Quality of life and burden on caregivers of chronic psychotic patient: Analysys and correlation with psycopathology

2011 ◽  
Vol 26 (S2) ◽  
pp. 1453-1453
Author(s):  
D.P.E. Monteiro ◽  
T.H. Freitas ◽  
C.M. Clemente ◽  
J.P. Pinto
Keyword(s):  
Quality Of Life ◽  
Negative Symptoms ◽  
Psychotic Disorders ◽  
Demographic Data ◽  
Subjective Burden ◽  
General Psychopathology ◽  
Primary Schooling ◽  
Burden Scale ◽  
The Impact

ObjectivesTo evaluate the subjective impact on quality of life and burden of caregivers of chronic psychotic patients and correlate with the impact that the type of patient’s symptoms according to PANSS (negative, positive, mixed or none).MethodsWe used the Caregiver's Burden scale to measure quality of life and subjective burden of caregivers of chronic psychotic patients followed up by the Psychotic Disorders Clinic of the Hospital Mental Health Messejana, in Fortaleza, Ceará, and the PANSS for the patients of the relatated caregiver. Then we correlated the data in order to observe whether the patient’s symptoms interfere with the quality of life and the burden of the caregivers.ResultsWe observed that most caregivers were women, mothers of patients who had incomplete primary schooling, married, with incomes between one and two minimum wages. In most cases also with incomplete primary degree and mean disease duration was 16.51 (± 9.64) years. We found that higher scores on scales of positive and PANSS general psychopathology in the patient, the worse the quality of life and caregiver burden. In this sample, negative symptoms measured by the PANSS negative scale does not seem to interfere with quality of life and caregiver burden.OuvirLer foneticamente Dicionário - Ver dicionário detalhadoConclusionDemographic data did not affect the quality of life of caregivers; the main factors that contributed to a poorer quality of life and caregiver's burden were high scores in positive and general psychopathology of PANSS.

Abstract 279: The Impact of Heart Failure on Depression and Quality of Life is Greater in Men than Women

2012 ◽  
Vol 5 (suppl_1) ◽  
Author(s):  
Rory Hachamovitch ◽  
Brian Griffin ◽  
Alan Klein ◽  
Benjamin Nutter ◽  
Irene Katzan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Demographic Data ◽  
Cardiovascular Assessment ◽  
Related Quality ◽  
Health Related ◽  
The Difference ◽  
The Impact ◽  
The Relationship

Background. Patients (pts) diagnosed with congestive heart failure (HF) have been reported to have more frequent depression and worsened health related quality of life (HRQOL). Although depression is more common in women than men in this condition, the impact of HF on depression and HRQOL in men versus women is unclear. We sought to examine the relationship between pt sex, HF diagnosis, and pt-perceived depression and HRQOL. Methods. Depression (PHQ-9) and HRQOL (EQ5D) data were collected using tablet computers from pts presenting for routine outpatient cardiovascular assessment at our institution between November, 2010 and December, 2011. Demographic, clinical, and historical data was collected as per routine. We examined the association of pt sex and clinical diagnosis of HF with instrument results after adjusting for potential confounding information using mutliple linear regression. Results. Of 3046 pts (age 61±15), 39% were female and 8.7% were diagnosed with HF. Overall, PHQ-9 was greater, and minor or major depression (PHQ-9≥10) was more frequent, in women than men (4.6±4.6 vs. 3.3±4.4; 14.0% vs. 8.9%, both p<0.05) and in HF pts than pts without HF (5.9±5.6 vs. 3.6±4.3, 22.0% versus 9.6%; both p<0.05). Similarly, HRQOL was worse in women than men (EQ-5D 0.80±0.18 vs. 0.87±0.16; p<0.01) and in HF pts than no HF (EQ-5D 0.76±0.18 vs. 0.85±0.17; p<0.01). However, the difference in PHQ-9 between pts with versus without HF was greater in men (6.23±6.06 vs. 3.02±4.06, p<0.01) than women (5.43±4.85 vs. 4.55±4.58, p=0.09). After adjusting for cardiovascular diagnoses, comorbidities, clinical and demographic data, multivariable modeling of PHQ-9 revealed a significant interaction between pt sex and HF diagnosis (p=0.001; see Figure) such that women had greater PHQ-9 scores compared to men without HF, but in the setting of HF, mens' PHQ-9 scores were greater. Modeling of EQ-5D also revealed that after risk-adjustment an interaction between HF diagnosis and sex was present with a similar pattern of findings. Conclusion. Although depression is more frequent and severe in women compared to men, and in pts with versus without HF, HF appears to impact depression severity more in men compared to women.

