Quality of life in dementia patients: nursing home versus home care

2011 ◽  
Vol 23 (10) ◽  
pp. 1692-1700 ◽  
Author(s):  
Azlina Wati Nikmat ◽  
Graeme Hawthorne ◽  
S. Hassan Al-Mashoor
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Informal Care ◽  
Population Aging ◽  
Depression Scale ◽  
Short Version ◽  
Care Needs ◽  
Dementia Patients ◽  
Early Dementia

ABSTRACTBackground: Care management providing a high quality of life (QoL) is a crucial issue in dealing with increasing numbers of dementia patients. Although the transition from informal (home-based) care to formal (institutional) care is often a function of dementia stage, for those with early dementia there is currently no definitive evidence showing that informal or formal care provides a higher QoL, particularly where informal care is favored for local cultural reasons. This paper outlines the research protocol for a study comparing formal and informal care in Malaysia. It seeks to provide evidence regarding which is more appropriate and results in higher QoL in early dementia.Methods: This is a quasi-experimental study design involving 224 early dementia patients from both nursing home and community settings. Participants will be assessed for cognitive severity, QoL, needs, activities of daily living, depression and social isolation/connectedness by using the Mini-Mental State Examination (MMSE), Cognitive Impairment Scale – 4 items (CIS-4), EUROPE Health Interview Survey-Quality of Life (WHO8), Assessment of Quality of Life (AQoL8), Camberwell Assessment of Need for the Elderly – Short Version (CANE-S), Barthel Index (BI), Cornell Scale for Depression (CSDD), Geriatric Depression Scale – 15 items (GDS-15), and Friendship Scale (FS) respectively.Conclusion: This study aims to provide a better understanding of care needs in early dementia. Given population aging, the study findings will provide evidence assisting decision-making for policies aimed at reducing the burden of caregiving and preserving the QoL of dementia patients.

Development and evaluation of a short version of the quality of life questionnaire for dementia

2014 ◽  
Vol 27 (1) ◽  
pp. 103-110 ◽  
Author(s):  
Seishi Terada ◽  
Etsuko Oshima ◽  
Chikako Ikeda ◽  
Satoshi Hayashi ◽  
Osamu Yokota ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Geriatric Depression Scale ◽  
Depression Scale ◽  
Objective Measure ◽  
Correlation Coefficients ◽  
Short Version ◽  
Life Questionnaire ◽  
Negative Dimension ◽  
Dementia Patients

ABSTRACTBackground:There are many quality of life (QOL) instruments for evaluating dementia patients. The QOL questionnaire for Dementia (QOL-D) is one of such instruments and a validated objective measure of QOL for patients with dementia. It comprises 31 items encompassing six domains. However, with 31 items, its length is a disadvantage. The purpose of this study was to develop a short version of QOL-D (short QOL-D).Methods:We used data from two studies. The participants were 264 inpatients with dementia in the first sample and 395 outpatients at a memory clinic in the second sample. We used maximum likelihood factor analysis with promax rotation to reduce the number of items.Results:We produced a nine-item version of QOL-D (short QOL-D) with positive (six items) and negative (three items) dimensions. The correlation coefficients of short and total versions of QOL-D were 0.892–0.918 for total scores, 0.903–0.936 for positive dimension scores, and 0.788–0.837 for negative dimension scores. Total short QOL-D scores showed a significant correlation to the Geriatric Depression Scale score and the apathy score of the Neuropsychiatric Inventory.Conclusions:The short QOL-D produced results comparable with that of the full version. Reducing the number of items may make administration of the instrument easier.

scholarly journals Older persons’ thoughts about death and dying and their experiences of care in end-of-life: a qualitative study

BMC Nursing ◽  
2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Johanna Tjernberg ◽  
Christina Bökberg
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Nursing Homes ◽  
End Of Life ◽  
Older Persons ◽  
Death And Dying ◽  
Living Condition ◽  
Care Needs ◽  
Healthy Persons

