Guitars have disabilities: exploring guitar adaptations for an adolescent with Down syndrome

2014 ◽  
Vol 31 (3) ◽  
pp. 343-357 ◽  
Author(s):  
Adam Patrick Bell

The guitar has a high value in cultural capital and we are immersed in a culture in which the guitar is the predominant vehicle of music-making. Given the guitar's mass popularity, it follows that the guitar-learning community is vast and diverse. Subscribing to the social model of disability, I problematise the guitar as being disabled and conducted an instrumental case study using the ethnographic tools of video-based observation, field notes and a semi-structured interview to chronicle the experience of teaching an adolescent with Down syndrome how to play the guitar. Different approaches to enabling the guitar are examined including open-tuning, standard tuning and a modified two-string guitar. Findings discuss the importance of the guitar to the participant as a percussive and rhythmic instrument and additionally as support for singing in the context of jamming.

2017 ◽  
Vol 119 (12) ◽  
pp. 1-24
Author(s):  
Kurt D. Squire ◽  
Constance Steinkuehler

Background Since 1999, a “two hours a day” restriction has been recommended for screen time for children, yet American households continue to consume far more media than such recommendations allow. At the basis of such largely ignored admonitions is a dosage model of technology in which a presumed homogeneous substance called “screen time” is the intervention and changes in some set of continuous and measurable variables (e.g., literacy, aggression, social acuity, BMI) are the outcomes. However, to treat “screen time” as a meaningful unit of analysis is to carve the world at the wrong ontological joints. If we want to make claims about what is and is not good for children and counsel parents on how to regulate, mediate, and participate in media use in the home, we need to understand the black box of screen time and unpack how technology is used in specific ways in specific material and social contexts, and the relationship of that activity to systems of meaning beyond the device or screen. Purpose In this article, we unpack the notion of screen time as a way to problematize the dosage model of media use and the regulatory admonitions given parents based on it. Research Design In this investigation, we use Stake's instrumental case study methods to examine in detail a single child's activity in the videogame Madden; the meaning, function and context of this play; and how it is tied to other forms of engagement and the activity of American football. “Madden” is our bounded case, but, as we will show, the meaning of playing Madden comes from its location within the broader activity of “American football.” Data Collection and Analysis Observations of the 7-year-old male's gameplay and attending activities for a period of 3.5 months, with multiple informal interviews about his activity across that observational period, including a 90-minute structured interview midway through observations. Field notes and screenshots were taken on both informal and formal observations. Findings This case study illustrates how digital games, streamed and live video, print documents, tangible manipulatives, and physical action are caught up in a single coherent transmedia endeavor whose means and instruments are constructed first, perhaps, by media producers but then deconstructed and repurposed by users themselves. The videogame as practiced is a simulated system tied to the real world it represents, and, as such, play is deeply embedded in a complex semiotic, material, and social context. Conclusions Constructs such as screen time quantity distract us from other, more explanatory constructs such as productive practice, critical consumption, developmental progressions, and intertextuality.


Inclusion ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. 275-292
Author(s):  
Yunji Jeong ◽  
Ruth Luckasson

Abstract The purpose of this study was to examine the knowledge and desires of parents of middle school students with intellectual disability regarding inclusive education practices and laws in South Korea. We interviewed seven mothers of children with ID who attended South Korean middle schools. Three themes emerged including (a) mother-teacher communication, (b) particular knowledge that suppressed further desires for inclusive education, and (c) culture-based advocacy for inclusive education. We discussed these findings based on Rawls's theory of justice, Confucianism, and the social model of disability.


2019 ◽  
Vol 13 (1) ◽  
pp. 67-78 ◽  
Author(s):  
Samuel Yates

This article aims to amplify disability theory’s impact in performance studies by generating a framework for understanding disability representation in musical theatre. Taking the original and revival Broadway productions of Side Show (1997, 2014) as a case study, I articulate how the musical simulates disability through a ‘choreography of conjoinment’ that relies on the exceptional able-bodiedness of the actors playing conjoined twins Daisy and Violet Hilton. Using disability as a category of analysis reveals how disabled bodies are made to be maximally productive iterations of themselves in musicals. To support this claim, I track the shift from the 1997 production’s co-construction of disability by the actors and audience, which replicates the social model of disability, to the 2014 revival’s grounding in a diagnostic realism typical of disability’s medical model. Side Show’s trajectory generates possibilities for considering the musical as an archive for disability representation and knowledge, bioethical inquiry, and artistic innovation.


Author(s):  
J O Wailling ◽  
Janet C Long ◽  
Iwona Stolarek

Abstract Background Safety systems are socio-cultural in nature, characterized by people, their relationships to one another and to the whole. This study aimed to (i) map the social networks of New Zealand’s quality improvement and safety leaders, (ii) illuminate influential characteristics and behaviours of key network players and (iii) make recommendations regarding how networks might be optimized. Methods Instrumental case study was done using mixed methods. Purposeful sampling was applied to collect survey data from delegates at two national safety and quality forums (n = 85). Social network questions asked respondents who influenced their safety work. Key network players were identified and invited to participate in a semi-structured interview (n = 7). Results Key players described safety systems in humanistic terms. Safety influence was determined to be a responsive relational process. Adaptive leaders broker relationships between multiple perspectives and contexts, which is essential for safe healthcare. Conclusion Influential safety approaches appreciate the human contribution to safety. Designing the health system to adapt and respond to the needs of people, teams and communities, rather than the unilateral needs of the system, is essential. Adaptive leadership will assist in achieving these aims and will likely be embraced by New Zealand health professionals.


