Burden, attitudes and social support in the families of patients with long-term physical diseases

2004 ◽  
Vol 13 (4) ◽  
pp. 255-261 ◽  
Author(s):  
Lorenza Magliano ◽  
Andrea Fiorillo ◽  
Corrado De Rosa ◽  
Claudio Malangone ◽  
Mario Maj ◽  
...  
Keyword(s):  
Social Network ◽  
Population Density ◽  
Geographic Location ◽  
Scientific Work ◽  
Geographic Area ◽  
Professional Support ◽  
Drug Companies ◽  
Practical Support ◽  
Physical Diseases

SummaryAims – To describe in a sample of 646 relatives of patients with physical long-term illnesses: a) the relatives' burden of care; b) the relatives' attitudes towards the patients; c) the social and professional support received by the families. Methods – The study has been carried out in 30 Italian geographic areas randomly selected taking into account geographic location and population density. The sample has been consecutively recruited in 139 specialised units for the treatment of chronic heart, brain, diabetes, kidney, and lung diseases. Family burden was evaluated in relation to: a) family's socio-demographic variables and patients' clinical variables; b) relatives' attitudes toward the patient; c) social and professional support; d) geographic area and population density. Outcome measures – Family Problems Questionnaire, physical illness version (QPF-O) and Social Network Questionnaire (QRS). Results – The consequences of caregiving most frequently reported were constraints in social and recreational activities, and feelings of loss. Burden was more marked in relatives of patients with higher physical disabilities, with neurological illnesses, and in relatives with lower support by their social network. Conclusions – These data highlight the need to provide psychological and practical support to caregivers of patients with long-term physical diseases on the basis of the evaluation of their needs for care.Declaration of Interest: none of the five authors has had any interest or received any form of support, including that from drug companies and honoraria for lectures and consultancies, potentially in conflict with this scientific work, in the last 2 years.

Comparing the social networks of service users with long term mental health needs living in community with those in a general adult in-patient unit

2021 ◽  
pp. 002076402110175
Author(s):  
Roberto Rusca ◽  
Ike-Foster Onwuchekwa ◽  
Catherine Kinane ◽  
Douglas MacInnes
Keyword(s):  
Mental Health ◽  
Social Networks ◽  
Social Network ◽  
Patient Group ◽  
Mental Health Problems ◽  
Well Being ◽  
Health Problems ◽  
Practical Support ◽  
The Social

Background: Relationships are vital to recovery however, there is uncertainty whether users have different types of social networks in different mental health settings and how these networks may impact on users’ wellbeing. Aims: To compare the social networks of people with long-term mental illness in the community with those of people in a general adult in-patient unit. Method: A sample of general adult in-patients with enduring mental health problems, aged between 18 and 65, was compared with a similar sample attending a general adult psychiatric clinic. A cross-sectional survey collected demographic data and information about participants’ social networks. Participants also completed the Short Warwick Edinburgh Mental Well-Being Scale to examine well-being and the Significant Others Scale to explore their social network support. Results: The study recruited 53 participants (25 living in the community and 28 current in-patients) with 339 named as important members of their social networks. Both groups recorded low numbers in their social networks though the community sample had a significantly greater number of social contacts (7.4 vs. 5.4), more monthly contacts with members of their network and significantly higher levels of social media use. The in-patient group reported greater levels of emotional and practical support from their network. Conclusions: People with serious and enduring mental health problems living in the community had a significantly greater number of people in their social network than those who were in-patients while the in-patient group reported greater levels of emotional and practical support from their network. Recommendations for future work have been made.

Causes and psychosocial consequences of schizophrenia: the opinions of Italian population

2003 ◽  
Vol 12 (3) ◽  
pp. 187-197 ◽  
Author(s):  
Lorenza Magliano ◽  
Corrado De Rosa ◽  
Andrea Fiorillo ◽  
Claudio Malangone ◽  
Manuela Guarneri ◽  
...  
Keyword(s):  
Scientific Work ◽  
Geographic Area ◽  
Mental Illnesses ◽  
Case Vignette ◽  
Italian Population ◽  
Drug Companies ◽  
Psychosocial Consequences ◽  
Catchment Areas ◽  
Icd 10 ◽  
Nervous Breakdown