Abstract Background Few studies have focused on how older persons living in nursing homes perceive their last period of life. Furthermore, previous research on older persons’ perceptions of death and dying is limited. Hence, there is an urgent need to explore their experiences during their final period in life. Aim To explore thoughts about death and dying and experiences of care in end-of-life among older persons living in nursing homes. Methods This study employed a qualitative approach including individual interviews with 36 older persons living in Swedish nursing homes. Questions related to quality of life; physical health; thoughts about death, dying, and the future; and experiences related to the living condition and environment were asked. The interview transcripts were analysed through content analysis. The study was approved by the Regional Ethics Review Board (reference number: 2015/4). Results The analysis resulted in the identification of three main thematic categories: The unavoidable and unknown end of life, Thoughts on control and Living your last period of life at a nursing home. The older persons did not fear death itself but had some worries about dying. Spending the last stage of life at a nursing home contributed to different thoughts and feelings among the older persons. With a few exceptions, older persons characterized life at the nursing home as boring and felt they were surrounded by people who did not belong there. Conclusions This study indicates a need for older persons to talk about death, dying and end-life issues. Furthermore, this study highlighted that the co-residence of cognitively healthy persons and persons with dementia in the same ward adversely affected cognitively healthy persons. This situation resulted in there being not enough time to both handle the care needs of persons with dementia and have the conversations that cognitively healthy persons desired, such as conversations about thoughts about existence, that could have improved their quality of life. Trial registration NCT02708498 Date of registration 16 February 2016.

Cancer survivorship outcomes in immigrants.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. 6111-6111 ◽  
Author(s):  
Phyllis Noemi Butow ◽  
Lynley Aldridge ◽  
Melanie Bell ◽  
Ming Sze ◽  
Maurice Eisenbruch ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Cancer Survivorship ◽  
Unmet Need ◽  
Depression Scale ◽  
Cancer Registries ◽  
Cancer Type ◽  
Care Needs ◽  
Cross Sectional

6111 Background: Immigration is increasing world-wide. Cancer survivorship is now recognised as a period of difficult adjustment for all patients, and possibly more so for immigrants. We explored disparities in quality of life outcomes for immigrant (IM) versus Anglo-Australian (AA) cancer survivors. Methods: In a cross-sectional design, cancer survivors were recruited through the New South Wales, Queensland and Victorian Cancer Registries in Australia. IM participants, their parents and grandparents were born in a country where Chinese, Greek, or Arabic is spoken and spoke one of those languages. AAs were born in Australia and spoke English. All were diagnosed with cancer 1-3 years previously. Questionnaires (completed in preferred language) included the Hospital Anxiety and Depression Scale (anxiety/ depression), FACT-G (quality of life) and Supportive Care Needs Survey (unmet needs). Outcomes were compared between AA and IM groups in adjusted regression models that included age, gender, socio-economic status, education, marital status, religion, time since diagnosis and cancer type (prostate, colorectal, breast and other). Results: There were 599 participants (response rate 41%). Consent was unrelated to demographic and disease variables. AA and IM groups were similar except that immigrants had higher proportions in the low and highly educated groups (p < 0.0001), and higher socioeconomic status (p = 0.0003). In adjusted analyses (see table), IMs had clinically significant higher depression (possible range 0-21), greater unmet information and physical needs, and lower quality of life than AAs. The possible range for the latter three is 0-100. Conclusions: Immigrants experience poorer outcomes in cancer survivorship, even after adjusting for socio-economic, demographic and disease differences. Interventions are required to improve their adjustment after cancer. Results highlight areas of unmet need that might be better addressed by the health system (particularly with regard to provision of information and support. [Table: see text]

scholarly journals A Tablet ‐ Based Intervention for Activating Nursing Home Residents with Dementia: Results from a Cluster-Randomised Controlled Trial

2021 ◽  
Author(s):  
Julie Lorraine O'Sullivan ◽  
Sonia Lech ◽  
Paul Gellert ◽  
Ulrike Grittner ◽  
Jan-Niklas Voigt-Antons ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Nursing Homes ◽  
Psychotropic Medication ◽  
Controlled Trial ◽  
Depression Scale ◽  
Nursing Home Residents ◽  
Pharmacological Intervention ◽  
People With Dementia