scholarly journals RELATIONSHIP BETWEEN FAMILY INTERACTION, FAMILY BURDEN AND QUALITY OF LIFE AMONG CAREGIVERS OF PATIENTS WITH EPILEPSY

2016 ◽  
Vol 4 (4) ◽  
pp. 108-114
Author(s):  
M. Senthil
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Demographic Data ◽  
Family Interaction ◽  
Interaction Pattern ◽  
Family Burden ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
The Impact

Living with epilepsy imposes great challenges on both patients and their family caregivers but most researchers only explored the impact on patients, with less attention given to family caregivers. Our study intended to explore the needs and problems of epilepsy family caregivers of epilepsy patients encountered during the caregiving process. The present study was an attempt to assess the relationship between Family interaction pattern, family burden schedule and Quality of life of the caregivers of individuals with epilepsy. This study was conducted at the Ranchi Institute of Neuro-Psychiatry and Allied Sciences, Ranchi. It was a cross sectional study and purposive sampling was used. The present study was conducted among 60 caregivers of epilepsy, those who were willing to participate and those who have satisfied with inclusion and exclusion criteria have been included in the study. The socio demographic data sheet had been used for collecting socio demographic details of the caregivers of individuals with epilepsy. Family interaction pattern scale, family burden interview schedule and WHO Quality of life scale were applied on the caregivers of individuals with epilepsy. Statistical analysis was performed by using the SPSS programme 16.0 version. The result found that family interaction pattern has effect on family burden and quality of life. Likewise family burden has greater impact on quality of life. The study highlights the need for family interventional programs to address the specific issues related to family interaction, burden and quality of life of caregivers.

scholarly journals Investigation of the Relationship between Care Giving Burden and Quality of Life of Caregivers of Cancer Patients

2021 ◽  
Vol 10 (9) ◽  
pp. 567-572
Author(s):  
Serap Gokce Eskin ◽  
Ruveyda Yuksel ◽  
Hulya Bulut
Keyword(s):  
Quality Of Life ◽  
Scale Score ◽  
Caregiver Burden ◽  
Demographic Data ◽  
Strong Relationship ◽  
Care Giving ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Burden Scale

BACKGROUND We wanted to evaluate the effect of caregiver burden on quality of life of the cancer patient caregivers. METHODS This research was conducted as an analytical cross-sectional study. The study population comprised of caregivers of patients, who were receiving treatment in the chemotherapy unit of a branch hospital. 466 caregivers who participated in the study comprised the sample of the research. The research data was collected using “Demographic Data Form”, “Zarit Burden Interview”, and “Caregiver Quality of Life Scale-Cancer”. RESULTS Among the participants, 71.2 % were females and average age was 44.80 ± 13.76. It was concluded that certain qualifications of the caregivers such as educational status, income levels, another family member with cancer diagnosis, and having support in caregiving process affected the quality of life of the caregivers. Burden scale score was 32.41, and quality of life scale score was 89.83. It was determined that there was a negative and strong relationship between the burden scale and quality of life scale. Presence of another individual with cancer in the family, receiving support, conditions arising from the caregiving process, such as affected health, having marital difficulties were found to affect the burden of caregiving. CONCLUSIONS It was determined that there was a negative, strong relationship between the caregiver burden and quality of life. In line with these results, it is suggested that interventional and qualitative studies should be conducted on the caregivers in order to define their caregiver burden and evaluate their lifestyles. KEY WORDS Cancer, Care Giver, Burden, Quality of Life

scholarly journals Chronic Urticaria and Its Impact on the Quality of Life of Nepalese Patients

2020 ◽  
Vol 2020 ◽  
pp. 1-5
Author(s):  
Sushil Paudel ◽  
Niraj Parajuli ◽  
Rabindra Prasad Sharma ◽  
Sudip Dahal ◽  
Sudarshan Paudel
Keyword(s):  
Quality Of Life ◽  
Chronic Urticaria ◽  
Demographic Data ◽  
Life Quality ◽  
Well Being ◽  
Female Ratio ◽  
Principle Component ◽  
The Mean ◽  
The Impact

