huang ◽  
Szu-Han Kay Chen ◽  
Shutian Xu ◽  
Yongli Wang ◽  
Xing Jin ◽  
...  
Keyword(s):  
Randomized Controlled Trial ◽  
Augmentative And Alternative Communication ◽  
Controlled Trial ◽  
Secondary Outcome ◽  
Communication Effectiveness ◽  
Alternative Communication ◽  
Early Recovery ◽  
Post Stroke ◽  
Randomized Controlled

Abstract Background: People with post-stroke moderate to severe aphasia commonly receive speech-language therapy (SLT). However, the outcomes of SLT sometimes is limited. Augmentative and alternative communication (AAC) has been reported as an effective treatment approach to improve communication effectiveness, language performance, decreasing depression, and improving quality of life for this population. However, little evidence has demonstrated the use of AAC intervention (AACT) in early recovery from people with post-stroke aphasia in in-patient rehabilitation settings. Besides, only a few studies use a randomized controlled trial (RCT) to compare AACT with SLT to date. The present study focuses on the effect of including AACT in regular SLT for people with post-stroke moderate to severe aphasia (PWAs) in an in-patient rehabilitation setting. The present study aims to compare the potential effectiveness of AACT combined with SLT on communication effectiveness and language recovery with SLT alone for PWAs in in-patient rehabilitation settings.Methods: We strive to include 30 PWAs, enroll in an in-patient program, a single-blind, randomized controlled trial with two parallel groups, and a 2-week follow-up. Patients receive a one-hour treatment session, including either both AAC and SLT or SLT alone daily for ten consecutive sessions. Three assessment points include baseline, after intervention sessions, and after the 2-week follow-up to compare the two groups' intervention effectiveness. The primary outcome measure is the score differences on the Communication of Basic Needs of Functional Assessment of Communication Skills for Adult (FACS) pre- and post- intervention. The secondary outcome measures include the results of the Chinese Standard Aphasia Battery (ABC), the 10-item Hospital version of the Stroke Aphasic Depression Questionnaire (SADQH-10), and the Stroke-Specific Quality of Life Scale (SS-QOL) as well as a patient and caregiver satisfaction questionnaire.Discussion: This RCT of AACT in an in-patient rehabilitation setting will contribute to new scientific evidence to the field of aphasia rehabilitation in early recovery during the in-patient period. The paper describes the trial, which will explore the effect of combining AACT and SLT and SLT only, our choice of primary and secondary outcome measures, and proposed analyses. The study results will provide information for implementing AACT in the regular in-patient SLT of future RCTs.Trial registration: This trial is registered in the Chinese Clinical Trial Registry database (ChiCTR) as ChiCTR2000028870. Date registered: 5 January 2020.

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