Strategies for the Recruitment and Retention of Racial/Ethnic Minorities in Alzheimer Disease and Dementia Clinical Research

2019 ◽  
Vol 16 (5) ◽  
pp. 458-471 ◽  
Author(s):  
Roger Wong ◽  
Takashi Amano ◽  
Shih-Yin Lin ◽  
Yuanjin Zhou ◽  
Nancy Morrow-Howell
Keyword(s):  
African Americans ◽  
Alzheimer Disease ◽  
Clinical Research ◽  
Ethnic Minorities ◽  
Current Evidence ◽  
Recruitment Strategies ◽  
Care Providers ◽  
Retention Strategies ◽  
Recruitment And Retention ◽  
Racial Ethnic

Background:Racial/ethnic minorities have among the highest risks for Alzheimer disease and dementia, but remain underrepresented in clinical research studies.Objective:To synthesize the current evidence on strategies to recruit and retain racial/ethnic minorities in Alzheimer disease and dementia clinical research.Methods:We conducted a systematic review by searching CINAHL, EMBASE, MEDLINE, PsycINFO, and Scopus. We included studies that met four criteria: (1) included a racial/ethnic minority group (African American, Latino, Asian, American Indian or Alaska Native, and Native Hawaiian or Other Pacific Islander); (2) implemented a recruitment or retention strategy for Alzheimer disease or dementia clinical research; (3) conducted within the U.S.; and (4) published in a peer-reviewed journal.Results:Of the 19 included studies, 14 (73.7%) implemented recruitment strategies and 5 (26.3%) implemented both recruitment and retention strategies. Fifteen studies (78.9%) focused on African Americans, two (10.6%) on both African Americans and Latinos, and two (10.5%) on Asians. All the articles were rated weak in the study quality. Four major themes were identified for the recruitment strategies: community outreach (94.7%), advertisement (57.9%), collaboration with health care providers (42.1%), and referral (21.1%). Three major themes were identified for the retention strategies: follow-up communication (15.8%), maintain community relationship (15.8%), and convenience (10.5%).Conclusion:Our findings highlight several promising recruitment and retention strategies that investigators should prioritize when allocating limited resources, however, additional well-designed studies are needed. By recruiting and retaining more racial/ethnic minorities in Alzheimer disease and dementia research, investigators may better understand the heterogeneity of disease progression among marginalized groups. PROSPERO registration #CRD42018081979.

scholarly journals Recruitment and retention of racial/ethnic minorities for web-based intervention trials (Preprint)

2020 ◽  
Author(s):  
DaSol Amy Hwang ◽  
Alex Lee ◽  
Jae Min Song ◽  
Hae-Ra Han
Keyword(s):  
Ethnic Minority ◽  
Ethnic Minorities ◽  
Minority Groups ◽  
The Internet ◽  
Retention Strategies ◽  
Web Based ◽  
Recruitment And Retention ◽  
Intervention Trials ◽  
Racial Ethnic ◽  
Human Support

BACKGROUND Racial/ethnic minority groups are underrepresented in health research, contributing to persistent health disparities in the nation. Identifying effective recruitment and retention strategies among minority groups and their subpopulations is an important research agenda. With the ubiquitous use of the Internet now, web-based intervention approaches are increasingly popular. It is not completely clear which recruitment and retention strategies have been successful in web-based intervention trials targeting racial/ethnic minorities. OBJECTIVE 1) To describe lessons learned in recruiting and retaining one of the understudied ethnic minority women—Korean American—enrolled in a web-based intervention trial and 2) to compare our findings to the strategies reported in relevant published web-based intervention trials. METHODS Multiple sources of data were used to address the objectives of this study including study team’s meeting minutes, participant tracking and contact log, survey reports, and post-intervention interviews. Additionally, an electronic search involving two databases (PubMed and Cumulative Index of Nursing and Allied Health Literature) was done to identify published studies using web-based interventions. Qualitative analysis was then performed to identify common themes addressing recruitment and retention strategies across the trials using web-based intervention modalities. RESULTS A total of nine categories of recruitment and retention strategies emerged: authentic care; accommodation of time, place, and transportation; financial incentives; diversity among study team; multiple, yet standardized modes of communication; mobilizing existing community relationships with efforts to build trust; prioritizing features of web-based intervention; combined use of online and direct recruitment; and self-directed online intervention with human support. While all of the studies included in the analysis combined multiple strategies, prioritizing features of web-based intervention or use of human support were particularly relevant to promoting recruitment and retention of racial/ethnic minorities for web-based intervention trials. CONCLUSIONS Growing prevalence of Internet usage among racial/ethnic minority populations represents an excellent opportunity to design and deliver intervention programs via the Internet. Future research should explore and compare successful recruitment and retention methods between race or ethnic groups for web-based intervention. CLINICALTRIAL e-CHEC-uP: Scaling up an Efficacious Cancer Screening Intervention for Women With Limited English (NCT03726619); https://clinicaltrials.gov/ct2/show/NCT03726619