Chronic urticaria (CU) is a skin condition characterized by sudden and recurrent episodes of wheals, angioedema, or both and commonly associated with itching for a duration of more than six weeks. The available data indicate that urticaria markedly affects both objective functioning and subjective well-being of patients. A review of patients’ records with chronic urticaria attending Civil Service Hospital from January 2018 to December 2019 was done. A detailed demographic data of all patients with chronic urticaria was also retrieved. Dermatology Life Quality Index questionnaire (DLQI) Nepalese version was used for the assessment of the impact of disease on life quality. Mann–Whitney U-test was applied to compare means, and principle component analysis for factor analysis was used. A total of 149 patients were included, with a male-to-female ratio of 1 : 1.9. The mean age of the study population was 32.86  ±  12.837 years. The mean DLQI score was 8.30  ±  6.73 with men having a significantly greater score than women ( p < 0.02 ). DLQI scores negatively correlated with age ( p < 0.01 ). There was a high internal consistency among items (Cronbach’s alpha 0.89), and all items had satisfactory correlation with each other as well. Principle component extraction revealed that there were two underlying factors in the DLQI questionnaire on measuring quality of life in chronic urticaria. Males had a greater impairment in quality of life than females due to chronic urticaria. Most severe impairment was seen in symptoms/feelings subdomain. It also revealed that there were two different underlying factors in DLQI questionnaire.

Family Caregivers' Burden, Quality of Life, and Health following Patients' Renal Transplantation

1998 ◽  
Vol 8 (3) ◽  
pp. 170-176 ◽  
Author(s):  
Mona Newsome Wicks ◽  
E. Jean Milstead ◽  
Donna K. Hathaway ◽  
Muammer Cetingok
Keyword(s):  
Quality Of Life ◽  
Renal Transplant ◽  
Family Caregivers ◽  
Renal Transplant Recipients ◽  
Transplant Recipients ◽  
Subjective Burden ◽  
Self Rated Health ◽  
The Family ◽  
The Impact

Improved quality of life and physical functioning among renal transplant recipients have been documented; however, little of the literature has addressed the effects of transplantation on family caregivers. The purpose of this exploratory descriptive study was to characterize the level of subjective burden, quality of life, and self-rated health of caregivers who assist family members prior to transplantation as well as at 6 months following. The study sample included 19 caregivers of 19 renal transplant recipients. In general, caregiver burden, quality of life, and self-rated health did not improve following patients' transplants. In addition, 9 of 19 family caregivers reported increased burden. Because much of healthcare is family-based and greater reliance on family support seems inevitable, further studies are needed to examine the impact of transplantation on the family as well as the impact of the family on patients' posttransplant outcomes.

Evaluation of an Instrument Assessing Influence of Gout on Health-Related Quality of Life

2008 ◽  
Vol 35 (12) ◽  
pp. 2406-2414 ◽  
Author(s):  
JAN D. HIRSCH ◽  
SUSAN J. LEE ◽  
ROBERT TERKELTAUB ◽  
DINESH KHANNA ◽  
JASVINDER SINGH ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Demographic Data ◽  
Reliability And Validity ◽  
Health Related Quality ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
The Impact

ObjectiveTo evaluate the reliability and validity of an instrument assessing the influence of gout (acute and chronic) on health-related quality of life (HRQOL).MethodsFocus groups were used to examine the content of an existing Gout Assessment Questionnaire (GAQ1.0). GAQ2.0 was developed, consisting of a section describing the impact of gout on HRQOL [Gout Impact (GI)] and 4 sections describing subjects’ gout overall and demographic data. The GAQ2.0 and the Medical Outcomes Study Short Form-36 Version 2 (SF-36v2) were completed by gout patients in 3 US cities. GI scales were examined using clinical judgment, review of item statistics, Rasch analysis, and confirmatory factor analysis.ResultsSubjects (n = 308) were predominantly male (90.2%), Caucasian (75.9%), with a mean age 62.2 ± 11.8 years. Half the subjects (49.7%) reported ≥ 3 attacks in the past year. Two-week test-retest reliability for each scale was good (0.77 to 0.89) for all 5 GI scales. All scales achieved high sufficient (0.86 to 0.89) or excellent (0.93 to 0.97) ratings based on 10-item adjusted alpha coefficients. Correlations and tests among known groups indicated subjects with more severe gout had higher GI scores (i.e., greater gout impact). GI scores correlated more highly with patient-reported measures of gout severity than the SF-36v2 and several traditional measures of gout severity.ConclusionThe GAQ2.0 is an instrument for measuring the impact of gout on HRQOL. The GI section exhibited acceptable reliability and validity characteristics. Future studies should assess GI responsiveness, minimally important differences, and psychometric properties in other patient populations.

