P2-341 Recruitment and retention strategies with African Americans

2004 ◽  
Vol 25 ◽  
pp. S330
Author(s):  
Kathleen S. Hall ◽  
William J. Malone ◽  
Millicent R. Pettaway ◽  
Hugh C. Hendrie
2019 ◽  
Vol 16 (5) ◽  
pp. 458-471 ◽  
Author(s):  
Roger Wong ◽  
Takashi Amano ◽  
Shih-Yin Lin ◽  
Yuanjin Zhou ◽  
Nancy Morrow-Howell

Background:Racial/ethnic minorities have among the highest risks for Alzheimer disease and dementia, but remain underrepresented in clinical research studies.Objective:To synthesize the current evidence on strategies to recruit and retain racial/ethnic minorities in Alzheimer disease and dementia clinical research.Methods:We conducted a systematic review by searching CINAHL, EMBASE, MEDLINE, PsycINFO, and Scopus. We included studies that met four criteria: (1) included a racial/ethnic minority group (African American, Latino, Asian, American Indian or Alaska Native, and Native Hawaiian or Other Pacific Islander); (2) implemented a recruitment or retention strategy for Alzheimer disease or dementia clinical research; (3) conducted within the U.S.; and (4) published in a peer-reviewed journal.Results:Of the 19 included studies, 14 (73.7%) implemented recruitment strategies and 5 (26.3%) implemented both recruitment and retention strategies. Fifteen studies (78.9%) focused on African Americans, two (10.6%) on both African Americans and Latinos, and two (10.5%) on Asians. All the articles were rated weak in the study quality. Four major themes were identified for the recruitment strategies: community outreach (94.7%), advertisement (57.9%), collaboration with health care providers (42.1%), and referral (21.1%). Three major themes were identified for the retention strategies: follow-up communication (15.8%), maintain community relationship (15.8%), and convenience (10.5%).Conclusion:Our findings highlight several promising recruitment and retention strategies that investigators should prioritize when allocating limited resources, however, additional well-designed studies are needed. By recruiting and retaining more racial/ethnic minorities in Alzheimer disease and dementia research, investigators may better understand the heterogeneity of disease progression among marginalized groups. PROSPERO registration #CRD42018081979.


2013 ◽  
Author(s):  
Jennifer A. Schneider ◽  
Julie Neuser ◽  
Margaret-Anne Mackintosh ◽  
Leslie A. Morland

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 758-758
Author(s):  
Marie Boltz ◽  
Ashley Kuzmik

Abstract Persons with dementia (PWD) have high rates of hospitalization, and along with their family caregivers (FCGs), commonly experience negative hospital experiences and outcomes. The recruitment and retention challenges encountered in an ongoing cluster randomized clinical trial in PWDs and FCGs are described. The trial tests the efficacy of a nurse-FCG partnership model that aims to improve: 1) the physical and cognitive recovery in hospitalized PWD, and 2) FCG preparedness and anxiety. Recruitment and retention challenges, identified in team meetings and extracted from team documentation,.include factors in the hospital environment, the PWD, and FCGs. Strategies that address these challenges include careful pre-planning and preparation with the site, strong communication with dyads, and honoring preferences for communication. The recruitment and retention of acutely ill older adults with dementia and FCGs can pose a challenge to investigators and threaten the validity of findings. Recruitment and retention strategies that help improve validity are described


Author(s):  
Lisa Margaret Jewell ◽  
Marcel D'Eon ◽  
Nora McKee ◽  
Peggy Proctor ◽  
Krista Trinder

Background: This article describes tutors’ experiences with facilitating interprofessional problem-based learning (iPBL), a topic rarely discussed in the literature. We examined tutors’ perceptions of what it was like to tutor iPBL, including the rewarding and challenging aspects. We also reported differences between new and experienced tutors.Methods and Findings: The data presented in this article were collected using three versions of a paper-and-pencil survey (N = 77, N = 99, and N = 97 for each version of the survey, respectively) and six focus groups. Surveys were completed at the conclusion of iPBL modules. Both quantitative and qualitative results indicated that tutors found the experience of facilitating iPBL to be rewarding and encountered few challenges. Tutors felt the training they received prepared them well to tutor. They also felt that facilitating iPBL increased their knowledge in the topic area of the iPBL module and of other professional roles, that it enhanced their skills as facilitators, and that they enjoyed observing students learn. New tutors reported significantly more learning and skill development than experienced tutors.Conclusions: Four lessons were derived from our research: 1) use iPBL to offer IPE; 2) invest in tutor training and support; 3) help tutors trust the process; and 4) consider tutor recruitment and retention strategies.


2020 ◽  
Author(s):  
Emily B Ferris ◽  
Katarzyna Wyka ◽  
Kelly R. Evenson ◽  
Joan M Dorn ◽  
Lorna Thorpe ◽  
...  

UNSTRUCTURED Longitudinal, natural experiments provide an ideal evaluation approach to better understand the impact of built environment interventions on community health outcomes, particularly heath disparities. As there are many recruitment and retention challenges inherent to the design of longitudinal, natural experiments, adaptive and iterative recruitment and retention strategies are critical to the success of a study. This paper documents lessons learned from the Physical Activity and Redesigned Community Spaces (PARCS) Study. The PARCS Study, while ongoing, has developed several approaches to improve the recruitment and retention protocols by prioritizing the following four dimensions: 1) building trust with communities; 2) adapting the study protocol to meet participants’ needs and to reflect their capacity for participation; 3) operational flexibility; and 4) measurement and evaluation systems. These strategies may help researchers more successfully recruit and retain participants, particularly in low-income, minority neighborhoods, into longitudinal studies.


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