SummaryObjective – Description of opinions on schizophrenia and its psychosocial consequences in a sample of general population. Methods – The study has been carried out in 29 GP units stratified by geographic area and population density of their catchment areas and randomly selected. Each respondent was asked to read a case-vignette describing a patient who met ICD-10 criteria for schizophrenia, and then to fill the Questionnaire on the Opinions about Mental Illness General Population's version (QO-GP). Results – Data on 714 respondents were collected. 21% of the sample identified a case of schizophrenia, 66% of depression/anxiety disorder, and 13% of “nervous breakdown”. Factors most frequently mentioned as causes of detected disorder were stress (72%), heredity (62%), family difficulties and psychological traumas (45%). More pessimistic opinions about psychosocial consequences of schizophrenia were found among respondents with lower educational level and older age. Respondents who referred the case-vignette to schizophrenia reported more pessimistic opinions about psychosocial consequences of detected disorder. Conclusions – The results of this study outline the need to plan educational campaigns on mental illnesses, which take into account the socio-cultural characteristics of the target populations.Declaration of interest: none of the seven authors has had any interest or received any form of support, including that from drug companies and honoraria for lectures and consultancies, potentially in conflict with this scientific work, in the last 2 years.

Being informed and involved in treatment: what do psychiatric patients think? A review

2004 ◽  
Vol 13 (4) ◽  
pp. 270-283 ◽  
Author(s):  
Monica Paccaloni ◽  
Tecla Pozzan ◽  
Christa Zimmermann
Keyword(s):  
Information Needs ◽  
Psychiatric Patients ◽  
Scientific Work ◽  
Decision Processes ◽  
Treatment Programs ◽  
Treatment Expectations ◽  
Personal Problems ◽  
Drug Companies

SummaryAims – A narrative review of studies on the information needs of psychiatric patients, the knowledge of their diagnosis and treatment expectations. Methods – A literature review, limited to studies between 1980 to 2003, was carried out using Medline and Psychlnfo databases. Results – Sixty five studies of interest were identified. Less than half of the psychiatric patients know their diagnosis and patients affected by schizophrenia are the least informed. Notions about aetiology and treatment are patchy, and the concept of ‘multifactorial cause’ seems unknown. Little knowledge emerged about drugs and side effects, expecially in the long term. Patients want to be informed, involved in decisions and their treatment programme. They feel that their psychiatrists are more interested in pharmacological aspects than in their personal problems. Conclusions – A better quality of communication, the involvement of patients in decision processes and meeting patients' information needs is necessary to improve therapeutic relationships, to encourage greater compliance with treatment programs and to reduce the stigma of psychiatric illness.Declaration of Interest: none of the three authors has had any interest or received any form of support, including that from drug companies and honoraria for lectures and consultancies, potentially in conflict with this scientific work.

Family psychoeducational interventions for schizophrenia in routine settings: impact on patients' clinical status and social functioning and on relatives' burden and resources

2006 ◽  
Vol 15 (3) ◽  
pp. 219-227 ◽  
Author(s):  
Lorenza Magliano ◽  
Andrea Fiorillo ◽  
Claudio Malangone ◽  
Corrado de Rosa ◽  
Grazia Favata ◽  
...  
Keyword(s):  
Social Functioning ◽  
Clinical Status ◽  
Family Intervention ◽  
Scientific Work ◽  
Psychoeducational Intervention ◽  
Professional Support ◽  
Perceived Support ◽  
Social Contacts ◽  
Drug Companies ◽  
Psychoeducational Interventions

SUMMARYObjective — This study explored the effectiveness of a psychoeducational family intervention for schizophrenia on patients' clinical status and disability and relatives' burden and perceived support. Methods — The study has been carried out in 17 mental health centres. In each of them, 2 professionals were trained in a psychoeducational intervention and applied it for six months with families of users with schizophrenia. At baseline and six months later, patients' clinical status and disability, and relatives' burden, social network and professional support were assessed by validated tools. Results — Of the seventy-one recruited families, 48 (68%) completed the intervention. At six months, a significant improvement was found in patients' clinical status and social functioning, as well as in relatives' burden and social and professional support. In particular, the percentage of patients with poor or very poor global social functioning dropped from 50% to 27% at six months. Forty percent of patients and 45% of relatives reported a significant improvement in their social contacts over the intervention period. Conclusions — The results of this study confirm the hypothesis that psychoeducational family interventions may have a significant effect on social outcome and family burden in schizophrenia when provided in routine conditions.Declaration of Interest: none of the authors has had any interest or he/she has received any form of support, including that from drug companies and honoraria for lectures and consultancies, potentially in conflict with this scientific work. None of the authors has received any form of fee for his/her participation in this study. This study was supported by grants received from the “M. Lugli” Foundation (grant n. 2/18/8) and from the National Institute of Health, Italy (grant no. 1AL/F3).