Abstract Objectives: To investigate global and momentary effects of a tablet-based non-pharmacological intervention for nursing home residents living with dementia.Design: Cluster-randomized controlled trial.Setting: Ten nursing homes in Germany were randomly allocated to the tablet-based intervention (TBI, 5 units) or conventional activity sessions (CAS, 5 units).Participants: N = 162 residents with dementia. Intervention: Participants received regular TBI (n = 80) with stimulating activities developed to engage people with dementia or CAS (n = 82) for eight weeks.Measurements: Apathy Evaluation Scale (AES-I, primary outcome), Quality of Life in Alzheimer’s Disease scale, QUALIDEM scale, Neuropsychiatric Inventory, Geriatric Depression Scale and psychotropic medication (secondary outcomes). Momentary quality of life was assessed before and after each activity session. Participants and staff were blinded until collection of baseline data was completed. Data was analyzed with linear mixed-effects models.Results: Levels of apathy decreased slightly in both groups (mean decrease in AES-I of .61 points, 95%CI: -3.54 to 2.33 for TBI and .36 points, 95%CI: -3.27 to 2.55 for CAS). Group difference in change of apathy was not statistically significant (B = .25; 95%CI: -3.89 to 4.38, p = .91). This corresponds to a standardized effect size (Cohen’s d) of .02. A reduction of psychotropic medication was found for TBI compared to CAS. Further analyses revealed a post-intervention improvement in QUALIDEM scores across both groups and short-term improvements of momentary quality of life in the CAS group.Conclusions: Our findings suggest that interventions involving tailored activities have a beneficial impact on global and momentary quality of life in nursing home residents with dementia. Although we found no clear advantage of TBI compared to CAS, tablet computers can support delivery of non-pharmacological interventions in nursing homes and facilitate regular assessments of fluctuating momentary states. Funding: German National Association of Statutory Health Insurance Funds. Registry: ISRCTN98947160.

scholarly journals Quality of Life and Social Resources of Elderly Nursing Home Residents in Beirut

1970 ◽  
pp. 59-67
Author(s):  
Hind Beydoun
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Life Expectancy ◽  
Demographic Transition ◽  
Gradual Increase ◽  
Population Aging ◽  
Nursing Home Residents ◽  
Developing Nations ◽  
Social Resources

Nowadays, population aging or the gradual increase in the proportion of elderly people is a global phenomenon affecting both developed and developing nations. The overall decline in fertility and mortality and the increase in life expectancy atbirth constitute the main cornerstones for this worldwide demographic transition.

scholarly journals Application Application Of Problems And Needs In Palliative Care Instrument - Short Version (PNPC-Sv) For Assessing The Paliative Care Needs For Cancer Patients

2021 ◽  
Vol 10 (2) ◽  
Author(s):  
Ratih Ayuningtyas Pocerattu ◽  
Anggorowati ◽  
Chandra Bagus
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
Information Needs ◽  
Physical Symptoms ◽  
Short Version ◽  
Care Needs ◽  
Study Approach ◽  
The Right

Background: Assessment of the needs of palliative care is the first step to know about the picture quality of life and determine interventions to solve problems experienced by patients with chronic conditions and terminal. One of the instruments that can be used is the PROBLEMS AND NEEDS IN PALLIATIVE CARE INSTRUMENT - SHORT VERSION (PNPC-sv). Instrument PNPC-sv examines the 8 dimensions of activity and excersice, physical symptoms, autonomy, psychological, spiritual, financial, and information needs. Methods: This research uses qualitative method with case study approach. Data collection was conducted by means of questionnaires filled in the assessment of the needs of palliative care (PNPC-SV),  then performed in-depth interviews in accordance with the results of the assessment and observation on the 6 participants in the space of oncology in one of hospital in Semarang. Result: The theme results of this research are: (1) Self-acceptance as well as support to the family of the condition of the patient, (2) Influence the patient's psychological to the social environment, (3) the right education to improve the quality of life and (4) The basic components assessment  of the needs palliative care should be assessed by the nurse. Conclusion: The assessment which done in a holistic manner can help the nurse to provide nursing care in accordance with the needs of the patient to face the condition of the disease. The needs of the patient in physical, psychological, social and spiritual is very necessary to maintain the balance of her consistency and integrity in the ability to remain accepted, loved and appreciated by others. Keywords: The need for palliative care, PNPC-SV, cancer patients.

