scholarly journals RELATIONSHIP BETWEEN FAMILY INTERACTION, FAMILY BURDEN AND QUALITY OF LIFE AMONG CAREGIVERS OF PATIENTS WITH EPILEPSY

2016 ◽  
Vol 4 (4) ◽  
pp. 108-114
Author(s):  
M. Senthil
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Demographic Data ◽  
Family Interaction ◽  
Interaction Pattern ◽  
Family Burden ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
The Impact

Living with epilepsy imposes great challenges on both patients and their family caregivers but most researchers only explored the impact on patients, with less attention given to family caregivers. Our study intended to explore the needs and problems of epilepsy family caregivers of epilepsy patients encountered during the caregiving process. The present study was an attempt to assess the relationship between Family interaction pattern, family burden schedule and Quality of life of the caregivers of individuals with epilepsy. This study was conducted at the Ranchi Institute of Neuro-Psychiatry and Allied Sciences, Ranchi. It was a cross sectional study and purposive sampling was used. The present study was conducted among 60 caregivers of epilepsy, those who were willing to participate and those who have satisfied with inclusion and exclusion criteria have been included in the study. The socio demographic data sheet had been used for collecting socio demographic details of the caregivers of individuals with epilepsy. Family interaction pattern scale, family burden interview schedule and WHO Quality of life scale were applied on the caregivers of individuals with epilepsy. Statistical analysis was performed by using the SPSS programme 16.0 version. The result found that family interaction pattern has effect on family burden and quality of life. Likewise family burden has greater impact on quality of life. The study highlights the need for family interventional programs to address the specific issues related to family interaction, burden and quality of life of caregivers.

scholarly journals Relationship between Family Interaction pattern, Family Burden and Quality of Life among Caregivers of Patients with Alcohol Dependence

2016 ◽  
Vol 3 (3) ◽  
Author(s):  
Dr. M. Senthil ◽  
Dr. Manisha Kiran
Keyword(s):  
Quality Of Life ◽  
Alcohol Dependence ◽  
Demographic Data ◽  
Severity Index ◽  
Family Interaction ◽  
Interaction Pattern ◽  
Family Burden ◽  
Cross Sectional ◽  
Quality Of Life Scale

Alcohol and drug use disorders have devastating physical, mental, and socio-economic consequences not only for patients but also for their families. Their illness substantially affects the quality of life of other family members, including financial security, mental health, social networks, and productivity. So the present study was an attempt to assess the relationship between family interaction pattern, family burden and Quality of life among caregivers of individuals with alcohol dependence. This study was conducted at the Ranchi Institute of Neuro-Psychiatry and Allied Sciences, Ranchi. It was a cross sectional study and purposive sampling was used. The present study consisted of 60 caregivers of alcohol dependence, those who were willing to participate and those who have satisfied with inclusion and exclusion criteria have been included in the study. The socio demographic data sheet had been used for collecting socio demographic details of the caregivers of individuals with alcohol dependence. To assess the alcohol severity of the patient, the alcohol severity index scale was applied. Family interaction pattern scale, family burden interview schedule and WHO Quality of life scale were applied on the caregivers of individuals with alcohol dependence. The findings indicated that there is significant positive correlation exist between family interaction pattern, Family burden and quality of life among caregivers of individuals with alcohol dependence.

Impact of musculoskeletal disorders on quality of life of patients visiting tertiary care hospital.

2021 ◽  
pp. 1-11
Author(s):  
Shah Khalid ◽  
Sayed Zulfiqar Ali Shah ◽  
Abid Ali Khalil ◽  
Ihsan Ullah
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Musculoskeletal Disorders ◽  
Teaching Hospital ◽  
Adhesive Capsulitis ◽  
Care Hospital ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
The Impact

Abstract Objective: To determine the impact of musculoskeletal disorders on quality of life of patients visiting Khyber Teaching Hospital, Peshawar. Method and Material: A cross sectional survey conducted in Khyber Teaching Hospital, Peshawar from September 2018 to March 2019 using a validated EQ-5D quality of life scale. The survey questionnaire was attended by 377 respondents having variety of musculoskeletal disorders (MSDs). EQ-5D can be effectively used for assessing the quality of life and health status using the VAS pain scale. Results: There were total 377 respondents. Mean age of the participants was 35.9 ± 12.5 years. Out of 377 participants, 204 (54.1%) were male, while 173 (45.9%) were female. Muscular weakness was the most commonly encountered problem (40.6%), followed by muscle stiffness (13.0%) and adhesive capsulitis (10.3%). The remaining respondents were having different kinds of MSDs. Patients with MSDs were having significantly moderately low score on EQ-5D. Conclusion: The finding of this study suggests that MSDs have negative impact on quality of life and health status of the sufferers. Individuals having any sort of MSDs should seek proper care in order to improve their quality of life, health status and work performance. Key words: Musculoskeletal Diseases, Health, Quality of Life, visual analog scales, Cross Sectional Studies. Continuou....