The Multilevel p2 Model

Methodology ◽  
2006 ◽  
Vol 2 (1) ◽  
pp. 42-47 ◽  
Author(s):  
Bonne J. H. Zijlstra ◽  
Marijtje A. J. van Duijn ◽  
Tom A. B. Snijders
Keyword(s):  
Social Network ◽  
Network Data ◽  
Mcmc Algorithm ◽  
Independent Observation ◽  
Single Observation ◽  
Multiple Networks ◽  
Social Network Data ◽  
Multiple Observations ◽  
Practical Support ◽  
The Social

The p 2 model is a random effects model with covariates for the analysis of binary directed social network data coming from a single observation of a social network. Here, a multilevel variant of the p 2 model is proposed for the case of multiple observations of social networks, for example, in a sample of schools. The multilevel p 2 model defines an identical p 2 model for each independent observation of the social network, where parameters are allowed to vary across the multiple networks. The multilevel p 2 model is estimated with a Bayesian Markov Chain Monte Carlo (MCMC) algorithm that was implemented in free software for the statistical analysis of complete social network data, called StOCNET. The new model is illustrated with a study on the received practical support by Dutch high school pupils of different ethnic backgrounds.

Gran Paradiso: Erkenntnisse aus der sich natürlich regulierenden Steinbockpopulation|Gran Paradiso: Conclusions from the naturally regulated Capricorn population

2007 ◽  
Vol 158 (11) ◽  
pp. 349-352
Author(s):  
Grégory Amos ◽  
Ambroise Marchand ◽  
Anja Schneiter ◽  
Annina Sorg
Keyword(s):  
Nineteenth Century ◽  
Population Density ◽  
National Park ◽  
Optimal Management ◽  
Capra Ibex ◽  
Large Fluctuations ◽  
The Alps ◽  
Gran Paradiso ◽  
Gran Paradiso National Park

The last Capricorns (Capra ibex ibex) in the Alps survived during the nineteenth century in the Aosta valley thanks to the royal hunting reservation (today Gran Paradiso national park). Capricorns from this reservation were successfully re-introduced in Switzerland after its Capricorn population had disappeared. Currently in Switzerland there are 13200 Capricorns. Every year 1000 are hunted in order to prevent a large variation and overaging of their population and the damage of pasture. In contrast, in the Gran Paradiso national park the game population regulates itself naturally for over eighty years. There are large fluctuations in the Capricorn population (2600–5000) which are most likely due to the climate, amount of snow, population density and to the interactions of these factors. The long-term surveys in the Gran Paradiso national park and the investigations of the capacity of this area are a valuable example for the optimal management of the ibexes in Switzerland.

35 Social Contact Mode and 15-Year Episodic Memory Trajectories in Older Adults with and Without Hearing Loss: the Elsa Study

2021 ◽  
Vol 50 (Supplement_1) ◽  
pp. i7-i11
Author(s):  
S Rafnsson ◽  
A Maharani ◽  
G Tampubolon
Keyword(s):  
Older Adults ◽  
Hearing Loss ◽  
Social Network ◽  
Episodic Memory ◽  
Social Interactions ◽  
Social Contact ◽  
Sensitivity Analyses ◽  
Impaired Hearing ◽  
Contact Mode

