Being informed and involved in treatment: what do psychiatric patients think? A review

2004 ◽  
Vol 13 (4) ◽  
pp. 270-283 ◽  
Author(s):  
Monica Paccaloni ◽  
Tecla Pozzan ◽  
Christa Zimmermann
Keyword(s):  
Information Needs ◽  
Psychiatric Patients ◽  
Scientific Work ◽  
Decision Processes ◽  
Treatment Programs ◽  
Treatment Expectations ◽  
Personal Problems ◽  
Drug Companies

SummaryAims – A narrative review of studies on the information needs of psychiatric patients, the knowledge of their diagnosis and treatment expectations. Methods – A literature review, limited to studies between 1980 to 2003, was carried out using Medline and Psychlnfo databases. Results – Sixty five studies of interest were identified. Less than half of the psychiatric patients know their diagnosis and patients affected by schizophrenia are the least informed. Notions about aetiology and treatment are patchy, and the concept of ‘multifactorial cause’ seems unknown. Little knowledge emerged about drugs and side effects, expecially in the long term. Patients want to be informed, involved in decisions and their treatment programme. They feel that their psychiatrists are more interested in pharmacological aspects than in their personal problems. Conclusions – A better quality of communication, the involvement of patients in decision processes and meeting patients' information needs is necessary to improve therapeutic relationships, to encourage greater compliance with treatment programs and to reduce the stigma of psychiatric illness.Declaration of Interest: none of the three authors has had any interest or received any form of support, including that from drug companies and honoraria for lectures and consultancies, potentially in conflict with this scientific work.

scholarly journals Health information needs and health-related quality of life in a diverse population of long-term cancer survivors

2012 ◽  
Vol 89 (2) ◽  
pp. 345-352 ◽  
Author(s):  
Erin E. Kent ◽  
Neeraj K. Arora ◽  
Julia H. Rowland ◽  
Keith M. Bellizzi ◽  
Laura P. Forsythe ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Health Information ◽  
Information Needs ◽  
Diverse Population ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

An assessment of the psychoeducational needs of long-term psychiatric patients

1999 ◽  
Vol 16 (3) ◽  
pp. 104-108 ◽  
Author(s):  
Pat Gibbons ◽  
Grace Hogan ◽  
Sheila McGauran
Keyword(s):  
Psychiatric Patients ◽  
Baseline Measure ◽  
Life Issues ◽  
One Year ◽  
Amount Of Knowledge ◽  
General Aspects ◽  
Chronic Psychiatric Patients ◽  
Specific Illness

AbstractObjectives: We aimed to identify which illness related topics were of most interest to chronic psychiatric patients in our catchment area service, and to obtain a baseline measure of the amount of knowledge which patients with schizophrenia had about their illness.Method: Patients attending for a minimum of one year were recruited from the outpatient clinic and day centre. Participants completed three instruments: a brief questionnaire which asked about the details of their diagnosis and drug treatment regimen, the ‘Educational Needs Questionnaire’ (ENQ), and a modified form of the ‘Understanding Schizophrenia Scale’ (USS).Results: Forty-seven patients with a chronic psychotic illness participated in the study. Despite having attended the service for an average of 14 years, the majority of patients were unable to correctly identify their diagnosis. Most patients were able to name the drugs which they had been prescribed; but were not able to describe the dosage of these drugs. According to the ENQ results, patients expressed most interest in learning about general aspects of their illness, such as ‘how to cope with stress’, and less in how to manage specific illness related symptoms. Similarly, schizophrenia patients were found to know more about general aspects of their illness, such as rehabilitation and non-medical aspects of treatment, than about medication.Conclusion: Chronic psychiatric patients, especially those with schizophrenia, have very limited knowledge of their illness and its treatment. The focus of psychoeducation should be extended from insight and compliance to include broader ‘quality of life’ issues which appear to be of more concern to patients themselves. Patient participation in psychoeducation can thus be improved by including topics identified by such instruments as the ENQ. It is encouraging that cognitive deficits and negative symptomatology do not seem to prevent long-term psychiatric patients from benefiting from such inputs.

scholarly journals EVALUATION OF THE QUALITY OF LIFE OF PATIENTS WITH CIR-RHOSIS AFTER SURGICAL PREVENTION OF BLEEDING FROM VARI-COSEVEINS OF THE ESOPHAGUS

2020 ◽  
pp. 185-189
Keyword(s):  
Liver Cirrhosis ◽  
Varicose Veins ◽  
Scientific Work ◽  
Gastric Bleeding ◽  
Class B ◽  
Endoscopic Ligation ◽  
B 31