Caring for the caregiver: factors associated with the quality of life of family caregivers to palliative care patients

2015 ◽  
Vol 3 (3) ◽  
pp. 352
Author(s):  
Macarena Quesada ◽  
Manuel Madrigal ◽  
Aurelio Luna ◽  
Maria D Perez-Carceles
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Family Caregivers ◽  
Care Patient ◽  
Terminal Phase ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Factors Associated ◽  
The Impact

Purpose: The aim was to investigate the factors associated with the quality of life (QoL) of family caregivers to palliative care patients. Methods: A cross-sectional survey was conducted of 125 family caregivers of patients in the terminal phase of their illness and included in palliative care programs. Data were collected using WHOQOL-BREF, the socio-demographic characteristics of both caregiver and patient, clinical questions and information about caregiving. Results: The QoL of caregivers was lower than that of the national average for healthy people. Significantly lower QoL scores were obtained in the case of caregivers if they were women, over 55 years, uneducated, unemployed or the patient’s spouse. Cancer diagnosis and patients who were dependent for their Activities of Daily Living also lower caregiver QoL. The factors associated with higher caregiver QoL in each domain differed: being employed in the physical domain (OR:3.3; 95% CI:1.47-7.4), the patient receiving palliative care in hospital in the psychological domain (OR:3.05; 95% CI:1.19-7.7), a higher level of caregiver´s education in the social domain (OR:3.3; 95% CI:1.4-9.8) and caregivers between 45-55 years in the environmental domain (OR:5.4; 95% CI:1.6-9.2).Conclusion: Family caregivers of palliative care patients are highly burdened during caregiving. Characteristics of the patient and caregiver and the conditions under which care is performed, significantly affect QoL. We consider it essential to increase health professionals’ awareness of the importance of the role of the caregiver in providing services to the terminally ill, given the impact of the caregiver’s QoL on the QoL of the palliative care patient and its importance for the delivery of person-centered care at the end of life.    

scholarly journals Cultural Adaptation and Psychometric Properties of the Diabetes Quality of Life Scale in Afaan Oromoo among People Living with Type 2 Diabetes in Ethiopia

2021 ◽  
Vol 18 (14) ◽  
pp. 7435
Author(s):  
Dereje Chala Diriba ◽  
Doris Y. P. Leung ◽  
Lorna K. P. Suen
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Internal Consistency ◽  
Employment Status ◽  
Educational Status ◽  
Good Reliability ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
The Impact

Background: The original 46-item diabetes quality of life (DQOL) scale has been translated into different languages, and the translated DQOL has shown good reliability and validity after deleting some items. The aim of this study was to translate the diabetes quality of life (DQOL) scale into Afaan Oromoo and to culturally adapt and evaluate the psychometric properties of the DQOL-Afaan Oromoo (DQOL-AO) among people living with T2D in Ethiopia. Methods: A cross-sectional study with a convenience sampling technique was conducted in 2020. The DQOL was translated and adapted to Afaan Oromoo. Item–total correlations and exploratory factor analysis (EFA) assessed factor structure; the Cronbach’s alpha assessed internal consistency and relationships with gender, educational status, marital status, age, and employment status; and status of diabetes-related disease assessed the construct validity of the DQOL-AO. Results: 417 participants responded to all items of the DQOL. Item–total correlation analysis and EFA produced a 34-item DQOL-AO with four subscales, which demonstrated that the internal consistency of the overall DQOL-AO was 0.867, and scores were 0.827, 0.846, 0.654, and 0.727 for the impact, satisfaction, social/vocational worry, and diabetes-related worry subscales, respectively. Statistically significant differences between QOL were obtained in educational status (F = 7.164, p < 0.001) and employment status (F = 4.21, p = 0.002). Individuals who attended college and above and government employees had better QOL. Conclusion: The 34-item DQOL-AO provided preliminary evidence as a reliable and valid tool to measure diabetic-related QOL before it can be widely used among adults living with T2D who speak Afaan Oromoo.