Abstract Introduction Frequent social contact benefits cognition in later life although evidence is lacking on the potential importance of the modes chosen by older adults for interacting with others in their social network. Method 11,513 participants in the English Longitudinal Study of Ageing (ELSA) provided baseline information on hearing status and social contact mode and frequency of use. Multilevel growth curve models compared episodic memory (immediate and delayed recall) at baseline and long-term in participants who interacted frequently (offline only or offline and online combined), compared to infrequently, with others in their social network. Results Frequent offline (β = 0.29; p < 0.05) and combined offline and online (β = 0.76; p < 0.001) social interactions predicted better episodic memory after adjustment for multiple confounding factors. We observed positive long-term influences of combined offline and online interactions on memory in participants without hearing loss (β = 0.48, p = 0.001) but not of strictly offline interactions (β = 0.00, p = 0.970). In those with impaired hearing, long-term memory was positively influenced by both modes of engagement (offline only: β = 0.93, p < 0.001; combined online and offline: β = 1.47, p < 0.001). Sensitivity analyses confirmed the robustness of these findings. Conclusion Supplementing conventional social interactions with online communication modes may help older adults, especially those living with hearing loss, sustain, and benefit cognitively from, personal relationships.

scholarly journals Health risk assessment and countermeasure analysis of the elderly population exposed to PM2.5 microenvironment

Work ◽  
2021 ◽  
pp. 1-11
Author(s):  
Yan Xu ◽  
Wantian Cui
Keyword(s):  
Mental Health ◽  
Health Risk ◽  
Elderly Population ◽  
Mental Health Problems ◽  
Negative Impact ◽  
The Elderly ◽  
Exposure Concentration ◽  
Physical Diseases ◽  
The Impact

BACKGROUND: China’s atmospheric PM2.5 pollution is serious, and PM2.5 exerts a negative impact on the human respiratory system, cardiovascular, and mental health, and even more serious health risk for the elderly with weak immunity. OBJECTIVE: This work aims to analyse the impacts of PM2.5 microenvironment exposure on the health of the elderly and provide corresponding countermeasures. METHODS: The survey subjects are 118 retired elderly people in the community. PM2.5 exposure concentrations are monitored in summer (June 10 ∼ July 10, 2019) and winter (November 25 ∼ December 25, 2019). RESULTS: The exposure concentration in winter is higher than that in summer, with statistical difference (P <  0.05). Under the impact of PM2.5 microenvironment exposure, smoking in the elderly can increase the concentration of PM2.5, and long-term exposure to PM2.5 in the elderly can cause mental health problems. CONCLUSION: Long-term exposure of the elderly to the PM2.5 microenvironment leads to physical diseases and even psychological problems, which requires attention.

scholarly journals Identifying Project Corporate Behavioral Risks to Support Long-Term Sustainable Cooperative Partnerships

2021 ◽  
Vol 13 (11) ◽  
pp. 6347
Author(s):  
Marco Nunes ◽  
António Abreu ◽  
Célia Saraiva
Keyword(s):  
Social Network ◽  
Project Management ◽  
Social Network Analysis ◽  
Network Analysis ◽  
Building Blocks ◽  
Research Literature ◽  
Management Tools ◽  
Dynamic Interactions ◽  
Major Factors

Projects are considered crucial building blocks whereby organizations execute and implement their short-, mid-, and long-term strategic visions. Projects are thought, developed, and implemented to solve problems, drive change, satisfy unique needs, add value, and exploit opportunities, just to name a few objectives. Although existing project management tools and techniques aim to deliver projects with success, according to the latest reviewed literature, projects still keep failing at an impressive pace. Among the extensive list of factors that may threaten project success, several articles from the research literature place particular importance on a still underexplored factor that may strongly lead to unsuccessful project delivery. This factor—usually known as corporate behavioral risks—usually emerges and evolves as organizations work together to deliver projects across a bounded period of time, and is characterized by the mix of formal and informal dynamic interactions between the different stakeholders that constitute the different organizations. Furthermore, several articles from the research literature also point out the lack of proper models to efficiently manage corporate behavioral risks as one of the major factors that may lead to projects failing. To efficiently identify and measure how such corporate behaviors may contribute to a project’s outcomes (success or failure), a heuristic model is proposed in this work, developed based on four fundamental fields ((1) project management, (2) risk management, (3) corporate behavior, and (4) social network analysis), to quantitatively analyze four critical project social networks ((1) communication, (2) problem-solving, (3) advice, and (4) trust), by applying the theory of social network analysis (SNA). The proposed model in this work is supported with a case study to illustrate its implementation and application across a project lifecycle, and how organizations can benefit from its application.

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