The scientific work is based on the experience of endoscopic ligation of varicose veins of the esophagus (EVV) in 65 patients with liver cirrhosis with portal hypertension syndrome. The degree of ERVP was established in accordance with the classification of K.J. Paquet (1982). Varicose veins of the esophagus of III and IV degrees were recorded in 58 (89.2%) patients. For a comprehensive assessment of the degree of liver failure, the Child-Pugh scale was used (1973). 11 (16.9%) patients were assigned to class A, 23 (35.4%) to class B, 31 (47.7%) patients to class C. The effectiveness of endoscopic ligation in the prevention of bleeding was 92.2%. Recurrence of esophageal-gastric bleeding in the immediate period occurred in 3 patients. Hospital mortality was 4.6%. In the long-term period after endoscopic eradication, recurrence of esophageal varicose veins was diagnosed in 27.8% of patients. Endoscopic ligation of varicose veins of the esophagus is an effective method for stopping and preventing bleeding in patients with liver cirrhosis.

scholarly journals Osteoarthritis: etiology, epidemiology, impact on the individual and society and the main principles of management

Medicina ◽  
2010 ◽  
Vol 46 (11) ◽  
pp. 790 ◽  
Author(s):  
Giedrė Sakalauskienė ◽  
Dovilė Jauniškienė
Keyword(s):  
Treatment Modalities ◽  
Treatment Programs ◽  
Health Providers ◽  
Effective Interventions ◽  
Lack Of Information ◽  
Appropriate Treatment ◽  
Short And Long Term ◽  
The Individual

Etiology, epidemiology, and impact of osteoarthritis on an individual, society, and nation and the main principles of management of this disease are reviewed in the article. Treatment should be tailored to the needs of an individual patient. Physicians should be familiar with pharmacologic and nonpharmacologic treatment modalities to maximize effective utilization and a thorough understanding of short- and long-term complications and costs. Severity of osteoarthritis should be taken into physician’s and patient’s consideration while applying an appropriate treatment. A stepwise management of osteoarthritis has to be taken into account. As effective interventions remain underused, state arthritis programs, including osteoarthritis programs, have to be developed to build an appropriate scientific base in public health, observe burden and impact, assess and disseminate evidence-based interventions, and work to reduce and delay disability, and improve quality of life among people with arthritis. Adequate studies on the costs of osteoarthritis are urgently required so that cogent arguments can be made to governments to appropriately fund prevention and treatment programs for this condition. Its recognition as a major cause of disability, particularly in the aging population, should increase community focus on this important condition. Osteoarthritis as a pathogenic process and its impact on an individual and society should be taken into special consideration by health providers and officers developing the national health policy in Lithuania, because there is a lack of information related to the prevalence of osteoarthritis, risk factors, also osteoarthritisassociated disability, and costs of the management of this disease among Lithuanian inhabitants.

scholarly journals The Education of “Madrasa Students” Based on Self Confidence

2021 ◽  
Vol 2 (1) ◽  
pp. 65-73
Author(s):  
Azam Syukur Rahmatullah
Keyword(s):  
Role Models ◽  
Scientific Work ◽  
Personal Problems ◽  
Analysis Study ◽  
The Public ◽  
Study Approach ◽  
Traditional Markets ◽  
Self Confidence ◽  
Activity Program

This study examines the madrasa activity programs based on fostering student confidence. This research is important because the result can be used as role models for other schools or madrasa helping to develop the confidence of student in their schools or madrasa. This study uses a content analysis study approach. One of the Madrasa Aliyah that succeeded in developing a confidence based activity program is Madrasa Aliyah Plus Nururrohmah Tambaksari Kuwarasan, Kebumen. The madrasa has enriched various confidence-based activities since its inception in 2007 until now. This madrasa has excellent programs which fokus on helping students improve the quality of their confidence, which is not owned by other schools or madrasa. Some of the program activities referred to, are being crazy, selling in traditional markets, If I Become, a Real Work Madrasa, and examinations of scientific work which are tested by teachers with various degress. These various activities eventually bring students into personal that is not easily discouraged, not afraid to convey positive aspirations, dare to appear before the public, not ashamed to be an entrpreneur and able to handle personal problems and find solutions well.