scholarly journals Family Composition and Expressions of Family-Focused Care Needs at an Academic Memory Disorders Clinic

2013 ◽  
Vol 2013 ◽  
pp. 1-6
Author(s):  
Brandalyn C. Riedel ◽  
Jamie K. Ducharme ◽  
David S. Geldmacher
Keyword(s):  
Quality Of Life ◽  
Treatment Success ◽  
Family Members ◽  
Family Quality Of Life ◽  
Care Needs ◽  
Family Unit ◽  
Dementia Patients ◽  
People With Dementia ◽  
The Family

Objective. To understand who dementia patients identify as their family and how dementia affects family life.Background. Dementia care is often delivered in family settings, so understanding the constituency and needs of the family unit involved in care is important for determining contributors to family quality of life.Design/Methods. Seventy-seven families receiving care at an academic dementia clinic completed questionnaires regarding the affected person and the family. Responses were categorized as focused on an individual’s needs or the family’s needs.Results. Respondents identified a mean of 3.77 family members involved in care. Spouse (80.5%), daughter (58.4%), son (46.8%), and stepchild or child-in-law (37.7%) were the most frequently listed family members. Questions regarding the effect of dementia-related changes in cognition and mood were most likely to elicit a family-focused response. Questionnaire items that inquired about specific medical questions and strategies to improve family function were least likely to elicit a family-focused response.Conclusions. Both caregivers and persons with dementia frequently provided family-focused responses, supporting the construct of dementia as an illness that affects life in the family unit. This finding reinforces the potential utility of family-centered quality of life measures in assessing treatment success for people with dementia.

scholarly journals Older persons’ thoughts about death and dying and their experiences of care in end-of-life: a qualitative study

2020 ◽  
Author(s):  
Johanna Tjernberg ◽  
Christina Bökberg
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Nursing Homes ◽  
End Of Life ◽  
Older Persons ◽  
Death And Dying ◽  
Living Condition ◽  
Care Needs ◽  
Healthy Persons

Abstract Background: Few studies have focused on how older persons living in nursing homes perceive their last period of life. Furthermore, previous research on older persons’ perceptions of death and dying is limited. Hence, there is an urgent need to explore their experiences during their final period in life.Aim: To explore thoughts about death and dying and experiences of care in end-of-life among older persons living in nursing homes.Methods: This study employed a qualitative approach including individual interviews with 36 older persons living in Swedish nursing homes. Questions related to quality of life; physical health; thoughts about death, dying, and the future; and experiences related to the living condition and environment were asked. The interview transcripts were analysed through content analysis. The study was approved by the Regional Ethics Review Board (reference number: 2015/4).Results: The analysis resulted in the identification of three main thematic categories: The unavoidable and unknown end of life, Thoughts on control and Living your last period of life at a nursing home. The older persons did not fear death itself but had some worries about dying. Spending the last stage of life at a nursing home contributed to different thoughts and feelings among the older persons. With a few exceptions, older persons characterized life at the nursing home as boring and felt they were surrounded by people who did not belong there.Conclusions: This study indicates a need for older persons to talk about death, dying and end-life issues. Furthermore, this study highlighted that the co-residence of cognitively healthy persons and persons with dementia in the same ward adversely affected cognitively healthy persons. This situation resulted in there being not enough time to both handle the care needs of persons with dementia and have the conversations that cognitively healthy persons desired, such as conversations about thoughts about existence, that could have improved their quality of life.Trial registration: NCT02708498 Date of registration 16 February 2016.