scholarly journals Correlation of Depression, Anxiety and Stress with Quality of Life in COVID-19 Pandemic

Esculapio ◽  
2021 ◽  
Vol 17 (2) ◽  
pp. 195-199
Author(s):  
Aysha Rashid ◽  
◽  
Umair Mudassar ◽  
Ismail Tariq ◽  
Adil Zaheer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Tertiary Care ◽  
Depression Score ◽  
Care Hospital ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
The Mean ◽  
The Impact

Due to Covid-19 pandemic the psychological health of individuals is disturbed globally. There is a dire need of looking into details about the effects of mental health issues on quality of life (QOL). Objectives: To determine correlation between depression, anxiety, stress, and quality of life among adults in Covid-19 and evaluate the impact of demographics on quality of life. Methods: It was a cross-sectional study carried out at a tertiary care hospital. Patients presenting in the psychiatry outdoor of age 18 to 60 years, of both genders and scoring ≥21 on Depression, Anxiety, and Stress Scale (DASS) were enrolled in the study and depression, anxiety and stress severity was assessed and Quality of Life Scale (QOLS) was applied on all to assess their quality of life. All findings were then subjected to statistical analysis. Results: The mean age of the patients was 21.78±3.204, mean depression score on DASS was 8.58±4.510, mean anxiety score on DASS was 11.68±4.160 and the mean stress score on DASS was 14.84±3.192. There were 63.5% males and 36.5% females. Depression, anxiety and stress had a negative correlation with quality of life. Depression and stress were significantly correlated negatively with quality of life (p=0.000). No demographical factor was significantly associated with poor quality of life. Conclusion: Depression, anxiety and stress were negatively correlated with poorer QOL and depression and stress had significant association with poor QOL. Key words: Anxiety, Depression, Covid-19, Quality of life How to cite: Rashid A., Mudassar U., Tariq I., Zaheer A., Iftikhar M., Mazhar N. Correlation of Depression, Anxiety and Stress with Quality of Life in COVID-19 Pandemic. Esculapio 2021;17(02):195-199.

Costs, burden and quality of life associated with informal caregiving for children with Lymphoma attending a tertiary hospital in Ghana

2020 ◽  
Vol 23 (4) ◽  
pp. 165-172
Author(s):  
Cromwell Prince Dawson ◽  
Genevieve Cecilia Aryeetey ◽  
Samuel Agyei Agyemang ◽  
Kofi Mensah ◽  
Rebecca Addo ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Social Protection ◽  
Primary Caregivers ◽  
Direct Costs ◽  
Cross Sectional ◽  
High Burden ◽  
The Impact

Introduction Primary family caregivers provide substantial support in the management of lymphoma, potentially affecting their quality of life and increasing household health care costs. Our aim was thus to determine the economic costs and quality of life of primary caregivers of children with lymphoma. Methods This cross-sectional study involved primary informal caregivers of children with lymphoma attending the pediatric cancer unit at Komfo Anokye Teaching Hospital. The study adopted a cost-of-illness approach to estimate the direct costs (medical and non- medical) incurred and indirect cost (productive losses) to caregivers over the one-month period preceding the data collection. Zarit Burden Interview was used to determine caregiver burden and EUROHIS-QoL tool was used to determine the quality of life of primary caregivers. Results The average cost of managing lymphoma in children was estimated to be US$440.32, 97% of which were direct costs. On average, caregiver burden was 26.3 on the scale of 0 to 48. About 94% of caregivers reported high burden, with more males reporting high burden. Overall, average quality of life among caregivers was 2.20 on the 1 to 5 range. Approximately 85% of respondents reported low quality of life, with females reporting lower quality of life than males. Discussion This study shows that lymphoma is associated with substantial cost and increased burden, and affects quality of life of family caregivers. Future studies can explore the impact of social protection interventions (in the form of health insurance) to reduce the household economic burden of managing lymphoma in children.

scholarly journals Family Interaction Pattern and Quality Of Life of Caregivers Having Violent Patients with Bipolar Affective Disorder (Current Episode Mania)