scholarly journals Systematic review of global functioning and quality of life in people with psychotic disorders

2018 ◽  
Vol 28 (1) ◽  
pp. 31-44 ◽  
Author(s):  
A. G. Nevarez-Flores ◽  
K. Sanderson ◽  
M. Breslin ◽  
V. J. Carr ◽  
V. A. Morgan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Negative Symptoms ◽  
Psychotic Disorders ◽  
Positive Impact ◽  
Meta Analysis ◽  
Positive Association ◽  
Global Functioning ◽  
Two Phase

AbstractAimsPeople with psychotic disorders face impairments in their global functioning and their quality of life (QoL). The relationship between the two outcomes has not been systematically investigated. Through a systematic review, we aim to explore the presence and extent of associations between global functioning and QoL and establish whether associations depend on the instruments employed.MethodsIn May 2016, ten electronic databases were searched using a two-phase process to identify articles in which associations between global functioning and QoL were assessed. Basic descriptive data and correlation coefficients between global functioning and QoL instruments were extracted, with the strength of the correlation assessed according to the specifications of Cohen 1988. Results were reported with reference to the Meta-analysis of Observational Studies in Epidemiology guidelines and PRISMA standards. A narrative synthesis was performed due to heterogeneity in methodological approaches.ResultsOf an initial 15 183 non-duplicate articles identified, 756 were deemed potentially relevant, with 40 studies encompassing 42 articles included. Fourteen instruments for measuring global functioning and 22 instruments for measuring QoL were used. Twenty-nine articles reported linear associations while 19 assessed QoL predictors. Correlations between overall scores varied in strength, primarily dependent on the QoL instrument employed, and whether QoL was objectively or subjectively assessed. Correlations observed for objective QoL measures were consistently larger than those observed for subjective measures, as were correlations for an interviewer than self-assessed QoL. When correlations were assessed by domains of QoL, the highest correlations were found for social domains of QoL, for which most correlations were moderate or higher. Global functioning consistently predicted overall QoL as did depressive and negative symptoms.ConclusionsThis review is the first to explore the extent of associations between global functioning and QoL in people with psychotic disorders. We consistently found a positive association between global functioning and QoL. The strength of the association was dependent on the QoL instrument employed. QoL domains strongly associated with global functioning were highlighted. The review illustrates the extensive array of instruments used for the assessment of QoL and to a lesser extent global functioning in people with psychotic disorders and provides a framework to understand the different findings reported in the literature. The findings can also inform the future choice of instruments by researchers and/or clinicians. The observed associations reassure that interventions for improving global functioning will have a positive impact on the QoL of people living with a psychotic disorder.

scholarly journals The Impact of the COVID-19 Pandemic on Quality of Life and Well-Being in Morocco

2020 ◽  
Author(s):  
Zouhour Samlani ◽  
Yassine Lemfadli ◽  
Adil Ait Errami ◽  
Sofia Oubaha ◽  
Khadija Krati
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Physical Health ◽  
Short Form ◽  
Demographic Data ◽  
Well Being ◽  
Chronic Health ◽  
Health Score ◽  
The Impact

Introduction:The majority of epidemiological reports focus on confirmed cases of COVID-19. In this study, we aim to assess the health and well-being of adults not infected with Covid-19 after two months of quarantine in Morocco.Materials and methods:Two months after the declaration of quarantine in Morocco following the Covid-19 epidemic, we carried out a descriptive cross-sectional study of 279 Moroccan citizens. We used the Short Form Health Survey (SF-12) as a determinant of quality of life, which is based on eight dimensions of health. The data were collected using an electronic questionnaire distributed online. The participants also indicated their socio-demographic data, their knowledge and practices regarding the Covid-19 pandemic and whether they had chronic health problems.Results:The quality of life of all participants was moderately disrupted during the Covid-19 pandemic with a mental health score (MCS) of 34.49 (&plusmn; 6.44) and a physical health score (PCS) of 36.10 (&plusmn; 5.82). Participants with chronic diseases scored lower with 29.28 (&plusmn; 1.23) in mental health (MCS) and 32.51 (&plusmn; 7.14) in physical health (PCS). The seriousness of COVID-19 has an impact on the quality of life and health well-being of people and this impact is more marked in patients with chronic health problems.Conclusion: Our results confirm the need to pay attention to the health of people who have not been infected with the virus. Our results also point out that uninfected people with chronic illnesses may be more likely to have well-being problems due to quarantine restrictions.