Quality of life in people with cognitive impairment: nursing homes versus home care

2014 ◽  
Vol 27 (5) ◽  
pp. 815-824 ◽  
Author(s):  
Azlina Wati Nikmat ◽  
S. Hassan Al-Mashoor ◽  
Nurul Azreen Hashim
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Nursing Home ◽  
Cognitive Impairment ◽  
Nursing Homes ◽  
Home Care ◽  
Living Arrangements ◽  
Social Connectedness ◽  
Depression Scale

ABSTRACTBackground:The evaluation of quality of life (QoL) among older adults has become increasingly important, and living arrangements play a pivotal role in determining the QoL of people with cognitive impairment (PWCI). Although informal care (home-based) is favored, transition to formal care (residential care) often becomes necessary, especially in the later stages of cognitive impairment. The primary objective was to compare the QoL of PWCI in the community and nursing homes. Additionally, factors differentiate the QoL of PWCI in these two settings were identified.Methods:This is a quasi-experimental study design involving 219 older adults with cognitive impairment, aged 60–89 years old from both nursing home and home care. Participants completed the EUROPE Health Interview Survey-QoL (WHO-8), the Short Mini-Mental State Examination (SMMSE), the Barthel Index (BI), the Geriatric Depression Scale (GDS-15), and the Friendship Scale (FS).Results:There were significant differences in QoL, depression, social connectedness (p < 0.01) and cognitive functions (p = 0.01) between home care recipients and nursing home participants. No significant differences were observed with regards to health condition, co morbidities and physical functions between study cohorts.Conclusions:Older adults with cognitive impairment living at home experienced higher QoL, had better cognitive function, were less depressed and reported higher social connectedness compared to those living in institutional care. Therefore, support should be provided in enabling home care and empowering caregivers to provide better care for PWCI.

scholarly journals Investigation of the effects of depression on the functional capacity, swallowing function and quality of life in geriatric individuals in the nursing home

2019 ◽  
Vol 16 (4) ◽  
pp. 968-977
Author(s):  
Hayriye Baltaoğlu Alp ◽  
Fatma Erdeo ◽  
Ayşe Merve Tat ◽  
Muhammed Necati Tat ◽  
Neslihan Altuntaş Yılmaz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Functional Capacity ◽  
Demographic Data ◽  
Depression Scale ◽  
Swallowing Function ◽  
Mental Test ◽  
Significant Difference ◽  
The Relationship

Research Problem: To investigate the relationship between depression, functional capacity, swallowing and quality of life in patients over 65 years of age in a nursing home. Method: A sample of this cross-sectional and descriptive study. After demographic data of 60 individuals over the age of 65 were recorded, Standardized Mini Mental Test (SMMT), Geriatric Depression Scale (GDS), 6 minutes walking test, and Bedhead Water Drinking Evaluation Test with Eat 10 test were applied. Findings: 71% of the patients were female and 28% were male.  The mean age of males is 71.83 and the average age of females is 69 years. There was no significant difference in the relationship between depression and functional capacity (p> 0.05). There was a significant difference between depression and social functioning of SF36 and social health perception (p <0.05). Conclusion:  Even though anatomical differences are observed in elderly individuals, they can function as functional swallowing. ​Extended English summary is in the end of Full Text PDF (TURKISH) file.     Özet Amaç: Huzurevinde kalan 65 yaş üstü hastaların depresyon ile fonksiyonel kapasite,yutma ve yaşam kalitesi arasındaki ilişkiyi araştırmak. Metod: Karşılaştırmalı tanımlayıcı bir çalışma olup; 65 yaş üstü bireylerin demoğrafik verileri kaydedildi ve hastalara Standartize mini mental test, Geriyatrik depresyon skala, 6dk yürüme testi, yatak başı su yutma testi yapıldı. Bulgular: Hastaların %71’i kadın, %28’i erkek idi. Erkek hasta yaş ortalaması 71.83 kadınların ise 69 idi.Depresyon ile fonksiyonel kapasite arasında anlamlı bir fark bulunamadı.Ancak depresyon ile SF-36nın sosyal fonksiyonu,sağlık algısı arasında anlamlı fark bulundu. (p <0.05). Sonuç: Yaşlı bireylerde gençlere göre anatomik olarak farklılıklar görülse bile fonksiyonel olarak yutma işlevini yerine getirebilmektedirler.

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