Burden, attitudes and social support in the families of patients with long-term physical diseases

2004 ◽  
Vol 13 (4) ◽  
pp. 255-261 ◽  
Author(s):  
Lorenza Magliano ◽  
Andrea Fiorillo ◽  
Corrado De Rosa ◽  
Claudio Malangone ◽  
Mario Maj ◽  
...  
Keyword(s):  
Social Network ◽  
Population Density ◽  
Geographic Location ◽  
Scientific Work ◽  
Geographic Area ◽  
Professional Support ◽  
Drug Companies ◽  
Practical Support ◽  
Physical Diseases

SummaryAims – To describe in a sample of 646 relatives of patients with physical long-term illnesses: a) the relatives' burden of care; b) the relatives' attitudes towards the patients; c) the social and professional support received by the families. Methods – The study has been carried out in 30 Italian geographic areas randomly selected taking into account geographic location and population density. The sample has been consecutively recruited in 139 specialised units for the treatment of chronic heart, brain, diabetes, kidney, and lung diseases. Family burden was evaluated in relation to: a) family's socio-demographic variables and patients' clinical variables; b) relatives' attitudes toward the patient; c) social and professional support; d) geographic area and population density. Outcome measures – Family Problems Questionnaire, physical illness version (QPF-O) and Social Network Questionnaire (QRS). Results – The consequences of caregiving most frequently reported were constraints in social and recreational activities, and feelings of loss. Burden was more marked in relatives of patients with higher physical disabilities, with neurological illnesses, and in relatives with lower support by their social network. Conclusions – These data highlight the need to provide psychological and practical support to caregivers of patients with long-term physical diseases on the basis of the evaluation of their needs for care.Declaration of Interest: none of the five authors has had any interest or received any form of support, including that from drug companies and honoraria for lectures and consultancies, potentially in conflict with this scientific work, in the last 2 years.

scholarly journals The Unmet Needs of Community-Dwelling Stroke Survivors: A Systematic Review of Qualitative Studies

2021 ◽  
Vol 18 (4) ◽  
pp. 2140
Author(s):  
Yunfei Guo ◽  
Zhenxiang Zhang ◽  
Beilei Lin ◽  
Yongxia Mei ◽  
Qingxuan Liu ◽  
...  
Keyword(s):  
Information Needs ◽  
Unmet Needs ◽  
Community Dwelling ◽  
Stroke Survivors ◽  
Related Information ◽  
Practical Support ◽  
Social Environmental ◽  
Physical Recovery

The unmet needs perceived by community-dwelling stroke survivors may truly reflect the needs of patients, which is crucial for pleasant emotional experiences and a better quality of life for community-dwelling survivors not living in institutionalized organizations. The purpose of the study is to identify the scope of unmet needs from the perspectives of stroke patients in the community. A qualitative meta-synthesis was performed according to the Joanna Briggs Institute method. Six electronic databases were searched from inception to February 2020. A total of 24 articles were involved, providing data on 378 stroke survivors. Eight categories were derived from 63 findings, and then summarized into four synthesized findings based on the framework of ICF: (1) unmet needs regarding with the disease-related information; (2) unmet physical recovery and activity/participation needs; (3) unmet needs for social environmental resources; (4) unmet psycho-emotional support needs. We found the framework of ICF mostly complete, but unmet information needs still remain. The needs that are mainly unsatisfied include physical, psychosocial and informational, as well as the practical support from professional or environment resources. The ever-present unmet needs perceived by community-dwelling stroke survivors who do not live in institutions are discoverable and mitigable. Future studies should focus on quantifying unmet needs comprehensively derived from experiential domains, assessing the rationality of the unmet needs expressed by patients’ perspectives and developing flexible strategies for long-term and changing needs.

Community Reintegration of Long-Term Psychiatric Patients Through a Creative Arts Rehabilitation Therapy Group

2021 ◽  
pp. JARC-D-20-00023
Author(s):  
Danny Birt ◽  
Jerilyn Klingenberg
Keyword(s):  
External Validity ◽  
Inpatient Treatment ◽  
Therapy Group ◽  
Psychiatric Patients ◽  
Community Reintegration ◽  
Creative Arts ◽  
Residential Settings ◽  
State Psychiatric

After years of inpatient treatment in a locked facility, psychiatric patients who are preparing to transition to lower-security residential settings often benefit from bridging that continuum of care with supervised community excursions. In this study, facilitators and patients collaborated to identify and engage in a variety of arts-related experiences and settings in nearby cities and nature areas as a medium through which to help reconnect patients in a state psychiatric hospital with their surrounding community. Preliminary findings from data gathered included increased positive affect and quality of life, decreased feelings of isolation and institutionalization, more positive regard for treatment, and maintained or improved pace of patient progress toward discharge and community reintegration. Supervised therapeutic exposure to arts in the community appears to be an indicated clinical option to help motivate and prepare select psychiatric inpatients for community reintegration. As this is an information-sharing article regarding research-informed practice rather than the result of a research project, formal research is recommended as a next step to establish external validity and further the field’s knowledge of this topic.

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