2017 ◽  
Vol 5 (1) ◽  
Author(s):  
Ashok. S ◽  
Dr. Amool R Singh
Keyword(s):  
Quality Of Life ◽  
Family Violence ◽  
Affective Disorder ◽  
Bipolar Affective Disorder ◽  
Family Interaction ◽  
Interaction Pattern ◽  
Quality Of Life Scale ◽  
The Family ◽  
Leadership Pattern

Background: Bipolar affective disorder (BAD) is a multi-factorial disorder with various clinical presentations. ‘The manic episodes are manifestated by decreased sleep, irritability, aggression, dramatic fluctuation in mood or emotions caused to violent acts’. The clinical importance of hostility is in its close association with violence and non-adherence to treatment. BAD symptoms can result in damaged relationships, poor job or school performance that can seriously affect the lives of patients and their families. All caregivers share a similar fate; and they take responsibility for their mentally ill family members. Aim and Objectives: Aim was to examine the family interaction pattern and quality of life of caregivers having violent patients with bipolar affective disorder (current episode mania). Methodology: The Present study was a cross sectional hospital based and approved by ethical committee. Total 858 family members/caregiver interviewed for history of violence with diagnosed patient with BAD current episode mania (age 21 – 45 years) fulfilling ICD-10 criteria selected using probability sampling, when they brought patient in OPD. Total thirty (n=30) adult persons with BAD patient’s caregivers sample were recruited as per inclusion, exclusion-criteria for data collection tools such as Semi-structured socio-demographic data sheet, Family Violence Scale (Bhatti et al., 1985), Family interaction pattern scale (Bhatti et al., 1986) and WHO-Quality of Life Scale (WHO-QoL-BREF, 1998).  Results: There was no significant difference found in all domains of the Family Violence Scale. In correlation Physical violence domain positively correlated with Family Interaction Pattern’s domain of Leadership pattern at 0.05 level and Emotional violence positively correlated with Communication at 0.05 level and with Leadership pattern at 0.01 level. As well as Social violence positively correlated with the domain Leadership at 0.05 level. Also total score of family violence positively correlated with Leadership pattern at 0.01 level of the Family Interaction Pattern Scale. With QoL family violence domain emotional violence negatively correlated with the Psychological health, Social relationship and Environmental/Financial at 0.05 level and with Total score of QoL at 0.01 level. As well as total score of the family violence negatively correlated with the domain Social relationship at 0.05 level of the WHO – Quality of life Scale. Conclusion: It is very important for the mental health professionals to identify the needs of the family caregivers. Finding out areas need attention and strategies to restore the wellbeing of an individual and caregiver requires knowledge and skill based comprehensive assessment. Mental health issues need multidimensional approaches to bring fruitful outcomes. Engagement and implementation strategies, as well as the interventions themselves, must be tailored to local and cultural characteristics.

Fear of memory decline predicts lower quality of life and increased memory failures in older adults: Preliminary findings from a novel fear-avoidance of memory decline scale.

2020 ◽  
Author(s):  
Francesca Farina ◽  
Marc Patrick Bennett ◽  
James William Griffith ◽  
Bert Lenaert
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Memory Performance ◽  
Fear Avoidance ◽  
Subjective Memory ◽  
Memory Decline ◽  
General Anxiety ◽  
Quality Of Life Scale ◽  
The Impact

Evidence concerning the impact of fear of memory decline on health-related outcomes is limited. To determine the relationship between fear-avoidance of memory decline, quality of life and subjective memory in older adults using a novel scale to measure fear of memory decline. Sixty-seven older adults (59-81 years) completed a 23-item self-report questionnaire designed to capture experiential, cognitive and behavioral components of fear of memory decline, known as the fear and avoidance of memory decline (FAM) scale. Memory performance was assessed using the Wechsler Memory Scale (WMS-IV) and the Memory Failures Scale (MFS). General anxiety was assessed using the Depression, Anxiety and Stress Scales (DASS) and the Geriatric Anxiety Inventory (GAI). Quality of life was assessed using the Older Person’s Quality of Life scale (OPQOL-35). The FAM scale demonstrated good reliability and validity. Three latent factors were observed including: (1) fear-avoidance, (2) problematic beliefs and (3) resilience. After adjusting for age, education, memory performance and general anxiety, higher fear-avoidance predicted lower quality of life (p=.021) and increased memory failures (p=.022). Increased fear of memory decline predicts lower quality of life and subjective memory failures in healthy older adults. Based on these findings, we propose a preliminary fear-avoidance model that explains the development and maintenance of dementia-related functional disability in terms of psychological processes.

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