Impact of radiotherapy on quality of life in elder women with localized breast cancer. A prospective study

2007 ◽  
Vol 25 (18_suppl) ◽  
pp. 19656-19656
Author(s):  
J. I. Arraras ◽  
F. Arias ◽  
A. Manterola ◽  
M. A. Dominguez ◽  
E. Villafranca ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Demographic Data ◽  
Performance Status ◽  
Treatment Protocol ◽  
Elder Patients ◽  
Co Morbidity ◽  
Global Quality Of Life ◽  
The Impact

19656 Background: the aims of the present study was to evaluate the impact of the radiotherapy in the Quality of Life (QL) in a sample of breast cancer elder patients with localized stages. Methods: The sample size was previously calculated using the program GRANMO 5.2 (Power O.8, a=0.01). During 2005, forty eight patients aged 65 years and older, stages I to III who started radiotherapy with or without hormonetherapy, have filled in the EORTC QLQ-C30 and QLQ-BR23 Quality of Life questionnaires three times: prior, end, and six weeks after the radiotherapy. Demographic data, performance status (Karnfosky scale), Daily Living Activities (DLA) with the IDDD scale, toxicity (CTC v2.0), co-morbidity and other clinical data have also been recorded Statistical analysis: Quality of Life and DLA scores, changes in them among the three assessments (Friedman, with Wilcoxon and Bonferroni criteria) have been calculated. Results: Quality of Life and DLA scores have been high in most dimensions in the three measurements. Moderate limitations (>30 points) have appeared in global Quality of Life, future worries, sexuality scales in the three measurements, and insomnia in the second. There are no significant differences in QL scores between the first and third measurements. In the second measurement there are moderate worsening (between 10 and 20 points) in fatigue, pain and breast symptoms and little (<10) in role, that have recovered in the third measurement. There has also been improvements between the second and third measurement in arm symptoms and global QL. No changes in DLA among the three measurements. Conclusions: Quality of Life in the elder patients has been good and the treatment adequately tolerated. Limited changes have appeared in treatment related areas that have recovered after a short follow-up period. Age should not be the only factor to consider when deciding the treatment protocol to administer. It would be desirable to confirm our results with a bigger sample. No significant financial relationships to disclose.

The impact of surgical resection on headache disability and quality of life in patients with colloid cyst

Cephalalgia ◽  
2016 ◽  
Vol 37 (5) ◽  
pp. 442-451 ◽  
Author(s):  
Lyonell Kone ◽  
Kaisorn L Chaichana ◽  
Jordina Rincon-Torroella ◽  
Claire Snyman ◽  
Abhay Moghekar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Surgical Resection ◽  
Demographic Data ◽  
Colloid Cyst ◽  
Self Report ◽  
Survival Group ◽  
Baseline Characteristics ◽  
Headache Disability ◽  
The Impact

Introduction Colloid cysts are histologically benign but can present with a broad spectrum of symptoms. A systematic review of the literature did not reveal any patient-centered data on the headache disability and quality of life (QoL) of these patients. Methods This is a retrospective cohort study of 187 colloid cyst patients from the Colloid Cyst Survival Group who completed a survey that included demographic data, clinical data, a modified QoL survey (SF36v2), and a headache disability inventory or index (HDI). Results Using multivariable linear regressions, we confirmed that the physical (PCS) and mental (MCS) components of SF-36 were significantly increased in the surgery group after adjustment for various baseline characteristics ( p = 0.025; p = 0.006). Self-reported headache disability was significantly decreased with surgery when adjusted for the same baseline characteristics ( p = 0.02). Finally, patients with an incidental diagnosis of colloid cyst reported similar benefits from surgery in PCS, MCS and HDI. Conclusion Our results suggest that colloid cyst patients who underwent a surgical resection self-report a better QoL and less headache disability compared with patients who did not undergo surgery. Future prospective studies with baseline measures of QoL are indicated to confirm our findings.

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