Author(s):  
Michalina Grzelka

Beginning from the position of disability understood as a social and cultural construct, this paper aims to analyze and compare representations of disability in fairy tales by such authors as the Grimm brothers, Hans Christian Andersen, Oscar Wilde, Charles Perrault, Giovanni Francesco Straparola, and Jeanne-Marie Leprince de Beaumont. Despite the prevalence of disabled characters in many fairy tales, there exists just a handful of articles on disability in fairy tales within the field of disability studies (Schmiesing 2014). Therefore, this study attempts to fill in a knowledge gap in the area of disability studies by looking at disability and characters with disabilities in fairy tales from the perspective of the social model of disability. In this paper I seek to explore variations in the way different authors describe disability/sickness/deformity and to discuss such subjects related to the area of disability studies as overcoming disability and the question of cure (understood, in the context of fairy tales, as a supernatural restoration to the able-bodied state). In addition, I attempt to see if there exist any differences in how sick/disabled/deformed fairy tales characters are portrayed depending on their gender.


2021 ◽  
Vol 27 (1) ◽  
pp. 48-63
Author(s):  
Angela Makris ◽  
Mahmooda Khaliq ◽  
Elizabeth Perkins

Background: One in four Americans have a disability but remain an overlooked minority population at risk for health care disparities. Adults with disabilities can be high users of primary care but often face unmet needs and poor-quality care. Providers lack training, knowledge and have biased practices and behaviors toward people with disabilities (PWD); which ultimately undermines their quality of care. Focus of the Article: The aim is to identify behavior change interventions for decreasing health care disparities for people with disabilities in a healthcare setting, determine whether those interventions used key features of social marketing and identify gaps in research and practice. Research Question: To what extent has the social marketing framework been used to improve health care for PWD by influencing the behavior of health care providers in a primary health care setting? Program Design/Approach: Scoping Review. Importance to the Social Marketing Field: Social marketing has a long and robust history in health education and public health promotion, yet limited work has been done in the disabilities sector. The social marketing framework encompasses the appropriate features to aligned with the core principles of the social model of disability, which espouses that the barriers for PWD lie within society and not within the individual. Incorporating elements of the social model of disability into the social marketing framework could foster a better understanding of the separation of impairment and disability in the healthcare sector and open a new area of research for the field. Results: Four articles were found that target primary care providers. Overall, the studies aimed to increase knowledge, mostly for clinically practices and processes, not clinical behavior change. None were designed to capture if initial knowledge gains led to changes in behavior toward PWD. Recommendations: The lack of published research provides an opportunity to investigate both the applicability and efficacy of social marketing in reducing health care disparities for PWD in a primary care setting. Integrating the social model of disability into the social marketing framework may be an avenue to inform future interventions aimed to increase health equity and inclusiveness through behavior change interventions at a systems level.


2019 ◽  
Vol 9 (4) ◽  
pp. 73
Author(s):  
Kenan Baş ◽  
Esen Durmuş

The aim of this study is to identify the perspectives of parents on the "Social Studies" course. The case study design,one of the qualitative research methods, was used in accordance with the nature of the study. Data related to the studywere obtained through a semi-structured interview form prepared by the researchers. The data of the study wereobtained from the parents of students attending 5th, 6th and 7th grade of a state secondary school located in theIstanbul-Sultanbeyli district in the spring semester of 2017 and 2018 academic year. The data obtained were analyzedby content analysis. According to the data obtained from the research, the following results were obtained: Themajority of the parents apparently linked the concept of Social Studies to the concepts of History, Geography,Citizenship and Socialization. Parents thought that the subjects related to History, Geography, Citizenship Rights,Culture, Democracy, Human Rights and the life of Mustafa Kemal Atatürk were taught in the Social Studies course.Nevertheless, it was seen that the parents wished to see the concepts such as Love of Motherland, Nation, Communityand National Flag, Etiquette, Cultural Values, Freedom, Democracy, Equality to be taught in the Social Studies courses.While the parents mostly compared the Social Studies courses with such organs as the Brain, Kidney, Heart, Eye,Stomach and Intestine, they considered it as appropriate to place this course in the last places in terms of importance. Inaddition, it was found that majority of the parents did not want their children to become social studies teachers in thefuture.


Medicne pravo ◽  
2021 ◽  
pp. 86-94
Author(s):  
R. B. Hobor

In spite of all the short-comings, the level of protection of rights and capabilities of people with disabilities has become a good indicator of nation’s development, and such a trend is nothing but hopeful. At the same time, one can hardly imagine that this high attitude would be attainable without the influence of left liberal ideologies, that among omnibus achievements granted the shift from medical to social disabilities model.This situation cannot stand but to resemble in a certain state of rights and capabilities exercise, and even the availability of access to the key resources is impossible to bring to the point of marginalization of the mental and physical health problems. As the analyzed material shows, left liberal ideologists,being responsible for shaping the current International Law on Persons with Disabilities, finally succeeded in promoting their principle ideas in the nation case-law. The right to water, lay down on the ship’s practice, as you will look lower, you can use the clever illustration of that relief flow, as the national judiciary can fix the development of the rights and capabilities of individuals from the same basis.The article further develops the idea, that national courts sometimes tend to use realistic approach (as invented by R. Pound, J. Llewellyn, O.W. Holmes) for the sake of implementing the social model of disability. It has been concluded that legal realism is a transmitter for left liberal values in the modern western societies.


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