P2-341 Recruitment and retention strategies with African Americans

2004 ◽  
Vol 25 ◽  
pp. S330
Author(s):  
Kathleen S. Hall ◽  
William J. Malone ◽  
Millicent R. Pettaway ◽  
Hugh C. Hendrie
Keyword(s):  
African Americans ◽  
Retention Strategies ◽  
Recruitment And Retention

Voting Rights, Election Administration, and Turnout for Racial Minorities

2020 ◽  
pp. 91-110
Author(s):  
Michael Ritter
Keyword(s):  
African Americans ◽  
Ethnic Minorities ◽  
Asian Americans ◽  
Race And Ethnicity ◽  
Hispanic Americans ◽  
Election Administration ◽  
Midterm Elections ◽  
The Impact ◽  
Racial Ethnic ◽  
Over Time

Race and ethnicity group identity also shape participation in politics, with non-Hispanics whites being the most likely to vote in U.S. elections over time. Can accessible elections shrink turnout inequality between non-Hispanic whites and racial/ethnic minorities (African Americans, Hispanic Americans, and Asian Americans)? Chapter 6 empirically evaluates the impact of convenience voting laws and election administration on the change in the probably of voting in midterm and presidential elections comparing across racial subgroups. The results show that same day registration boosts turnout among non-Hispanics whites, as well as Asian Americans, Hispanics, and African Americans, in presidential and midterm elections. Early in-person voting especially advantages blacks and Hispanics in midterm elections, while absentee/mail voting is found to have similar effects for Asian Americans. Both non-Hispanic whites and racial and ethnic minorities benefit from quality state election administration.

scholarly journals Recruitment and retention of fathers with young children in early childhood health intervention research: a systematic review and meta-analysis protocol

2019 ◽  
Vol 8 (1) ◽  
Author(s):  
Elizabeth M. Keys ◽  
Jill M. Norris ◽  
Emily E. Cameron ◽  
Katherine S. Bright ◽  
Lianne M. Tomfohr-Madsen ◽  
...  
Keyword(s):  
Systematic Review ◽  
Early Childhood ◽  
Meta Analysis ◽  
Intervention Research ◽  
Current Evidence ◽  
Retention Strategies ◽  
Childhood Health ◽  
Recruitment And Retention ◽  
Early Childhood Health ◽  
The Impact

Abstract Background Fathers are under-represented in research and programs addressing early childhood health and development. Recruiting fathers into these interventions can be hampered for multiple reasons, including recruitment and retention strategies that are not tailored for fathers. The primary aim of this systematic review and meta-analysis is to determine the effectiveness of recruitment and retention strategies used to include fathers of children (from conception to age 36 months) in intervention studies. The secondary aim is to investigate study-level factors that may influence recruitment and retention. Methods We will conduct searches for scholarly peer-reviewed randomized controlled trials, quasi-experimental studies, and pre-post studies that recruited fathers using the following databases: MEDLINE (Ovid), EMBASE (Ovid), PsycINFO (Ovid), and CINAHL. English-language articles will be eligible if they recruited self-identified fathers of children from conception to age 36 months for health-promoting interventions that target healthy parents and children. Two reviewers will independently screen titles/abstracts and full texts for inclusion, as well as grading methodological quality. Recruitment and retention proportions will be calculated for each study. Where possible, we will calculate pooled proportional effects with 95% confidence intervals using random-effects models and conduct a meta-regression to examine the impact of potential modifiers of recruitment and retention. Discussion Findings from this review will help inform future intervention research with fathers to optimally recruit and retain participants. Identifying key factors should enable health researchers and program managers design and adapt interventions to increase the likelihood of increasing father engagement in early childhood health interventions. Researchers will be able to use this review to inform future research that addresses current evidence gaps for the recruitment and retention of fathers. This review will make recommendations for addressing key target areas to improve recruitment and retention of fathers in early childhood health research, ultimately leading to a body of evidence that captures the full potential of fathers for maximizing the health and wellbeing of their children. Systematic review registration PROSPERO CRD42018081332.

scholarly journals Recruitment and Retention in Diverse Cohorts: Lessons From Community-Engaged Efforts

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 473-473
Author(s):  
Carrie Nieman ◽  
Haera Han ◽  
George Rebok
Keyword(s):  
Older Adults ◽  
African American ◽  
Family Caregivers ◽  
Ethnic Minorities ◽  
Behavioral Intervention ◽  
Health Inequities ◽  
Intervention Research ◽  
Community Based ◽  
Recruitment And Retention ◽  
Racial Ethnic

Abstract Effective behavioral interventions and associated trials reflect the complexity and context of the communities with which they are tailored and the behaviors they seek to address. Community-engaged methodology can serve to capture these complexities, particularly when focusing on health inequities. Significant health and healthcare disparities persist among racial/ethnic minorities and representation of racial/ethnic minorities is lacking within trials that reflects the diversity of the U.S. population. Novel approaches are needed to increase the diversity of participants within behavioral intervention research. This symposium covers the unique barriers and facilitators related to recruitment and retention across a range of populations, including African American and Hispanic/LatinX older adults with hearing loss to diverse dementia family caregivers and community-dwelling Korean American older adults. Beyond the challenges and opportunities, the symposium will focus on effective recruitment strategies. The discussion will include 1) findings from 10 years of recruiting older Korean Americans into community-based trials, 2) lessons in tailoring recruitment efforts to dementia family caregivers, 3) the integration of human-centered design into a community-engaged hearing care intervention targeting low-income and African American older adults, 4) successful recruitment and retention efforts in a community-based participatory research trial in a borderlands community, and 5) the deployment of strategies to recruit Latino, Asian, and African American older adults with depression and anxiety in the setting of the COVID-19 pandemic. This symposium seeks to build the evidence related to recruitment of older racial/ethnic minorities in diverse settings, which is fundamental to addressing health inequities through behavioral intervention research.

scholarly journals Impact of COVID-19 on Clinical Research and Inclusion of Diverse Populations

2020 ◽  
Vol 30 (3) ◽  
pp. 429-432 ◽  
Author(s):  
Daniel T. Lackland ◽  
Catrina Sims-Robinson ◽  
Joy N. Jones Buie ◽  
Jenifer H. Voeks
Keyword(s):  
Clinical Trial ◽  
African Americans ◽  
Clinical Research ◽  
Randomized Clinical Trial ◽  
Gold Standard ◽  
External Validity ◽  
Risk Groups ◽  
Recruitment Strategies ◽  
Diverse Populations ◽  
Potential Impact

The randomized clinical trial (RCT) has long been recognized as the ‘gold standard’ for developing evidence for clinical treatments and vaccines; however, the successful imple­mentation and translation of these findings is predicated upon external validity. The generalization of RCT findings are jeopar­dized by the lack of participation of at-risk groups such as African Americans, with long-recognized disproportional representa­tion. Distinct factors that deter participation in RCTs include distrust, access, recruitment strategies, perceptions of research, and socio­economic factors. While strategies have been implemented to improve external validity with greater participation among all segments of the population in RCTs, the coronavirus disease 2019 (COVID-19) pandemic may exacerbate disparities in RCT participation with the potential impact of delaying treat­ment development and vaccine interventions that are applicable and generalizable. Thus, it is essential to include diverse populations in such strategies and RCTs. This Perspec­tive aims to direct attention to the additional harm from the pandemic as well as a refocus on the unresolved lack of inclusion of diverse populations in conducting RCTs. Ethn Dis. 2020;30(3):429-432; doi:10.18865/ed.30.3.429

Abstract 168: Racial and Ethnic Differences in Contemporary Use of Left Ventricular Assist Device

2017 ◽  
Vol 10 (suppl_3) ◽  
Author(s):  
Khadijah Breathett ◽  
Larry A Allen ◽  
Laura Helmkamp ◽  
Kathyrn Colborn ◽  
Stacie L Daugherty ◽  
...  
Keyword(s):  
African American ◽  
African Americans ◽  
Ethnic Groups ◽  
Ethnic Minorities ◽  
Left Ventricular ◽  
Age Group ◽  
Ventricular Assist ◽  
Left Ventricular Assist ◽  
Adjusted Rate ◽  
Racial Ethnic

Background: Rates of receipt of left ventricular assist devices (LVADs) are less than expected for racial/ethnic minorities. A major etiology of this disparity changed over the past few years with broader access to insurance. Thus, we hypothesized that changes in the census-adjusted rate of receipt of LVADs would be higher for racial/ethnic minorities than Caucasians independent of sex and age. Methods: Using the Interagency Registry of Mechanically Assisted Circulatory Support, we analyzed 10,795 patients (African-American 24.8%, Asian 1.5%, Caucasian 67.4%, Hispanic 6.3%, female 21.4%) who had an LVAD implanted between 2012-2015. Linear models were fit to annual census-adjusted rate of LVAD implantation, and the rate of change in receipt of LVADs was compared for each racial/ethnic minority to Caucasians, stratified by sex and age group. Results: Between 2012 and 2015, African-Americans had an increase in the census-adjusted annual rate of receipt of LVADs per 100,000 [+0.26 (95% CI: 0.17-0.34)], while others exhibited no significant changes [Caucasian: +0.06 (95%CI: -0.03-0.14); Hispanic: +0.04 (95%CI: -0.05-0.12); Asian: +0.04 (95%CI: -0.04-0.13)]. When stratified by sex, the observed increase in rate of receipt of LVAD for African-Americans relative to Caucasians was present for both sexes [African-American women: +0.14 (95%CI: 0.01-0.27); African-American men: +0.28 (95%CI: 0.15-0.41)]. No increase was observed in either sex among other racial/ethnic groups ( Figure 1a ). When stratified by age group, the observed increase in rate of receipt of LVAD for African-Americans relative to Caucasians was limited to those aged 40-59 years [African-Americans aged: 20-39: +0.09 (95%CI: -0.20-0.39); 40-49: +0.41 (95%CI: 0.11-0.70); 50-59: +0.31 (95%CI: 0.01-0.60); 60-69: +0.22 (95%CI: -0.08-0.51); 70+: +0.07 (95%CI: -0.23-0.36)]. No differences by age group were observed among other racial/ethnic groups compared to Caucasians ( Figure 1b) . Conclusions: From 2012-2015, rates of receipt of LVADs increased for African-Americans but not other racial/ethnic groups in comparison to Caucasians. Similar patterns were seen when stratified by sex. When stratified by age, the increase in rate was limited to middle-aged African-Americans.

Access and Utilization of PTSD Care for Rural Veteran Women: Recruitment and Retention Strategies

2013 ◽  
Author(s):  
Jennifer A. Schneider ◽  
Julie Neuser ◽  
Margaret-Anne Mackintosh ◽  
Leslie A. Morland
Keyword(s):  
Retention Strategies ◽  
Recruitment And Retention
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